I suspect I have CFS, probably since spring 2009 when I noticed a step-change in my quality of life. Won't go into symptoms at the moment, but DH has CFS and I have a friend with CFS/FM, so know quite a bit about it and I have a lot of the classic symptoms, although I am very high functioning. My previous GP just said "some people are more tired than others", when I've complained about it (and then ordered a rather small set of blood tests from which I never heard anything more). However, I have just moved, so I would have a new GP and new chance to explore this. But I'm not sure it's worth it.
I already work on pacing as best I can, and I'm not sure there's much else that can be done. I hate complaining to doctors and I hate embarking on "medical sagas". I have had previous bad experience with health professionals telling me it is all in my head, etc., when I spent a year getting my dysautonomia diagnosed -- and that had a measurable cardiac symptom that couldn't be ignored. Just being "tired" seems like an even worse minefield. I have a history of depression as well, which I imagine could be brought up, although I'm pretty sure I'm not depressed now.
Also, I'm not sure what use it is. DH has had CFS for nearly 20 years now. I have a full time job and support us both. DH is currently retraining, getting a postgrad degree, but realistically he will never be able to hold more than a part-time position (and I think he is slowly coming to terms with this). So I have to keep working full steam, and somehow I've managed to rise quite high in a demanding career. And now that we have just bought a new house and have a new baby, my income is more important than ever.
Although I wonder if my being diagnosed could help with perception with DH, as he sometimes gets quite cross at my fatigue. And I'm also just really struggling at the moment, with all the fatigue issues, plus remainders of pregnancy complications that are still hanging around, caring for a 9mo, back to work as normal next week (had been back full time, but able to work from home, now will have to go in most days), dealing with new house, etc. Of course, all that also means I really don't want to waste time at Dr's offices, as it just seems one more thing to do.
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General health
Think I might have CFS - is it worth trying to get a diagnosis?
3 replies
weaverofmetals · 21/01/2013 19:48
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Smudging ·
21/01/2013 20:03
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