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Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

General health

Feel like my life is ruled by pain

35 replies

LargeGlassofRed · 24/08/2013 07:50

Woke up in agony again, it's been getting worse the last few days, I have pluratic type pain on the lower right side of my chest, been going on for months.
I've got morphine for when it's at it worse which I've been taking the last few days, along with cocktail of ofher stuff,
Feeling completely overwhelmed by it this morning
Suppose to be having a lie in for my birthday but pain is forbidding that.

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LargeGlassofRed · 24/08/2013 08:42

Balls have a temp too, :(

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OddBoots · 24/08/2013 08:49

Oh dear, that does sound miserable. It doesn't sound like the pain has been diagnosed yet, have the doctors given any suggestions? Is the raised temperature new?

I hope it's not crass of me to wish you a happy birthday anyway.

LargeGlassofRed · 24/08/2013 08:55

Thanks boots, I have sarcoidosis but they don't really know why I get this specific pain,
Temp new, I'm on immuneo surpressence and steroids so will have to see a dr if it stays up :(
Thanks for the birthday wishes :)

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MusicalEndorphins · 24/08/2013 09:04

I am sorry you are unwell on your birthday. I remember one time when I had a painful ear infection and was miserable, and someone brought over a box set of LOST. I had not seen LOST until then, it really helped distract from the pain. Could you watch some tv to distract you? Hope you are on the mend and better soon. Happy Birthday.

LargeGlassofRed · 24/08/2013 15:54

Been admitted :( massive infection but not sure. where

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Mintyy · 24/08/2013 15:57

Oh you poor thing, I'm so sorry . How miserable for you. Hope they get the pain under control soon.

OddBoots · 24/08/2013 19:12

Oh goodness, how horrible, especially on your birthday. I hope thye get the infection under control quickly.

OddBoots · 25/08/2013 09:00

How are you doing today?

LargeGlassofRed · 25/08/2013 12:59

Thanks, for asking, I have a urine infection and chest infection so on lots of antibiotic s also Kidneys aren't working properly so going for kidney scan,

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fanjoforthemammaries7850 · 25/08/2013 13:14

Hope now it has come to a head they will get to bottom of it once and for all

MusicalEndorphins · 25/08/2013 16:01

No wonder you felt terrible! But you are in the best place for now, they can pump you full of medicine and nice and hydrated, and you'll be up and out, dancing with a belated birthday hat on in no time. :)

LargeGlassofRed · 26/08/2013 20:22

Still in hospital they think something going on with my kidneys, so scan tomorrow, pulse temp and bp really high,
Current sats - temp 38+ pulse 125 it's been over 100 for 3 days.
And bp hit a high today of 186/119
Feel awful :(

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fanjoforthemammaries7850 · 26/08/2013 20:56

That's rough, I hope they can help you soon

RandomMess · 26/08/2013 20:58

What an awful birthday weekend

Hope they sort the problem out very quickly and you start improving.

essexgirl31 · 26/08/2013 21:01

So sorry to read you are unwell. I have done a lot of renal nursing if you have any questions.

Lots of healing vibes your way

LargeGlassofRed · 26/08/2013 21:51

Thanks all, that's really helpful thanks Essex, really haven't got a clue what going on with me, I think the blood pressure has something to do with the kidneys though?

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magso · 26/08/2013 23:26

Sorry you are so I'll again. Hope you are being well cared for and soon feeling better.

essexgirl31 · 27/08/2013 19:55

Hope you are feeling a bit better today. Blood pressure and kidneys are very much linked.

magso · 29/08/2013 08:54

How are you doing today?

LargeGlassofRed · 29/08/2013 21:22

Still in hospital I have pneumonia now :(

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OddBoots · 30/08/2013 15:45

Oh no, you poor thing, you really are going through it.

magso · 30/08/2013 17:13

Thinking of you. Hope you are feeling less ill soon.

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Gigondas · 30/08/2013 17:17

No wonder you feel so ill. Can you get a pain specialist referral?

Morphine did nothing for my pain except making me feel out of it but I was given new lease of life after seeing specialist who put me on mix of synthetic morphine, nerve painkiller and steroids. Ime you do need a specialist as most drs don't have clue .

essexgirl31 · 02/09/2013 11:46

Hope you are feeling a bit better

LargeGlassofRed · 04/09/2013 02:41

Still in hospital, getting on top of pneumonia,
now but having a major neuro flare up, left side weekness, numbness pins and needles, double vision, balance gone to pot.
Head neuro came to look at me today and not happy with my neuro exam, so ordered a head and spine mri.
Really really want to get home though, it's been 12 days now :( they started high dose steroids yesterday as apposed to the usual maintenence dose and are hoping that will have an affect.
Thanks for all the messages feeling very alone in al this at the moment so lovely to have the support.

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