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Calling all Raggedies - the THIRD Ragged Bits thread. Childbirth injuries, sphincter problems, fistulae... all welcome.

(833 Posts)
Jacksmania Fri 26-Oct-12 19:08:26

First thread here, May 2008 to June 2009.

Second thread here, June 2009 to Oct 2012.

Welcome everyone with ragged bits due to childbirth. We're sorry you had to find us, but we promise to hold your hand and listen.

There is no TMI here and nothing is too gross, too embarrassing or too horrible.

<lays out tea tray, buffet and alcoholic bar>

All welcome.

Gudgyx Tue 30-Sep-14 13:51:58

Hi all,

Hope you dont mind me popping in. My situation is a bit different from you guys, but it is about fistulas so I hope its okay to ask for some advice!

I have Crohn's disease, and from this I have developed some fistulas. 5 to be exact. I have 4 recto-vaginal and one bowel to bladder. As you can imagine, this is horrific. I have seton sutures in my RV ones, and take Humira to try and help these (also for my CD and rheumatoid arthritis). So yes they are all still open, and weeping.

I am also 17w 3d pregnant smile it is a consultant led high pregnancy due to my CD, RA and some other family issues.

Previously, my CD consultant and colo-rectal surgeon have always told me I couldnt cope with a natural birth, and would need a c-section. (Surgeons exact words were that I would 'burst right open' if I even attempted to push a baby out!)

I have my first pregnancy consultant on Friday, and am just hoping they wont try and make me have a natural birth, or try and talk me into it. I'm hoping it will be just as clear cut as the surgeon previously said it would be, a definate c-section.

Does anyone have advice/experience they can share?
xx

Impala77 Wed 17-Sep-14 20:21:25

Bronnie, i too had faecal incontinence after a forceps delivery and episiotomy. It does get better but it took several months and lots of physio. I did go on to suffer bowel and bladder prolapse which I've just had surgery for.(21 months after my dd's birth) I feel your pain i was housebound for months for fear of "accidents" the only thing is that now when I feel the urge to go it comes on quickly and i'm not sure if I could hold it if I left it too long. I too have suffered with body image i think in 21 months me and hubby have had sex 3 times and to be honest i wasnt into it cos of how i feel about my "bits". Hope you start to improve soon.

Impala77 Wed 17-Sep-14 19:51:35

Hi all, I'm after some advice.
I'm 11 weeks post op, I had rectocele and cystocele repair and perineum build up.
My problem is that my urinary symptoms are worse since surgery. Also I still have that "coming down" feeling I had before surgery and I also feel like something inside is catching or rubbing, it's quite uncomfortable. Is this normal after almost 3 months?

Idrathernotsay Sat 06-Sep-14 23:22:49

Hi everyone,

Sorry to hear about problems others are having and thank you for previous messages of support.

Bronnie, I really feel for you. Hope things are improving slowly.

I am posting again because I am in a bit of a panic. Despite my problems I have mainly been fairly pain free. Over the last few days my scars have been quite painful, not agonising but stingy and tight when I sit down. I don't understand why this would be happening now as I'm well into the second year post-birth. I was a little worried there might be an infection or something although I don't see how I could have got one and couldn't see anything.

Cardamomginger, I have looked and things look pretty hideous but I would not contemplate any surgery for cosmetic reasons - I feel that I've been messed with enough down there and wouldn't want to risk anything that could potentially make things worse. I know that medically I'm considered to have had a good outcome.

The pain is a reminder of everything that has happened and everything that is wrong with me and I just want to cry. I feel like things are not getting any better and worry about them getting worse.

Does anyone know much about how scars heal in the longer term, and what is normal?

bronnie98 Sat 06-Sep-14 02:30:01

hello all, I have set up a fb group to discuss birth injuries if anybody would like to join, it is a closed group and so confidential smile https://www.facebook.com/groups/771932452853360/

Orange3Lemon Thu 21-Aug-14 20:47:34

Message withdrawn at poster's request.

cravingcake Wed 20-Aug-14 03:27:25

Welcome bronnie, i posted on your other thread - basically it will take quite a bit of time. For me it was 9 months to a year before things started feeling anything like normal.

How is everyone else doing?

bronnie98 Sun 17-Aug-14 23:23:40

Hello, I am new to this, hope I am posting in the right place... this is my 4th attempt smile

Long story short I had a 3b tear after the traumatic birth of my boy 5.5 months ago. Physio hasn't worked and saw a colorectal surgeon this week but I have had so many referrals feel like I am getting nowhere.

Main problems are urge incontinence, flatulence and muscle spasm with a lot of pain, apparently the problems should have settled down by now but they haven't. I couldn't imagine trying to have sex.

Could anybody who has had similar ongoing problems help with some advice on when they finally healed (if ever) and how? Don't need to know birth story just the after care bit. I am under the impression the nerves and muscles etc should have healed by now. I don't want to be like this forever, some days I am scared to leave the house.

Thank you in advance smile

artyone Thu 31-Jul-14 13:47:50

cardamomginger I have to call the consultant if the cream doesn't work. I'm 3 weeks into using it now and it hasn't improved anything but I have another week to go. Getting a bit fed up as the area keeps swelling up and bleeding and whilst I know that these things can take a while to heal, it can't be right surely? I'd like to be able to have sex without it hurting sad I think i'll call in a week and see what they want to do next, if anything.

Impala77 Tue 22-Jul-14 23:01:41

Hope so thanks

cardamomginger Mon 21-Jul-14 21:05:29

sad infection can be so common after surgery. Fingers crossed the abx clear it quickly and you feel much better. X

cardamomginger Mon 21-Jul-14 21:05:22

sad infection can be so common after surgery. Fingers crossed the abx clear it quickly and you feel much better. X

Impala77 Mon 21-Jul-14 19:58:27

Been doctor and he dipped my urine and of the 4 things they check I'm positive for 3!! So back on antibiotics. He says according to the letter he got from hospital they did nothing regarding a prolapsed uterus, he said I'll have to voice my concerns at my review in 6 weeks.

Impala77 Mon 21-Jul-14 16:35:22

I'm on regurin have been for over a year, hence I expected urinary stuff to be same or better post op not worse! Off to doctor now so we'll see what he says.

kianaidan Mon 21-Jul-14 09:18:08

They didn.t tell me Cardom - sending it on to colorectal and I wait to hear from them.

cardamomginger Mon 21-Jul-14 09:10:30

Try not to panic. If urodynamics didn't show anything, then chances are it's just post surgery stuff. Which meds were you on? I was on tolteradine. It takes a while to work and you need to be on them for around 6 months.
I'd be surprised if they didn't check for uterine prolapse during surgery - they have tilting tables so they can see the effects of gravity. But sometimes a new prolapse just doesn't show until a while after surgery. My cervix was also very high pre-baby and I used to really panic when it seemed much lower (even after repair surgery). Apparently this is normal. post baby it's just lower and a certain amount of movement up and down during your menstrual cycle is usual. Really try not to panic. Good luck tomorrow.

Impala77 Sun 20-Jul-14 23:58:27

Cardamomginger thanks for that advice.
Yes I had urodynamics done, it showed nothing other than a slow on / off flow rate. Was put on pills for overactive bladder which do help but not significantly. I first went to see gynae because i couldn't use tampons after having my baby as i couldn't get them in as something was in the way, I had a quick feel and thought it was my cervix. My cervix pre baby was always very high. However the doctors kept saying my uterus wasn't prolapsed, I have read however that's it's very rare to have bowel and bladder prolapse without uterine prolapse, so I can't understand if they didn't check for that during surgery.
My follow up is 27 August. I rang hospital with my concerns and they advised going to gp so I'm going tomorrow.

cardamomginger Sun 20-Jul-14 23:42:23

kianaidan sad. When do you get the MRI results?

impala - 17 days is still pretty early - you have loads of swelling and things will be feeling really messed about with. In short, what you feel now may very well not be what you are going to end up with so, as bloody hard as it is, try not to panic. I've still felt things 'coming out' at this stage post surgery (and even later than you are). It's been swelling. Plus nerves firing off all over the place. Similarly, the urinary problems may also just be because everything has been so messed about with. Did they do urodynamic testing prior to surgery?
I guess though, there is always the possibility of uterine prolapse. Although it would be unusual for it to show up so quickly after these surgeries if there was no suggestion of prolapse beforehand. (Plus the swelling I mentioned would still be holding things back.) I've had similar things happen - fixing one lot of prolapse has then created the space for other things to collapse. They are right though - you want to avoid hysterectomy if you possibly can. The uterus acts as a support structure for the vagina - it's what the vagina holds itself up with. So if that goes, you increase your risk of vaginal prolapse, and you already know you are prone to that. But if your periods are utterly debilitating and nothing else has helped, it might still be something you'd be open to.
When is your post-op check?
Hang in there. This post-surgery phase is horrible. You feel like shit. It hurts like hell. You're terrified it didn't work. You're terrified something else has gone wrong. And it's all hidden inside, so you can't see to reassure yourself. Been there. Offering some hand holding. XX

Impala77 Sun 20-Jul-14 23:23:40

Now 17 days post op, urinary problems are just as bad as before op (if not a tad worse) still got the "coming out" feeling too just as I had pre op. Starting to think it's actually my uterus that's prolapsed, and will be extremely pissed if they've fixed the rectocele and cystocele but left the uterus prolapse. I asked before the op for a hysterectomy as I'm done having kids and my periods are awful, but was told "Oh no you're much too young for that" but surely if they've missed a prolapsed uterus I'll have to have more surgery!!!! I could cry.

kianaidan Fri 18-Jul-14 21:33:12

Thanks cardom - I.m pretty sure I have a small fistula as have vaginal gas also and have had one bout of watery stool come through the front. I haven.t been told I have uterus prolapse no but I do have a weak pf. I just have to now await results of mri.

cardamomginger Thu 17-Jul-14 23:31:00

How are you feeling impala?

cardamomginger Thu 17-Jul-14 23:29:52

I'm so sorry kianaidan. I know what it is like to feel so alone.

Have they considered endometriosis? That's the only reasonable explanation I can think of for bleeding from the back during your period. If they said it is 'normal' did they give any explanation for the mechanism as to how this is physically possible, where the blood originates from, and how it exits the body this way and not vaginally.

I can't remember all the details of who you have seen (and my nexus is making it hard to search back), but are you actually under the care of a urogynae surgeon who specialises in pelvic floor reconstruction? I know you have seen colorectal, but it strikes me this may not be the most helpful for you as your main HCP in this.

A cervix 2 inches inside might be OK. A 'healthy' uterus post childbirth is a bit lower than pre kids. And it's all a bit more mobile and apparently the cervix moves up and down quite a bit according to the menstrual cycle. I used to panic like mad about this (I've had a uterine prolapse repair and was terrified it was failing), but my surgeon told me what I was feeling was fine. Have you been told you have uterine prolapse?

As for your friend. That's horrible. I've had similar 'jokes' told in my presence. It hurts, and I felt like a freak.

Big hugs. Xx

kianaidan Thu 17-Jul-14 12:30:25

Feeling fed up. Still undiagnosed as apparently bleeding from back during period is normal and have had watery stool come through the front. Also worried as I have a cough and I know my pf is weak, my cervix I can feel about 2inches in and don.t want it to fall further. Feel really alone. Went for a coffee with friends and she decided to tell a 'hilarious' story of a lady who came to a restaurant she works at pooing herself. I wanted my chair to swallow me up. Whilst this hasn.t happened to me, it is my worst fear and I.d tried to convince myself people wudn.t be horrid about such an unfortunate thing.

Impala77 Fri 11-Jul-14 19:55:51

I take the last tablet tomorrow. I rang doctor today but couldn't get to see anyone. If it's not stopped by Monday I will go and see someone.
Knew it would be hard, but it's harder than I thought, just sitting around all day is sooooo boring, plus I hate having to rely on other people. I just hope it ends up being worthwhile.

cardamomginger Fri 11-Jul-14 17:09:54

Sorry - misread your post! Although constant urgency is kind of one step away from actual incontinence. Surgery to the bladder neck could have been to tighten and lift it up slightly? So sorry about the diarrhoea. And trapped wind sad. Must be awful at the moment. Could well be the antibiotics - are you still on them? Maybe give the ward a ring and let them know?

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