weegiemum
Mon 18-Jun-12 19:14:25
Several people have suggested that we should have a general rather than specific chat for parents with disabilities so I thought I'd start it!
I'm weegiemum, I've got 3 kids at 8,10,12. I have an ongoing neurological condition called CIDP, which gives me numb hands and feet, arms and legs, lower face, and altered predation so I can't tell where my lower limbs are if I can't see them!
The result is I have no balance, limited walking ability, have a wheelchair and walking aids, and can't do fine motor stuff. Sewing, writing, cooking, knitting etc all ruined.
Just wondered if, whatever you've got, however you're disabled, you might like to join in here!!
weegiemum
Sun 30-Sep-12 14:08:56
It's the paying for healthcare that prevents us moving. I get a treatment once a month at a cost of about £8000 and we'd never get insurance. Also, the one good thing is that I've got an excellent neurologist and our local hospital is on of the top places for treatment in the uk, if not the world. I'm very, very grateful for the NHS!
It sounds like you are in the best place then, I have always found the NHS a mixed blessing. The only time I need much care is when they've tried to help.... I believe I'm only blind because if the treatment I had on the NHS as a child (but there are no records so it's hard to know for sure)
flowerflo
Fri 22-Mar-13 20:39:42
Mumonwheels - just wondered how you are getting on with your baby? I always meant to come back to this thread but don't use mumsnet very often. If you are still using mumsnet I'd love to hear how you are xxx
Fizzbizz
Fri 05-Apr-13 12:40:08
I have a very active two yr old boy. My mobilty is greatly reduced due to Multiple Sclerosis which is a degenerative disease. My husband works full time which means I mind our son. I cannot leave the house with him on my own. I don't get any help with childcare. Is there anyone in a similar situation?
fizzbizz yes I am in the same situation as you. I have a 9 year old daughter and a 2 year old daughter. I am pretty much on my own with the little one all day. I find it really hard to go out on my own with her and either have to wait for dh to get in from work or get my other daughter to come and run round after the toddler. I have GBS and fibromyalgia.
