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Coming off citalopram/SSRIs - anyone want to join me?

(66 Posts)
Arcadia Tue 10-Dec-13 11:55:47

This will be embarrassing if I get no takers but here goes!

I have been hugely helped by this board since I had my DD (now 4), I have some lovely people and find it the 'safest' place on mumsnet which can get a bit brutal elsewhere!

To cut a long story short I have been on citalopram for almost exactly a year. I had some issues that all came together and a lot of those external issues have now resolved itself. I have however had problems with anxiety all my life on and off but not taken medication before now.

After some fairly minor side effects I settled on the 20mg and it has been great to be able to cope with stuffs and have an even mood but now feel ready to start coming off.

After doing some reading am planning on doing it from January taking about three months over it. Am also seeing GP tomorrow but have heard they tend to be a bit less cautious so to do it slower than they advise.

Anyone else looking forward to coming off in the new year to be off them by the spring/summer when hopefully our moods will hold up?!

Also any advice from those who have gone through it gratefully received.

Arcadia Tue 10-Dec-13 11:56:48

Sorry for typos, bloomin iPad!

VulvaVoom Wed 11-Dec-13 15:25:32

Arcadia, didn't want to ignore your post. I'm also on 20mg of Citalopram and have been for 4 months but I think I definitely need to stay on them at the moment as I can be very up and down, Good luck though smile

HoopHopes Wed 11-Dec-13 16:10:20

Hi, not coming off meds ( as came off when pregnant), but I agree coming off slower worked for me. Spring a good time to do it as well - it worked for me. If you can get down to half the dose and be stable it can help. My dh helped me - I was on capsules and did it a complicated way by reducing amount in them for many reasons. But the last ten days he gave me empty capsules without telling me so when I took my last one he told me, so I did not react to it and think I could not do it - as had already done it!!!

Hope you have good chat with dr. If they want you to do it quicker just tell them how you want to try it.

Arcadia Wed 11-Dec-13 21:07:10

Thanks vulvavoom they do say that you really feel the benefit after a few months so good idea to keep taking them. I have really enjoyed a year without my usual ups and downs and less worrying about things!

Hoophopes I don't know whether to start coming off in the spring rather than January which is a pretty miserable time! Maybe that would be a better idea rather than straight after Christmas.

Had to cancel the Doctor's appointment today which was annoying, I got held up at work, work is so stressful at the moment! I can't see that doctor who has supported me throughout until jan now but have realised I will need to pop in and see one of the others as am running out again.

WellHello Wed 11-Dec-13 21:25:36

Well what do you know, I came on here tonight to discuss exactly the same thing, I decided to decrease my dose several days ago, and eventually rid them from my life smile
Of course, they have been a massive help for over a year due to hurrendous pnd. But I feel Im ready to come off. Have read all about the withdrawal symptoms and have decided to carry on with the usual 20mg for another week, then bite the tablets in half and have 10mg for say, a month, then brave coming off completely. I gather this can be fairly hurrendous too but rather that than more months of zero sex drive and flat emotionless days.
I came off them for 2 weeks earlier in the year and mistook a terribly low and angry day for being the return of my horrid depression rather than a withdrawal symptom, so started taking them again sad wish i hadnt! I feel when you reach the point where you no longer need them, they can do more harm than good. I dont even know who I am anymore!! Moody? Mellow? No idea!!
Whoops I've rambled but Im well up for this challenge as you can tell!

Arcadia Wed 11-Dec-13 21:34:35

Hi wellhello good to hear from you!

Sounds like we are in a similar position. One of my motivations is sex too, just isn't the same, and I have difficulty experiencing a normal range of emotions (actually that sentence is weirdly unemotional!). I am a bit robotic at times whereas usually am a drama queen! I am starting to even miss the downs a bit. Everything feels brighter than when I was depressed but also a bit bland now.

I will be interested to hear how you get on with it if you start a bit before me, though tempted to start soon as I have two weeks off work over Christmas. The good news is that citalopram is supposed to be one with a longer half life so it naturally tapers off in your system more than some of the other ADs so not as bad to come off.

How about alternating 10mg and 20mg for a week or two then go to ten for a couple of weeks? I might try that.

A friend yesterday advised me to go cold turkey and get it over in a couple of weeks but she does like a drama so not sure if good advice! smile

clio51 Wed 11-Dec-13 21:45:20

I personally wouldn't do 10mg then 20mg as your brain won't know what it's up to not to mention your serotonin levels.

Personally I would not ever go cold turkey, yes it's quicker but it doesn't necessarily been you won't have any symptoms after a few weeks(sorry)
Especially as you have a 4 years old to look after it will be hard as one of the main symptoms is flu like! Just trying to sight you up for what it will be like. Do you have somebody to help with dd and house/shopping/cooking etc

Arcadia Wed 11-Dec-13 21:51:20

I am not on my own clio51 but my life is pretty full on. Work is full on, my child is full on, lots of social stuff coming up for Christmas, just moved house and lots to sort out here. DP is good but gets grumpy at times and suffers a bit from SAD. No one else to really help my friends will drop stuff to help me out but can't help day to day and all have their own responsibilities.

Is it quite bad coming off then?

WellHello Wed 11-Dec-13 21:59:49

Hello smile

Yes indeed, being robotic was like a holiday for my mind at one time but now it just feels rubbish and wrong!
Well I have previously been taking my 20mg tablet every other day but just read that makes mood swings worse, and I tell you what it sure has.
Yesterday I spent most of the morning dancing with my daughter then went on to clean and tidy the house from top to bottom in high spirits - perhaps "too" high, i actually thought - then today i have felt like a heavy lump of lard, tired, fed up, snappy and tearful. Yesterday took a tablet, today did not. In light of this discovery I would also urge you not to change your amounts too frequently or give your body a shock with cold turkey, looking after yourself let alone your little one would be very very hard :/
Ive also been reading that Omega 3 fish oil high in EPA is like a tonic for a stressed and weary brain, so am planning on taking these perhaps when I lower the citalopram dose, have a read up about it if youre interested?
(Have also read it can affect a nackered libido positively!!)

WellHello Wed 11-Dec-13 22:01:33

... the withdrawal symptoms have been likened to how bad you feel before you started taking them :/

Hello! I am doing this. smile

Three months of 20mg/10mg every other day. I started on Sunday. GP suggested going v slowly.

clio51 Wed 11-Dec-13 22:07:38

I havnt but know 2 PEEP who have one went back on it again the other is 4 weeks in and still feeling flat, headaches,aches just generally not to good going to give it another two weeks he is taking 5htp now to see if that helps.

But everybody is different, but take it really slowly don't drop by 10mg far to much. Get some 10mg and say drop to 15mg ie 1 1/2 tablets and see how you feel if you notice a big difference in yourself go back up. Try another time.
If you have a lot going on over Xmas I would personally leave it as they say when your relax calm to decrease.

DrHolmes Wed 11-Dec-13 22:07:40

I came off it by myself a few years ago. I was only on it for a year and think it was 20mg. I first tried cold turkey...did not work, was terrible. Got horrendous "head flutters" just do not even go there. I did lower to half then half of that then gradually every other day. Only took me a month. Good luck smile

I have failed once. blush

kotinka Wed 11-Dec-13 22:20:53

Message withdrawn at poster's request.

kotinka Wed 11-Dec-13 22:22:04

Message withdrawn at poster's request.

I don't understand how you can stop taking it and still be ok IYKWIM. I was scared to go on it and now I am scared to come off it.

kotinka Wed 11-Dec-13 22:29:46

Message withdrawn at poster's request.

Sorry kotinka yes-I was asking you. But if you aren't taking the tablets that make you feel better how does it work that you get back to normal?

123rd Wed 11-Dec-13 22:58:44

Hi everyone.exactly the same situation for me. Been on citrolpram 20mgs a day for a year now. My dr has been great and suggested staying on till the spring then going to see her to talk about coming off them. I feel a bloody site better then I did a year ago but think spring would be a better time to think about. And yes to wanting my sexdrive back!!!

JourneyThroughLife Wed 11-Dec-13 23:17:00

I did this but a few years back. I had been on citalopram for a year, the doctor wanted me to start cutting down by alternating the tablets (ie. a tablet every other day). I had done a lot of reading and undestood that I must go very slowly otherwise my symptoms would return. I decided not to follow my doctor's advice and do it far, far more slowly than he suggested.

I carried on taking tablets ever day, but every day I cut a tiny sliver of tablet off. I took a long time to progress to having 2/3rds of a tablet and then half a tablet. I began to save the pieces I'd cut off so that when I cut down even further I'd still have some tablet left to keep me going.

Over time I reduced further and further until it was only a tiny sliver I was actually taking each day; by then I began to realise there was little effect...eventually I felt I could stop. I still think this was the best way to do it and the safest for my body and my sanity. All in all it took me about 6 months but I would do the same again if I was ever back on the tablets.

kotinka Wed 11-Dec-13 23:21:18

Message withdrawn at poster's request.

WellHello Wed 11-Dec-13 23:47:34

Its so great to hear about people gradually becoming more "themselves" and battling through to get there.
Journey what a great way to decrease your dosage, I may well do the same now.

clio51 Wed 11-Dec-13 23:54:32

Defo take your time! The slower the better imo less se

And will the weight I have put on magically drop off? <hopeful>

kotinka Thu 12-Dec-13 20:24:14

Message withdrawn at poster's request.

sad GP still maintains there's no connection between Citalopram and weight gain.

Well actually she said that the drug can interfere with your 'feeling full' response so watch portion sizes.

Arcadia Thu 12-Dec-13 21:11:05

Ooh now I have an excuse, I cannot stop eating today!
Thanks for loads of interesting and useful comments and inputs smile.
When I first started the citalopram I lost weight because I felt sick, then I went back to normal and have luckily stayed there. But I think I crave junk food more (crisps and sweet stuff) and often have a funny taste in my mouth.
Think I am too impatient to do it over Six months, but think I will start maybe in feb?
I have thought about buying a pill cutter do it gradually but maybe over about two months?
Once I get an idea into my head I find it hard not to follow it through straight away. I am impatient, and I almost want to know what it will be like just so I know what to expect, IYSWIM.

Hello all. I am a week into the 20mg/10mg on alternate days. So far ok except I am having trouble sleeping.

MangerMinor Tue 17-Dec-13 07:16:42

I'm three days into 10mg, dropped down from 20mg. I've no immediate plans to come off completely, but the side effects of feeling very groggy overnight and first thing in the morning had started to get too much as my DH has started working away in the week (take the tablets before bed). Funny thing was the pharmacist was questioning me when I picked up the new prescription, saying it was an 'unusual' time of year to be dropping!

Not feeling too bad so far - very dizzy at times, and patience levels with the dc feeling thin, but already feeling better dealing with night wakings.

I don't think there's ever a 'good' time Manger. I want to feel better for the New Year IYKWIM, so I can start my diet.

Arcadia Sun 22-Dec-13 17:11:53

mangerminor how are you feeling now? It is interesting that you say about the grogginess, I am really tired and sleepy a lot of the time and sleep well at night but have trouble getting up. I didn't think that was the ADs, though, as I have been on them for a year now.

sparklingbrook how is the alternating now you are about two weeks in? Do you think you will stick to it for 3 months or might you want to come off sooner?

It's all going very well thanks Arcadia. Not noticing any real difference in feelings so happy to plod on like this for the required time.
I am hopeful I can do it this time. smile

DonnaFlapperBlitzen Sun 22-Dec-13 17:38:58

Hi. I've come off prozac & started on mirtazapine. I'm in a living hell!!! I cant cope with my 3yo (lone parent). My flat is a hovel & I cant cope with it all! Its relentless. I feel like i'm on the edge & I'm going to completely lose the plot.

Arcadia Sun 22-Dec-13 19:39:22

That is good sparklingbrook, no major symptoms then. I hope to not develop problems sleeping again, although I am sleeping too much at the moment.

Sorry to hear that Donna. What was the reason behind the change of medication? I believe that mirtazapine can make you feel very tired. Do you have anyone supporting you?

MangerMinor Mon 23-Dec-13 09:00:08

Arcadia, yes I'm certain the citalopram caused the grogginess as an ongoing side effect for me. It's feeling like a long week - I feel like I'm just about to come down with flu without it developing into anything. Still having dizziness and headaches.

Donna, I hate to think about adjusting medication on my own, must be incredibly tough.

maudpringle Tue 24-Dec-13 08:14:31

So pleased I have found this!
I have been on 20mg of citalipram since late 2011 and it has helped me greatly but I just want normal emotions and my libido back.
After reading this thread I think I will go down to 15mg in the new year.
It is so interesting to read others experiences and advice- thank you smile

Hi maud. My 20/10 on alternate days is going quite well so far.

Arcadia Tue 24-Dec-13 10:46:12

Hi maud, welcome!
I think I will do similar, shave a bit off for a couple of weeks then go to 15, or alternate 10 and 20 for a while like sparkling. I am definitely going to start in January but do it gradually over two or three months.
Am nervous about side effects and worried that I will get tearful and emotional but am quite looking forward to having a proper cry again at some point!

Have a happy Christmas everyone! fsmile

Arcadia, I am glad you said that. I have not cried since I started on them in July 2011. Tears have welled up a bit, but no proper crying. At all.

maudpringle Tue 24-Dec-13 11:26:40

Thank yousmile
Exactly the same here!
No lows but no highs either.
Sometimes it is nice to really FEEL something.
Have a lovely Christmas all.

YY I want to FEEL 2014 properly. smile But that's probably the scary bit.

perspective Wed 25-Dec-13 11:50:33

Happy Christmas to all you brave ladies. I had a lot of support this time last year when I was depressed and on Citalopram. I wanted to come on to share that I recently completely stopped. Had a few wobbles, worries on some bad days, but you know what? It's fine. And good to have normal feelings back.

Persevere, slowly as you need to. I reduced by 2.5mg per fortnight, had some unpleasant withdrawal symptoms, some anxiety, sleep problems but they soon passed.

Citalopram saved my life I'm convinced, but I'm pleased to be off and coping.

Good luck to you all and Merry Christmas!

Orangeanddemons Wed 25-Dec-13 12:02:30

I'm weaning off paroxetine. Down from 20 to alternate 5 and 10's ATM. Feel transformed! Have motivation, energy, enthusiasm!

Even the eating is returning to normal. The stuff made me eat my head off!

Varya Wed 25-Dec-13 12:03:17

On 40 mg Citalopram and my GP told me to come off it after Christmas, but I think an alternative needs to be provided as I am unable to process what has gone on in my life without an antidepressant.

DorisButtons Wed 25-Dec-13 16:40:53

Day 12 of cold turkey and I feel miserable and am having a horrible withdrawal. I've got brain shivers, cramps in my lower calves, I'm tired all the time but bouts of insomnia too, my balance and coordination are off.

I feel "relatively happy" though - I just need this to pass.

I'm so angry with myself for getting pushed into taking citalopram. I had a horrible withdrawal back in 2005 but of course my brain wasn't working a few months ago so I said "oh yes, lovely thak you" rather than "tbh, I could wean myself off crack cocaine easier".

Have some weed, have some booze. It's the brain shivers which upset me the most I think. <sigh>

How's everyone else doing?

Arcadia Fri 27-Dec-13 09:31:14

Thanks perspective and orangeanddemons it is good to hear from people who have been through it and come out the other side!

varya that sounds really difficult, has your GP not suggested an alternative?

doris one of my friend advocated cold turkey (having done it herself) but that is very brave! Hope the symptoms wear off soon.

I had a good Christmas, although some of the usual family tensions. Now need to get the house sorted for the family descending today!

madasa Fri 27-Dec-13 10:45:31

I'm glad you started this thread op. I am on 40 mg and trying to come off them. I tried a few months ago but too quickly (GPs advice) I went from 40 to 30 one month and was ok but when I went from 30 to 20 the next month it was horrendous.

So now I am doing it my way. I have a pill cutter and am reducing by 5mg a month. Have been on 35mg for about 2 weeks and so far so good.

Hopefully this could be a good place for us all to get and give support whilst coming off this drug.

It did save my life but I just want to be free of it now,

DorisButtons Fri 27-Dec-13 12:18:28

Thank you Arcadia Day 14 and the symptoms have lessened significantly thank goodness! I've told my husband if I ever need to go back on AD's to remind me NOT citalopram. I can well believe your friend had a good reaction to CT - I came off effexor easier than this stuff - we all deal with it differently.

Mentally I'm doing well, in fact as I type the sunshine is streaming through the windows so all is good in the world. smile

working9while5 Fri 27-Dec-13 12:29:46

I came off 100mg sertraline from July to Sept this year, last pill 21st Sept.

Did 75mg for three weeks, then 50 for about six, then 25mg until eventually stopping. The bit on 25mg and after was a little tough but that was also because I had just started back to work.

Feel much better off them if totally honest.

Orangeanddemons Fri 27-Dec-13 18:52:34

I feel much better on a reduced dose too

ManicMinor Sat 28-Dec-13 18:24:37

(MangerMinor here, have reverted to non-Xmas name!) - Well I'm now two weeks on from reducing from 20mg to 10mg, and I'm finally feeling better, not so tired and the dizziness has passed. I've been under the weather with mouth ulcers and sore throat, but pretty sure that's a separate thing. Hope you've all been managing ok.

Arcadia Sun 29-Dec-13 16:36:07

madasa it sounds like your GP was a bit gung-ho about it. That is why I think, better to speak to those who have done it / are doing it. I once had a GP swear to me that zopiclone was completely non- addictive hmm.

I am a bit impatient to start the cutting down now but really feel I should speak to my GP first just to do it properly, even though I probably won't take her advice re dosage for reasons given above!

Welldone Dorrisbuttons that is a big achievement. Great to have some sun too, I have managed to get out for a good walk nearly every day over Christmas.

That sounds good Manic sounds like you are generally run down rather than side effects. I usually get like that by Christmas time but seem to avoided it this year.

working9while5 Sun 29-Dec-13 19:20:00

I am reading 'Cracked: Why Psychiatry Does More Harm Than Good' and I think I will never take them again tbh unless suicidal. The more I've looked into it and reflected I don't think they are half the wonder drug I once believed. I am glad they are there to take the edge off especially for anyone in torment but when I look back over the whole course of my depression right back to teen years when I wandered the streets with pills in my pockets and sporadically overdosed on pain meds I'm just not sure ADs actually made an appreciable difference that wasn't just about flattening the intensity. ...

I sort of regret taking them when ds2 was so little because I felt so little.. before he was born I was in torment but I could feel. I have found it such a relief to have real feelings of proper love and fun again even though I hurt and worry more too. I don't know if it was like this for anyone else but I just wouldn't want to experience that emotional blunting again unless I was afraid for my life. Very relieved to be off.

violator Sun 29-Dec-13 20:25:17

working9while5 I feel the same.
Since first being prescribed an SSRI in October 2011 I've done a huge amount of reading and research into them and I never, ever want to take one again. In fact I know now that the antid hindered me and gave me horrific side effects that GPs just don't know about.
After all, nobody knows how they work! Serotonin is mostly created in the gut, not the brain.

Anyway, I was so scared of withdrawal, given my awful reaction to starting them, that I began cutting 10mgs Escitalopram in half way back in July.
Cut the 5mgs in half in September and since the start of December have been cutting a 2.5mg in half. I'm taking a sliver at the moment!

I found going from 10 to 5 a bit tough for a few days, my mood plummeted. It did settled within a week or so.

Now the mood is fine but I feel queasy a lot, like pregnancy nausea. Very vivid dreams too.

I need and want to stop completely but a little afraid of what will happen. I do know though that it'll be just withdrawal symptoms and won't confuse it with a resurgence of depression or anxiety.

NatashaGurdin Wed 01-Jan-14 23:28:51

I am currently on 10 Citalopram having come down from 40 in the past two years, I think I've been on 10 for the last 4 - 6 months and I'm trying to decide if I should come off it completely. I'm due to see my GP for a review in February.

I'm thinking about coming off of it as I feel that even such a small dose is somehow dulling my feelings although on the other hand it could also be SAD because of the dark days. My GP thinks I have an anxious personality rather than an anxiety disorder as such and at first it really helped, is it a sign that you no longer need it if you feel it is holding you back?

It took me a long time to admit that I needed something stronger than the St Johns Wort I was taking (with my GP's knowledge) but I wonder if these things are finite?

I lost my job (I worked for a local authority) because the way I was treated by them over an RSI injury and a miscarriage caused a breakdown. I think they wanted to get rid of me without paying redundancy as I had been there a long time and they thought that I wouldn't protest because I was ill and the reason I think this is that I was prepared to take them to an industrial tribunal but at the 11th hour they offered a settlement which I accepted on the advice of my solicitor as it was very close to what I would have got in redundancy (I also got some equipment that was purchased for my RSI and a reference).

The other reason I am thinking of coming off it is that my libido is non existent and I would like to regain that if possible although it is possible that it is my age that is affecting that! (I'm 47). I thought that coming down to 10 might help this but it seems it hasn't.

I need to seriously look for work and I wondered if coming off it might help me focus my mind on that as well, I just feel as though my mind is full of cotton wool at the moment.

maudpringle Thu 02-Jan-14 17:30:48

Have been taking 15 mg down from 20mg since christmas day.
Not a massive reduction I admit but I dont appear to be having any side effects and as pp have mentioned, slowly is the best way.
Happy New Year to you all wine

Arcadia Thu 02-Jan-14 22:21:58

Well done maudpringle so you have suffered no ill effects yet
that's great!

Hi natasha sorry to hear what you have been through. Getting down to 10mg is a real achievement. I am feeling tired and 'woolly' and don't Know if that is winter or the citalopram.

I am not an expert but don't think your libido should be dropping due to age at 47!

NatashaGurdin Thu 02-Jan-14 22:49:27

Thank you Arcadia.

I think it might be the winter because I do suffer with SAD when the days are dull and dark.

Well I did think that 47 was a bit young! I don't think I've even entered the perimenopause yet as I don't have any other symptoms apart from the libido one and my periods are still as regular as they always have been. I think I will have to ask my GP when I see him for my review as I think he mentioned there was a hormone test they could do. I suppose it could be low iron levels which I've had in the past and perhaps the Citalopram is just the 'icing on the cake' as it were contributing to but not causing this symptom.

I wonder if Citalopram is so effective at treating the symptoms it damps everything down to the extent that all 'normal' feeling goes like the sedatives that are sometimes referred to as 'chemical coshs'.

I've never sought help/advice from an online group before but it seems that a lot of posters have remarkably similar symptoms with this drug so it seems that even if we feel alone when dealing with it we aren't actually.

Arcadia Fri 03-Jan-14 12:54:40

I don't know about the damping down. I still get positive feelings. When bad things happen I am just able to think 'oh well' and let it go, after initially feeling pissed off. I think I am more like a 'normal' person on citalopram than I am usually, in that I react to things a bit less strongly.

I just feel an urge to get myself off them now because the things that were stressing me out when I went on them are no longer issues, my life is a lot more settled now. However I now worry about my ability to deal with stress without them which is silly because I managed to do so for 38 years, and through some much rougher times than when I went on them.

Am just putting a bit of a 'plan' in place for the next few months to ensure I stay on good form.

NatashaGurdin Sun 05-Jan-14 00:28:46

I think I know what you mean about positive feelings Arcadia, when I was on the higher dose I felt more 'flat' so I suppose more normal feelings are coming back on the lower dose. I suppose the current feelings of 'flatness' are perhaps due to the SAD because of the weather and lack of sunlight then which will hopefully change when there is more sunlight! This was originally why I was taking St John's Wort and it worked for quite a while but then the miscarriage, ill health and everything at work happened and I suppose it just wasn't enough and I needed something a bit stronger to cope. Still don't seem to be able to cry though but I think previous posters have mentioned this symptom so perhaps it is not an uncommon one.

Arcadia Fri 17-Jan-14 20:34:46

Spoke to my GP and am now going to start cutting down, am starting by taking 10mg every three days, with 20mg on the other days, until it work down to alternate days, then do 10mg on two days and 20mg every three days, until I am down to 10 and so on.

I wanted to do 15s but when I got the 10mg tablets they are tiny and I can't really cut them in half.

It sounds silly but I am looking forward to having a good cry soon!

How is everyone else doing?

NatashaGurdin Mon 20-Jan-14 07:54:40

I think I'm still the same Arcadia. I am due to see my GP for a medication review around about February time so will discuss the way forward then, hopefully the weather will be improving so my SAD won't be getting me down when I am trying to move forward.

Arcadia Tue 21-Jan-14 09:02:00

I haven't had a very encouraging start with cutting the dose. I am feeling a bit odd; a bit 'unreal' at times (not particularly unpleasant though), a bit irritable and quite mood swingy. I didn't think I would have any symptoms from taking 10mg every three days as I have missed the odd dose completely before without any ill effect. I also woke at 2am feeling a bit panicky last night, which hasn't happened for ages.
Hard to know if it is psychological?
Anyway I am definitely going to take it slowly.

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