A bit of background, sorry if I ramble but have just gone through a scary experience and am still shaking......DH has always been "a fainter" if he's unwell or nervous he passes out. He's out for minutes, takes a long time to bring him round and then he just sleeps it off. These episodes have got worse as thè years have gone by, he had a circumcision about 8yr ago and kept fainting in hosp after the op. Dr who witnessed it reffered him for more testing saying that in her opinion it was a convulsion/fit he was having. Testing cane back negative of epilepsy, brain scan clear.
Wind forward a couple of years and it happened while he was driving on a motorway with me and dcs in car. If it weren't for thè fact it was late at night and I was quick thinking then I don't think we wouldn't survived it, I had to swerve into the hard shoulder, ring an ambulance, police escort to hosp......anyway dr then reffered him for another brain scan, ECG again, all clear.
A few months back he had a vasectomy, cue a phone call from the clinic saying that they hadn't been aware of DH's history of epilepsy but they were admitting him to hospital as hed had a really violent siezure at thè end of his procedure.
Doctors say they have done every test possible, and that they can only diagnose him as having (sp) vagovasil syncope which from what I understand is basically fainting episodes. They had him on the tilt table and said that he is one of the rate few egos blood sugar, heart rate AND bp drop when he's "fainting" which is why it takes so long to come round.
Why then have my dc and I just witnessed the most horrific of convulsions from him? My screams woke the children up :( it happened after he vomited (we have all had a bit of a tummy bug) rapid eye flapping,violent shaking, holding of breath then coming round with an almighty groan. How can that be a faint? How can medics who've witnessed this and said it looks like epilepsy be wrong? I feel like one day he just isn't going to survive one of these attacks. They are so terrifying for my children to witness. I don't mean to play epilepsy down but at least if it was that there'd be some medication, something to treat it with.
Please advice on what I do now, is there anything I can do, do I push for more testing or just accept that this is going to have to be put up with?
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Please explain thè difference between epilepsy and fainting
35 replies
ash6605 · 01/12/2012 01:20
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