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Baby with eczema not sleeping - feeling desperate

(67 Posts)
PragmaticWench Tue 26-Mar-13 02:23:11

My three month old has

PragmaticWench Tue 26-Mar-13 02:32:51

Argh! My three month old has eczema and scratches constantly at her head during the night. I am feeling desperate, there seems no way out of this and no end in sight, I can't imagine ever getting any decent sleep again. Sat here for an hour after a feed trying to stop her swiping at her head and I just lost it for a few seconds and felt I could have really hurt her. I'm usually very practical and so getting to this point has been scary; how does anyone else cope with this?!

Really sorry to hear this - it is exhausting and worrying. My 8 month old has had the same - for weeks his head looked horrendous, with cuts and scratches all over. We now use scratch sleeves at night (from scratch sleeves.co.uk) and were prescribed Aveeno lotion, which has been the only thing that has soothed the itching. His head is clear of attack marks, though the eczema is not yet entirely gone.
Hope it clears up soon for both your sakes!

PragmaticWench Tue 26-Mar-13 09:04:57

Thanks, I was feeling totally desperate last night, she was just scratching and scratching so neither of us were sleeping. We have her in the scratch sleeves which do seem to stop so much of the damage, but her head still weeps. Do you find you use the Aveeno instead of things like diprobase, or as well as?

We saw a consultant paediatrician last week who basically said that she'll have eczema for life and there's not much you can do apart from moisturise the skin. I'd been hoping for more options than that so am now feeling pretty blue. I know she'd be a happier baby if she didn't itch so badly, poor little thing.

Why did he think she would have eczema for life? Our paediatrician is a little more optimistic than that - suggested he might grow out of it along with the dairy intolerance, as the two are often connected. (Have you tried cutting out dairy from your diet if you are bfing?)
DS is allergic to paraffin, so Aveeno so far is the only thing that works. He actually likes having it applied!

PragmaticWench Tue 26-Mar-13 10:01:57

The paediatrician said the eczema on her head would go but the atopic eczema on the rest of her body was for life, although it may come and go as mine has done. She also pooh-poohed the idea of allergy testing or cutting out anything in my diet which surprised me; if there's an underlying cause, wouldn't it be better to find it?? She said we'd have to wait until DD is eighteen months for that.

How did you find out your DS is allergic to paraffin, was it trial and error with creams?

I have DD in the scratch sleeves day and night, with supervised time free from them to play. I feel I'm stunting her hand co-ordination development but it's that or serious damage to her skin. sad

Yes, we has the same worry about development. Still no answer to that one!
Until 18 months??? Noooo! We are having them done on May, ds will be just shy of 10 months. Can you argue that one? And I have to say that since cutting the dairy, ds's eczema has been much better - not perfect but better. I can't believe someone would think there is no link between diet and skin! Poor you, dealing with this.
My other suggestion is vitamin E capsules pierced and the oil applied straight into skin. My mum did this with us as babies and says it helped our eczema (which I grew out of wink ).

You can also ask for a referral to a dietician through your gp and bypass the paed?

PaleHousewifeOfCumbriaCounty Tue 26-Mar-13 10:27:10

My little man was just diagnosed, the prescribed stuff is crap tbh, so im waiting on aveeno baby eczema coming. In the meantime, we are trying the oat baths. Seems to be soothing his skin much better for bed. Might be worth a try?

PragmaticWench Tue 26-Mar-13 11:37:20

That's a thought Pale, thanks, we're just using a prescribed bath oil at the moment but it does make the eczema look more red for a while. How do you do it?

Sigh, it's all such a pain, for us and definitely for DD!

Maybe I should rethink a few weeks of dairy-free for me?

eragon Tue 26-Mar-13 12:25:09

It 'may' help IF your child has a dairy allergy.

3 signs of food allergy in an breastfed infant are ezcema before 3 months,
poor sleep pattern, slow.poor growth pattern.

try a younger gp in your surgery, they might be better informed.
try asking for a refferal to a pead immunologist if one is near you.
anaphylaxis campaign may help with this.

try removing all milk from diet, it might be worth trying other mums have had experience with this and can advise you further on this, I didnt get that far with my son!

and good luck.

oh, and look in the allergy section of mumsnet!

(understand how you are feeling, have been there.)

PragmaticWench Tue 26-Mar-13 12:52:34

Thanks Eragon, it's the scratching and not settling after feeds in the night that are getting to me. Not that i'm glad other children are suffering but it's good to hear you're not alone, iyswim.

Pobblewhohasnotoes Tue 26-Mar-13 16:40:55

Firstly, the paediatrician is talking bollocks.

There is something you can do, you can see a dermatologist who will know what they are talking about.

The moisturisers won't make the inflammation go away, you need steroid creams. They are perfectly fine to use, our DS had eczema at four months old and we were given a steroid and emollient regime, including creams for the bath by the dermatologist and his skin was different by the next day.

It's possible for it to be related to a dairy allergy so I would also see a dietician. Our DS is intolerant to cows milk protein, we had to wean dairy free etc.

We were given piriton at night to stop him scratching.

Our dermatologist said its not acceptable to have any patches of eczema, and they can grow out it, so they won't necessarily have it for life. Get referred to people that will help you.

PaleHousewifeOfCumbriaCounty Tue 26-Mar-13 17:52:43

For the oat baths i just bought a big bag of oats, whizzed them up for ages to a fine milled powder, and add a cupful to his bath. It goes kindof milky looking, and let your LO stay in for a good while.

And for having it forever, thats complete carp. My older two both had it as babies, both started around teething time, both fine now. Just one of those things, their skin is so brand new.

EvaPeron Tue 26-Mar-13 20:17:24

Have you looked at peke moe sleeping bags from new Zealand, they're supposed to be good for babies with eczema. We used one for our ds1 when he started to escape his swaddling.

nellyjelly Tue 26-Mar-13 20:24:54

Piriton at night. Ask GP for scatch suits which are stretcy leggings and tops with feet and hands in and high necks. Good for stopping the scratching and holding the cream in place.

nellyjelly Tue 26-Mar-13 20:29:06
shoutymcshoutsmum Tue 26-Mar-13 20:40:23

I really feel for you - I remember it so well. His little nails would just slice his skin on his face.. My DS may give you hope. I took him to an amazing Professor of Dermatology in London - he told me:
(1) to restrict baths as they dry out the baby's skin
(2) to moisturise at least twice a day. we used Epaderm ointment.
(3) that to get rid of the eczema, we needed to use steroids. We used 1% hydrocortisone twice a day. Then after a fixed period of time, we moved to using it once a day. We then used 0.5%. If it was to come back at all, we were told to go back a step.

At one year old, it was gone. It is only my story but it definitely true in our case.

Good luck.

Pobblewhohasnotoes Tue 26-Mar-13 20:55:22

We saw a Professor of dermatology in London too and he told us to bath DS everyday! He gets bathed with emollients and washed with them too. I wonder if it depends on the eczema? DS was covered top to toe in it.

Best thing we did was to see him, made the difference to all our lives. I would never trust a GP to treat my child's eczema ever again. They just don't know enough about it.

nellyjelly Tue 26-Mar-13 20:56:31

Yes. Don't be scared of the steroid creams. They are strong but they work when used properly.

My DD grew out of it and DS has it but it is much improved. We got referred to an eczema clinic which was really helpful. Good luck.

narmada Tue 26-Mar-13 20:57:10

Oh what a load of nonsense about the milk allergy and 'not being able to do anything till 18 months'. angry. The paed we saw in relation to DS's feeding aversions and faltering growth said 'milk allergy' straight away. He said that in times gone past, they had seen numerous kids with eczema and various other atopic symptoms, and that he looked back now and felt really bad that it was not know then that milk was probably the cause of many of the issues.

He also said that RAST blood tests are often inaccurate unless the individual has an anaphylaxis-type allergy. I think it's called an IgE-mediated allergy? (people on allergy boards will know more). If you have an IgA allergy then it's unlikely to show up in a RAST. DS's was negative but he had a clinically significant milk allergy.

If you're going to do dairy-free, for maximum chance of success you probably need to cut out soya products to, as allergy to soya commonly goes alongside allergy to CMP. You need to be vigilant for things like whey powder, whey protein, caesin, etc - they are added ingredients in some bizarre things such as sausages, chicken products, as well as the usual suspects. Goes without saying that any other mammalian milks also need to be excluded as they are similar (goats', sheeps', buffalo mozzarella etc).

narmada Tue 26-Mar-13 20:58:18

Soya products too I mean.

curmit Tue 26-Mar-13 21:06:41

I feel your pain. DS never slept a proper deep sleep, always scratching. It drove us to the brink.

We would sometimes give piriton before bed, on advice of dermatologist at children's hospital - you can insist on referral from your GP.

You can also insist on allergy testing, but 3months may be too young anyway.

DS is a typical allergic child. Developed Asthma, hayfever and allergies along with the eczema. Dairy is his main allergy, so don't rule out the possibility, but don't fixate on it at this young age, try and get referred for her eczema first and foremost. Just go to gp, insist on referral, they can't refuse you.

We moisturised at every nappy change, and although it didn't stop the infernal itch, the quality if his skin was nothing like some eczema skin. He is 6 now and still has it, but it is going, and what he does have is completely bearable compared to what it used to be.

My heart goes out to you - I remember standing over his cot willing him to stop scratching. We have probably uttered the words 'stop scratching' a billion times in the last 6 years!

Next do sleepsuits with fold-over cuffs up to about 9 months I think. They were really good.

Good luck x

PragmaticWench Tue 26-Mar-13 21:08:00

At the moment we are using hydrocortisone twice a day, emollients 8-10 times a day from head to toe, a bath oil in a daily bath and scratch sleeves, although she still wears the skin off her head wearing these. I've bought some Aveeno skin relief and am patch testing it on DD's leg to check she doesn't react to it. I've used the oats in the bath tonight so will keep doing that too.

It's really great to have all this advice, I can see that the paediatrician we saw may not have had the right info and I've got more research to do. Right now though, the thought of another night sat up trying to stop her scratching is making me feel shattered. She seems to scratch like crazy after the middle of the night feed, no idea why. Ho hum.

PragmaticWench Tue 26-Mar-13 21:11:40

Thanks Curmit, it's that exactly, we've both been on the brink of breaking many times. DH just can't cope with trying to stop her frantically scratching.

We were using an antihistamine twice a day, orally, but the paediatrician said to stop and that it wasn't worth it. I don't know if that is true or not, it's just so confusing.

curmit Tue 26-Mar-13 21:25:21

So sorry you are going through this - It is torture wanting them to stop scratching. You are doing everything right as far as moisturising etc is concerned.
DH just reminded me to tell you about trying different moisturisers too - gp always prescribes the cheapest ones first it seems. we went through trying loads, and loads of them seemed to actually irritate!

The one that worked for us in the end was cetraben. Aqueous cream is a definite no-no - it made DS's skin weep, and I later read that it has the same stripping effect as soap.

Oilatum in the bath, and we used to cake him emollient before the bath - god knows how blocked out drains are! smile

We used to worry about the antihistamine, and hardly used it, but I am quite reassured now that it has no damaging effects, and sometimes when his eczema was pretty bad i would give it to him and it would give him some relief.

In his lifetime he has had LOTS of it because he got bad hayfever when he was a toddler, and he has had many allergic reactions - mild, moderate and severe, and it has literally been a lifesaver. Have had to speak to docs many many times about piriton and am completely reassured that it is safe to give so don't worry on that score.

The advice we were given re giving antihistamine for the eczema was to try to stop the 'itch scratch cycle' (the more they itch the more they scratch, never ending battle). So if you give it every night for one week, you might give her some relief, stop her scratching so much, break the cycle and improve her skin a bit. Giving it here and there might not give an noticeable improvement.

Hope this helps x

curmit Tue 26-Mar-13 21:27:35

soz for typos!

narmada Tue 26-Mar-13 21:38:34

I really feel for you. It must be so infuriating for everyone concerned sad

I know nothing of eczema because DS didn't suffer with this, but his little friend does and it clearly sucks, to put it mildly.

I am sure DS's friend has been using piriton from a very young age, I cannot imagine why the paed said it wasn't worth it - what's its side-effect profile like? I know I would have lost the will to live without giving DS regulat piriton during his current outbreak of chickenpox, it really does reduce the itching.

But then I am not a doc, better make that clear.

I know lots of people of allergic children have paid to see private specialist paeds, and have felt this money well spent. This mightn't be an option (wasn't really for us) but if it is, possibly worth a shot to circumvent the NHS referral thing. Grr, though, you shouldn't have to battle for treatment. Imagine if GP saw an adult scratching him/ herself raw every night. I doubt they'd just send them away with a tub of emollient or maybe they would and I am severely deluded . I think there is sometimes an attitude that 'common children's illnesses' should just be seen out, which I find pretty repugnant.

Piriton is great - also definitely go and see a dermatologist. Our GP was sympathetic but couldn't suggest much - we then went to see a specialist and the difference was almost instant.

I really feel for all of you so hope you can get something that makes a positive difference soon.

salvadory Tue 26-Mar-13 21:47:02

Oh you're not alone, I remember the despair with my now 14 month old.
We eventually were prescribed eumovate, a strong steroid which cleared her skin, we then used (and still do use) balneum emollient which is anti itch (we used cetraben also to good effect but personally found the balneum more effective).
Her skin is so much better than it was at 4 months but she still needs a good moisturising every morning and evening and when she flares we can manage it with 1% hydrocortisone.
However if it hasn't have been for the eumovate use I don't feel we ever would have got it under (semi) control.
Also use balneum bathoil every bath (she's bathed every other day).
Have you also got your GP/eczema nurse to prescribe the eczema clothing for bed, they're like tubifast leggings and long sleeved vests, there are also little tubifast gloves which we taped with surgical tape loosely round her wrists to stop her scratching breaking skin (although before that we also used the next babygros with built in mitts).
Good luck, you will get it under control (even if it doesn't feel like it now)- hit it hard with steroid then keep on top of it with emollient, however not to burst the bubble, mine is still a rotten sleeper (sob!).

Pobblewhohasnotoes Tue 26-Mar-13 21:55:02

You are fine to give the anti histamine.

Please ignore your paediatrician (I'm saying this as a paeds nurse as well as a mum) and get a dermatology referral.

If you live in London I can recommend one.

Roseformeplease Tue 26-Mar-13 22:00:05

Bicarbonate of Soda in the bath gives welcome relief from itching (I speak from personal experience). Also, Sedbergh Soap Company sells bulk orders of Dead Sea salts which can help a lot. My grandfather (now dead) was a children's allergy specialist and he was fairly scathing of the rest of the medical establishment and how little they knew about eczema. Also, try the Eczema Society for further support.

Wolfiefan Tue 26-Mar-13 22:05:49

Aqueous cream is a SOAP!!!!

You need to find the right emollient. I use diprobase, mother doublebase and kids Dermol (has an ingredient in it to kill the itch.) Emollient to the max but do use steroid creams as prescribed to get flare ups under control. Nails short. Watch overheating. Not too much bathing. Take advice on applying steroid cream after emollient has soaked in. Don't apply more emollient right away.

FWIW I had awful eczema as a child and grew out of it.

PenPerson Tue 26-Mar-13 22:10:53

We were in your position a few years ago I really feel for you.

We saw an allergy specialist paediatrician who blood tested for allergies straight away as eczema is always caused by an allergy.

He gave us strong antihistamines to help her sleep as he said growth hormones are secreted in sleep and if it is disturbed long term it can affect their growth and development. I cried with relief we were being taken seriously ( dd was 9 months by the time we saw him )

The antihistamines did not make her sleep all night but was a vast improvement and when we got the allergy results and cut out the allergen ( egg and dust mites ) her skin improved 90%.

It makes me so cross when people are fobbed off with 'just eczema ' and putting cream on is treatment of the symptom not addressing the cause.

My dd still gets eczema at aged 9 but it is manageable now and goes away in the the summer ( dust mite allergy) .

Please find an allergy specialist paed and get referred to them for testing. We found ours by accident ( dd was seeing the paed about something unrelated and he said his colleague is allergy specialist etc etc ) and when we asked GP for a referral we were told ' oh they won't test a baby for allergies for just eczema ' but they did.

Pobblewhohasnotoes Tue 26-Mar-13 22:24:11

Yes aqueous is a soap, we wash DS with it as per the dermatologist.

PenPerson Tue 26-Mar-13 22:24:52

We were given vallergan and other antihistamines.

Where abouts are you ? Someone may be able to recommend a paed.

My dd's egg allergy had all but gone by age 5 but she is still dust mite allergic.

curmit Tue 26-Mar-13 22:44:53

one of the first things we were given by GP to moisturise was aqueous cream and he was 4 months old. his skin was literally weeping.

PaleHousewifeOfCumbriaCounty Wed 27-Mar-13 22:10:19

Aveeno baby eczema therapy is expensive but wonderful!

BoffinMum Wed 27-Mar-13 22:17:39

The top guy to see is David Atherton who was at GOSH when we saw him. He pretty much got rid of DD's eczema, which was terrible.

BoffinMum Wed 27-Mar-13 22:20:02

We had to restrict baths as well, and also have a regime where we had hydrocortisone in sterile vaseline (had to be specially made up by the pharmacist). This had to be slathered on, and then a hot wet tubigrip went on, followed by a dry one. We then dosed her with Piriton and put her to bed like that.

PenPerson Wed 27-Mar-13 22:38:55

We did not bathe our dd very often either as we were told it would make her skin worse.

EggBasket Wed 27-Mar-13 22:43:45

Echo what others have said. Your paed is talking bollocks. Though eczema is not in itself caused by food allergies, they are very much related and each can exacerbate the other. At the very least it's worth getting a referral to a paediatric allergy specialist (DS1 goes to Addenbrooke's, a world-renowned dept) - assuming LO is fully breastfed then first thing to try would be an exclusion diet for you. This should only be done under the supervision of a dietician and must be very strict for at least three weeks.

However - if exclusion diet doesn't help, that does not mean there are no allergies present. It's not easy to diagnose allergies and may be a long process. When DS1 was 4mo and BF I was advised to cut out egg, soya and dairy - made no difference. Once we started weaning him, he reacted to cows' milk and egg but when he had blood testing at 10mo, dairy came back negative - and in fact by 2yo he could tolerate dairy. His egg allergy persisted and has been joined by more over the years - we are still discovering things he's allergic to (sesame at 4yo, pollen and peanuts at 5yo) and I doubt if we've found all his allergies yet! His eczema is however almost completely gone, so there's hope on that front!

BoffinMum Thu 28-Mar-13 19:46:25

DD is allergic to wheat and dairy, which were the things that set her eczema off. Allergy clinic a good idea.

Mika1 Sat 30-Mar-13 20:42:40

Hi

I was in the same situation with my little one scratching through the night so that we had to swaddle him up to 7 months. Scratch mittens and emollients did not work for us and the cortisone cream was only temporary relief. I have been waiting since January to be referred to a Pediatrician and was to my wits end trying different creams and lotions. Everything I used seemed to make my boys face even dryer and more cracked. Someone recommended to get Dermasilk (www.dermasilk.co.uk) which is a clothing range made of medicated silk which is available on prescription so you could approach your GP about it. I got the facial mask and body suit which relieved my little one from the constant itch he had. He now sleeps without the swaddle bag and scratch mittens and has become a happy baby.

As I am still breast feeding I have cut out on dairy and wheat. I wish I would have known about this great alternative months ago, therefore I am happy to share my discovery.

HelloBear Tue 02-Apr-13 03:23:22

Quick one as late!

But just wanted to say you are not alone, we are going through this currently and it is heart breaking but also infuriating. I just believe that my DS would be so much happier and settled with no fucking scratching!!!! Scuse the French

I am currently sat with him on my lap, swaddled and he is constantly itching his face and neck by shaking his head from side to side, it's been non stop now for 30 mins. He has slept the grand total of 1 hour since 10 (it's now3amish) and I am exhausted. He has to be in scratch sleeves 24-7 and when I give him 'play' time he inevitably ends up bleeding from scratching.

He is 5mo and has had excema since 4wo. He has not slept longer than 4hours once. His back of his neck is red rore and won't heal.

We see the consultant dermitologist for the 1st time on Weds and I'm praying for a miracle cure, I suspect know I'm going to be disappointed.

I know people above have said go dairy free...a word of warning it is HARD (I'm a vegie so it would mean being vegan). I tried and failed.

Sorry I realise this is not helpful to you and I have just ranted about my situation. But I guess I found it useful to read about your frustration and I don't feel so guilty for just wanting to scream 'STOP ITCHING!!!'

Poor babies sad

HelloBear Tue 02-Apr-13 03:29:26

Oh and also I give him prititon when bad as he has very obvious ''flare ups' like a reaction. Also supposedly makes him drowsy...I've yet to notice that side effect (am I a very bad mummy for hoping that it will make him drowsy enough that I can get some sleep?).

PragmaticWench Wed 08-May-13 15:41:53

Just seen your post HelloBear, I can totally understand where you're coming from. How did your appointment go with the consultant dermatologist? Was better than you hoped?

We were referred to GOSH and had a first appointment last week, hurrah! They were so kind and gentle with DD and gave us a new regime of creams to use (have put details below for anyone who may be interested), plus antihistamine to use at night. DD is still itchy but her skin is less red so I'm hoping it will improve more gradually. She's not sleeping much but it's slightly better than before - think fewer feeds but it's still taking about an hour to get her back to sleep after each one.

As for allergy testing, the consultant seemed positive and said we'd discuss that and weaning at the next appointment, next week.

Regime is;

Two lukewarm baths a day with dermol 600 bath oil and using aqueous cream as a soap. Must wash the aqueous cream off thoroughly.

Immediately after the bath use diprobase, then steroids after half an hour. Hydrocortisone 1% for her body and daktacort for her head.

About 3 or 4 hours later, apply doublebase all over. Repeat frequently until the next bath.

Antihistamine at night. Think it is Ucerax (hydroxyzine)?

thepestinthevest Thu 09-May-13 22:03:11

Firstly OP you have my sympathies. I know how heartbreaking and frustrating it is seeing them scratch and being so irritable with it. DS would end up looking lie he'd been in a fight with Wolverine. I tried all the various lotions and potions to no avail. Consultant at hospital said olive oil, which did work well (we used to slap it on and leave him in a babygro so he couldn't get at the skin as much) and prescribed piriton medicine, which did work and gave him some much needed sleep.

Also in your later post you mention Ucerax. I didn't know it could be prescribed for kiddlybops, but it was prescribed to me when I had Polymorphic Eruption in Pregnancy and it was fantastic at stopping itching and helping sleep. Sorry don't know why I felt the need to share that biscuit

PragmaticWench Fri 10-May-13 14:14:29

No, that's helpful to know as I can't ask DD, so thank you!

We've just had swab results back and DD has been prescribed two antibiotics for a strep and a staph infection. How on earth I'll juggle them at three and four doses a day I don't know, on top of everything else. Feeling swamped but also that I need to stop being so negative, lots of people manage much tougher things for their children.

runningforme Fri 10-May-13 21:59:49

Your poor DD! the oat baths that a poster further up mentioned will help to soothe the skin. Another thing I would recommend is pure, unrefined coconut oil rubbed into the damp skin. It can be added to food too (by cooking in it or drizzling a little over food or in soups/smoothies) to help from the inside. This worked brilliantly for my nephew in soothing and helping to heal the patches. He had them all over his body and face as a baby. He also responded well to the sunshine - the family went on holiday to Egypt and he came back clear as anything! Of course, going on holiday in the sun isn't necessarily an option for all. I hope the new regime works and you both get some relief

GinnyMac Tue 21-May-13 04:50:21

I've found a combination of things that have helped my baby's eczema no end. He's 16 months old now and completely clear. I cut down on dairy products and I use evening primrose oil (split the capsule and rub half into his groin area daily) I also give him Biocares childrens banana acidophilus and I use Themba herbal cream which is brilliant. I bath him in organic oatmeal which I add to the bathwater. I don't use any products which contain SLS and all this seems to have worked really well. I hope this helps to know that there is light at the end of the tunnel

MarcieMom Fri 31-May-13 04:31:58

I totally understand the lack of sleep issue! My girl with eczema would scratch her scalp like crazy (meaning with SUCH FORCE I think she can take up a character in the x-men).. I haven't found what would help her itchy scalp at night, but her skin is very well managed.

The thing about sleep that I've figured out is:
1. Need to treat the eczema
2. Bathe closer to bedtime
3. Moisturize within 3 minutes, don't rub dry the skin
4. Moisturize with thicker cream that can last longer at night
5. Wet wrap if skin is very dry
6. Keep room cool
7. Keep room not too dry - humidifier

A little of the sleep guidelines here that I've compiled smile
eczemablues.com/2011/07/is-eczema-affecting-your-childs-sleep/

Take care everyone, and hope everyone can get some eczema free zzz
Mei

Theyoniwayisnorthwards Thu 06-Jun-13 02:00:23

My eldest had horrible severe eczema as a baby. Best thing I ever did was take him to a paediatric dermatologist privately. The NHS just don't take it seriously enough.

Alileigh Mon 16-Sep-13 13:02:12

I'm coming late to the discussion and hope you have found a solution. My 15 month old has had ezcema from about 10 weeks and for the past 3-4 months we've had it under control. I use Aveeno Baby Ezcema Therapy cream, wash and collodial treatment - all available on Amazon and this seems to have worked for him. I spent months going to the doctors getting prescribed a different cream every time and then going back when it didn't work and getting something else. in the end we were told by the health visitor at a weigh in that there was an 'Ezcema, Allergy and Asthma nurse' we could be referred too. I went back to the docs and asked to be referred. Amazingly sympathetic nurse who gave me sample sizes of pretty much all creams on the market to trial. The good news is once you are referred then you can contact them directly - no need for the docs! To start with Diprobase ointment worked with the use of either hydrocortisone 1% on flare ups, then we moved onto Fucibet which stamps on any flare up immediately. The most important thing is to apply the creams correctly (I know! I was surprised there is a specific way) which is to put the moisturising cream on first leave it 20 mins and then put on the steriod cream. I was also told only use the steroid cream on a flare up, not all the time.... the thing is that what works for one doesn't work for another so it is just trial and error

GentleGiant1965 Thu 28-Nov-13 22:11:00

The creams the paediatric allergy doctor prescribed seem to be making our babies skin worse, not better; she had only mild eczema until after she suffered a major allergic reaction. Since then she has been reacting to anything and everything - we are considering going back to baby rice and baby porridge only, until her skin calms down and the allergic reactions stop.

We have tried loads of OTC creams, and the only ones that really worked at all were Aloe Vera and Star Flower, a silk vest seems to be helping, however at 10 months, there dont seem to be many choices in long sleeved tops or legging, and so I am gritting my teeth and ordering a Dermasilk top and leggings. If they help I will be badgering the doctors for some more on prescription.

As even a bog standard silk vest has helped, I am asking my sister in law in China to have some bedding sets made up in natural silk and sent to us; silk is SO much cheaper in China that I do sometimes wonder how they can justify the prices in the West - my silk wedding suit cost ~£30 and a full 3 piece cashmere suit cost me £55 both CUSTOM MADE TO MEASURE.
I might even ask her if she can find a tailor to run up some silk base layers for when our baby outgrows the Dermasilk set.

GentleGiant1965 Thu 28-Nov-13 22:20:59

BTW

If your child has a milk intolerance, BEEF can make their skin itchy (it contains milk proteins ).

MANGO is known to make their skin itchy.

SOYA can make SOME childrens skin itchy; our daughter cannot drink dairy or goat formula, so soya has been our only option as the we saw doctor wouldnt take us seriously.

If your doctor fobs you off, try a different doctor, or a different Practice; our first few attempts were fobbed off and I REALLY wish I had pushed harder before our poor daughters skin got so bad.

Helenc19 Fri 29-Nov-13 23:31:46

My 5 month old has eczema on his head which he rubs at constantly at night, I have given up on creams and started putting breastmilk on it, looks lots better after just 24 hours.

GentleGiant1965 Sat 30-Nov-13 19:21:07

The problem can be that is become a habit, even though the original cause of the itching problem was cleared up, my daughter now scratches her head EVERY time she gets tired. It is a good way of knowing when she needs to sleep, but not so good for the skin on her head.

BTW, I just bought a selection of silk underwear for her - Dermasilk leggings and Cambridge Baby organic silk vests and pyjamas, even after only a 6 hours, the reduction in redness and irritation on her legs is noticeable.

Not cheap though, nearly £160 spent for 5 items of baby clothing.

GentleGiant1965 Sat 30-Nov-13 19:22:54

Just spotted 2 errors in the first line!!! blush why can we edit our posts??

Fibreoptic Tue 03-Dec-13 09:07:43

Have you checked your laundry products?.It may be either the ingrediants in your soap or conditioner or both!
I recommend you have a look at www.skinsalveation.com/shop/ss/laundry-powder/
Its pretty frightening whats contained in the normal supermarket products,
regards
Jane

Nosleepnotme Mon 16-Dec-13 14:42:48

I can relate!! My daughter has woken up with itching for the past 4 years of her life.

I have tried a great cream which seems to help. She sleeps better at night and it seems to reduce her itching. I got it first as a sample from a friend and now its in my local health food shop. Its called Dry2Alive and you can use it on newborns too I think. The website is www.dry2alive.com. Its not bad at around £10. I even use it on my hands as I have found these get dry after washing with anti bacterial soap all the time.

chilli273 Sat 18-Jan-14 21:09:56

There is a great sleeping bag designed by an Australian mum especially for babies with eczema called Bamboo Bubby - www.bamboobubby.com.au It has great reviews and helps babies with eczema sleep by. It has just launched in the UK and is available on Amazon UK - definitely worth a try for any babies not sleeping well because of eczema

surfmama Sun 19-Jan-14 00:52:24

oh it's horrid...homeopathy stopped our bubba scratching over night...still don't get any bloomin sleep though. ..

surfmama Sun 19-Jan-14 00:53:41

by over night I mean instantly...not just at night ... sorry badly written!

mooomeee Sun 19-Jan-14 20:18:16

for what it's worth I have suffered all my life with it. all through my childhood I was prescribed oily lotions and creams etc.
I now realise that i cannot use oily things, makes me itch even more!
I need a good moisturiser that is not oily and sinks in quickly. all the normal creams for eczema make mine worse because they are normally very oily.

Leftygirl Fri 15-Aug-14 16:33:44

SurfMama, do you know what remedy finally did the trick? I know what works for one may not work for another, but we have been going to a homeopath since March and are still battling this itch! We have tried SO many remedies to no avail.

chilli273 Sat 27-Sep-14 17:22:44

We bought a sleeping bag called Bamboo Bubby off Amazon- it was designed by an Australian mum who had a baby with severe eczema and has special sleeves to cover their hands to stop scratching.

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