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Bipolar support thread?

(513 Posts)
Crawling Sun 03-Feb-13 19:04:00

Ive noticed there are quite a few of us and thought maybe a thread for us would be good. All are welcome those diagnosed and those awaiting diagnosis.

Ill start with Ive been depressed so long now I dont remember how I used to feel, yet id still prefer this to mania as the havoc I reaked last time was very painful to clean up after my episode. If I had to chart my mood today between 1-10 1 being I cant think how to make a cup of tea and 5 being good 10 being the tv is talking to me and I must go out now im about a 3 today what about you guys?

MightyQuin1201 Thu 18-Jul-13 23:16:29

I think I'm really lucky with my gp- she had me tested twice- i was low, just not massively low, so was tested for pernicious anaemia & results were negative but the b12 was still low. I was on Lamotragine for 7 years DH and I married last year and the plan was to try and come off my meds before we started ttc- I tried coming off last year and it was a nightmare, especially at the very end, then my Nana died (we were very close) so I gave up on coming off, and actually went through a bad patch for a while.

I came off the Lamotragine 3 months ago (took a couple of months reducing the dose) & once I finally stopped I started feeling exhausted, wobbly, faint, EXHAUSTED, irritable (being an utter bitch to DH)- I put this down to withdrawal, which I just had to deal with, telling myself I would get better and could go back on the meds once I'd had a baby...

Apologies for the long post, but it's a long story- sorry! blush So a completely separate thing is that I started getting a rash on my hands in the springtime for the past few years and last year it got particularly bad, was initially diagnosed as an eczema flare up, until after a holiday last August when it was terrible and I took pictures (it would die down once I was in cool and grey UK) & my gp said she suspected polymorphic light eruption. So my mum has lupus and PLE can be a precursor to lupus (great! I thought, that's all I need...), so my gp finally referred me to a dermatologist this year, when I reminded her, around the time I was coming off the Lamotragine. Because of a possible lupus link, my gp ordered all the autoimmune blood tests, and this is where the b12 thing came up!

So, I've had 2 shots so far (prescribed shot a month, for 3 months), and I'm feeling a zillion times better!

Crawling- my diet contains more than enough b12, but I don't absorb it properly- apparently stress and anxiety can inhibit the body's ability to absorb it from the gut, but it absorbs it perfectly via the injection.

So, part of me wonders is it bp2 or just years of low b12? For the record psychiatrist thinks all is connected & prob still bp2, but to keep an eye on this development....

MightyQuin1201 Tue 23-Jul-13 21:50:20

I'm not cured though!! My anxiety from absolutely no response to my last thread is huge!!!

Actually, I'm having a shitty day. sad

MightyQuin1201 Tue 23-Jul-13 21:50:53

*post- I meant last post, not thread.

Crawling Wed 24-Jul-13 10:24:11

Aww mightyquin what's the problem? I do th

Crawling Wed 24-Jul-13 10:26:07

Sorry baby pressed post. I do hope that med free works for you I recently tried and was nearly hospitalised.

Mirages Wed 24-Jul-13 11:50:42

I did stop meds after being fully stable for several years. I did not have any symptoms. I continued being stable for some years.

MightyQuin1201 Wed 24-Jul-13 23:18:59

I'm doing okay, most of the time, but then something snaps inside and I feel like I become a sort of shadow. Now that we're ttc I'm already worried about it not happening, which I understand doesn't really help!! I want to get pregnant & have a healthy baby and then know I can take the meds again if I need them...

Crawling Thu 25-Jul-13 11:35:05

Oh mighty quin just to let you know I've been med free on all 3 pgs and during early bf and very stable I hope its the same for you. I hope you get pg soon but iim here if you need someone as I know how hard it is being bipolar and Ttc or being pg.

MightyQuin1201 Thu 25-Jul-13 22:50:53

Thanks Crawling. I guess I just feel vulnerable. Did your bipolar affect you during/ after any of your pregnancies? Do you mind my asking you how old you were when you had your first child?

Mirages Fri 26-Jul-13 08:48:24

My first pregnancy went very well, and so did the post natal period. During my second pregnancy I got depressed and ended up in hospital when baby was five months old.

Crawling Fri 26-Jul-13 09:27:03

I was 17 and got pg during a manic episode where I was not using contraception. I was very stable as stable as on meds during pg and full bf. But I became depressed badly after about a year. My second and third pg went the same way with me having a major episode between a year and two years roughly round the same time my periods returned each time.

SpectrumCentre Wed 31-Jul-13 15:00:23

Hi there,

Ive just been having a read through what seems like an incredibly supportive thread. I am from the Spectrum Centre for Mental Health Research at Lancaster University and we are currently running a trial of a support package for Bipolar Disorder and parenting. I posted it here on Mumsnet a few days ago
http://www.mumsnet.com/Talk/media_nonmember_requests/1814231-Parenting-support-for-parents-with-Bipolar-Disorder
but thought it may be of use for some of you using this thread?

The Spectrum Centre for Mental Health Research is currently working in collaboration with numerous NHS trusts on a new online study. The intervention is self-help tool for parents who have Bipolar Disorder. The self-help intervention is currently under the clinical trial phase, so we are looking for parents with Bipolar Disorder to test it out. Parents will need to have at least one child aged between 3-10 years. It is free to use and we pay a small amount for your time.

The intervention is based on the online Triple P parenting intervention with additional modules that are specific to Bipolar Disorder. People can find more information and register interest to take part in the trial at www.ibpi.co.uk

Crawling Thu 01-Aug-13 19:57:22

Bumping so others can see your post spectrumcentre

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