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The doctor says lots of people are getting/being 'Post viral' this winter; are they?

(129 Posts)
KatyMac Sat 19-Jan-13 21:04:53

DD hasn't 'picked up' after sinusitis & the dr said lots of people were struggling this way this winter

Are other people finding the same?

HiccupHaddockHorrendous Sat 19-Jan-13 21:08:39

Oh my goodness...this is my aunt's favourite thing to say after someone has been ill. She uses it all year round though!

'Post viral fatigue'

ChristianGreyIsAJackass Sat 19-Jan-13 21:10:11

My whole family are like this, never known anything linger so long! I am beyond sick of sleepless children sad

UnderSailingOrders Sat 19-Jan-13 21:11:21

My 2.7yo has been recovering from a flu type thing for nearly 2 weeks. In fact we're all pretty unwell with one thing or another <sigh>

Doyouthinktheysaurus Sat 19-Jan-13 21:13:43

Yes, I've had it.

I've had 2 coldy chesty things through December/January and both really wiped me out for several weeks!

Horrid, because you can't have all that time off work but I've felt so exhausted. I'm only just getting back to normal now, my last cold started New Year!

KatyMac Sat 19-Jan-13 21:15:33

The doctor said no exercise, no school & see how she was in 3 weeks or so sad

She is tired & keeps getting a temperature, and so, so emotional

iliketea Sat 19-Jan-13 21:17:10

There does seem to be a particularly harsh virus going about this year. I was ill enough to be off sick from work for the first time in 4 years - had 5 days off, spent first 3 days unable to get out of bed and felt washed out for about 3 weeks after it. I wasn't the only one either - a lot of the people I work with and friends who are "never sick" were also quite ill and people took a relatively long time to fully recover. Maybe the GP is right?

WorraLiberty Sat 19-Jan-13 21:19:12

If what your Dr says is true and a lot of people are struggling like that

I wonder if it's too much central heating and lack of fresh air/exercise?

The heating in some homes/schools/shops is so high it takes my breath away at times...and lots of people tend not to want to go out walking/playing just because it's winter.

Pippinintherain Sat 19-Jan-13 21:23:04

Words, I'm very outdoorsy person and don't have heating on high but I started feeling crap just before Christmas and only started feeling better last week.

Have now started with a bloody cold today grrr.

Bearfrills Sat 19-Jan-13 21:23:04

There's a nasty virus going around. DS had it around the end lf November and while he was 'better' after about a week it was easily three weeks before he was fully himself again. DD and DH got it over Christmas as did DM, they're only just fully over it and DM still has lingering chestiness and sinus pain. They were better after a few days in that the major symptoms had cleared but the minor symptoms linger and they just had no oomph in them, it seemed to take ages for DD to get her appetite back and she's only just started showing an interest in her Christmas presents this last week or so.

DM swears it's all the damp weather last year, it's brought all the nasty bugs out.

KatyMac Sat 19-Jan-13 21:23:30

Well it wouldn't be lack of exercise for DD but possibly fresh air (mind you she walks a mile or so at least 4 times a week)

She is so miserable & clingy

Pippinintherain Sat 19-Jan-13 21:23:40

Worra even. Fucking tablet making me look stupid!!

WorraLiberty Sat 19-Jan-13 21:25:23

I thought you were trying to be cool and down wiv da kids!

Word up grin

thegreylady Sat 19-Jan-13 21:27:07

Yes I had a bug before Christmas and still feel exhausted and have st

Pippinintherain Sat 19-Jan-13 21:28:11

grin

thegreylady Sat 19-Jan-13 21:28:18

Tablet! Stuffed up nose and occasional dizziness.

KatyMac Sat 19-Jan-13 21:32:04

Poor DD is devastated and already panicking about being 'out of condition' for a course she is going on at half-term

Then she falls asleep

KatyMac Sat 19-Jan-13 21:49:15

She wants to go to the cinema tomorrow but I'm said no; am I being mean?

Alibabaandthe40nappies Sat 19-Jan-13 21:52:51

You are not being mean. She needs to rest, but I think more fresh air than it sounds like she gets would be a good idea.

We all went down with a bug before Christmas - back near the beginning of December actually - and we are only really fully better now. We have all been tired and grumpy with it for weeks.

KatyMac Sat 19-Jan-13 21:56:50

Well she isn't well enough to go out really

We had a short walk today which exhausted her

JamieandtheMagicTorch Sat 19-Jan-13 21:59:07

Yes, I am post-viral

Bad cough that dragged on and on, followed by ear and sinus pain.

Now I am low and have a slightly sore throat that keeps coming and going. This has been since about October

I am never ill like this normally

Charliefox Sat 19-Jan-13 22:05:34

I'm one of those never-gets-ill-types and I've had a cough for nearly 2 months now that WILL. NOT. GO.

Piffpaffpoff Sat 19-Jan-13 22:07:57

DH has been like this for about 2 months, had v bad sinusitis end of Nov and has just been under the weather ever since. Every two weeks or so he has two days of flu-ish symptoms, each time just a little bit milder than the last. I feel like I've been a single parent for weeks as he just spends the weekends dozing and not able to do much but it's clearly what his body is needing to do. I feel v sorry for him.

KatyMac Sat 19-Jan-13 22:18:11

She's been ill off & on for months I guess

Sinusitis over Christmas & 2nd lot of abs a week ago Thursday - off school for 8 days now

& NO dancing at all (she is going insane)

DS2 has been unwell since Christmas; he's stroppy, drowsy and won't eat. He's had antibiotics for an ear infection, steroids for croup but he just can't seem to get fit enough to fight off all these minor bugs so this weekend he's got the shits and can't stop sneezing. Fortunately he's still in nappies grin

KatyMac Sat 19-Jan-13 22:34:36

I am the meanest mum in the world

baremadness Sat 19-Jan-13 22:41:18

Any chance of it being glandular fever? That took me out for months!

KatyMac Sat 19-Jan-13 22:42:14

I do hope not; I have CFS so I worry

& DD is so unhappy atm

butterfingerz Sat 19-Jan-13 23:20:02

Lack of vitamin d at this time of yr, probably most people are running pretty low unless they've been lucky enough to get away for some winter sun.

Not sure what the MN consensus on sunbeds is, probably a big fat no no, but I was feeling really run down - lingering cough and reoccurring sinusitis... Went on the sunbeds a few times and feel really good. Apparently sunbeds helps body manufacture vitamin d like the sun, never knew this despite having used them in the past. So if you're feeling really desperate, give it a go maybe.

KatyMac Sun 20-Jan-13 11:07:12

I'll up her multivitamins - being mixed race Vitamin D is always an issue

KatyMac Sun 20-Jan-13 15:35:14

Just had total meltdown about not going to school - then she fell asleep

It's going to be a rough few weeks I think

KatyMac Sun 20-Jan-13 17:01:51

I'm torn between letting her go (& picking her up early, when she gets over tired) or making her stay at home

BoffinMum Sun 20-Jan-13 17:05:42

Me too, bronchitis and I am struggling a bit after 4 weeks now.

KatyMac Sun 20-Jan-13 17:08:46

It's so frustrating

KatyMac Mon 21-Jan-13 14:33:19

Aaaarrrrrrggggghhhhhh!

& breathe

KatyMac Mon 21-Jan-13 17:11:45

She is all clingy & needy and while I love her dearly - I also work from home & don't need a 5 ft 4 inch toddler on my knee

and now she will read this & strop

baremadness Mon 21-Jan-13 18:04:07

How old is she katy?

KatyMac Mon 21-Jan-13 19:59:10

15 & normally very active; when I say very active I mean 18 hrs of dance a week

So inactivity is really bad for her & me

She is so out of sorts and this is so not her character

baremadness Mon 21-Jan-13 20:35:12

Really go back to the docs and insist on blood tests. Anaemia or glandular fever are both options.

littlemisssunny Mon 21-Jan-13 20:39:46

I had sinusitis had just finished the antibiotics then a couple of days later on Boxing Day I had a horrible virus that wiped me out for 2 weeks then I got labrynthitis and had to take vertigo tablets (apparantly very common with this virus) it is only now 3 and a bit weeks later I am feeling better and got my appetite back. I'm still very tired though.

KatyMac Mon 21-Jan-13 21:09:20

I thought the mood swings and emotional-ness were typical of post viral rather than anaemia (not sure about glandular fever)

KatyMac Mon 21-Jan-13 21:38:07

I don't know - maybe because I have ME/CFS I am more ready to believe a diagnosis of PVF & be more terrified of it

Also I had a bad episode with what I thought was misdiagnosis a couple of years back so maybe I'm not inclined to 'rock the boat'

She is just so poorly & miserable

ihatethecold Mon 21-Jan-13 21:39:04

My dd9 got whooping cough in August. She was shattered for months. I had to stop all after school clubs/ play dates.
After 3 lots of antibiotics she was an emotional wreck.
Thankfully by Xmas it had gone.
My point is too the person up thread who has been coughing for ages. Have you thought about whooping cough ?

WifeofPie Mon 21-Jan-13 21:42:34

Hmmm...I don't know confused. I run 5 days a week (so plenty of fresh air/exercise) but had a particularly nasty cold over Christmas and now, just can't get through the day without an afternoon kip. I am wiped out.

I've suffered with CFS too so I really really hope nobody has it. It's awful!

GrendelsMum Mon 21-Jan-13 21:57:08

A really nasty virus went through my halls of residence when I was a graduate student, and left loads of us in really poor shape for weeks on end. GP was very worried until everyone's results came back negative and she decided it was post-viral fatigue.

Basically the only thing to do was lie on the sofa and sleep / get bored and try to get up / get tired again / sob / sleep

My advice to your daughter would be that she'll get better much sooner if she rests her body for a while, horrid as it is.

KatyMac Mon 21-Jan-13 22:06:36

She wants to go to school tomorrow; she hasn't managed staying awake all day yet hmm

KatyMac Tue 22-Jan-13 06:05:33

I'm hoping bizarrely for a snow day today; I think if she goes in she will be back very soon

Pagwatch Tue 22-Jan-13 06:14:13

I am back at the Doctors later this morning. He is diagnosing post viral syndrome - something I hadn't heard of before.

It started in October and I have had norovirus, a cough for nearly to months now, ear problems, sore throat, endless mouth ulcers, fatigue and a random appetite.

In my case it has fuck all to do with lack of fresh air or excercise.
I walk the dogs and, until this latest bout which made the Dr ban excercise just before Christmas, I work out hard twice a week.

It's utter shit.

I had post viral arthritus for about 12 weeks - was fecking horrendous and loads of people at work have had bugs that they just can't shake off.

It is to do with the fact that the weather was so mild and we didn;t have a cold snap - well thats what my nan would have said - so we should all be much better annd no one should get sick now due to present cold snap!

KatyMac Tue 22-Jan-13 06:21:05

It's crap isn't it; it's a rotten illness

DD has a show coming up and an important course; she needs to be fighting fit

KatyMac Tue 22-Jan-13 07:17:05

Well she has been woken about times & turned over and gone back to sleep.....so even tho' it's not a snow day I think she will be at home sad

moisturiser Tue 22-Jan-13 08:19:40

Tbh if you have CFS and she has a post viral thing, I would not let her push herself. It's being totally over cautious, I know, but I have M.E and so many of my friends have another relative with it, in my case my mum had it. There does seem to be a genetic element (i.e possible some people have a genetic susceptability to getting it following a virus). None of that is as yet proven of course, as I said it's just uncanny how many people I know who have it also have someone else in the family who has it/have it.

And also, for many, it started with a bad virus like this and they pushed through in the weeks after and ended up terribly ill. It's just not worth the risk if you have CFS. Have her rest, there's plenty of time ahead of her to get back to dancing and school.

weaverofmetals Tue 22-Jan-13 09:02:54

Oh dear. Perhaps I should be making my own thread for this, apologies if I'm being rude -- but I'm having one of those confused, "but isn't it like this for everyone?" moments.

I've always been so impressed in how people can manage after being ill, and be back at work after a cold, etc. I just assumed I'm a big wuss, because I'm always weak, tired, somewhat nauseated, etc. for at least two weeks after cold, and that would be a cold that just lasts a day or two, normally I'll be what I call "ill" for 5-7 days and then "recovering" for 3-4 weeks. Is this NOT normal? Is this what you all are talking about re: "post viral"? Do most people feel back to themselves after the main cold is gone? (No, that can't possibly be true can it? Please tell me it's not true.) I've just gone back and read the thread again. People are saying they were sick at Xmas and only just better. But that's not even been a month. Isn't that normal?

I don't get sick very often; I get the flu shot every year because if I do get the flu I'm ill for over a month and take a good 3-4 months to get through the whole thing, but I know that's unusual. But a normal cold that you're only off work for a few days, isn't it normal to feel like crap for another month or so?

Right, I'm just saying the same thing over and over. Sorry if this is inappropriate.

KatyMac Tue 22-Jan-13 09:20:47

I just checked with my colleague & for her a cold is 2/3 days, recovery is 2/3 day (probably with no time off). If it's longer than a week/10 days or needs a day off it's a very bad cold.

mummytime Tue 22-Jan-13 09:29:56

When I get a cold, by the time the cough/runny nose etc. is finished I normally am totally fine.
However sometimes things do linger, but not usually for a month, more often a couple of weeks.

KatyMac, in your case I would: plague the doctor for blood tests etc. does he know your DD's full medical history? I would also definitely use vitamin supplements. Could you try to take her out for very short walks around midday, if it is sunny? She cannot return to school unless she can: stay awake for a whole day with at the most a short nap; can walk at least as far as school and back without falling asleep afterwards.
Can school send work home? How supportive are they being?

One of my most successful friends suffered with CFS type symptoms all through sixth form and Uni; he actually graduated at least 2 years behind his cohort (I'm not sure it wasn't 3 actually), but he is doing very well now.

I do hope she gets better soon.

weaverofmetals Tue 22-Jan-13 11:34:41

Wow, okay. I wonder if what I call "fighting off a cold" (feel awfully tired, have a sore throat, might cough/sneeze a little, but it only lasts a few days) is what most people call "having a cold". Will have to readjust my mind!

And sorry, Katy, I should have said something re: your DD. My mind was just reeling! I hope she gets better sad It sounds so hard, especially for someone used to being so active.

KatyMac Tue 22-Jan-13 12:44:54

Blood test on Thursday, urine test today & see how we go......she doesn't think it sounds like Glandular Fever - but there are other things she can test for

KatyMac Tue 22-Jan-13 21:14:03

I've just made cakes I can't eat (intolerance) that DD started & flaked out halfway through

& they are my favourite sad

KatyMac Tue 22-Jan-13 21:19:47

& I have started giving her rescue remedy to calm everything down

KatyMac Wed 23-Jan-13 09:02:13

We are going to try school today.....going in late

My friend has post viral fatigue, she has had it for over a year, she is often bed ridden, she can't hold down a job and receives DLA. It's awful for her. She must have a very extreme case of it.

And I hope your dd is feeling better soon, but don't let her do too much too soon and exhaust herself

ToomuchWaternotWine Wed 23-Jan-13 09:26:45

weaver I think, sorry, but yes you do sound unusual. For most people I know, a standard "cold" with snotty symptoms will last 2/3/4 days and then maybe a couple of days of feeling a bit tired but still able to function ie go to work/school and cope fine. Real Flu is very different of course, thats a week in bed for most and then longer recovery.

I think people here are expressing concern that after viral illnesses the expected recovery is much longer than normal this year. I have a friend (mid fifties and fit and well usually) who has had a cough since November which hasn't shifted, this is unusual but she is still working and coping with a busy life well, she has just cut down her gym time and does gentle walks instead.

I wonder if its PVF, or just that immune systems are lower for longer so people pick up the NEXT horrible bug and it all runs together and feels like the same thing?

toffeefee Wed 23-Jan-13 09:49:03

I think part of the problem is that people just go about their daily business whilst they are still contagious, spreading their illnesses about, rather than staying in until they are better, so people keep just picking up virus after virus when they are still low from the last one. Also I see loads of people who just don't wash their hands after using public toilets, or don't wash their DC's hands before eating. This can't help.

OP, I hope that your DD feels better soon.

KatyMac Wed 23-Jan-13 11:18:48

Well I left her in tears, I asked her to try just one lesson & see how she did

'Not going to school' is intrinsically bad & going back is so hard

JustAHolyFool Wed 23-Jan-13 11:21:57

I have had a chesty cough since the middle of December. It just won't budge, keeps going away then coming back. Sinuses are fucked too.

I do get out every day, but yes, the heating at work is whacked right up and it makes me feel worse, I think.

blue2 Wed 23-Jan-13 11:28:03

I had shingles twice in two years when DS was younger. A nutritionalist told me about this stuff, and it did help me kick the virus into touch.

I think they now have child friendly versions and maybe sugar free.

It tastes like Ribena!

sambucol.co.uk/Sambucol

KatyMac Wed 23-Jan-13 13:50:05

2 lessons & back home again; this is going to be a nightmare

KateSMumsnet (MNHQ) Wed 23-Jan-13 15:27:56

Hi everyone,

We're going to move this to children's health in a mo, at the request of the OP.

KatyMac Wed 23-Jan-13 15:32:57

Thanks - it's more a whinge about DD than a general chat I thought - sorry blush

& I want to whinge more blushx2

mummytime Wed 23-Jan-13 16:14:31

Whine away!
We all have issues at time.
Children and their health (mental and Physical) don't necessarily fit the education timetable, and Mr Gove is just making it stricter (eg. A'levels).

I do hope your DD feels better soon, but also I hope you manage to have wisdom/insight/whatever to help her make the right decisions about her future.

KatyMac Wed 23-Jan-13 17:06:48

Oh I don't know what to do with her long term....getting to the end of the week will be good!

We have planned for her to do 2 hours tomorrow

roundabout1 Wed 23-Jan-13 19:01:24

Katy - my dd was diagnosed over a year ago with post viral fatigue after a few bouts of tonsillitis. Trying to keep a boisterous 7 year old taking it easy but exercising a little even if she's feeling poorly is so hard. The strops & temper tantrums she is having remind me of a 2 year old, she's clingy when she's feeling bad & then oh so independent when she is feeling ok. If school are ok I would just try her doing a few hours a day then gradually increase it rather than her burning herself out.

KatyMac Wed 23-Jan-13 19:09:44

School are being OK so far (most of the teachers anyway)

How is your DD now? (I have a 6 stone, 5 foot, 2 year old atm)

roundabout1 Thu 24-Jan-13 13:42:03

I'm glad school are being sympathetic. We have had huge problems with school along the way but slightly better at the moment. Dd still isn't great - they are thinking it is possibly Chronic Fatigue now due to lack of improvement, I am a bit confused about the difference between the two to be honest especially CFS in its milder form. Dd id doing a couple of hours at school a daybut averaging only 3 days a week as still finds it hardgoing. At home she has periods of normality, boisterous, dancing etc etc but then flops. She is a bit like a puppy, has a mad half hour & then flops but instead of being a cute sleeping puppy turns stroppy!

fuzzpig Thu 24-Jan-13 13:51:20

How's she doing today Katy? Has she had blood tests etc now?

I am down with yet another chest infection, I know it's going to take its toll for a good few weeks even after the infection is cleared. Stupid sodding CFS. Grrr.

Totally understand your worry - I too know people with family connections to CFS so it does seem likely there is a genetic element to it, at least in terms of vulnerability.

FerrisBueller1972 Thu 24-Jan-13 13:57:35

My ds (7) had the same after having a flu type illness that swept throughthe school in December, followed by a chest infection, early Jan I noticed a large lump oin the side of his neck which he said wasn't painful. After all the symptoms were described to the Dr, muscle pain, severe fatigue in a football mad boy, joint pain especially his hips and frequent headaches, she ordered a blood test to eliminate anything cancer like. Did a follow up test last week and it came back positive for Glandular Fever.

He can have a good few hours and goes to school but it just wipes him out. He was allowed to do PE last Friday (even though the teaching staff were told to please keep an eye on him and discourage any football or running around) it floored him for 4 days.

I feel for anyone who has a child with this, feel nothing but anxiety for me as I am a single mum working full time. My employer loves me right now, not.

KatyMac Thu 24-Jan-13 14:21:35

It's awful; she is so tired

She went in for 2 hours again today after her blood test and a nap

She has a big course coming up....I am quite concerned I'll have to cancel it

Of course she could just be a bit post viral & fine by the weekend I hope

fuzzpig Thu 24-Jan-13 14:25:56

sad she will be gutted about the course but if she pushes herself she could get more ill, and for longer.

How much longer can you leave it before you decide?

KatyMac Thu 24-Jan-13 14:38:19

Well I think we lose the money whatever - it's in London, she was spending a week with her Great Uncle & going to see 'A Chorus Line'

It's a pre-vocational course

KatyMac Thu 24-Jan-13 20:34:35

She is going in first thing tomorrow & we will see how she does

KatyMac Fri 25-Jan-13 16:49:12

She managed getting up & out on the bus then 2 lessons; so much better than yesterday

Januarymadness Fri 25-Jan-13 18:20:41

Hey. Thats good news. When do you get test results?

KatyMac Fri 25-Jan-13 19:22:46

5 days from yesterday; but someone said on another thread that the test isn't always conclusive

KatyMac Wed 30-Jan-13 20:55:50

The blood tests are in & she is all clear - so I guess it's post viral (or it could still be glandular fever apparently)

Januarymadness Thu 31-Jan-13 08:19:32

Well it is good that she is all clear. Why didnt they test for glandular fever?

BeaWheesht Thu 31-Jan-13 08:27:20

I think they did test for it january it's just that sometimes you get a negative result even when it was post viral.

Fwiw I think there are a lot of bugs hanging around recently - my ds has been off almost a fortnight hmm

BoffinMum Thu 31-Jan-13 08:51:25

It's important that kids try to make it into school little and often, otherwise they lose touch with their friends really fast.

member Thu 31-Jan-13 08:59:18

Just in the playground there seems to be more people with post viral fatigue - usual colds do seem to have been accompanied with jelly-like legs & lightheadedness. It may be a more virulent strain of virus BUT I'm inclined to think that the lack of sun last year(practically constant rain & grey skies here for months)has meant that our bodies are at a low ebb.

Am aware that sounds old-wife-taleish with no hard evidence blush

KatyMac Thu 31-Jan-13 09:05:41

She did 3 hrs on Mon, 4 hrs on Tues & only 2.5 hrs on Wed......lets see how today goes

roundabout1 Thu 31-Jan-13 17:25:59

Katy - a few hours every day is good, at least that way she's keeping in touch with friends wtc & has the routine of going to school. Is she aware of when she needs to stop & take it easy? I think that is one of the hardest things.

KatyMac Thu 31-Jan-13 19:47:03

I know the idiot child did the whole day today & then had a singing lesson & then options evening

I have had a massive strop and really shouted sad

roundabout1 Fri 01-Feb-13 09:55:10

It is hard isn't it. My dd always wants to miss school but then overdoes it at home on really silly things like jumping round the house, yesterday was pretending to be a pony galloping round. Its normal child behaviour but so frustrating when she then feels really poorly after. If it makes you feel better I shouted at dd too just out of sheer frustration of trying to manage the situation. She is only 7 after all, so I felt very bad after blush
I hope your dd isn't suffering the after effects today

KatyMac Fri 01-Feb-13 22:16:32

She is

It's the emotional angle that is the most upsetting; permanent PMT

roundabout1 Sat 02-Feb-13 11:12:22

Oh I'm sorry she suffered the after effects yesterday but not surprising. I hope you manage to have a good weekend. My daughter has no hormones involved yet has huge mood swings, goes from being very low & withdrawn to hyper & talking non stop for hours barely pausing for breath, talking utter rubbish, I really think she's unable to stop herself. She is also angry, stroppy, tearful & at times I struggle to recognise my dd sad

KatyMac Sat 02-Feb-13 11:19:57

That sounds so much like my DD it's unreal!

roundabout1 Sat 02-Feb-13 18:52:33

Well dd has had a friend round today shes not seen for ages. To begin with I said it would be 3 hours max but they were playing so nice & it was lovely to see the old dd back I let them be. Stayed for about 6 hours, dd fine all the time, I did make sure they watched a dvd so she had some quiet time too. Half an hour after friend went dd crashed & is feeling rotten. I am annoyed at myself really for not being stricter but it was great to see her being happy and also great not to have her moaning about being bored every two minutes!

KatyMac Sat 02-Feb-13 21:28:57

How lovely/sad

We are in the same position; bored, begging to do more, getting over stimulated, becoming emotional puddle

roundabout1 Sun 03-Feb-13 15:59:25

Arghh the expected crash today after the boom of yesterday

EduCated Sun 03-Feb-13 16:24:07

I was like this after glandular fever. It was horrible, I didn't feel ill and wanted to be out and doing everything, but just didn't have the energy and would inevitably crash and burn. Didn't help that friends thought I was just being a lazy wimp and my housemate at the time decided to take me in hand and gave me a big lecture about not putting in enough effort with going to lectures angry

KatyMac Sun 03-Feb-13 17:03:25

For the first time ever I have prioritised dance over school; I'm hoping the emotional boost from dancing will give her a lift - but I'm worried she won't manage it

KatyMac Sun 03-Feb-13 17:04:12

Aww Roundabout, life is so unfair

FanFuckingTastic Sun 03-Feb-13 17:13:07

I had post viral fatigue, and it was worse when I was out and about trying to get on with life (because it was Only a kidney infection and I should just Get On With IT) I felt like I might pass out. People in the street asked me if I was okay. Nope, I wasn't but that's the expectations of a mum right. We're not allowed to get ill. Thank God I saw sense and finally sought help - all those proper ignorant people, including family members finally see that I am maybe actually not well all the time, and that the condition just worsens when I get ill.

KatyMac Sun 03-Feb-13 17:32:43

I just bought some tonic, some energising vitamins & some rescue remedy pastilles; I do hope they help her

She was SO fit & active before this & she is just so miserable now - constant nosebleeds, falling asleep, odd pain & headaches and the emotional puddle I keep referring to (I don't know how better to describe it)

fuzzpig Sun 03-Feb-13 18:09:11

Poor things sad

Emotional puddle is a brilliant (IYSWIM) phrase BTW - absolutely describes it!

Hope the vitamins help. I've been wondering about it myself (just take a normal multivitamin with added iron ATM)

KatyMac Sun 03-Feb-13 18:12:45

She takes a multivitamin every day.....I'm working on the basis that what she doesn't need will get wee'd away

but maybe 3 extra is over kill blush

roundabout1 Sun 03-Feb-13 22:02:57

I too think emotional puddle is such an accurate description!

katy - I dont blame you at all prioritising dance over school, she has to have fun especially as you dont want her to be so down its hindering recovery. For weeks we did nothing at the weekends as it was for recovering from school & gearing up for the next week but dd just got more & more fed up. At that time we did have Educational Welfare breathing down our necks so school did seem like the priority. Now school is important but more because dd feels left out by the amount of abscence she had previously so its a tough call sometimes, not sure what to do for the best.

KatyMac Tue 05-Feb-13 08:26:42

So, so surprising

The doctor said it was really important for her to do the dancing; partially because exercise makes you feel better, partially because she was so fit before & needs to get back there and partially because she needs something to look forward to

I nearly fell off my chair

KatyMac Tue 05-Feb-13 20:53:22

Puddle day today

Aaaarrrrgggghhhh!

roundabout1 Wed 06-Feb-13 09:51:02

Thats good what the doctor said, sorry yesterday wasn't a good day. My dd has had a few better days this week but back to square one. I'm feeling an awful mum too because I had arranged for dd2 to go into nursery for an extra morning so I could get out & spend the morning with a friend shopping & a quick coffee. Now I am stuck inside with a moaning dd1 feeling very sorry for herself & am paying money I can't really afford for dd2 to be out too. I do feel very sorry for dd1 but I am desparately in need of some me time.

KatyMac Wed 06-Feb-13 21:44:28

How unfair!

DD had a better day today, how has your DD been this afternoon?

The dance classes are definitely improving her stamina & emotional health

roundabout1 Thu 07-Feb-13 11:24:30

Thats great that the dance lessons are helping, the sense of normality must be beneficial too. My dd perked up yesterday afternoon & in school today, just for one lesson but better than nothing!

KatyMac Thu 07-Feb-13 21:32:31

Puddle day today sad

roundabout1 Fri 08-Feb-13 15:10:17

Oh dear - we do find after a really good day/days a bad day or days inevitably follows. No wonder kids find it frustrating, I find myself getting my hopes up about how much dd can manage only to be dashed when she isn't good the next day.

roundabout1 Mon 11-Feb-13 15:12:28

Hope your dd has picked up a bit. My dd is off school again today after a disasterous weekend full of tantrums & tears.

KatyMac Tue 12-Feb-13 07:29:20

I'm sorry Roundabout - your DD does sound poorly.

DD is definitely getting better the GP was right about the exercise - it is making a massive difference for her

KatyMac Wed 13-Feb-13 23:22:51

How is your DD today, Roundabout?

rockinhippy Wed 13-Feb-13 23:39:23

Katy I am so glad you posted this - not that you are going through it of course sad but I've a very similar problem with my own DD, & like you I have health problems so its a big worry,

not least because my DD was diagnosed with JHMS' in November, which her specialist said has close links with Fibromyalgia & since before Xmas she seems to have had one bug after another, so much so I've started to worry I've let her go back to school too soon & it my fault.

We were all floored with a flu virus over Xmas, DD started the week before & my health is at rock bottom, but I've put that down to my wearing myself out nursing her, our GP just says we have been unlucky & just keeping new viruses, but reading the replies on here, makes me realise there's a lot of it around, so our GP/ your GP is probably right & its not DDs illness getting worse, or that she has FM too

Have you tried Spirulina for your DD Katy - it does help, though for DD not as much this time round as with other illnesses, she does pick up when she's taking it

Hope she's better soon, I'm sure it's the last thing you need too xx

roundabout1 Fri 15-Feb-13 11:21:07

katy - thanks for asking, she's not had a great week, but struggling more emotionally & mood wise than physically but I know its because she's feeling crappy. I'm just at the end of my tether with it tbh, obviously I feel really bad for her & so wish I could make it all better but she's awful to live with, bedtimes are a battle, school is a battle, endless fighting & downright nastiness to dd2. She is rarely asleep before midnight but is dead on her feet but won't admit it and any suggestion that she takes things easy leads to a strop, doors slamming & culminates 10 minutes later with her feeling really poorly. Sorry to rant there blush

ariane5 Fri 15-Feb-13 11:29:18

My 4 dcs have been like this-ill almost constantly sine mid sep.sore throats,coughs,horrid high temps.really poorly then exhausted for days then ill again.

Ddwas so ill end of nov, just didn't pick up and was diagnosed with type 1 diabetes in dec which the consultant said was most likely caused by one of the viruses she has had-I had no idea what I kept thinking of as 'just a virus' could cause so much damage sad

All dcs just look pale,skinny and tired.Can't wait for warmer weather and for them to perk up a bit its been horrible.

ariane5 Fri 15-Feb-13 11:31:20

Rockinhippy-my 4 dcs have eds-similar to your dd condition and I've often wondered if this has contributed to how ill they always are-its as if they are always tired/in pain/low anyway and can't fight anything off.

ApplyYourself Fri 15-Feb-13 11:41:02

I've read for years now about your daughter and her illnesses and all the time she has off school.

Could there be some underlying cause here?

KatyMac Fri 15-Feb-13 12:02:01

You would think so, but apparently she is just 'unlucky'

I was a 'poorly' child, now have IBS, CFS & FM, my brother was healthy as a child and as an adult has had an oestocarcanoma, rheumatoid arthritis & diabetes. DH has been medially retired with severe asthma and chronic lung disease since '93 & is in and out of Papworth.

But DD is just 'unlucky' hmm

ApplyYourself Fri 15-Feb-13 12:13:01

Poor girl. Has she been investigated for 'everything? ' [ can't think of a better way to put that! ] Just in case there is 'something' that pulls it all together?

rockinhippy Fri 15-Feb-13 12:57:56

aruiane I now now a bit about EDS, so kniw they are similar/same conditions & same here & what keeps going round in my head is what the specialist that diagnosed my DD said - JHMS is closely linked to Fibromyalgia - even the NHS blurb describes the over sensitivity to pain etc & I know too well that with FM if I over do things & push through being ill to get things done etc, I get very ill indeed & it IS very much like flu, known as fibro flu - but I don't think to ask as the time & asking our GP & school nurse has been a waste of time - I do have a referral myself, so I am hopin to get an answer then, because I see so much of the same in DD that I deal with myself, though they now think my M.E. diagnosis is more likely JHMS too, hence the Rheumy referral - if I get an answer I will post it

Katy a lot if that sounds so familiar to me - it took 5 years for me to finally get a Rheumy referral for my DD, though my initial worry was that she had FM too - I was patted on the head & told not to transfer my own health issues onto herangry it took my getting really stroppy & coping notes from GP appointments & submitting it back in writing to finally be taken seriously & I was right, though I only learnt about JHMS due to a friend who has it on Facebook sending me a link that joined the dots of all my DDs symptoms into one condition - including her diagnosed IBS - DH & I are both hyper mobile - ie extra flexible, at least I was, so to us DDs bendiness was all just normal, we had no idea it could be a medical condition.

I would recommend you look into it - joint hypermobility syndrome - how you describe your DD mood sounds very familiar too & is also a symptom & I remember you posting about her dance, the flexibility of JHMS/EDS DCs gives them an edge with things like dance, gymnastics & guitar & like I said above, they now think it is my real diagnosis too - not M.E

rockinhippy Fri 15-Feb-13 12:59:49

Sorry should have said - it's a hereditary condition

KatyMac Fri 15-Feb-13 17:00:38

Oh I don't know - it's all a bit much atm

rockinhippy Sat 16-Feb-13 13:57:01

sad sorry Katy - I know how you feel & I absolutely hated that DD actually did have something, even though I knew it, I would loved to have been wrong, but I also realise now that having a diagnosis for her, means that she gets the physio & advice that I never had, so she won't do all the wrong things in life that I did, which ended up making things so much worse - I lived in heels for example - a big no no for JHMS, lots more things that she's learning about now - as well as the bonus of guitar lessons as we also learnt that she might be good at it - turns out it right, she is a natural smile

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