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Tamoxifen 34 *the power of Sauron*

(989 Posts)

new thread !!!

HerNextDoorAt21 Tue 23-Apr-13 19:49:10

X posted with nj ..... I LOVE good news xxxxx

HerNextDoorAt21 Tue 23-Apr-13 19:53:22

Hmmm my post disappeared !

amberlight Tue 23-Apr-13 19:56:35

NJ, hurrah!!
wine all round

<staggers to paranoia box and slumps over it, mutters something about s*dding day number 2 and thank goodness for a quiet day tomorrow, and falls fast asleep>

KurriKurri Tue 23-Apr-13 19:59:45

HND - you had me confused - I was looking for your post too grin - Your boob news sounds as if progress is definitely being made in the right direction, - but these things seem to take so long don't they, - I can imagine you are pretty sick of the pump by now sad

Hope BP has stabilized now Gigs and you are feeling OK.

Am still feeling a bit rough - slightly better than yesterday, but not great.

HerNextDoorAt21 Tue 23-Apr-13 20:13:32

Was posting to say that I got hurt at the Tissue Viability Nurse appointment today. The heavy handed nurse forced a drain with FAR too much gauze into my boob and caused a lot of bleeding and pain. I had to ask her ( after i had got to my car and realised how flipping painful it was) to remove it and redress it. Feeliing a bit sore and sorry for myself at the moment sad

Gigondas Tue 23-Apr-13 20:50:37

Bp but heart rate still a concern cos of anxiety and pain so are suggesting no visitors etc. just got to try and relax

amberlight Tue 23-Apr-13 20:53:12

HND argh re the pain and bleeding. What sort of bleeding nurse was that, eh? Grr.

Gigs, we shall send you a brace of musicians to serenade you into a relaxing slumber. <thumbs through the SerenadersRUs.com site>

notJenkins Tue 23-Apr-13 21:39:37

gigs imagine you are on a peaceful beach with the sound of the sea ......imagine Katherine Jenkins is in a big hole in the sand and you are gently placing spade upon spade of sand in the hole to bury her.....that should bring your blood pressure down.

Well my onc said that the scan showed cells in my neck as expected but no spread elsewhere. My next scan is at the end of September ( timed not to disrupt my birthday ) and if all the neck cells have gone I won't need another treatment.
After that I will be monitored with regular blood tests and only scanned if the bloods are worrying. If all is ok I will be down to yearly blood tests after about 4 years but will have the yearly tests for life.

ned and I had a lovely lunch and has some 1st class people watching sights including a much face lifted lady drinking champagne with her spoiled Westie, a naked lady and a lady taking her toy boy out for his birthday. We were discussing the much anticipated piss up and hope we can arrange a date soon.

Off to bed now as I did not sleep well last night.

Gigondas Tue 23-Apr-13 21:46:46

That's a good image smile.

gringrinsmile About scan and love lunch sights.

Big gig playing up at school and being very naughty.

topsyturner Tue 23-Apr-13 22:05:27

Evening All

Gigs let DH worry about what Big Gigs is getting up to at school .
Unless she takes a knife in , I wouldn't get involved !
Can someone bring you in some lovely oils or candles for burning ?
At my last hospital stay , Macmillan had organised people to come on the wards and give hand and arm massages to patients .
That would be relaxing .

HND is self medicating tonight with Cab Sav !
Don't blame her after Nurse Ratchett had such a good dig around today !

My kitchen table (and surrounding areas) closely resembles The Somme !
Project now has trenches , barbed wire , bomb craters , soldiers , and sandbags .
It has to be handed in on Friday , so not too much longer for me to get all itchy teethed about not being able to tidy up grin

Jealous of all you peeps over there that have had gorgeous weather today .
I've already had the usual phone call from my sister telling me it was 22 degrees in London today hmm

Must have been lovely on your balcony today Gigs ....

Got my 3 monthly CT apt in the post today . It's on the 9th of May .
Then it will be the usual 2 week wait to get an apt for the results .
Sigh , that's the next 4 weeks with my arse firmly planted on the paranoia box !

topsyturner Tue 23-Apr-13 22:06:24

And nj that's fantastic news !
<raises mug of coffee in toast>

fab news nj - hooray !
gig hope the heart rate gets normal with some calmness and relaxation - try not to worry about big gig -she is probably just reacting to the disruption and whatnot -am sure dear Mr gig can handle it.
Poor hnd - sounds awful for you- hope the wine is helping.
topsy will be on the box for you.
I watched the very excellent NHS thingy this evening- the whole thing has been great but tonight's was about cancer treatments at The Christie in Manchester and a woman being given deep brain stimulation for Parkinson's -that was quite miraculous. Was rather shocked that Jeremy Hunt visiting the Christie seemed a bit clueless about chemo- surely you'd do a bit of research ?
Dh waiting up for the phone call to alert him that T is nearing home - poor love will have to collect him at about midnight...am going to slink off to my bed.
Am panicking slightly about new joke book - silly I know.

Gigondas Tue 23-Apr-13 22:30:02

Good plan about knife. But to balance out lovely nanny told me she is pregnant- this has cheered me up (she will be a lovely mum and is planning on coming back).

I will do shift on box. I suppose one of minimal upside on all this is I got spared 3 month hell this month.

AshokanFarewell Tue 23-Apr-13 22:30:53

Just popping on quickly - notJ that's fantastic news! And glad you and ned enjoyed lunch. gigs hope you are able to relax and get a good sleep tonight. HND grrrr at rubbish nurse, I hope the pain is easing off, good news otherwise though, hopefully the pump will be gone soon too.

Goodnight all, hope you've had a good day smile

KurriKurri Tue 23-Apr-13 23:42:30

MAS I wish I'd seen that programme - it sounds v.interesting - a very dear friend of mine had her BC treatment at The Christie, - must watch on iplayer.
Do not panic about the joke book you dafty - you will be fine smile xx

Gigs do you have some nice calming music you can listen to? - it's not surprising your body is reacting a bit to all the stress you've had. And try not to worry about big Gig, being naughty and acting up a bit while you are away shows that she's a very normal little girl, just trying to sort it all out in her head smile

HND - Nurse Ratchett sounds horrendous, what was she thinking? - hope you are alright now xx

NJ - hooray for good appointment sound as if your treatment is working well, and I'm glad you and ned had a lovely time on the beach.

topsy sitting on the box for you my love, I have plenty of arse to spare.

waving to asho and amber (hope tomorrow is a better day amber - third time lucky!)

the 'enter' key on my keyboard is getting very hard to press - there seems to be a large crumb stuck under it which I can't get out - wonder how that got there confused

Copthallresident Tue 23-Apr-13 23:55:45

Very zombiefied today, and also gigs, the battle of Copthall kicking off as predicted by Twickerati twickerati.wordpress.com/2013/01/01/2013-in-twickenham/ You might want to watch the Planning Committee webcam on Thursday night wink
Hope you have managed to relax, imagine we are all around you massaging...............on second thoughts that is actually a very scary worrying thought, like a whole hen party of Nurse Ratchetts .......... Last night I fell asleep to Lee Mack on Never mind the Buzzcocks at 3 in the morning, laughter and some really rather disgusting humour definitely did the trick.

Great news nj. wine The night you get the all clear is great, the most paranoia free hours you will get til the next one grin Lunch looked fab.

hnd Sorry you got a Nurse Ratchett, did she have that dead behind the eyes look? slightly affected gentile faux caring monotone voice ? as she reeked havoc? they teach them all that at the Ratchett School of Nursing...... but it does sound as if you have a plan and a completed boob at the end of it. Just think how amazing it will be to get rid of that pump. If you need any more fat to get that perfect look I have some to donate. Given how wimpy I have been about black and blue back of hand and "ooo betty" down under (still sore) I don't think I'm up for stuffing myself a new boob anytime soon

What has been anyone's experience of Lymphedema. Does it always swell or just ache. Have had achey arm all day, I did go a bit wild in the sun in the garden...........

KK Keep getting better

Waves to everyone, not with achey arm.....

dragon this one is a Chinese one grin

Copthallresident Wed 24-Apr-13 00:38:34

Budge up on paranoia box for good paranoia story . Panicked earlier because my wee smelt really revolting, of course it was my liver, in an advanced state of decomposition...... guilty conscience Vaguely remember similar smell on other occasions. Only just put two and two together. Rather a large portion of asparagus for dinner blush Perhaps we should blame asparagus for all aches, pains, smells blush and general paranoia.

Copt - hilarious about the asparagus. If only all our worries were so benign.

NotIenkins - hooray for good results!

Mine was a mixed bag today. The team seem really good, if a little drug happy. I'll have 7 magic injections as standard each round, plus an extra anti nausea even though I was only nauseous the first day. They do have epirubicin and they might want to add the F for the next 2 rounds as well. They'll also send me for genetic testing, although the results may not be available for a year. Downside is the redness and texture I noticed right before I started chemo (when I could feel the tumour growing) might mean it became inflammatory and I'll definitely loose my whole boob plus probably need radiation. I've been saying I'd be ok with that but still feel sad it's become a bit more real. It's very strange to have this chemo period where I essentially know its going. What's the phrase - dead man standing? That's my breast.

Amber, happy to take a turn on the box. Hope you get some peace as well. And gig too. And probably us all!

Gigondas Wed 24-Apr-13 06:59:30

grin At asparagus wee- I had massive panic once when saw pink wee then remembered had beetroot. That blog is very amusing.

Sparkle - good they are so comprehensive but sorry that pink and sore.

Today going to concentrate on keeping calm and pain free . Kurri- how you doing?

notJenkins Wed 24-Apr-13 07:06:59

Good morning from me, throwing asparagus and soft boiled eggs on the trolley so we can all have smelly wee together.

I am about to start that daily marathon of lunch boxes and school run with added shouting then off to view a house. I love viewing houses but fear I will love this and we may not eat it unless we get a buyer soon.

Anyone want to buy a house ?

notJenkins Wed 24-Apr-13 07:07:36

Eat ? I have never eaten a house

Gigondas Wed 24-Apr-13 07:15:42

grin You clearly haven't had high dose steroids. Let us know what house is like as love some property porn.

T used to eat beetroot with a passion and caused me lots of wee anxt when he was little grin
Puffed wheat and rice cakes make your wee smell weird...
sad for poss. loss of your breast sparkle

T back safely from London - haven't seen him yet to ask how it was - just noticed the price of the ticket -£62.50 !! though we only had to pay £28 altogether...of course he didn't buy a programme,tsk.

Copthallresident Wed 24-Apr-13 08:54:56

MAS We loved Wicked and since T is a singer he will doubtless be belting out Defying Gravity www.youtube.com/watch?v=3g4ekwTd6Ig in the bath from now on smile It was actually little Copts audition piece and on long journeys up north it is one of the songs we like to put on and all belt out together, along with the Bridget Jones soundtrack (All by myself, I believe in a thing called love ) grin We could do karaoke on our big night out ..........

Sparkle It does take some getting used to the idea of losing a boob but the reality is not as bad as the thoughts especially as once it has gone bad your relationship with your boob changes anyway. I just wanted rid of the thing. However do stick around to share feelings and worries, I think we have just about every variation of boobiness . Glad you are reassured by your new team .

gigs Sending you calm and pain free vibes..

topsyturner Wed 24-Apr-13 09:45:15

Sparkle - exactly what Cop said !
Once I knew "this thing" was growing in my boob , I just wanted it gone .
It did make me gulp a bit when I first saw myself after surgery . But it's something you get used too .

Oh , and by the way , thanks Cop !
That bloody song is gonna be ear worming me all day long now grin

Going out with HND soon . Going to have a mindless amble round Ikea .
Anyone need anything ???

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