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What to do with reflux baby that hates everything!

(56 Posts)
milkyjo Fri 21-Jun-13 13:06:57

13 week old dd is breastfed, had a posterior tongue tie snip a week ago, is having gaviscon however the reflux remains. She screams a lot like she's in pain from either the reflux or wind. She hates lying down but will also eventually cry when being held upright so she ends up crying herself to sleep as she is exhausted but wake after half an hour. She won't go in a sling, I've tried 3 different ones, she hates the car seat and car, she cries in the pram. She hates lying on her tummy. We have a wedge for playtime, she tolerates a swing for 5 minutes. She will puke about 5 times and then the crying begins. We are waiting for an appointment with paediatrician but it's not until july. I am at my wits end as I can't stand to see her in pain and also it's really affecting ds 2.5 as he gets quite upset when dd cries. She is fine weight wise. Is there anything else I could possibly try or will I just have to wait it out? We are all so miserable, if it wasn't for the fact that ds needs to go to groups I don't think we'd leave the house!

MBRaz Fri 21-Jun-13 13:25:39

Poor you, I totally understand. We got sick of waiting for the appointment so sucked up a pretty expensive private consultation. But it was the best £200 I have spent - we got meds for dd (omeprazole - ranitidine which we were given first didn't work) and I must admit that was the only thing that properly made a difference.

I assume that you have raised her cot/moses basket? We used books but a rolled up towel also works. And keeping her upright for at least half an hour after each feed. And feeding little and often...

Also avoiding acidic foods yourself (no idea if this helps but I did it!) like tomatoes and citrus etc.

However, like I said, none of this made as much difference as getting dd onto the correct meds. I felt like I had a different baby and finally started enjoying being a mother!

Jeezimacasalinga Fri 21-Jun-13 13:45:31

Poor you - my third baby had reflux and it's tough to cope. Has your GP prescribed Ranitidine? This neutralises the acid, so won't stop the reflux or puking, but will stop it hurting. It was the only thing that worked for DD. She changed from a fussy, whingeing child into a happy camper within hours of starting the treatment! Good luck

MBRaz Fri 21-Jun-13 13:48:44

meant to say, as with Jeezima above - ranitidine does work obviously for lots of babies, just not for mine! I think it's about the correct meds for your baby etc

lotsofcheese Fri 21-Jun-13 13:53:38

We used omeprazole & it took a week or so to make a difference, but it did work. Your GP can prescribe this until the hospital appointment.

If you're really struggling, perhaps phone the Paediatrician's secretary & explain, asking for a cancellation, if you can attend at short notice.

youcancallmeEl Fri 21-Jun-13 14:27:43

A common cause of reflux is cow's milk protein allergy. Cow's milk protein that you ingest goes into your breast milk. You can try going off dairy products -you should notice some improvement within a few days and full effect after about 10 days if that is a factor. There is no good evidence to show that Gaviscon is effective. Omeprazole reduces the production of acid in the stomach so is very effective but it has it's own set of problems -changes the pH of the entire gastrointestinal tract and can cause headaches.

Wylye Fri 21-Jun-13 14:28:01

^^ I'd get back to the Docs ASAP to get hers meds revised. Gaviscon clearly isn't cutting the mustard.

DS had ranitidine for silent reflux, which helped but didn't stop the screaming, he just stopped direct-reflux-related crying but was still a screamer! He still is at 2.

Get the doctor to explain what each medication does so you can tell whether it's doing as expected - some neutralise acid, some speed digestion, others thicken stomach contents, others coat the throat, blah blah blah.

I feel for you - DS had to be upright for the first six months, he was permanently attached to my shoulder. Should've named him Parrot.

Does your buggy have an adjustable back? We used to leave our lad in his buggy to nap (he'd be in the same room or just in the hallway), and click the back up one setting so it wasn't quite flat.

I found that Gaviscon gave my boy awful constipation (picture me holding a 2 month old baby over the loo while he literally screamed a poo out). After that, I stopped giving it. I'd rather be covered in sick than see my baby screaming every time he farts.

What baby carriers have you tried/what position is she when in them?

Our boy also hated his car-seat so we quickly moved from his 'infant' seat to one that goes from 0-4 years, which had a much 'flatter' back, and could be moved from lying to sitting easily.

Are you breast or bottle feeding (or both?)

MrsFrisbyMouse Fri 21-Jun-13 14:49:14

Does she have a rash/eczema anywhere? That could suggest an allergy of some type? cow's milk protein has already been suggested. Other common allergens are wheat and soy. And yes, they can get it from your breast milk. Basically babies gut linings are really permeable to allow all the breast milk bits to be absorbed properly. About 6 months, their gut linings thicken to allow for weaning and thus they then stop 'bigger' molecules passing into the blood stream. Hence why they sometimes grow out of early allergies.

I know it's tedious to change your diet, I've been through it. But if it works you can see a difference really quickly and so you will know.

milkyjo Fri 21-Jun-13 14:54:22

Ds ended up on omeprazole. The gp won't prescribe ranitidine or omeprazole as they are not allowed to in primary care here. Frustrating as I know what the problem is and I know she needs omeprazole but also know that it will cost more money to get a paediatrician appointment to prescribe meds and or investigations. It has taken 3 gps to refer her as the first two were locum (not having a go at locums BTW), one of them even prescribed infacol! I'm quite annoyed at myself that I didn't push more and got seen sooner. The gp who referred her saw her in her throws of screaming and dd proceeded to vomit most of her stomach contents over her desk, good timing! Sometimes I think I must look like someone who may make things up as I get fobbed off a lot by doctors. Working in the NHS too, you'd think I wouldn't!

AugustRose Fri 21-Jun-13 14:55:56

I really feel for you having had two babies with reflux. With DD2 I didn't know what I was dealing with at first, thankfully the gaviscon worked for her but it did take a couple of months to settle down.

With DS2 I was really prepared and at the first signs contacted the GP. He had gaviscon which helped and ranitidine which didn't. I held him upright for at least 30 mins after each feed and over my shoulder as much as possible. His cot was raised quite high as I read that any crunching of the stomach will irritate them so car seats and baby chairs are not a good idea for baby to sleep in. Also if they are lying forward as flat as possible (like over your shoulder or short periods on their front in a raised cot) it helps the stomach flap stay closed and stops the acid coming up.

How are you giving the gaviscon, I started to express enough to mix it with for the evening feed and it helped straight away as I knew he was getting the full amount. Also when feeding, try small (although that usually means more often) feeds to stop the stomach being too full.

As for you, if she is pulling it is going to hurt so get some Lasinoh! I couldn't have continued without it as I was in agony before I started using it.

milkyjo Fri 21-Jun-13 15:06:35

I've tried cutting out dairy and caffeine but not for any length of time, a week or so. Ds has eczema and nut allergy but he had eczema from a tiny baby. Dd has lovely skin apart from sore face from drooling so much and stomach acid. Ds had his first tooth at 4 months and wondering if dd may be teething as well. As mentioned in the original post we had her tongue tie snipped as we thought this was THE problem, turns out she has multiple problems! I've just managed to bring her appointment forward by a couple of weeks so now it's only 3 weeks away. 3 weeks of hell!

noramum Fri 21-Jun-13 16:38:43

I cut out all dairy, all acid fruit, all caffein, all spices and all fizzy drinks.

Quite boring but it worked. I also drunk lots of herbal tea, actually a nursing tea but it contains fennel so it seemed that helped. Also Chamomille granulate in boiled water, 1/4 shot glass for DD twice a day.

We raised the crib with 2x 400 pages books for 5 months.

We avoided medication but that may be just our luck.

Ragusa Fri 21-Jun-13 16:38:45

Poor you. While you wait for the paed appt to come though, i would really thoroughly have another bash at the dairy exclusion. Soy is a good one to exclude as well. Likely the paed will want to exclude allergies and if you've already had a bash at this, then you can hopefully move along the line more quickly if you need to. If your DS has/ had allergies, CMP is more likely than it would be in the general population, especially if you or your DH also have allergies.

YOu need to cut out all mammalian dairy products (goats', cows', etc etc etc - including whey powder, caesin, etc, in pre-prepared foods. Its worth doing soy as well for a short trial because it can be a cross-allergen.If you're going to do this long-term then you need a referral to a dietician though, for both yourself and your baby.

noramum Fri 21-Jun-13 16:40:01

Oh, after 5 months it was suddenly over and DD has no food issues at all. She is 6 now.

PanicMode Fri 21-Jun-13 16:47:47

I cut dairy out of my diet every time I had a child (I have four, all of whom had severe reflux) and it really, really worked. You have to be really rigorous about it - but it made a HUGE difference.

milkyjo Fri 21-Jun-13 16:51:59

I am drinking new mama fennel tea, not really noticed any difference. I may try the dairy free trial again. Not really sure what I can eat. I'm currently having rice milk to replace cows milk but still eating other dairy. Does anybody have any links to a dairy free diet recipe website? Thanks for all the suggestions.

ubik Fri 21-Jun-13 16:58:37

DD3 had this and it was awful. She screamed her head off for what felt like the first 6 months of her life. she also had tongue tie.

Personally I think it's just a waiting game, eventually they mature and it stops being an issue. Am not a medic though.

monicalewinski Fri 21-Jun-13 17:26:24

Reflux is just awful, both my boys had it and it is soul destroying.

My eldest took a while for it to be recognised (but that was 11 years ago), so had liquid gavascon (given in a syringe) to relieve the "burn", but I still had to deal with the constant sick; my youngest (8 years ago) got ranitidine and powder gaviscon (in his bottles, to make it heavier) which was amazing - he was like a different child within a couple of days.

Both boys started weaning very early (3.5 months, fully off day bottles by 6 months) on the advice of the health visitor, this was because they were extremely hungry babies whos stomachs couldn't cope with the sheer volume of milk they were taking in.

They were both upright pretty much all the time (in the baby walker, propped up sitting against things etc) because they couldn't lie down without screaming - I think this is why they were early crawler/walkers.

They both seemed to suddenly grow out of it at about 6 months and have never had anything similar since.

My heart goes out to any parents who have reflux children, but it does end so keep going!!

monicalewinski Fri 21-Jun-13 17:30:14

Also (forgot to say!) I was told it was an immature valve in the throat that caused reflux (allowing stomach acid to come back up) nothing to do with allergies, this is why the reflux tends to just suddenly stop at around 5 months or so.

Dynababy Fri 21-Jun-13 17:58:53

GERD can be due to the valve being immature and not keeping stomach contents down but absolutely can be caused by allergies. I have a CMPI DS who suffered a lot with reflux. Feed little and often, keep them upright afterwards, raise the cot or get a wedge, ompeprazol was a wonder and of course work out if he has a problem with cows milk. 3 weeks elimination for you, if the vomiting pain and skin clears up you have your diagnosis. Elimination is the gold standard diagnosis, nothing else is more accurate. Hope this ELCS I know how tough it can be when the cry all the time, can't settle and are generally miserable. A dairy free diet and Ompreazol made my son a different person smile

Dynababy Fri 21-Jun-13 17:59:48

Helps not ELCS!!

apatchylass Fri 21-Jun-13 18:00:42

OP, sympathy here too. DS2 had it and it was horrendous. Nothing worked miracles, but a combination of gaviscon, ranitidine, infacol, keeping him upright at all times, even letting him nap in the pram in an upright position all helped a little. Also, wind DC sitting upright on your lap, not over shoulder as the pressure on the stomach if it's tender from vomiting can cause another vomit. We found feeding little and often rather than three hourly feeds helped, as did getting him onto solids, but he had FTT as a result, and it sounds as though your DC is at least thriving weight-wise.

Wylye - still screaming at two, you say. We discovered, when he went for a routine check up that DS2 still had reflux aged 8! Bit of a shock. But he'd grown so much now that it didn't get far enough up his body to cause vomiting. He often has a bloated stomach or stomach ache. Could you give him some Zantac if he's screaming? We give DS2 antacids tablets as soon as he feels uncomfortable even now (he's 11) and it does help a bit.

MyNameIsSuz Fri 21-Jun-13 18:11:03

Some sensible advice here about diet and propping her up.

It may be a stupid question, but have you tried a dummy? I usually don't like them but was willing to try anything for my refluxy boy, apparently they are very good for settling the tum because it makes them swallow lots of saliva (or something, I don't know, science!). As it turns out he wouldn't take one, but if you can manage it that might be worth a try.

MiauMau Fri 21-Jun-13 18:41:42

Cranio-sacral Osteopathy really helped us. We found that gaviscon just made our DS constipated, so we found an osteopath who specialises in babies

Want2bSupermum Fri 21-Jun-13 19:08:19

DS is four months next week and we have been struggling with reflux. We are in the US and they take reflux seriously here after you hit the 4 month mark. Our paediatrican has done extra appointments to track his weight to make sure he is growing.

So things I have done to survive:
1 - Gripe water before a feed. Paediatrician said to try it and I found it helps push the wind either up or out earlier on.
2 - Get a 2nd washing machine and feed him over a wipeable surface. I put a towel over myself when I feed him to help cut down on the laundry.
3 - Time your feeds so you can time your burps. Also try different burping positions. It can take up to 3 mins for DS to burp. It takes DS about 15mins to drink 8oz so I burp him every 5 mins of feeding until I get at least one burp.
4 - Give him a paci. The sucking motion keeps the digestive system moving along, helping the baby pass gas.
5 - This is where our baby sleeps. I got mine at Target. I assume they sell these in the UK. Our paeditrcian told us to get it and it is fab. Other great thing to try is the swing. Try both the huge swing and smaller compact travel swing.

I would call the paediatrician back because you need to have your baby seen. It could be something more serious. DS was checked for a few things including allergies. They offered to write a script for something but I opted to try the gripe water and their other suggestions.

fairimum Fri 21-Jun-13 19:14:44

stamp your feet for a pediatric referral and get prescribed omeprazole and domperidone - the ranitidine (if it works) usually only works for a short period of time!
good luck

Ipp3 Fri 21-Jun-13 19:35:52

I have a friend who said her babies reflux disappeared instantly when she fed him formula milk designed to help reflux. I can't get my son to take a bottle though so haven't been able to try it myself.

Bambinocino Fri 21-Jun-13 19:39:47

I really sympathise, my son now 2.8 had what we thought was reflux, it wasn't until he was 6 months (that's 6 months of non- stop screaming and sleepless nights) that he was diagnosed with allergies to cow's milk protein, soy and gluten. At that point I cut dairy, gluten and soy out of my diet one by one (I was breast feeding), and it helped in some respects (eg he had had constant green diarrhoea which improved) but he didn't stop crying until i stopped breast feeding at 9 months and put Ds on neocate formula. He then transformed overnight into a happy baby. He's been fine ever since though still has no gluten dairy or soy in his diet.

In my case the reason it took so long to sort out the problem is that none of the doctors I saw diagnosed it correctly. We were seeing a paediatric surgeon who had snipped ds's tongue tie at 4 weeks, and at a follow up appointment starting treating him with ranitidine and omeprazole for what he thought was reflux. Despite me saying over and over that the crying wasn't stopping and nor was the diarrhoea, he insisted that ds would grow out of it and resisted my getting a second opinion from a gastroenterologist. In the end I just went ahead and saw the gastroenterologist - privately, it was expensive but a life saver. If i hadnt, DS would probably still be screaming. So my advice is to be assertive with your doctors, and see a gastroenterologist if possible so you are confident that your baby is being treated for the right problem. Not sure where you are but we went to great ormond st hospital in London and it was wonderful.

Oh OP, really sympathise as my LO (now almost 10 months) had this really badly too. We were prescribed domperidone and ranitidine eventually after gaviscon made no difference (still kept him on it) and he was MISERABLE. I made a big fuss and got to see a paed consultant who took one look at him, basically swore at how crap our gp had been and put him onto big doses immediately. He finally came off everything end March when he was about 7 months old. It's bloody miserable watching them suffer. It eventually made my milk dry up even though I too went onto Domperidone to help my supply (and odd side effect of it is it can stimulate lactation) as he wasn't comfy lying down to feed so we went onto the Anti Reflux formula which did help and he's still on it now as won't take anything else. I was really upset at the time to not be able to feed past 13 weeks, but he's fine! We do still have vomiting up and he's not great with lumps, but getting there slowly.

I've no new advice really from others but here's what helped us get through some really tough days: We always rubbed his back, not patted after feeding, kept him upright, tilted the basket/cot, did a little bit of tummy massage. We also had cranio sacral therapy too, primarily for a neck lump due to forceps and awful birth, but also for reflux too. I think it helped, but can't be certain! He went in his buzzy chair a lot, as was upright, plus he liked to see. Tummy time was (and is) a disaster and he hated it as I think it was uncomfy for him. He was in a sling a lot and I still like carrying. Sorry, this is very long. Good luck and This too shall pass...honest smile

ratbagcatbag Fri 21-Jun-13 20:12:33

Go back to the drs everyday until they refer you to an ambulatory clinic, I visited twice, once on the thurs, then on the tues, by weds I'd seem a paed. If that fails, go to an a and e attached to a children's hospital.

There is nothing worse than reflux, in the early weeks (birth to seven weeks) I could have walked out and never come back. She's now 13 weeks and we've had six good weeks, it feels like a lifetime ago it was so bad. Little signs are creeping back in, but she's on 10mg omeprazole, so we do have room to increase.

Dd tummy sleeps, but obviously not great for you, however, instead of precariously propping cot up, we got a piece of mdf cut just under the size of the mattress and placed it under the mattress and on the slats,cost about £15 and we can increase the size of incline using boxes and books under mdf when needed. Big hugs.

I'm another one who cut dairy out of their diet - I actually managed to get away with just cutting out milk, cream and ice cream. It does apparently take about 2 weeks for it to leave your system and make a difference but I did notice a small change within 3 days and if I forgot and ate ice cream ds would be screaming within hours.

Cutting the milk didn't stop the reflux but it did stop the pain/screaming as it appears he was suffering from both types of reflux.

To cope with the reflux, I found it easier to tip ds over laminate/lino flooring whenever possible and kept a wet mop handy at home - much easier than trying to catch it with a cloth and I got slightly less drenched too.

Our hv suggested early weaning at about 19/20 weeks. This was disastrous as I then got covered in orange vomit which stained everything instead of nice and easy bm vom.

Blondeshavemorefun Fri 21-Jun-13 20:33:24

you poor thing - you must see a specialist and hope app in july goes well - we see a doctor at portland hospital in london

im a nanny and i look after a 4/5mth baby with severe reflux sad

he is on nexium, the highest dose and has really helped

has 30mins before a feed, twice a day and is a powder mixed with 15ml of water and given in a dummy dispenser here they are fantasic!!!!

but

every feed is a battle - he protests about having a bottle, each feed takes roughly 45mins and gets generally 5 /6oz - sometimes if really lucky then 7 oz

i then spend 45 mins keeping him upright to try and ease pressure on his tummy

he generally then falls asleep on me and i will then transfer into his cot

his cot mattress is raised at at angle and a pillow at the bottom for feet to lie on and towels either side of him

he sleeps on his tummy and this is the ONLY time as a child carer that i recommend this as to lessen the risk of choking, as even in his sleep he will still sometimes be sick

he will sit happily in his baby chair after a sleep and maybe the 30mins before a feed

nappy changing is always done before a feed, unless he poos during a feed, grrrrrrrrrrrr and then is changed very gently on an incline or the bottle he has drank so far comes back up

there is no rhyme or reason to if he keeps a bottle down or if it all comes back up

every feed is different - if he keeps 99% down is a success - some days he keeps all down, some days every feed comes up

it is almost soul destroying to manage a feed and then whosh it all comes back up sad

we moved to 4 hr feeds so even tho he sometimes has less milk throughout the day as misses a feed, his stomach can cope better with longer feeds and seems better in keeping the feeds down, plus less stressful for bubs

he is on a vanilla based formula normally meant for over 1's but has on prescription - think mum said it was £45 per tin shock , tho i may have misheard but is a lot more expensive then normal baby powder milks

we have started weaning, solids seem to help a bit rather then the slosh of milk iyswim

the family i work for, the mum doesnt work and looks after the 2yr and i am basically there to look after bubs, he is a fulltime job and the mum said she appreciates how lucky she is to be able to afford full time nanny as it is impossible to look after both children, or the just 2yr is ignored/not played with for almost 2 hrs per feed/winding etc

i have cared for a few reflux babies but this bubs is def the wost case i have cared for sad but as i said to mum, he will start to grow out of it by the time he is nearing one, and more so when walking as upright

Wylye Fri 21-Jun-13 20:51:44

milkyjo It's def worth cutting out dairy entirely for a month to see if there's any improvement - it's one of the first questions the docs ask so is very handy to know one way or the other.
It's bloody annoying, but if you start tomorrow, you can give the paediatrician more info to work with.

apatchymum I'm pretty certain it's not reflux now, he's a very testy boy and screams as a first resort!

Beginningofthejourney Fri 21-Jun-13 20:54:42

My 3 week old baby has reflux he is on ranitidine and domperidone, that seems to be doing the job, he now winds easily (both ends!) and is rarely sick (hope I'm not tempting fate!) he is a breast fed baby and was 6 weeks premature, I do tend to hold him up right for a while after feeds. He was prescribed his medication whilst still in scbu but waiting until July seems far too long! :-(
Hope you get it sorted soon x

Sarahplane Fri 21-Jun-13 20:55:12

Reflux is awful. I really feel for you. Gaviscon made my ds constipated but didn't help with the reflux so we took him off it. Thickened milk - sma stay down was the only thing that stopped him loosing weight but he was still sicky and miserable.

Eventually after we'd changed doctors he was prescribed ranitidine which made him happier but he was still being sick. after we got referred to a pediatrician he was proscribed omeprazol and domperidone which helped a lot. He was still sick but not as much but was like a different boy because he was so much happier.

He eventually grew out of it when he was just over a year old.

childof79 Sat 22-Jun-13 11:51:01

I remember this with DS1. his reflux was like your DS'. I found all advice pointless as nothing helped until I saw the paediatrician.

At one point I considered taking him to A&E (he had thrown up after every feed and had cried continuously for 4 hours) but by some fluke he eventually managed to keep the last feed of the day down.

Want2bSupermum Sat 22-Jun-13 12:38:29

I didn't include info about formula because OP, you said you were bf. I am including it here for anyone else who is reading this who isn't bf.

Our paediatrician said the formula for reflux rice in it to thicken it so to try the ready mixed stuff first as they don't like baby getting rice before 6 months if it can be avoided. We get the ready mixed formula at costco using an exec membership. The formula alone will have paid for the membership and it slightly cheaper than walmart (which I avoid shopping at for ethicial and sanity reasons) and about 20% cheaper than anywhere else. Thicker formula has helped our baby.

CabbageHead Sat 22-Jun-13 13:54:37

Reflux bub here too, grew out of it mostly at 6mths, pushed GP for script for Omez, he ended up ringing our Paed to discuss thankfully!! also wrap sling, dummy, raised cot, holding upright and lots and lots of LOUd white noise esp womb music when he was little bub for soothing.. Osteo and Bowen therapy helped too.. Car and pram were a nightmare until he was bigger, got front facing seat as soon as possible, and used pushchair as much as possible from birth, as could raise the back a bit... Wish i,d tried a swing tho, might have saved battles with day sleeps (and sitting in chair, with ds asleep on my shoulder, without moving or breathing for hours!!)

londonlivvy Sat 22-Jun-13 14:08:06

my LO had this and my cousim suggested www.cryingoverspiltmilk.co.nZ which I found useful.

it turned out for us that the culprits were dairy, eggs and soy. when I stopped eating them (nb soy flour is in loads of bread) it was like I had a different baby. sunshine!

I stuck with bf and the restricted diet for six months and then moved her onto neocate formula from the doc. she's happy and growing well.

I would say definitely give dairy free a go. After two weeks then eat some and see what happens (green poos and much screaming in our case) which confirmed it.

ellasmum1 Sat 22-Jun-13 19:08:00

my first child had this and i sunk into horrendous PN depression.The thing that helped me most was changing from breastfeeding to SMA staydown milk,designed for reflux.She had silent reflux so didnt even vomit much but my god she screamed for about 9 hours solidly a day and the Gp and health visitor just said"some babies just cry alot".
Someone else feeding her helped anyway as I felt totally responsible for it all when she was arching her back and screaming during breastfeeding!!

ellasmum1 Sat 22-Jun-13 19:12:28

And also may I just say hang in there.I know how hard it is to see your baby in agony every day.
It will get better.She is 10 now and extremely healthy,but I remember the darkness of those days like it was yesterday.Pure hell.
xx

Bakingtins Sat 22-Jun-13 19:47:56

More sympathy here - DS2 had severe reflux and the first 6 months were hell.
Things that really helped us were cutting dairy and soya (turned out he was milk + soya protein intolerant but the medics were less than no help with this) and getting him onto omeprazole. Other than that it was just time. I say this to encourage you not to put up with the fobbing off because we didn't see massive improvements until he was two, so you need to get a decent management plan in place, in the event that your LO does not outgrow it as promised at 12 weeks/when they sit/when they start solids/when they walk.
The Little Refluxers website is great for advice and support, and I can't recommend this book highly enough.

SurvivalOfTheUnfittest Sat 22-Jun-13 21:25:30

Also check out the Cows Milk Allergy Support website and their facebook page (where parents are a fount of all dietary knowledge, having seen most of the relevant paed.s and dieticians in the country between them!! They have made me feel sane since I found the group in January. You don't have to have a firm diagnosis to join - as with intolerances you can't get one, other than by the process of elimination).
I've had two refluxers too - the first silent and the second more a carpet-wrecking type! You will survive, but do stamp your feet as loudly and long as you need to in order to a)get the help your baby needs and b)to keep you sane.

Herhonesty Sat 22-Jun-13 21:50:47

Short term;Ranitidine(Zantac)
Dummy
Time out for you.
Consider formula if you need more time out and go the gaviscom route ( which you can get OTC) which is next to imposs to give if breast feeding.

I promise it will pass

hairclipcloe Sat 22-Jun-13 22:30:27

Getting the right medication was key to helping our DD. She was screaming and screaming in agony all the time, it was effecting her breast feeding sleeping everything.

Gaviscon did not work for us but Ranitidine did, within a couple of days. It was wonderful that she could be more comfortable, feed properly etc. Didn't stop the sick but stopped the pain. shes 9 months now.

It will get better.

pickledlily Sun 23-Jun-13 20:12:41

Reflux is the pits. DD had silent reflux (I suspect she still suffers from it but at 15mth I find it difficult to distinguish from over-tiredness/tantrum/teething). Gaviscon worked for DD but it was impossible to administer as she was EBF and refused bottles and formula. Didn't push it any further with the GP as they were so disinterested (wish I had in hindsight).

The only sling she was happy in at 3-4m was a Baby Bjorn (kept her upright and leaning forward slightly, plus she hated facing into me by this age) but I'm guessing you've tried one of these already.

Up until then, I'd have to carry her around tummy down along my forearm (I now have very toned arms smile ) and she would only sleep sitting up, draped face down across my chest in our bed.

Keep going to the groups, it kept me sane when she was feeding constantly, and I hope you find something that works.

Wheresthepopcornagain Sun 23-Jun-13 20:18:01

Gaviscon is cheaper to prescribe which is why they try it first. Ask for a medication change. dairy and wheat free for a month made no difference to my baby.

milkyjo Sun 23-Jun-13 20:53:04

Wow thanks for all the replies. Sadly I have tried most of the suggestions regarding positioning, dummies, sling etc. So the things I am focusing on now are my diet and getting meds. Thankfully I can stay sane knowing how many of you have been through it and come out the other side safely! I know I've been through it already with dc1, you'd think I'd be an expert!

Merinda Sun 23-Jun-13 21:35:49

I have waited to see the answers before I would comment, because our case is on the extreme end of the scale. But I will let you know as it may be useful.
My LO had very severe reflux, up to 60 times a day. He had a distended tummy, rash, was screaming non-stop and the situation was desperate. We went through all the standard meds very quickly with little result, saw a paed at Portland. He diagnosed milk allergy, but even with me removing every trace of dairy from my diet, the vomiting continued. I then cut out more foods, MEWS first (milk, egg, wheat, soya). Then started noticing that he reacted to more foods, so progressively cut out more. I ended up on a severely restricted diet (ate about 10 foods in total), and he stabilised a bit, but still had mucous in his poo, which indicated gut inflammation.
Finally, we got referred to a paediatric gastroenterologist, who is also an allergy specialist. He recommended switching to a prescription elemental formula (Neocate), and prescribed a couple of antihistamines. We weaned off omeprazole, which, in general, is not a good med for an allergic baby. Vomiting stopped at about 7 months.
Sadly, my LO has eosinophilic disease, which is caused by multiple food protein allergies. We are working with a dietitian, trying to introduce foods very slowly, and it may take up to 10 years for him to grow out of it completely.
As I mention, ours is a very extreme case, and I would not expect your LO to be this severe, but just wanted to share our experience.
We have tried everything that has to do with reflux. Reflux room on Facebook is a community of moms with similar experience that may help. Little refluxers is another forum that is quite good. And Colic Solved is a great book for the "beginners" , which explains a lot of basics

Sounds like my dd. do you wind after every feed, I mean really wind? Because dd took down so much air despite giving her TT snipped - her wind was dreadful. Still is at 18 months (she also has upper lip tie as well). I have to make sure I get the burps out otherwise all hell breaks loose.

Dd and ds have/had silent reflux. Infant gaviscon was crap and I read somewhere it can make things worse. So we got ranitidine which worked for ds but less so for dd. in the end, I stopped dairy and soya and spicy foods etc. had to be careful when weaning too.

The other thing is that she may well be overtired and this can present itself as similar to reflux symptoms. So I had to get them both into regular naps which was hard, especially with dd as I had a 2 year old too.

With the sling, I couldn't put dd in unless she had been winded otherwise she would go mental (pressure on her tummy I suspect). But sometimes it was just that she was so tired, she'd scream for a bit thfn finally sleep. It was how I got her to take a dummy - I had tried so many, but out of desperation, bought a nuk silicon one in the local chemist, stuck it in and hey presto. She will only take that particular type now (and they're only available online or in small chemists annoyingly). So keep trying with the dummy.

Soon you can have her in a pushchair so she's more upright - dd started napping in one from 4 months or so which was a life saver! Worth seeing if that's an option for you? Instead of lie flat.

Iwaswatchingthat Sun 23-Jun-13 21:57:58

Not much else to offer - you have had some excellent advice here. Just did not want to read and run. Wish I had known about mumsnet when dd2 had reflux. Awful time - she was on the gaviscon until she was three and a half years old. only diagnosed at six months - until then i received the classic health visitor's advice of "babies cry"!!!! it is terrible when you feel you can't make your baby happy and I often felt like I did not even like her as all she did was cry!

Dummy is a good tip - wish we had used one sooner. We waited until she was two and it really helped.

Good luck and keep asking for help. X

Sunnysummer Mon 24-Jun-13 02:10:24

We're still working on it... So far omeprazole hasn't done much, and we're at the highest possible dose a paed can give, so are waiting on an appt with the gastro paed (the waiting lists are so epic that he'll hopefully be recovered before we actually get to see someone in NOVEMBER!)

What has worked so far: napping in the ergo sling (he did object at the beginning, so it's worth sticking with it), sleeping with him on my chest, secured with a moby wrap (not as safe as a separate bassinet, but a whole lot safer than a mother who has slept 1 hour a night), keeping upright with absolutely no jiggling or playing after a feed, using wedges below the change table, the activity gym etc; resting upright in the baby bjorn bouncer inbetween sling carries. Public transport everywhere because the car and pram were completely useless.

We also tried a month of total dairy and soy exclusion and 2 weeks of having him on the elecare hydrolysed formula (prescription only, total allergen-free), but neither worked so we are finally back to breastfeeding which is much better, it is more easily digested, so less likely to cause painful gas and/or constipation, plus he finds it more soothing when he gets upset. If you are going fully dairy and soy free, be careful of things like bread and even sweets - but the goo news is that many brands of potato crisps are ok, as is Lindt 75% cocoa chocolate! smile

Athrawes Mon 24-Jun-13 04:47:09

A bit of a sideways look at it from me: my DS had silent reflux so we did all of the above but really it only improved at around 9 months when solids came in quantity.
So - what will help YOU...respite care/day care once or twice a week. Getting a decent night sleep once a week or a half day to lie on the sofa, could give you the mental energy and werewithall to sustain for the next couple of months.

MrsMannie Thu 11-Jul-13 10:29:16

Just a quick post as most has already been said. DS is now 12 weeks, having been diagnosed with GORD at 7 weeks. He is on omeprazole and domperidone which has definitely got his pain under control. Ten days ago we had a major breakthrough when having bought just about every useless reflux aid under the sun with no effect, we bought a Poco baby hammock. The first night we tried it he actually fell asleep in it without needing a two hour pram journey! He now already goes to bed happily at 7.30 and doesn't wake until about 1 am for a feed, then miracle or miracles, will go back in his hammock until about 5 am. We have gone from DH on the sofa and me sitting up all night holding DS to having our evenings back and SLEEPING in the same bed. Won't work for all I'm sure but at £160 and lasts until 9 months, if you get just a few hours sleep, I think you would agree its worth it! Got mine from Kiddicare for next day delivery but they also have their own website.

milkyjo Thu 11-Jul-13 23:25:33

Thanks for all the advice. Dairy, soya, caffeine, citrus fruit and spicy food elimination didn't work and saw absolutely no difference from stopping them, then restarting them a month later. The reflux got really bad when she reached 3 months and now at 4 months we have been prescribed omeprazole. Yet to try it as we're waiting for it to be ordered by pharmacy. It didn't stop ds vomiting but did help with the pain. He was on it by 5 weeks though.

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