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Could this be Ulcerative Colitis?

(901 Posts)
Chocol8 Tue 25-Oct-11 22:12:18

Sorry this is gross, but i am worried and looked online (prob not the best of ideas) and found that most of my symptoms seem to fit UC: different coloured stools which frequently changes but is mostly very loose.
Blood in stools (a lot), if i pass wind, i can pass pure blood but usually mess myself (very unpleasant), stomach churns constantly.
Being sent (eventually) for a colonoscopy to have a look see. Does anyone know what else this could be please? x

breadandbutterfly Wed 02-Nov-11 23:23:30

In terms of diet, gentle vegi protein is harder, though - lentils, beans etc = ouch with colitis. Tofu??

unhappychanger Thu 03-Nov-11 21:04:26

I can categorically tell you that if you presented to us in hospital with GIT bleeding you would be kept in, bloods checked, gastro review,colonoscopy done asap.
To make the diagnosis is important, as is to make sure you don't become more unwell/ become more unstable.
Did u have any joy today?

Chocol8 Fri 04-Nov-11 22:22:20

Sorry, a bit gross...

I eventually went for my blood test this morning, i can only hope that it shows that i need to see someone sooner than January.
I was just chatting to a friend and i passed wind - oh my word, the blood!
I now have stomach pain, a bit like higher up period pain. I will make another doctors appointment next week, i can't keep on like this.

breadandbutterfly Sat 05-Nov-11 08:55:22

Go to A&E - you are right, you can't keep on like this.

Poor, poor you - I know exactly what that feels like, and it is miserable. Comfort yourself in knowing that it can and will get better.

cardioverter Sat 05-Nov-11 11:59:24

Please go to OOH Dr this weekend and explain the bleeding, the pain and the fatigue. Have you got a temp or fast pulse? If they have any sense they will admit you. I see people like this all the time,I admit them to hospital. Am UC btw.

Chocol8 Sat 05-Nov-11 22:49:55

Sorry Bread and Unhappy (are you a nurse or doctor?), i didn't see your messages of 3rd and 4th til just now as it had gone onto a second page, d'oh!
Cardio, i did have a lot of palpitations last night and was worried, though i do suffer from a floppy heart valve (can't remember the proper name of it) and it does happen occasionally.
I was looking after my great neice on Thursday and Friday so unable to get to the docs, but will call them next week and make an appt for the same day. Funnily, i have a well womans health check on Tuesday afternoon!

EightiesChick Sat 05-Nov-11 22:57:48

As others have said, go to A&E. I was diagnosed after a few weeks of the kind of thing you've described and found myself unable to get through the day, couldn't eat, abdominal pain etc. My GP actually told me to do this as it was the quickest way I'd be seen. Fortunately there was a gastro specialist on duty in A&E and he was fantastic. Seriously, work out as good a time as possible to do (I'd suggest maybe Monday morning if you can get some time off work, ring in sick if you need to) and go. You need treatment - which will probably be steroids at this stage - to help you recover and will get it fastest this way. Good luck with it all.

Chocol8 Sat 05-Nov-11 23:51:25

Thanks Eighties, were you dx with UC by the specialist on the same day?
The pain only started yesterday so would feel like a fraud for going to A&E as it is only mild and would not be seen as an emergency. I am relying on my blood tests yesterday to show that i need to be seen quicker.
Will a colonoscopy usually be done before being prescribed steroids? Will steroids heal the colon if it is UC?

EightiesChick Sun 06-Nov-11 00:06:08

Yes, I was diagnosed straight away. However, it was an expert gastro consultant who knew his stuff, and also I had let this drag on for weeks and become pretty ill as a result. I can't remember exactly but I think they started me on the steroids right away, and then sorted out the colonoscopy. The steroids should control the attack of UC, which comes in episodes, and gradually bring you back to normal. If/when you are diagnosed, you'll get lots more info about this - some people have long spells between episodes where they are fine and others have them more frequently. But steroids will be what you need if it's UC and given your appt date, going to A&E will be the only way to get them any time soon - this is why my GP told me to do that at the time. If the pain is mild then maybe see how it goes for another 24/48 hours but if it gets worse and you really feel poorly then don't hesitate to get down to A&E. I wouldn't advise this on a weekend though unless things are pretty serious (especially Bonfire night weekend!) so that's why I suggested Monday morning - also more doctors will be in and doing rounds then.

MoaningMinnieWhingesAgain Sun 06-Nov-11 00:13:31

Palpitations are more likely to happen if you are anaemic. Not a Dr, am a nurse, but if you saw an OOH GP tonight or tomorrow I strongly suspect they would admit you and investigate this.

You are doing the right thing to get it checked soon. If you were my neighbour I would be nagging you to see a doctor today.

cardioverter Sun 06-Nov-11 11:12:32

Hi choco. Am a hospital Dr.

cardioverter Mon 07-Nov-11 04:31:35

Am U C btw.

Chocol8 Mon 07-Nov-11 19:59:59

Thanks for the info ladies, it helps to get good advice from people who know what they're talking about.
I don't wanna be admitted right now - i need to be able to plan it so that my son can be looked after (single parent) and taken back and forth to school if i get kept in.
Nearly went to A&E this afternoon - i was stuck in the loo in Costa and could literally not get off. I filled the bowl with so much and had the sweats like you do with diarrhrea. Sudocrem really is my best friend tonight....!
Think it was cos i had not eaten between 7.15am and 1.45pm and had a large meal cos i was so hungry. Think i should keep it 'little and often' when it comes to food.
Gonna call docs tomorrow and if they can't do anything sooner for the appt, i will tell them i will go to A&E if things get bad. Was thinking about calling 111 (non emergency number) last night but thought they would only say to go to A&E.

cardioverter Mon 07-Nov-11 20:21:54

If you don't want to be admitted, try and get the consultant outpatient asap as a priority because that way you can be assessed before you become more poorly.
What tends to happen is symptoms carry on for a while but if this is IBD then at some point the inflammation could worsen and make you more systemically unwell with fever, high pulse, faintness, low blood proteins and at that point you would need a drip and IV antibiotics and steroids etc.
Try to get seen in the next few days to avoid being admitted after all you don't have a diagnosis yet.
How were your bloods?

Chocol8 Mon 07-Nov-11 20:39:45

Getting very light headed and dizzy, but no fever.
Don't know how my bloods are yet, but hopefully will find out tomorrow. Hoping they show my iron has dropped since last month so they can see there is a problem there.
Getting very fatigued and breathing is not right, feels laboured today.

cardioverter Mon 07-Nov-11 20:46:10

don't worry , you'll be fine. If your blood count has dropped a bit [would the GP call you?] it may make you light headed. But the illness of IBD is basically inflammation and affects all of you.

EightiesChick Mon 07-Nov-11 22:27:34

Chocol8 please get something organised for your DS so that you can go to A&E if you feel worse. Are you in a lot of abdominal pain?

EightiesChick Mon 07-Nov-11 22:28:24

Chocol8 please get something organised for your DS so that you can go to A&E if you feel worse. Are you in a lot of abdominal pain?

Also, are you bleeding with these episodes of toilet use or not?

Chocol8 Mon 07-Nov-11 22:37:05

Eighties, i'm getting abdominal pain more lately - like higher up period pain. It is mild to moderate, but bad when i go to the loo.

I am bleeding about 70-80% of the time - i pass runny poo and blood when i go for a wee which is quite often. I did get small blood clots this morning - mornings are the worst of them all, except that one earlier today.

Bellavita Mon 07-Nov-11 22:45:29

Steroids will not heal the UC - these will only bring it into remission.

Lightheaded and dizziness is probably because you are dehydrated due to being on the toilet as much as you are.

DH says you need to nag your dr for the referral.

Eurostar Mon 07-Nov-11 22:47:34

Please stop being so stoic and get yourself to a&e! This is only going to get worse, be it UC or some other cause such as infection. Hospitals take bloody diarrohea seriously.

If you go now, you are more likely to get away with outpatient treatment, the longer you leave it, the more likely you are going to have to stay in to have IV steroids etc.

Is your laid back sounding GP testing for anything more than blood count? They should be doing your CRP and ESR to get an idea of inflammation markers.

Honestly, please, arrange some childcare and get down to a&e. It sounds like inflammation is moving higher up your colon.

Chocol8 Mon 07-Nov-11 23:01:22

Euro, if i have no joy at the doctors tomorrow i will be forced to go to A&E. It's really wearing me out now and i am feeling it more than before. Not sure what else they are testing for but think i saw ESR on the form along with FBC.
Bella, i will nag tomorrow or threaten her that i will go to A&E.

cardioverter Mon 07-Nov-11 23:13:34

I have to agree with everyone.. you need to be seen.
Say definitely before friday. GPs are not always aware of the deterioration that can occur in the acute phase of new onset acute severe colitis.
You are ill, its not just about the bloody diarrhoea, it can be about infection from the inflamed bowel, becoming generally sick and unwell to the point you could be ill for some time if you deteriorate.
It starts as mild, then moderate, then severe with more than 10 motions per day, or fever, or tachycardia.Severe colitis requires hospitalisation and the bowel can become abnormally dilated and require surgery.
This sort of situation can become more serious and require high dependency care etc.
I am absolutely not trying to scare you. I am getting a bit worried that nothing is happening.
You need to be seen within the next few days but if you have severe abdo pain,large amounts of blood loss,faintness or collapse call an ambulance.

MoaningMinnieWhingesAgain Tue 08-Nov-11 12:17:51

I am worried you have not been seen again yet either.
<stern> Do not ignore this, it is not going away or getting better - you need it sorting urgently.

EightiesChick Tue 08-Nov-11 14:47:16

chocol8 I am really concerned now. Go to A&E TOMORROW. I am now going to consciously talk about the scarier side of all this. Steroids should help you (as Bella says, they don't 'heal' UC as it's a chronic condition, but they will fight off an attack) but if you become really ill more drastic treatment will be needed - in some cases surgery. You don't nee me to tell you that if it is difficult now to arrange all this around caring for your son, if you have to have surgery and recover this will be a whole lot more difficult. Please, please do not leave this any longer. You will not get better on your own. Go to A&E as soon as you can and definitely tomorrow and you can start the process of getting better instead of getting worse.

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