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anyone else suffer with Hidradenitis Suppurativa

(7 Posts)
pinkbear82 Thu 05-Sep-13 21:00:48

I have since I was about 8. And just having a bad flare atm and wanted to moan about the pain and how it makes me feel.

wondered if anyone else here has the same horrible problem and wanted to share

lilac26 Tue 10-Sep-13 19:43:53

Hi, I have this. Horrible isn't it. I have been taking lymecycline for a few months now and, touch wood, have had no flare ups since. Mind you, I do still have a hideous festering thing in my armpit that just won't go away. I am thinking that if the lymecycline continues to do its job and keep it at bay I might ask in a few months about having the thing in my armpit cut out.

IwishIwasmoreorganised Tue 10-Sep-13 19:46:17

I was diagnosed with this a couple of years ago after having a 'spot' in my groin that just wouldn't go.

I was given a course of antibiotics to take and some spares for the next time it flared up. The 2nd batch have now expired - I haven't needed to use them thank goodness.

Sorry to hear that yours is so bad OP - have you seen a dermatologist recently?

gidgea Wed 16-Oct-13 19:49:25

ive had surgery under each my armpits and ive not had a flare up since. However I do still suffer in the groin area despite losing 5 stone to get to a normal bmi and stopping smoking. I can sympathise with you as its a horrendous condition to live with. when I was first diagnosed I didn't talk to anyone about it through embarrassment. I now tell anybody who will listen and it's amazing how common the problem is. Most people I speak to either suffer from it or have a close friend/relation who does x

goodasitgets Thu 17-Oct-13 00:49:18

Suspected. GP won't diagnose it as such. I get lumps in my groin and last year a random open hole appeared that took ages to go
This year had a sore armpit, hole appeared, took ages to close. Closed up but felt sore about 6 inches below, barely touched it and hole reopened sad
Currently with iodine dressings the wound has closed but my armpit hurts like hell tonight. Am on antibiotics for it

HansieMom Fri 18-Oct-13 01:23:48

I suggest those of you with this read up on turmeric. It is a spice. You can take tablets of it or take it as a powder, and you can make it into paste and apply it as poultice. It can start tingling in ten minutes.
It sounds miraculous so I tout its value. You can read about it on earth clinic, or just google it.

EBearhug Fri 18-Oct-13 01:29:30

Just remember turmeric stains anything a bright yellow, and is a bugger to wash out, so just make sure you don't get it on clothes.

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