Mumsnetters aren't necessarily qualified to help with medical problems. If you have any serious concerns, we would urge you to consult your GP.

Neurological treatment

(2 Posts)
weegiemum Sat 16-Feb-13 16:40:27

I have a nasty progressive neurological disability called CIDP (chronic inflammatory Demyelinating Polyradiculoneuropathy). Basically I can't feel or sense my hands and feet, lower legs and face.

I've been researching online and found there's a treatment in the us they're hoping to bring to the uk which has 100% cured this. However the treatment is a month of chemo to kill off your immune system, then a re-transplant of your own clean cells, then 6 months to a year of immunosuppresant therapy, not being able to go out (eg work!) etc.

I can't imagine a month without being able to see my dc (I've got 3, they're 9,11,13). I hate hospital with a passion!

But if it meant that by spring 2014 I'd be running about with my dc, loving life, in no pain and able to do all the things I currently can't, I'd give pretty much anything for that!

It's going to be a year at least until it's offered locally (I'm not prepared to go to London for it).

Would you put your dc through the worry and isolation? Or am I just being selfish?

MrsDeVere Sat 16-Feb-13 16:46:46

My oh has MS.
If there was a treatment that would cure him or even improve his condition, of course we would go for it.

I would want to know a lot more about it though. What type of chemo for example.

You would possibly be able to get out whilst on immunosuppressants. It's usually more a matter of being mindful rather than total isolation

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now