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Has anyone had a neurectomy?

(87 Posts)
FeetStreet Thu 25-Jul-13 22:13:59

Hi, I'm booked in for a foot neurectomy and have been told it will be very painful... I'd be really grateful to hear anyone else's experiences as it's come along quickly and I'm nervous!

orangeflutie Thu 25-Jul-13 22:44:25

Hi I had one in March last year. I started a thread titled Mortons Neuroma has anyone had this? I can't do the link but you should be able to find it. There's lots of info on it.


Footle Thu 25-Jul-13 23:10:29

I'm having surgery for two Morton's neuromas in one foot in a couple of weeks. I have not been told it will be incredibly painful. Now I'm worried. It all started with a bunion op - I hadn't expected to revisit that kind of pain. My surgeon says he has not done many of these ops, and seems pleased and interested. I was rather hoping he would take it in his stride..

orangeflutie Fri 26-Jul-13 08:18:41

Footle I can understand why you're worried. You do need to feel confident with the surgeon involved. I was quite scared just before I had my op but was reassured by the fact my surgeon had done a lot of neurectomies and a very kind nursing team.

I don't know where you live but can Pm details of my surgeon if you would like.

Sorry to op if I've hijacked a bit.

Footle Fri 26-Jul-13 08:51:26

Sorry OP, I think I was the highjacket.

Orangeflutie, I don't think there's any prohibition on naming a good surgeon ! I'm in NW UK.

FeetStreet Fri 26-Jul-13 10:58:07

Sorry both - I went to bed shortly after starting the thread bad form

I'm glad you hijacked as it's really good to hear from you, and I'll check your thread as that's exactly what I need to read thanks (mine's a Morton's neuroma too). Sorry you've got two of them Footle.

Mine's in a couple of weeks too. Have you had your pre-op assessment/discussion? What have they told you? My surgeon does lots of them he says, but he also said that they are more complicated than a bunion op as it's different tissue and sort of less obvious :/ However he said that he has a great success rate.

FeetStreet Fri 26-Jul-13 14:23:41

Thanks so much for referring me to your thread, orangeflutie, it was exactly what I needed to read. I've never met anyone else who's had this (apart from a woman on the ward who was having surgery when I had my steroid injection). Interesting to read that others have had a bad reaction to the steroid injection too - when I told the doctor this the reaction seemed to be that it's usually very good at improving things! They nearly put more in when they did an anaesthetic recently, and it was only because I'd spotted 'steroid' on my notes that I could beg them not to do it again!

Footle, how much time are you allocating to recovery, out of interest? smile

orangeflutie Fri 26-Jul-13 19:44:02

FeetStreet Happy to have helped and over a year on I've got a tiny scar and am back running. I definitely think the operation is worth having and I hope yours goes well.

Footle I'm not sure if I'm allowed to name surgeons publicly. I'll PM the details but appreciate that you live in the NW. I live in the SEsmile so depends how far you want to travel.

FeetStreet Fri 26-Jul-13 22:18:04

Thanks orange, I hope so too! It'd be wonderful to be able to run comfortably - I've had this for 9 years now so I just can't imagine it!

Footle Sat 27-Jul-13 22:26:29

Sorry, been busy, will post tomorrow

Footle Sun 28-Jul-13 17:55:53

FeetStreet, the surgeon said something about 10 day recovery "with any luck". I find this hard to believe, and I'd be interested to know what you were told. My pre-op is in a week, then the op a week later.
I'm retired though busy , but it's not like having to give work a return date.

FeetStreet Sun 28-Jul-13 20:31:10

Oh that's interesting footle. The surgeon and nurses said that I was to lie down in bed for two weeks, only getting up to go to the loo (and I will be having showers with the aid of a 'Limbo' dressing cover as I really can't bear the thought of going without for any amount of time).

They said you shouldn't even make your own food, as your foot would swell up too much and it would hamper the healing. I came home and told dh this and I'm pretty certain he thought I must be swinging the lead! It's going to be very odd as I've been looking after the children all day every day for the last five years next month, and it sounds like I'm going to be unable to do that at all.

Do you have someone to look after you? They said that you could be driving after three weeks, but it will be painful. I'm going to have to be up and running hobbling at the start of September but the nurse thought that sounded ok.

Footle Sun 28-Jul-13 21:18:00

FeetSt - I still have my Limbo from the bunion op - it's done the rounds of a few other people as well in the meantime. A lifesaver. Did you notice my "highjacket" in an earlier post ? That was an iPhone typo, not a medical device.

Well, the advice you've been given makes it sound a lot like the bunion recovery though that went on for months not weeks. You need to give some thought to a "cage" to keep the duvet from pressing on your foot. You can put a couple of small cushions each side under the covers if there's room. Don't let anyone into or on your bed who might kick ( that excludes anyone under about 3 ). You'll need a plastic stool or garden chair to sit on in the shower, or a bath board that fits over the bath if that's where your shower is. Take your painkillers regularly. No-one will be impressed at your fortitude if you don't, and it will be easier to cope if you don't give the pain a chance to take hold.

I feel much better prepared having read your posts, and I feel lucky that we're in touch. Which day is your op ? Mine is Aug 12th.

FeetStreet Sun 28-Jul-13 21:54:03

Footle, I do too! It's nice to go through it with someone, especially as it seems that most people don't know what a neuroma is and it's a bore to talk about it too much to non-sufferers...

My op is on the 8th August. I went in for a hypothetical chat about next steps (imagining something next year) last Wednesday, and left the hospital with an appointment in two weeks' time! The surgeon just walked into the room while I was talking to the podiatrist, and said "Why are you thinking of next year? Want it now?". So I'm still adjusting to the idea!

It's really useful advice you've given, thank you. I've heard that bunion surgery is excruciating, so I hope this won't be as bad for you, and sorry if I've put the frighteners on you unnecessarily. And you're well prepared with foot shielding techniques smile

Good to hear that the Limbo its job. I haven't received mine through the post yet, so I hope it fits as it's a bit late if not! I'll be offline for the next week, but will come back to the thread in a week's time. Oh, and I did spot the 'highjacket' - thought it might be some foot jargon until I worked it out! Have a good week.

FeetStreet Sun 28-Jul-13 21:54:45

Limbo does its job

orangeflutie Mon 29-Jul-13 07:32:58

I still have my limbo too, was fabsmile

Footle Mon 29-Jul-13 19:01:55

FeetSt, if you're going to be offline shall I PM you so we can find each other again ?

jchocchip Mon 29-Jul-13 19:07:48

that's what I may have. Have had an xray and have an ultrasound on Wednesday...

Footle Mon 29-Jul-13 20:36:43

jchoc, it's all the rage ! Let us know whether it is the same thing. Good that it's being taken seriously.

jchocchip Mon 29-Jul-13 21:41:33

Thanks. Its been jolly painful the day after running for ages. Got worse and finally went to gp. Scan appt took a month to arrange, xray was same week. Hope to get an answer now as missing the running...

Footle Tue 30-Jul-13 16:56:41

Does it not hurt when you actually are running ?

jchocchip Tue 30-Jul-13 19:11:50

Yes it did but carried on with ibruprofen for a while. Have had to give up heels/ non cushioned flats. Only wearing trainers or hotter sandals at the moment and no running sad

jchocchip Thu 01-Aug-13 00:11:28

Had scan. Maybe swelling on tendon rather than nerve, possibly bursitis? Will have to go back to gp for results propper...

Footle Thu 01-Aug-13 10:34:21

I hope it turns out to be something easily resolvable. My Morton's thing came on gradually after bunion surgery, at first a slight pulling feeling under the foot, increasing after a couple of years to a weird clunking toe and a feeling of walking on a large lump (which isn't actually there) and a nasty burning ache after being on my feet for a decreasing amount of time , now down to an hour max.
But other people may have different experiences so I don't know if this helps you at all.

jchocchip Thu 01-Aug-13 14:11:36

The feeling of walking on large lump that isn't there is it exactly. Problem seems to stem from between second/third toes and is worse after activity. Been rubbing on ibruprofen for a while, but not that effective now. Have had click when riding bike which may come from foot...

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