Mumsnet has not checked the qualifications of anyone posting here. If you have any medical concerns we suggest you consult your GP.

Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

(1000 Posts)
Bladderama Tue 01-Oct-13 18:12:29

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

MustTidyUpMustTidyUp Sun 06-Oct-13 11:01:08

Good luck tomorrow Linda

Footle Sun 06-Oct-13 11:20:02

lotsofquestions, of course you should tell people about it ! Someone was saying upthread that she was the only one among her friends having this sort of problem. Oh no she isn't - or if she is , it won't be for long. The problem is lack of openness about prolapses and other damage. It's very common indeed.

jcakec Sun 06-Oct-13 12:17:57

Good luck to those of you about to undergo operations this week. I am now 4 weeks post op for a rectocele repair. i can say I was terrified and kept putting off having it done and thought I was going to run away right up to when they put me under (the anethetist was so kind and understanding and made me more relaxed - unlike the surgeon on the day, who was not the consultant that I had been seeing, she was very abrupt and demanded to know why I was having it done at my age (49) as I was too young and it would just return in a few years and I'd be back again for more surgery, like it was something I just felt like having done on a whim!) Anyway sorry got a bit sidetracked there - the op was fine and felt ok afterwards, I was in for 2 nights and quite enjoyed being looked after. constipation was and still is a big problem even though I take stuff everyday for it. I would just stress the need to take it very easy, I have had a lot of pain which has made me not do too much, a friend of mine had it done earlier in the year and felt very little pain so started doing too much and the prolapse returned quite quickly. I still can't sit comfortably and ache if I stand too long, I am also getting pains in my bum and when I do the pelvic floor excercses it hurts - has anyone else had this problem?

mrsclairet Sun 06-Oct-13 19:20:46

Hi I have tried posting on the facebook closed group but have to say you seem a lot friendlier and more supportive here, I felt a bit like I was being interrogated by some people over there!

I have arranged to see a consultant privately who it says on his internet page specialises in the treatment of women where previous prolapse operations have failed so I feel a bit more hopeful that he may be able to sort me out but I have to wait until the 14th before he can see me. But if he does manage to sort me out I have done all this off my own back and had to pay £250, then I don't know if he will be able to treat me on the NHS or I will have to pay. But I won't know anything till the 14th so Iknow I just have to wait!

Bladderama Sun 06-Oct-13 20:35:41

Musttidyup hope that you are resting up and recovering well x

Lindamagoo will be thinking of you tomorrow, the waiting is the worst bit.

JCake that is awful what the surgeon said to you just prior to your surgery]. 4 weeks is also very soon and I did still have lots of pain is various places when standing for 12-14 weeks. Try and listen to your body and get plenty of rest you still have a long way to go be fully healed.

Westcountry so very sorry to hear that things have not gone well for you, that sounds horrendous what you have been left with. I was aware that there could be pain after surgery from scarring but not from nerve damage. Hope that you get some help from the right Dr soon and I also agree that it helps to hear all outcomes from these consultations/surgeries. This thread has made me realise that advice is very very varied as is the types of treatment available and success of the treatments.

Lotsofquestions I did not tell anybody other than my DH what surgery I was having, so not friends, family or work. I did discuss it with the Occupational Health team at work so that they could sort out a phased return. But I have had to confide in a team manager in the last few weeks because I am really struggling with being on my feet again. The dragging back ache kicks in after about 30 minutes. I am gutted after being pain free for a year. I have changed my work load to help and I wish that I had told them at the beginning then maybe I would not have over done things this year.

Mrsclairet I hope that all goes well on the 14th, it is very common to see a private consultant and then be added onto their NHS list, and very positive that they specialise in prolapse troubles.

Bladderama Sun 06-Oct-13 20:53:32

mrsclairet I am also seeing my consultant on 14th so will join you in the waiting!

kianaidan Sun 06-Oct-13 21:20:43

Curly - Could I ask is your prolapse a rectocele or rectal prolapse through the back passage. I have rectal prolapse and struggling fpr advise.as seems very rare.

lotsofquestions000 Mon 07-Oct-13 08:40:43

jcake - thanks for that - it is a terribly big decision to have this done anyway, like you said we would hardly get it done on a whim. It is a scary thought that it could return in the future anyway - the thought of going through this twice is horrendous but Im just kind of thinking that we will never know that one way or the other if we dont get it done and also how much of a worse state would we be in if we didnt get it done. I'm thinking of having a sex change and becoming a man instead - that would solve the problems lol!. I just want to return to a) normal and b) being able to have an active and full life in the future - so as with you all fingers crossed and pray for good outcomes

MustTidyUpMustTidyUp Mon 07-Oct-13 14:21:20

Have been so uncomfortable for a couple of days with very itchy and stingy stitches, couldn't sleep last night. Spoke to gp this morning who has prescribed some magic cream! It's cannestan HC and even one application has made the world of difference. Hurrah!

Noordinarygirl Mon 07-Oct-13 20:33:40

Very ticked off this evening. My pessary ring, which is meant to hold my cervix up, has dropped again and feels very uncomfortable. Have had to go back to have it changed twice already. The last time I went it felt much better - I couldn't even really feel it was there. Sadly, whatever I've done in the last day or so has dislodged it and it feels bloody horrid now. Very grumpy and very pissed off with it all now. Op isn't until 2nd Jan and can't take much more of it all falling out! Sorry for the moan people.

Mandz07 Mon 07-Oct-13 21:50:23

Hi everyone, I wrote here a while ago looking for people to talk to that where going through the same thing or similar as myself and had some great advice. It's been a while since iv posted anything ( trying to be brave and keep it all to myself) but after 3 years of test I find out the end of this month if I am going to have a colostomy bag fitted and I'm terrified that l will have to and that it will be permanent! The specialist told me the only way they will know if it will be permanent is to have it done then a few months later they may be able to remove large intestine and my bowel will only use the small intestine. After all this time I should be happy that they are finally doing something that should improve my health an my life but I am terrified. Sorry all I know I have rambled on it just seemed to help to write it all down xx

Noordinarygirl Mon 07-Oct-13 21:59:34

OMG Mandz, what is your 'back story'? It sounds terrible for you. I send you all my cyber hugs and hope things go the way you want eventually. Try to keep smiling.....we're all here to support you.

MustTidyUpMustTidyUp Mon 07-Oct-13 22:39:23

That's awful noordinarygirl how long wil you have to wait to have it refitted? It must drive you crazy. Is it worth trying to get your op brought forward?
It is so much a lottery with where you are isn't it? I was offered my operation pretty much straight away if I wanted it but they were happy to let me have 6 months so home circumstances would be more settled. I appreciate how lucky I've been when I hear other stories on here.
linda I hope all went well yesterday and you are not suffering too much.

kianaidan Tue 08-Oct-13 08:16:00

Mandz I.m so sorry you.ve had such an awful time. Not sure if it would help but on youtube there was an embarrassing bodies segment where a lady talked about her colostomy bag which was permanent (yours I.m sure will be tempirary. Anyway she was very smart young the bag didn.t look that bad and tucked nicely under her clotges. She explained she stil goes swimming, doesn.t smell etc. She said people with.bags have a saying bag or box as in order tov live they need the bag. I wish u healing thoughts and hopefully now after a 2 yr wait ur on the road to recovery x

lotsofquestions000 Tue 08-Oct-13 10:24:43

Oh Mandz - poor you. I really do hope you get everything sorted out and it is not permanent.

Noordinary - I can imagine how you are feeling. I was given a pessary to try - felt amazing 'light' until it came out the next day, didn't bother again after that. So have been going round for the 8 months feeling uncomfortable. That was my choice though as wanted the op done this time of year. Try to think positive that Jan isnt that far away, and the distraction of xmas and the planning required for it will make it go quicker. take care all

Noordinarygirl Tue 08-Oct-13 19:46:28

Having the pessary not in the right place feels awful. Like a heavy weight inside low down. I can go to a walk-in clinic on Thursday and hopefully they'll put it back where it should be.

I can't get the op brought forward as it's the first free slot they have on the consultants list that's long enough. Anyway my older daughter bought me tickets to see War Horse in Manchester at the end of November and I'm not missing that for the world - the tickets are like rocking horse pooh and we hope to do some Christmas shopping and stay overnight too. I'm determind that this thing doesn't stop me doing what I want to, as far as possible. Me and my partner both work in a theatre and he'll be up to his neck in 'It's behind you' etc for 42 performances! So actually if I can get this pessary sorted out for a few more weeks I'll be OK. Positive thinking is the way forward now after having felt pretty rubbish for a while.....onwards and upwards and fingers crossed for Thursday.

abigboydidit Wed 09-Oct-13 08:45:00

Hi folks. I've been trying with the Neurotrac stimulator for the past week so am hoping they will see some improvement at next physio appt. To ask a naive question, does anyone ever manage to get their walls/floor strong enough to live without discomfort (being able to run or do high impact exercise) without surgery? I just wonder if am delaying the inevitable hmm

Footle Wed 09-Oct-13 11:49:05

Someone posted on this thread in the last month or so about buying her own ring pessary online because the NHS one was too uncomfortable or didn't stay in. She was very happy with the new one. You might search for the link she posted, or just for the site ?

MustTidyUpMustTidyUp Wed 09-Oct-13 13:42:26

abigbiydidit I had pelvic physio for a year and made PF stronger and prolapses no worse but didn't make them better. Think it stopped me from felling I was going to wet whilst running /high impact exercise though. So maybe Improved the cystocele but not rectocele? My cystocele is mild though and they didn't touch it when I had op.

McKTastic Thu 10-Oct-13 10:25:32

Hope it's ok to post here. I've read a few bits of threads over the last few weeks & would really appreciate some advice. When I opened this thread to post it abigboydidit's first post struck home.

I had a vbac 14weeks ago. Baby flew out - no pushing but second degree tear. Had awful problems with piles in immediate weeks after. On the whole these are better but BM could prob improve with diet. My period seems to have returned (when DS was 10 & a half weeks. I'm BFeeding as I did with my first baby. I had 16 glorious period free months then so am peeved at that one!) Second one should be imminent.

I have had really bad pelvic pain since birth of DS. GP told me at my 6 week check to take paracetamol & it should improve over time. It hasn't so far. I saw a different GP yest as I've now been having the dragging feeling down below - it feels like a tampon is stuck & being pulled out. I have a feeling of fullness too. It may well be that it's hormone related but I've been aware of the feeling for at least the last five weeks. It's now pretty constant, uncomfortable & occasionally prevents my bladder from emptying fully.

I've looked in the mirror & sometimes it looks like there's round lumps where there weren't any. Internally it feels much as it did though hmm I haven't DTD since having baby partly bce I have no desire (happened first time too) & now bce I'm terrified I'll hurt myself.

GP said all feels fine/ Uterus well supported/ might be a v slight prolapse at the front ?!?/ 'you're never the same after a vaginal birth' & need to do more pelvic floor exercises. I asked about physio - she didn't think there was much point as physio can't be with me all the time I do my exercises ?!?

I was v uncomfortable last night, didn't sleep much & had to dose up again on ibuprofen & paracetamol. I know it's early days & I'm hopeful it's just a 'more time' thing BUT it's getting me down now & terrified that it's actually going to get worse not better.

I know I'm not long post birth, I have a shed load of weight to shift, thyroid issues, virtually zero core muscles & getting used to the joys of period pains again but I would be very grateful if in your experience I should accept what GP has said & 'wait & see' or what I can do to take it further/get more advice & support at this stage.

Apologies for the length/self indulgence of this post.

Hope everyone who is suffering gets to a better place soon. There are some very strong, inspirational women on this thread.

lotsofquestions000 Thu 10-Oct-13 10:35:55

abigboy - my GP just looked at me and said that no amount of PFs would fix it and that I needed surgery

RainInTheSky Thu 10-Oct-13 15:14:04

McKTastic, Your GP is incorrect. A good physio may well help you do your pelvic floor exercises better. I just saw one and she used an ultrasound to make sure I was doing them correctly. I was actually able to see my bladder moving slightly back in the right direction and I could refine the movement I was making to get the maximum effect. She also assessed the state of my pelvic floor muscles and gave me lots of good advice.

For example my pelvic floor muscles are so weak I can only do exercises effectively lying down until they get stronger. The physio also said that 60% of the women she treats will improve their prolapses enough not to need surgery which is also very encouraging. I had thought the percentage was going to be 0%!

That said I also saw a physio on the NHS a few weeks ago and they were rubbish. They gave me some bad advice to do pilates classes which I think made my symptoms worse as my pelvic floor was too weak to cope with it. That isn't a comment on NHS physio versus private physio, just to say that the quality of physiotherapists and their expertise in this area obviously varies. You need one who specialises in women's health.

If you live in London then PM me and I will let you know the name of the physiotherapist I have been to see in case they can help you too.

RainInTheSky Thu 10-Oct-13 15:33:39

MckTastic, Also if you are having pelvic pain insist on being referred by your GP to a Urogynaecologist or a Gynaecologist for a check to make sure nothing else is wrong.

For example I had a second degree tear after the birth of my son 11 weeks ago and have had various unpleasant symptoms since. The urogynaecolgist I have seen suspects I may have had a third degree tear during the birth rather than a second degree tear and is sending me for tests to find out.

My GP (although lovely and kind and helpful) didn't pick up on this at all during my 6 week check and thought that aside from a bit of a prolapse everything looked fine.

The problem is that GPs aren't experts in this area. They could have a six week post natal check, a kid with a snotty nose, someone with MS and an elderly person with dementia to see in the course of an hour. It is impossible for them to know everything about all these different areas of medicine.

kianaidan Thu 10-Oct-13 15:59:52

I used a private physio Jenny Heron at Physiofit Leeds she wss fab. Now on nhs physio and only had 1 appt but she didn.t even chk me and the scheduled next appt for another month away! Raininthesky - I.m 12wks pp and fear I may have torn more than they predicted and also my stitches came out. Docs habe said its healed fine and no neef to restotch bit it feels so open. Also been diagnosrd with mild prolapse but fear I may have an internal rectal prolapse also.

mrsclairet Thu 10-Oct-13 21:24:13

'm not really expecting anyone to reply to this as it's a bit rambly but I need to get it off my chest.
Owww I am in so much pain, I have had 2 episodes of this now, it feels like a burning stinging pain and it feels like everything is 'swollen' down below. The first time I ended up on 3 lots of antibiotics but I actually think it's thrush, when the test they sent off to the lab came back there was no infection. I have taken a canesten oral, it has been 24 hours now and it doesn't feel any better. I am supposed to be having a biofeedback session tomorrow but really can't face it, I could cancel it but they would charge me £25 as it's a private hospital or I could phone and say I'm ill but have already done that once so not sure if they would believe me!

Has anyone else had this? I remember someone saying they had been put on a low dose of thrush treatment for a while. I am wondering about coming off the pill as I have read somewhere that can make you more prone to thrush. It's actually worse than the prolapse symptoms! But also I have got a kidney stone and someone I spoke to said that was the most painful thing ever and they could feel it move through so it could be that but then I have got a discharge and it's a bit itchy which I don;t think you'd get with a stone. I guess I will have to wait till monday and see what the consultant says.

This thread is not accepting new messages.