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Hypothyroid, talk to me about iodine deificiency, kelp and medication please

(33 Posts)
knackeredoutmum Fri 07-Dec-12 13:15:27

As my name says, I am exhausted and wake up every day tired and aching all over, I am very short tempered and starting to feel unusual levels of anxiety over trivial things - I am only 40 and dont have arthritis or anything similar.

My TSH has been rising over the years with 3.5 4 years ago and 4.8 6 months ago.

So now Im wondering if this could be a thyroid problem.

GP practice has labelled my results as "normal" and are very unlikely to medicate unless a fresh test reveals a higher result. I know they treat in the US at a lower level though.

Anyway, Im just wondering, IF the reason for the problem is iodine deficieny (I dont cook rice, potatoes or veg with salt and neither do I add it at the table) how long would it take before I felt much better on kelp suppplements? How many weeks roughly?

Could levels of 4.8 which have risen over the years reflect an iodine deficiency or would this pattern only fit thyroid problem?

I dont want to bother with the kelp if its risky or pointless as I would rather get on with some medical treatment if it is needed.

On the other hand, I dont want to start lifeling medication and GP visits and bloodtests if a simple kelp supplement would have done the job.

Is it possible for it to be a thyroid problem, I take the kelp, and end up causing more harm due to not treating the actual problem by taking medicine? Or is the kelp the same as the medicine confused confused confused

Any advice?

Thanks

mercibucket Sun 09-Dec-12 11:52:45

Thanks, Blondie, I don't remember reading that. I can tell you about a conversation I had with my crap GP (I also have a good GP) though, where he told me it would be on his head if I suffered any ill effects from having too low a tsh and he wasn't interested in the CKS guidelines or GP notebook. Tosser. What can you do when medical professionals don't care about CKS?

Erm, I will try to remember what that website is called. Ypur GP might not accept their results though, be warned, not because the labs are dubious but because the NHS is very suspicious of anything from the private sector imo. There are some dubious labs out there but genova and blue horizon are both certified

mercibucket Sun 09-Dec-12 11:52:45

Thanks, Blondie, I don't remember reading that. I can tell you about a conversation I had with my crap GP (I also have a good GP) though, where he told me it would be on his head if I suffered any ill effects from having too low a tsh and he wasn't interested in the CKS guidelines or GP notebook. Tosser. What can you do when medical professionals don't care about CKS?

Erm, I will try to remember what that website is called. Ypur GP might not accept their results though, be warned, not because the labs are dubious but because the NHS is very suspicious of anything from the private sector imo. There are some dubious labs out there but genova and blue horizon are both certified

mercibucket Sun 09-Dec-12 11:57:26

www.homebloodtest.co.uk

I used them alongside nhs tests to see my t3 level and the results were pretty much identical to the nhs results (unscientific but maybe helpful)

I don't think they can test for antibodies with the fingerprick tests though and an antibodies test would be useful for you

mercibucket Sun 09-Dec-12 11:57:26

www.homebloodtest.co.uk

I used them alongside nhs tests to see my t3 level and the results were pretty much identical to the nhs results (unscientific but maybe helpful)

I don't think they can test for antibodies with the fingerprick tests though and an antibodies test would be useful for you

blondietinsellyminx Sun 09-Dec-12 13:36:38

Merci tbh if my GP ignored the official guidelines i'd complain to the practice manager as they'd need to be aware for insurance reasons! And I would decline to see that GP again.

knackeredoutmum Sun 09-Dec-12 14:10:12

right, thank you all for the links.

Since i know my TSH is approximately 5 (and no reason to think it will have gone up to 10 since last tested in April) I have found a home pinprick test for antibodies only for about £50 from the thyroiduk site, or a full home pinprick thyroid test including antibodies for £125.

My goal is to get treatment if I have a thyroid problem that the NHS accepts. So, with what doctors would call a normal thyroid of 5, I can see from an online NHS flowchart for practitioners, that I will only get treatment if I test positive for antibodies, and over 5 for TSH on 2 occasions.

So my conclusion is that the £50 antibody test should be enough to get me checked out properly at the doctors if it is positive OR tell me that there is no way any NHS GP is going to prescribe anything anyway if it is negative. Therefore no point in paying for the more expensive full test?

What do you reckon?

lem31 Sun 09-Dec-12 21:35:31

Speaking from my experience: my doc said it was low, about the same as yours. I felt awful so deinitely could be why you feel so bad. Doc wouldn't put me on medication as borderline. I tried sea kelp and I defo felt a little better and results went to normal within 6 months. a year later though and back lower again until it went to 26 requiring a high dose of thyroxine!
Ask your doc about ways to help-they will be able to give you advice but unfortunately it is likely to be a waiting game until it packs up altogether. They won't put you on meds until they have to though so try anything to help alleviate symptoms, even if it seems like it is masking the issue. Reflexology also helped me feel better. Keep getting regular tests and good luck! X

digerd Tue 11-Dec-12 13:35:08

Hazelnutt
The problem with me is, GP attributes all my problems to ageing and arthritis.
I also need an hour's rest in bed in the afternoon, since reaching retirement age. Also, I have a natural high pulse rate about 90 at rest and over 100 when excited, and "don't want to know" when I dance for 2 hours - low key dancing. And have a heart valve leakage. So difficult for GP and me to know.
If I take more Thyroxine, it could increase my heart rate and be dangerous.
A case of "the devil you know", for me and GP I think

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