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Wheezing into 2013 - Support thread for parents of asthmatics

(966 Posts)
Sirzy Wed 26-Dec-12 14:19:15

As the old thread is filling up I thought I would get a new one started!

This thread is for anyone with a child with asthma, or asthma type symptoms. Between us we have to much experience of inhalers, nebulisers, steroids, sats and all things asthma!

Hello smile

Sirzy Wed 26-Dec-12 14:38:23

Hi, how are things with you at the moment?

Not to bad. Dd1 has bit of a cough has needed inhaler a couple of times but hoping to avoid any major problems. How about you? smile

Sirzy Wed 26-Dec-12 14:47:37

Glad things aren't to bad.

DS is wheezing and coughing nicely. Ventolin right up and hoping to contain things as he only finished a course of steroids on saturday

Oh no sad I hate it when dd has to
Have steroids . The last time we got the white ones that she could just swallow. But before that it was the dissolvable purple ones that sent her loopy.

Sirzy Wed 26-Dec-12 14:52:58

The pred doesn't send him too loopy, it's dexmethasone which really sends him mad!

He is currently sat wheezing on my knee playing on his leap pad which is keeping him still (miracles do happen!)

How's he doing at night? Dd started coughing Xmas eve half expected raging temp by morning as her asthma tends to be viral induced more than anythin else but so far it's holding off.

I do start to think that maybe she will grow out of it but I can't help but think that the past two flare ups were far to easily controlled and it's the calm before the storm. Last set of steroids was about July time so not been that long really.

Sirzy Wed 26-Dec-12 15:09:06

He is coughing a lot at night to. Just had more ventolin so if he needs more before 7 will take him to A and E.

I know what you mean, DS had a couple of healthy months recently and I started to think it was improving/better controlled. The attacks don't seem to be as bad as he gets older though which is a start

These days first sign of sniffle I break out the chilli ginger and butternut squash and feed them a spicy soup for luch/tea to try and help clear the sinuses sweat it out of her.

Dd2 at the moment (touch wood emoticon) seems to be ok although due to the rocky start with her ( two bouts of bronchiolitus as a baby) i still live in fear that any day now she's gonna catch that one cold too many and we will start to have the same problems with her.

I've taken drastic action this year to really doy best to keep dd1 as healthy as possible and to try and get to a point where she doesn't need steroids or antibiotics any more as the thought of needing medication ( bad enough with the inhaler) scares me. Asthma runs
In the family and I'm
Petrified she will end up like my mother with it so prepared to try anything really.

alibobins Wed 26-Dec-12 16:19:09

My hospital tend to use nebs when a child needs oxygen too. With sats of 90/91 they would be on oxygen hope you get home soon.
Sirzy ds2 is the same nearly maxed out on ventolin hmm

Sirzy Wed 26-Dec-12 16:23:58

I have everything on charge now ready, going to have some tea and then see how he is.

Fingers crossed he settles down Ali.

Hope he does ok!!! How often is he allowed his ventolin inhaler? Drs have told me up to ten
Puffs every hour! That thankfully has been enough at times to avoid hospital. X

Sirzy Wed 26-Dec-12 16:30:28

At home DS is allowed 5 puffs every 4 hours before having to go to A and E. He is only managing 3 hours at the moment though.

I know some hospitals say 10 puffs every 4 hours before going in though so it seems to differ from place to place.

Fingers crossed he starts improving x

alibobins Wed 26-Dec-12 16:43:20

We have to go in if 10 puffs don't last 4 hours ds2 was once discharged on 10 puffs every 2 hours last Christmas and the consultant was really cross.
Hopefully he sounds worse than he is as we are still managing to potter round.
Sirzy poor ds he seemed to be doing so well hmm

Sirzy Wed 26-Dec-12 16:48:24

Ye he was doing well until last week. Lulled us into a false sense of security. Last year we spent Boxing day night on kids ward, I hope we aren't starting a tradition!

lollipoppi Wed 26-Dec-12 17:59:21

DS is allowed home! He is on 10puffs 4hourly and pred, the community nurses will come to our house first thing tomorrow to check his stats smile

Sirzy hope you manage to avoid a trip to a&e how is he doing? X

Sirzy Wed 26-Dec-12 18:08:42

Seems ok at the moment, just eaten some mash and now asking to go to bed.

Glad he is allowed home smile

Glad he's home smile

And hope u avoid a&e!!

alibobins Wed 26-Dec-12 18:30:42

Good news he is home smile
I'm still sat on the fence whether ds2 needs seeing tonight or to wait for the gp to open. Dh is currently drinking all the Christmas beer and I'm sat here with coffee just incase hmm it's a good job I got 3 new mugs for Christmas and plenty of pj's a new pair are now in my hospital Emergancy bag.

Sirzy Wed 26-Dec-12 18:39:31

Hope he manages to wait til the morning Ali

I am on orange juice tonight just in case! Least I can still enjoy chocolates though!

You still home sirzy?

Sirzy Wed 26-Dec-12 21:51:39

Yes thanks. Seems quiet settled at the moment

smile fingers crossed he's over the worst!

Sirzy Thu 27-Dec-12 08:03:12

How is everyone this morning?

alibobins Thu 27-Dec-12 08:08:32

It was a rough night but we have managed to stay at home. I'm just on hold to the gp's in the fight to get an appointment smile
Sirzy how is ds this morning?
Just managed to get an appointment for 9.10

Sirzy Thu 27-Dec-12 08:53:12

Got him a GP appointment at 10.30 listening to him this morning I think he needs another course of pred so will have to see if the GP agrees!

Think we may be in the clear here. Woke up
A couple of times coughing but chest sounds ok. Fingers crossed the accompanying cold doesn't get any worse.

Hope u all get on ok at the drs

Sirzy Thu 27-Dec-12 10:56:19

Got a course of antibiotics for him, hopefully they do the trick!

alibobins Thu 27-Dec-12 10:58:45

The gp thinks ds2 has got the flu sad I've got to monitor fluid intake and see him again tonight if he gets any worse he will have to be admitted sad nothing they can do but to closely monitor him
Sirzy hope ds gets on okay

alibobins Thu 27-Dec-12 10:59:52

Sorry hopefully the antibiotics will help your ds

Yay, he can start to feel better now. Hopefully no hospital x

Oh ali sad

Sirzy Thu 27-Dec-12 11:05:59

Oh no Ali sad hope he is better soon x

TheSecondComing Thu 27-Dec-12 11:13:15

Message withdrawn at poster's request.

Sirzy Thu 27-Dec-12 11:17:08

I have always been told to spread the time before reducing the puffs.

I know what you mean about sleep, we got more when he was newborn than at the moment!

alibobins Thu 27-Dec-12 11:17:12

The worse thing is he missed his flu jab about 3 weeks ago cos he was too poorly hmm he's crying cos his legs and back hurt his eyes are all bloodshot and red he looks such a sorry state

Oh ali that sounds awful sad

Sirzy Thu 27-Dec-12 11:30:17

Oh Ali what a shame sad

Is he taking enough fluids at the moment?

lollipoppi Thu 27-Dec-12 11:40:11

Ali hope your all ok, DS was due his flu jab this morn too which I've had to cancel for the 2nd time.
Community nurse has just left and although he Is still working very hard his O2 is at 95, she has reduced down to 8puffs and is coming back tomorrow x

Sirzy Thu 27-Dec-12 11:43:47

Thankfully DS managed to get his as soon as he was well enough I got it done.

Glad he is on the mend Lolli x

Can I just ask all u guys who got the flu jabs for your dc if they had any adverse effects? Dd had the swine flu jab when she was three but was really ill a few days later and I didn't really want her having it on the first place but felt bullied into it by family and after she got so ill after I haven't bothered since.

I'm all honesty it might have just been a virus or it coulda been the jab I don't know but I think drs stuffed up with it anyway so don't even know if she was properly covered.

So, am
Interested in
Whether you all feel it was worth it or whether u regret getting the jab?

Sirzy Thu 27-Dec-12 11:54:28

Ds has had it the last 3 winters (he was just under 1 the first time he had it) and has had no issues with it thankfully

alibobins Thu 27-Dec-12 12:05:32

Sirzy he's taking sips at a time the doctor worked it out that the minimum amount is 50 mil and hour. It's ds1's birthday tomorrow so really don't want to end up in hospital.
He said to keep at 10 puffs 4 hourly to hopefully keep his chest stable he's already on antibiotics so he said to carry on with them and then it's just a case of keeping him comfortable

ali whenever dd1 is full of cold ( I know flu is a hundred times worse though sad ) I try to get a few sips of lemon and ginger tea down her. It's slightly spicy so helps clear her sinuses and I sweeten with honey. Does help a little x really hope your ds feels better very soon what a rotten end to Xmas sad

alibobins Thu 27-Dec-12 12:16:55

Thanks I've sent dh out anything I will try anything to make him more comfortable

Holland and barret also do like a vitamin liquid which is suitable from
Three. I used to give it to dd1. No idea if it helped or not but the thinking was it gave her body some intake of vitamins and minerals when she wasnt eating. I can't remember name. Something like floritex, began with an F anyway.

Sirzy Thu 27-Dec-12 12:50:24

I remember once when DS was in hopsital I was surrounded by every variety of juice and flavoured water we could buy - in the end we were chasing him around with 10ml syringes to get it in!

alibobins Thu 27-Dec-12 12:58:11

Sirzy that made me laugh
He's just lay on the sofa he doesn't even want cuddles hmm

Sirzy Thu 27-Dec-12 13:12:58

Aww bless sad hope he perks up soon.

He is a monkey, when he finally had enough to be discharged the first thing he did when home was ask for a drink - I am sure he just enjoys being in hospital!

lollipoppi Thu 27-Dec-12 16:23:53

How's he doing Ali?
Has anybody invested in a de-humidifyer (sp?) our house has been filled with that cavarty wall insulation and the windows are constantly full of condensation, I feel like the house can't "breath" if you know what I mean? We have just had all the air vents uncovered while building work has been going on which should help but do you think it's worth getting one? Would it help DS asthma? X

I think a de humidifier dries out the air and that's worse for asthmatics . Humidifiers can help though.

alibobins Thu 27-Dec-12 18:29:44

The gp says to carry on as we are and he is ringing in the morning as he says it's not fair keep dragging ds2 about. He really is the same as this morning no worse but no better sad

Sirzy Thu 27-Dec-12 18:35:49

at least he isn't any worse, fingers crossed he has a good night

Sirzy Thu 27-Dec-12 21:31:56

how are all the poorly los this evening?

DizzyHoneyBee Thu 27-Dec-12 21:37:39

We've never been told how many puffs in x hours before going to hospital.
He just has it when he needs it and then we get on with it.
The last couple of weeks I noticed that he was not coughing at all at night, that is the first time it has ever happened but then just before Xmas he started coughing again sad I'm not sure how long the not coughing lasted but I suddenly realised one night that I had been getting a full night's sleep.

somebody i know recommended thieves oil, have any of you tried it?
www.ebay.co.uk/itm/10ml-Four-4-Thieves-Blend-Aromatherapy-Essential-Oil-/350676138809?pt=UK_Health_Beauty_Natural_AlternativeTherapies&hash=item51a5ed3b39

Amazon also sell it.

DizzyHoneyBee Thu 27-Dec-12 21:40:57

it's very confusing to know what works really isn't it, I mean a de humidifier dries out the air and that is bad but then we are told not to dry laundry inside because it makes the air damp, hence having DSs duvet covers on the garden line all week trying to get them dry.

Out of interest, have any of you noticed a link between asthma and bed wetting? DS is wet nearly every night and I am sure it is connected. In the summer we went on holiday to a lovely hot country and he had no asthma problems at all and was dry every single night. We came home to cold and wet weather and within three days he was back to coughing and his bed was wet every night and it has been wet every night since except the three or four nights when he was not coughing at all.

The asthma nurse says it is nothing to do with it but it was the same last year when we went somewhere hot.

Sirzy Thu 27-Dec-12 21:44:17

DS only wets the bed when his cough is bad at night, which then upsets him and makes him cough more!

DizzyHoneyBee Thu 27-Dec-12 21:44:36

Ali, sorry to hear that your DS is ill with the flu. Missing the flu vaccine is a real pain, DS nearly missed it but thank goodness he didn't as half of his class were off with either flu or chickenpox just before Xmas. Was so glad to avoid another dose of pred. with chickenpox doing the rounds

DizzyHoneyBee Thu 27-Dec-12 21:45:14

DS coughs all night every night no matter what we do, he's then so tired that he will sleep through anything.

I've never noticed a link dizzy x dd has only had an accident once or twice and it's never coincided with an asthma flare up.

She's doing ok today although very grey under eyes and feels very warm. Definately another viral induced flare up but so far Che's staying relatively clear. Seems to have presented with another symptom this time.

How's your dc ali

alibobins Thu 27-Dec-12 22:17:40

Thanks for asking he is just so sad sad hasn't touched a thing and it's been a struggle to get any more fluids in. He's sleep in bed with me but not settled his little cough is making his whole body shake I feel so sorry for him and I think it's made worse by the fact there is no magic cure sad the gp did say after day 6/7 he should start to improve.
Ds has rarely wet the bed since potty training on the odd occasion that he does it is because he is so shattered. Ivealways thought dry air was worse for asthmatics and to keep a wet towel on the radiator.

That just sounds so
Poorly and awful. 6 more days??? Bless him how horrid for all of u sad x know u can't drink in case u need to go to hospital so here have a brew and a biscuit

Really hope he feels better soon xx

Ali so sorry your DS is not well, hope he is ok for his birthday.

Dizzy DS is 8 so doesn't tend to have accidents anymore, when he did in the past it was generally related to constipation rather than coughing.

I found those links to vitamin D intake that were posted on the previous thread pretty interesting. I slather DS in sunscreen if he's outside (even thought we live in Scotland!) because I used to live in Australia and I'm paranoid about sun damage so I wonder if he's not getting enough vitamin d? Have bought some vitamin tablets with a full daily dose of vitamin d, fingers crossed it helps.

I saw earlier some posters were saying the dose do steroids is for 3 days, DS has had a few doses now but always for a week? Seems like advice varies so much depending on where you live!

Wheresmycaffeine - DS was fine with his flu jab. DH also gets one as he has mild asthma. I pay privately for me and DD to have one as I don't want us bringing flu home in case it mutates inside us and is able to infect DS, we are both fine after the jabs. I don't regret getting them at all, and we've had them for a couple of years now.

alibobins Thu 27-Dec-12 22:33:19

Ds2 had his birthday 2 weeks ago it's ds1's birthday tomorrow. Ds2 has been unwell a few days now do hopefully coming to a peak don't think I can cope with much more sad
Ds1 as never had the flu jab due to being anaphylactic to egg but the gp did say if he starts with symptoms they will give him anti virals his chest is a lot weaker than ds2's at the minute I'm trying to keep them separate as much as possible.

Sirzy how is you ds now?

Sorry Ali I got confused with the birthdays hope ds2 is better soon

HotheadPaisan Thu 27-Dec-12 22:38:37

Hello, back again. Is there any alternative to prednisolone please? It's so bitter and DS2 is always sick when he has it at night.

I completely forgot about them until family members dropped it into conversation and I realized that we hadnt been offered one for three years. Turns out we have to book them now we don't get the letter.

I'm
Intrigued by the thieves oil that was mentioned above. I
Will have to
Research that. I've gone the dairy free route this time round to see if that helps. In reception dd had to have a few days off due to asthma glare ups. Since going dairy free , she has had flare ups but has not been so bad it's required a day off or steroids. Last course was just before I started. Controversial I know but I feel it's worth a try to avoid the
Medication.

I hope you don't mind me dropping in. Had actually come onto children's health board to see if anyone had experience with a good home oximeter for children and you all seem like a good lot to ask?

Ds hasn't officially been diagnosed with asthma. At 5yo they still keep telling us it is too young for him to be dx. Has always had a bad chest and every cold turns into endless courses of antibiotics and steroids. Honestly thought it would get better the older he got but seems to be getting worse and he has been admitted into hospital twice this year with lower respiratory infections and 'exacerbation asthma' including this week and Christmas Day sad Even though we are home now he is still sick and miserable. I dread even the simpliest of colds as I don't know what way it's going to effect him.

Hothead have you tried dissolving the prednisolone into juice? Ds always throws it back up when given in hospital but I stick it in a good bit of lemonade when we're home and he'll take it ok.

I to make a follow up appointment with the gp. Is there anything I should be pushing for? He was taken off the brown preventer inhalor during the summer. Is it worth trying him back on it?

Sorry to hear there are other poorly dc atm.

Aw ballroom sorry to
Hear all that. Sounds horrible hope your ds gets better too!!! The protocol is obviously different where you are. Everyone else I know who's kid has asthma was told around age two. My dd was about that age two when I was told she was "classed as asthmatic" after two hospital
Admissions with vital induced wheezing requiring nebulizers.

Can't answer your question I'm afraid but wanted to answer your post. Hope you r ok x

Sirzy Fri 28-Dec-12 07:52:31

Happy birthday to your DS 2 Ali smile hope you all had a peaceful night.

Ds seems a but better this morning.

When DS has pred it is always done in 3 day doses but sometimes he has multiple doses (so 6 or 9 days) if needed. I always mix it with blackcurrant juice and have mastered making it in 2.5ml of fluid to make it quicker!

Ds was diagnosed at 13 months mainly because he was having problems even when otherwise well. They don't seem to like diagnosing in under 5s when it is just when poorly it seems

Sirzy Fri 28-Dec-12 07:53:34

Ballroom - yes I would push for a preventer inhaler

alibobins Fri 28-Dec-12 08:55:46

Had an okayish night think ds was hallucinating at one point which was scary. He has coughed till he has been sick but has happily drunk some juice without me pinning him down he has woke up for around 15 mins then gone back to sleep.
Ds1 has opened all his and is mo raring to go out on his new stunt scooter smile

I always dissolve the pred in the smallest amout of juice and syringe it it but both my boys take it no problems. Ds1 was diagnosed quite early due to numerous stays in hospital and an anaphylactic reaction at 9 months. I agree with others and push for a preventer they don't need a formal diagnosis to have one.

Sirzy Fri 28-Dec-12 09:23:49

Glad he is drinking now, thats a good sign

Hope your other ds has a great birthday. And glad to hear he's perked up a bit!! smile yay for drinking!!

HotheadPaisan Fri 28-Dec-12 10:29:14

Thanks, I dissolve into juice and syringe it or he drinks it, but I think three prednisolone tablets at once is just too harsh for his stomach. Still, being sick at least got rid of a lot of mucous and he did settle well until 3am.

Absolutely agree to get preventers if this is a regular occurrence, just a low dose of Beclometasone (brown) has made a huge difference here and is keeping DS2 out of hospital, just.

DizzyHoneyBee Fri 28-Dec-12 10:53:16

My DS is also 8.

Sirzy Fri 28-Dec-12 10:59:59

I always give DS pred in the morning, no idea why but the hospital always do it that way!

HotheadPaisan Fri 28-Dec-12 11:14:07

I said that! DP and I, ahem, disagreed but I was the one who got puked on!

DizzyHoneyBee Fri 28-Dec-12 12:25:13

Sirzy, trust me if you give pred. at night then you will find out why the hospital said to always give it in the morning!

The hospital gave dd her first dose of pred at night. And then promptly informed me it can send them hyper. Was an interesting two hours grin

Sirzy Fri 28-Dec-12 12:37:39

I know, he has had it at night before when going in at night and its always a sleepless night lol!

Not as bad as when he had had dexmethazone though!

I Remember an absolutely horrific weekend with the dissolvable purple pred and bright yellow antibiotic. I still shudder thinking about it smile

Thankfully last time I got given the white pred pills and no anti b needed. The relief was immense smile

Sirzy Fri 28-Dec-12 12:44:36

we have only ever had purple pred. Thankfully he takes it ok now as I have been showed in that stuff to many times in the past!

DizzyHoneyBee Fri 28-Dec-12 12:57:20

Last time my DS had pred. they gave him a dose of 6 tablets, I have never known him to be so badly behaved; that evening he was truly horrendous but would then burst into tears and say he didn't know why he was being like it. I took him back to the GP the next day and he halved the dose. Awful stuff, poor DS was so unhappy.

The brown inhaler can apparently send them hyper too. We only have the blue thankfully as dd has so far reacted that way to purple pred and yellow AB. If only they could lace it with a sedative grin

Would help if drs didn't look at u like u were nuts too when u ask for alternatives due to reactions.

Sirzy Fri 28-Dec-12 13:40:38

We never had any problems with the brown when Ds had that thankfully

DizzyHoneyBee Fri 28-Dec-12 14:12:47

We have the orange inhaler here, the brown one didn't work for DS. No problems so far with it.

Sirzy Fri 28-Dec-12 14:15:22

Ds is on servent now which is purple and works pretty well although I think the dose needs increasing

Sirzy Fri 28-Dec-12 15:26:02

So apparently allowing DS to walk to 5 minutes (at his slow pace!) to my sisters was a bad idea - I ended up carrying him most of the way!

sad sirzy

cedmonds Fri 28-Dec-12 19:16:59

Ds has been ok got a cold and a horrid cough but so far it hasn't got any worse. Sorry there are so many ill little ones around at the moment.sad This was the first Christmas that we haven't had to do an A+E/ooh/admissions for DSsmile

Sirzy Fri 28-Dec-12 19:38:43

Thats good, fingers crossed it stays that way

Can I join this? Apologies I haven't read all the thread but I'm thinking this may be a good place for advice.

Bit of backstory- when dd1 was 18 months she was hospitalised with bronchilotis and was diagnosed as a "happy wheezed". She had a nebuliser in hospital and we left with a ventolin inhaler.

She's now 4 and each winter I've endured raised eyebrows and comments like "she's still got that cough?!" we lived in an old damp house and have moved to a new build that's obviously much drier.

This winter she's been coughing for around two months now. Initially after three weeks of persistent cough (and using ventolin) I went back to the GP who said she has "narrow airways and a wheeze" but that this does not equal asthma. He told me to use ventolin when she has coughing fits and a steroid (brown) inhaler has a preventer twice a day. Assuring me its a mild steroid etc and won't affect her growth. (the leaflet says differently). Despite using both inhalers, with a spacer, nothing has improved.

I know nothing of asthma or the like, I'm not even certain we're using the inhaler/spacer properly as I wasn't shown. I took her back today and they said again she has a wheeze and keep on the inhalers. But I'm concerned about her using a steroid everyday to no effect.

Am I meant to allergy proof her room? Keep her on steroids? How do I use the spacer to good effect? I'm so confused and the doctors are really dismissive. Can anyone arm me with some facts or actions to get this under control?

Sirzy Fri 28-Dec-12 19:59:57

I wouldn't worry about the inhaled steroids, apparently it needs to be very high doses before it becomes an issue.

WRT using the inhaler and spacer - hold the mask over her face and puff the inhaler once then count to 10 if repeat doses are needed then shake the inhaler and repeat.

Ask your GP about seeing the asthma nurse who should be able to go through everything with you - they are generally much more clued up than GPs!

DizzyHoneyBee Fri 28-Dec-12 20:05:37

I'd agree about the inhaler steroids not having an impact on growth unless it is high levels. DS is the tallest in his school (he's got another year before he leaves) and has grown out of every pair of school shoes he has had at each half term in the year.
Like Sirzy says, ask for an appointment with the asthma nurse.

have a look at www.asthma.org.uk/about-asthma/my-child-has-asthma/ and there are links to free leaflets you can either send for or download, I found them really useful when DS was first diagnosed.

See, I didn't even know there was an asthma nurse. Dd has no understanding of what's wrong and cries at the inhalers so a trip to the nurse would be great.

Her room gets quite cold, am I better to keep it warmed up? What about dust mites etc should that be a concern?

Thank you for responding I truly have no idea what I'm doing. I've read back on the thread and see a diagnosis isn't forthcoming under 5. I wondered why they never said "asthma" but ply us with inhalers.

(contrary to my name dh is not a dr!)

Sirzy Fri 28-Dec-12 20:29:55

Can you make giving the inhalers into a game? you pretend to take it/give it to toys and things? DS has covered his spacer in stickers to.

Triggers differ from one person to the next, dust mites certainly trigger DS so I have to keep his bedroom really clean.

wontwearsocks Fri 28-Dec-12 20:37:32

A rare visit back to this thread for me. I used to be Suiledonn on older asthma threads.

My dd1 is 6.5 now and thankfully has improved a lot in the last couple of years.

2012 is (fingers crossed) going to be our first year without a hospital admission for dd1 if we make it through the next few days.

Unfortunately she isn't well at the moment. She has a cold and a cough and it feels like it will be one of those 'watch and wait' nights with her. I've given her Ventolin and although she is breathing faster than normal she isn't tugging or grunting. I'll give it an hour and see if she needs to go to OOHs to see someone.

DrsWife Do I recognise you from a 2008 ante-natal board?

Thank you ds is much better today. He has the wheezing throughout his life with a funny cough, the cold being a trigger, but still I get keep telling it might just be viral wheezing (despite the nurses rolling their eyes when I say this and telling me their asthmatic kids end up like him once they get bad colds). The times he's been in hospital he requires back to back nebs once or twice a day, to so many hourly. Make him very shaky and his heart race which scares him a bit.

Ds was also hallucinating this week before he was admitted to hospital ali because he had a fever and it was freaky. Talking about stuff that wasn't there and weird random stuff. Scared me a little tbh.

Yes I'm going to ask about the brown preventer inhalor again. He was on it for near enough six months when the gp decided to see since it was summer to take him off it.

He has been taking the blue inhalors since god knows when he was a baby I was told to let him play with the spacer at first so he thinks it was a toy. As he got older, we told him he was like a fighter pilot. I'm not saying I didn't have moments I had to hold him down and pin him with it doctorswife but now he takes it no problems. You sound about the same situation as me. Wonder why they give us all these drugs but are so reluctant to say asthma. App the doctor told me it's incase they prescribe a load of drugs for young kids when they don't need them and it could be viral wheezing.

wontwearsocks Fri 28-Dec-12 20:44:56

Hi ballroomblitz , just noticed you asked about an oximeter earlier in the thread. We bought one on Amazon to use on dd1 when she was having frequent attacks. We have been told we don't need it but I found it reassuring to see dd's SATs improving with Ventolin and know we didn't need A&E or to make the decision to go if SATS were low. The doctors we see don't rate their accuracy though but I would only use it secondary to the other ways of assessing dd. I'll try and find the one we bought and link for you.

Sirzy Fri 28-Dec-12 20:45:26

Wont wear - hope she gets through it ok. A year without hospital sounds great

DizzyHoneyBee Fri 28-Dec-12 20:45:28

DS got a lot better when we replaced all the carpets with laminate flooring.
Unfortunately he has a problem with his asthma whenever I do dusting, I don't mind the solution to that though! smile
Oddly, he is OK with feather duvets though.

Cold air triggers DS, I got him a skiing balaclava from Aldi for £1.99 and he wears i like a scarf but over his mouth and nose, that helps a lot. He's also worse in the mornings.

DizzyHoneyBee Fri 28-Dec-12 20:47:55

Also hoping you get to the end of year Wont wear, and that everybody else has a hospital free year next year. My DS has thankfully avoided hospital apart from one admission for bronchiolitis.

wontwearsocks Fri 28-Dec-12 20:48:05

[http://www.amazon.co.uk/Evanmore-Pediatric-Oximeter-monitor-rechargeable/dp/B004V7DSYS/ref=sr_1_2?ie=UTF8&qid=1356727603&sr=8-2 oximeter]

wontwearsocks Fri 28-Dec-12 20:48:38

sorry link here

oximeter

wontwearsocks Fri 28-Dec-12 20:50:34

Thanks Dizzy, it has been such a relief to see an improvement in her asthma but unforunately this year she has started to get severe bouts of tonsillitis. I feel sorry for her. I have another dd who never seems to be ill.

One admission isn't bad going. Well done your DS.

Thank you for all the info.

Wont wear- yes yes i recognised your previous username. Helloooo. That antenatal baby was 4 at the end of nov. cant believe it. I've got dd2 now too she's 10 months. smile

Sirzy Fri 28-Dec-12 21:34:24

DS can't stop coughing tonight, but sleeping through it all at the moment thankfully!

alibobins Fri 28-Dec-12 22:11:23

Still no change hmm ds2 has got a temp of 39 and coughing away luckily his chest isn't wheezy at all.
Ds1 had a lazer party and loved it.
We were advised by hospital to have wood floor and anti allergy bedding but neither of my boys are allergic to dust.

Dd1 much quieter tonight fingers crossed. Really hope all of your poorly dc feel better tomorrow x

Thanks wearwontsocks I don't want to use an oximeter as the one go we should go to hospital kind of thing but the last couple of times he's been bad his sats are bad in the 80s and lower the first time (floppy couldn't breathe). Reassurasance for me more than anything.

wontwearsocks Sat 29-Dec-12 10:10:07

DrsWife My Nov 08 baby was four in mid-November. She is still the baby here though. Congrats on your 'new' arrival.
Does your dd have any allergies?
We started dd off on Becotide as a preventer (the brown one) but it didn't seem to help much. Once she started on Singulair we did see a big improvement which lasted for a while but eventually she was changed to Seretide (purple) preventer and this is what seems to be working for her.

DD1 is up now and seems better. She still has a heavy cold but she isn't struggling at all. I used to despair that she would ever get a cold that would just be a cold and not end up with hospital admission, nebs, oxygen, steroids the whole deal that we are all so familiar with but this year has been great.

Sirzy Sat 29-Dec-12 11:45:10

Ds seems pretty settled today, running round without coughing to much

Now to wean him off the ventolin

That's great sirzy smile

Hope ali's ds is doing ok x

Dd1 much better today still not 100% but not coughing so much and has held off the wheezing

alibobins Sat 29-Dec-12 12:31:57

Ds2 must be feeling a bit better today as he has got the energy to cry and argue with me when his blanket has moved or the tele is changed from Disney channel lol he's still not eating and sounds dreadful but it's a a start

alibobins Sat 29-Dec-12 12:33:02

Sirzy I'm glad your ds has avoided hospital smile

Sirzy Sat 29-Dec-12 14:51:34

Being able to argue is always a good sign they are on the mend!!

lollipoppi Sat 29-Dec-12 17:30:09

How are we all doing today?
DS is much better today, we are down to 4puffs 4hourly, which he is just managing.
He has been a stubborn little mule all day testing his boundaries which is always a good sign that he is on the mend grin

That's great loli grin I really am one of the lucky ones by sound of it! I'm
Very grateful to not always be worrying about it and just having to deal with the flare ups as they happen.

Glad to hear everyone's doing so much better today. We haven't needed puffer at all today so looks like for now we r in clear. (fingers crossed)

Sirzy Sat 29-Dec-12 20:41:32

Glad you have both had good days today smile

DS has been pretty good too. Still on 5 puffs 4 hourly but he always takes ages to wean down so that doesn't bother me yet!

alibobins Sun 30-Dec-12 10:18:45

Ds2 has been awake nearly an hour and managed 2 bites of toast smile smile I'm so relieved he still sounds and looks awful but a huge step in the right direction.
Sirzy ds1 always has 2 puffs of ventolin 4 times a day as instructed by his consultant we just increase the dosage when needed or give extra as required.

lollipoppi Sun 30-Dec-12 14:52:06

Good to hear DS is on the mend Ali and sirzy smile

Arachnophobe Mon 31-Dec-12 07:31:24

Hi I hope your DCs all had a calm night. I joined toward end of last thead as 8mo DC3 was 'dx' as pre-asthma by a hospital paed at A&E just before xmas.
He has been wheezing for over five weeks, not needed admission thankfully and steroids just once but had 3 courses of antibiotics in that time as deemed chest infection by the same GP at almost weekly visits back due to little improvement hmm.
My beef is lack of consistency in advice - two different GPs have told me to administer ONLY 2 puffs of ventolin x 4 a day whereas a&e Doctor assured me I am fine to give ten each bad episode and repeat as needed gradually decreasing dosage over a couple of days.
I took him to a&e on Saturday daytime as he had a terrible night struggling and I gave him 10 puffs (administered properly six breathes per puff) and he still had tugging in his chest and throat 24 hours later. Nurse at A&e found stats ok reassured me that fine to keep giving 10 puffs sent me to out of hours gp based in same building to have him checked over
and avoid the d&v + 3 hour wait for a doc in a&e... GP said although indentation present his chest was nice and clear but to only give 2 puffs 4 times a day and if that not enough he has to be taken back to gp or a&e.
Luckily despite constant crackle and wheeze and hideous coughing fits he has been coping with 2 puffs but there is no long term strategy if this continues. DS1 had wheezing episodes at each cold and a couple of admissions following bronchiolitis as a baby but he would be clear in between and it thankfully stopped at nearly four.
I am reluctanct to assume same for Baby as he has had break and coughing fits are worse. I hate leaving him, too scared to touch a drink and have a night off bf over xmas in case he rapidly deteriorates again. I am ok leaving him with my Childminder as she has it herself and also very experienced in general and I work locally so can get to him quickly if need be so should be grateful for that.
I am still hoping it just clears up but as no joy so far does anyone have any tips for managing? We have minimal carpet and I bought wellkid baby drops for vit D. Does a humidifier at night help?
Sorry for the essay but it's been another long night.

Arachnophobe Mon 31-Dec-12 07:52:08

Sorry I should have added that a&e first visit said can give ten puffs an Hour! This friday-Sat I only gave 10 every four hours as and in the weke at follow up GP said not to and to only give 2, 4 x a day. I went with the 10 puffs but stretched them over four hours as read that on here and did it for 24 hours before taking him back. Again a&e said its fine to give 10 puffs but straight after GP Said no...aaaagghhh.

Sirzy Mon 31-Dec-12 07:59:38

Does she have any sort of preventative inhaler?

2 puffs of ventolin 4 times a day seems to be the standard GP advice. I have been told by our consultant that I can give up to 5 puffs every 4 hours without seeking help, and when bad he has had 10 puffs an hour (on medical advice, normally in hospital)

I guess what I am saying in a waffley way is there is no thing as too much ventolin (although it can cause headaches and shakes) its more a case of knowing when further help is needed.

Arachnophobe Mon 31-Dec-12 08:24:13

Hi Sirzy Thanks for your reply. No preventative inhaler. He had a follow up appointment in the week as advised by the original a&e Doctor to discuss this. Unfortunately there's only one GP you can ever get short notice appointments with (there is a reason for this...). He said that it is seasonal wheeze give 4x2 ventolin daily but ten puffs too much. I asked about a preventer as the Paed had mentioned it but GP dismissed him as too young.

alibobins Mon 31-Dec-12 09:19:51

Maybe ask the gp to refer him to a hospital consultant or even see if there is an asthma nurse at the surgery. It's so hard when being given conflicting advise have they ever done a chest X-ray when ds1 was younger he had a persistent cough after a chest X-ray he was put on long term antibiotics 3 times a week and that helped.

Sirzy Mon 31-Dec-12 20:14:55

hope everyone has a peaceful night to bring in the new year!

DS is wheezing too much for my liking tonight. Hoping it settles down quickly!

Oh dear sad hope he's ok sirzy

alibobins Mon 31-Dec-12 21:23:55

Wishing everyone a wheeze free new year smile
Sirzy hope ds settles down soon.
Ds2 was coughing all night last night but seems happier in himself today

lollipoppi Mon 31-Dec-12 21:40:30

Happy new year everybody, wishing you all a hospital free 2013 smile
Sirzy hope DS is ok x

Happy new year guys smile

Sirzy Tue 01-Jan-13 18:45:18

How is everyone today?

Arachnophobe Tue 01-Jan-13 19:06:49

Happy 2013 All grin.
Thank you for advice Ali I am going to keep trying for an appointment with a more thorough gp. He had a chest x ray when we went to a&e on 21st. It was clear.
We are ok thank you and took the DCs to a 'do last night they loved it especially baby he loves to dance I am so pleased he was well enough for it.

cedmonds Tue 01-Jan-13 19:24:57

Happy New Yearsmile Ds is back on pred and ventolin every 4 hourssad Weare going to GOSH on friday so will see what they say about getting it back under control again.

Sirzy Tue 01-Jan-13 19:26:37

Hope he is better soon Cedmonds and you get some answers on friday

weblette Tue 01-Jan-13 19:31:27

Hello smile

Was on this thread yonks ago but as ds2's asthma's been worse this Winter than ever before so thought it might be good to come back smile

He's 8, had bronchiolitis at 3 days old, repeated attacks of viral-induced wheeze to the point of hospital admission. Diagnosed with viral-induced asthma at 4. We were told he would probably grow out of it... sad

He's been on Seretide and Montelukast for the last two years but since the Summer he's rebounded from chest infection to chest infection, amoxycillin no longer works and I fear Clarithromycin doesn't now either. Start of each bring on an intense attack, he's nebbed with Ventolin if needed and has a course of Pred until the wheeze eases. We don't monitor sats but use a peak flow meter to gauge how he's doing - plus the tug usually gives it away...

So he finished a course of Clarithro on Saturday and is already back with the deep coughing, sore chest, temp and lack of appetite. Luckily we've an appointment with the most switched on GP on Friday, he's determined to sort this out.

And to add to the joy, looks like ds3 has viral-induced wheeze as well.

Anyway, enough misery grin

Something someone raised earlier about when to give Pred, we used to always give it when he woke up. I guess because he's had so many courses of it the hyper effect doesn't kick in as much now.

We found that for him it's far more effective given in the evening to get his body through its naturally-low steroid levels during the early morning - it takes about six hours to be effective.

While having lots of it as a toddler did affect his growth at the time, he's now up to the 75th centiles for height and weight.

weblette Tue 01-Jan-13 19:32:43

Doh, start of each virus, respiratory or otherwise

alibobins Tue 01-Jan-13 19:42:03

Cedmonds we are at GOSH on the 12th have never been before what is parking like? Hope ds feels better soon
Ds2 seems to be finally eating better he's coughing like mad but has been destroying the house again today smile he has slept for a few hours this morning the went to bed at 7.
Ds1 is on another course of antibiotics but is easily kept still with the computer so easier for him to rest.
Web I an remember you from the old thread it's so frustrating when you feel they are doing well then they get poorly again sad I can't wait for the day either ds's have just a 'normal' cold.

Sirzy Tue 01-Jan-13 19:46:14

I don't think DS has ever had a "normal" cold. Its 3 years next week since he was first ill and its been non stop since!

His antibiotics finish tomorrow and he still isn't right, will see how he is in the morning and might take him back to the GP

alibobins Tue 01-Jan-13 21:04:03

It's 3 years yesterday since ds2 was admitted for 10 days with broncholitis sad he'd only been out of nicu 1 week.
Hopefully you will get him sorted soon Sirzy.

Know what you mean ali

This time two years ago I was in hospital with dd2 with bronchiolitis too.
So far she's ok but I still live in fear that the next cold will be the one that hits her chest. they warned me that she's more likely to developed asthma as a result. She caught it twice.

Dd1 seems to be getting better at fighting it just hope it lasts.

weblette Wed 02-Jan-13 10:10:08

Hello again ali smile

Next door's dd caught bronch at around the same time as ds, her asthma has definitely improved over the years. We just seem to be unlucky!

Today's cough has turned croupy, oh joy and peak flow's down so neb here we come.

Sirzy Wed 02-Jan-13 11:35:39

Bronchi is horrible!

DS still isn't right, plodding on though for now which is good

alibobins Wed 02-Jan-13 15:00:00

Been back to the doctors with ds2 and they are happy with his progress he did have some wheezing so want to give him 3 days pred to keep on top of things.

Sirzy Wed 02-Jan-13 15:06:39

That's good Ali

cedmonds Wed 02-Jan-13 16:59:05

Alli parking is a nightmare plus you have to pay for congestion charge. And the traffic is bad as central London. We get the train up and it's about 5-10 mins walk from russel square underground.

cedmonds Wed 02-Jan-13 17:13:47

Sorry pressed to soon stupid phone. I dont know where the nearest parking is as all the parking outside and near are for ambulance and disabled. Are you there for Asthma is for who are you seeing.Glad d2s is better.
I wonder how many of the children in the uk who have asthma have had bronchi as a baby. Ds had it three time and was admitted twice with it.

alibobins Wed 02-Jan-13 18:44:21

We are not there for asthma he's got other health issues that no one knows what is causing it.
How is your ds doing today?

cedmonds Wed 02-Jan-13 20:31:49

Ds is better thanks the pred and Ventolin seem to being doing there job for once. He is so complicated he has not got straight forward asthma and the normal treatments don't always work. He is also seen at GOSH for other health issues as well no one could find any answers. They were great and got to the bottom of it all. How are you going to get there? Be prepared to wait for a long time sometimes they are on time other times i have waiting a couple of hours. Bribing with a trip to Hamleys always works for dssmile

cedmonds Wed 02-Jan-13 20:33:38

Opps did my cross out wrong blush

alibobins Wed 02-Jan-13 21:00:34

Dh is coming with me as I am mardy lol we were planning on driving but not so sure. The train will cost around £65 for us all so not sure which one will be the cheapest option.
Hopefully they will get to the bottom of his problems and offer a different treatment plan or medication as at the moment the only option is surgery but ds has had 8 operations now and reacted quite badly to the last anaesthetic hmm beta blockers have been discussed then dismissed due to his asthma it's all so complicated.

cedmonds Wed 02-Jan-13 21:13:40

Hope it gets sorted. Can you not claim the train fair back? no idea if you can. I will have a look when i am up there on Friday to see i can find any car parks. Im not sure how much the congestion charge is and there is the emission thingy as well dont know if that is relevant.

Sirzy Fri 04-Jan-13 11:47:28

How is everyone doing?

weblette Fri 04-Jan-13 12:17:55

Referal back to paed as even after all the meds he's had lately and is still on, ds's lung function is about 20% below what it should be and he's still wheezing. Fingers crossed it comes through quickly!

How about everyone else?

All good this end . Sorry to hear everyone is having a rotten time still sad hope your appointment comes they quickly web

Sirzy Fri 04-Jan-13 12:32:42

Hope you get answers quickly Web, perhaps he needs his inhaler doses increasing now?

DS is still grumpy and lethargic, but seems to be getting better slowly.

cedmonds Fri 04-Jan-13 18:33:24

Hi
Ds was seen at GOSH and he has got an infection again or left over from the last timehmm He is on a different antibiotic one he has never had before and has got to go back in 2 weeks time. They have increased his mouetlakast and he is staying on the higher dose of seritide and are talking about putting back on an antibiotic all the time to see whether that helps with the infections
They are also writing a letter to school about the lack of ventolin etc being given so hopefully that will sort that problem out.
ALLI There is parking meters outside of the hospital but there were spaces when we got there(early) but when we came out they had all gone and people were struggling to find spaces.The only other thing i thought about was seeing wether there is a NCP car park in Holbon or Russel Square and walk.

Sirzy Fri 04-Jan-13 21:10:12

hope that all helps Cedmonds.

Ali, could you park at a tube station outside london and then get the tube to Russell square? I know very little about london though!

alibobins Fri 04-Jan-13 21:30:18

Cedmonds hope ds gets sorted soon ds1 was put on longtem azithromycin by the consultant and it really helped his letter says he has got an endo bronchial infection. They are still very careful when he goes under ga and give him iv steroids.
Dh has been googling places to park lol think we are going to go on the train and make it exciting for ds1
Ds2 has had a bit of a bad day today and is coughing up lots of gunk the gp has said if it continues then he may a have to be admitted as he says his body can't take mich more sad to me he does seem better as he is walking around and talking not sleeping all the time so I'm keeping everything crossed.

Sirzy Sat 05-Jan-13 20:52:59

Ali, how is he today?

Thanks for the oximeter recommendation won'twearsocks . I ordered one yesterday for ds, although I'm getting quite adept at knowing when his sats are falling (by counting how many breaths per minute sleeping) but will give me a bit of reassurance at times.

As per your advice I asked the gp on his follow up about the brown inhalor and she agreed to put him back on it. Unfortunately he has come down with another bad chest as well as myself and 3mo dd so I'm just keeping my fingers crossed. Gp checked and no wheeze or crackling atm but said she knows how quickly things can change so get him straight to docs if I'm worried (and I'm coughing up green crap myself so God knows what his body must be going through)

Sorry to hear about you lo's web and Ali . Hope everything's ok.

Can someone remind me is it brown before blue or other way round? I remember there's a specific way your meant to give them. Forgot to ask the other day and google didn't help much.

Sirzy Sat 05-Jan-13 22:53:41

I don't think it really matters, but I always give blue first!

Last time he got out of hospital they told me a certain one before the other. Can't remember which though. Have it in my head alphabetical for some reason so maybe that's it.

cedmonds Sun 06-Jan-13 14:35:44

I have always been told that you should give blue first as it opens up the airways so the steroid will be better absorbed.

weblette Sun 06-Jan-13 17:48:45

Yup, blue first to open up the airways and wait a few minutes for it to take effect.

Ds managed a session of rugby this morning for the first time in months! Inhaler half way through but it's a start!

alibobins Sun 06-Jan-13 19:11:37

Ds2 ended up spending Friday night on the ward he has now got different antibiotics as he developed a secondary chest infection we have a fast track consultant appointment on Wednesday to monitor his progress they do just think he is having an unlucky run but have took loads of blood to rule out anything more serious hmm
How is everyone else

sad aw I'm sorry to hear that ali Hope he recovers soon bless him x

weblette Mon 07-Jan-13 07:49:30

sad Poor thing ali, hope they're able to shed a bit more light on what's going on.

DizzyHoneyBee Mon 07-Jan-13 12:04:30

We're off for the asthma review today. I'm hoping to get his reliever inhaler changed as it got to the point where he would only be able to swim a length without coughing, as he swims competitively that is a big deal for him.
It's annoying as he's fine at night now and doesn't cough all night but the swimming is no good. It's only when he swims first thing in the morning, in the evening he can do 40-50 lengths and be fine.
Not sure how much they will listen to me though.

Sirzy Mon 07-Jan-13 12:47:32

How are things now Ali?

Hope you get answers dizzy. Does he have ventolin before he starts?

DizzyHoneyBee Mon 07-Jan-13 13:20:55

Thank Sirzy, yes he has the ventolin beforehand. The asthma nurse wasn't sure but she thinks he should go on the purple inhaler, she's going to talk to the GP and phone me this afternoon to let me know what he says.
How things with you all? sorry I've not been on much, I had a big project to complete for work.

alibobins Mon 07-Jan-13 13:33:35

Sirzy he actually seems well today he is eating well and quite happily playing so think the antibiotics are doing a good job smile he is still on regular paracetamol but really does seem happier.

alibobins Mon 07-Jan-13 13:34:55

Dizzy hope the change in medication works well ds1 has been on the purple inhaler for 4 years now and was a big help.

Sirzy Mon 07-Jan-13 13:42:58

The purple inhaler seems to be working well for DS.

Glad he is on the mend Ali.

All seems ok here, just very tired all the time so grumpier than normal!

lollipoppi Mon 07-Jan-13 13:51:15

Hi all, just catching up on the thread, due dc2 in 2 weeks so have been doing lots of rushing around doing last minute bits and nesting smile
How is everybody? Dizzy DS is on purple inhaler and have seen an improvement.
DS is ok now since his Boxing Day admission, although has been off his food and very clingy the past 2 days so hoping he isn't coming down with something!

Sirzy Tue 08-Jan-13 22:02:26

2 days back and nursery and he is coughing away in bed. Hope he hasn't picked up another bug but i'm not hopeful.

cedmonds Wed 09-Jan-13 15:50:12

How is he Sirzy?

Sirzy Wed 09-Jan-13 16:48:04

Up and down, had a slight temp before but that has gone. Still needed 4 hourly ventolin but hadn't got that back down properly since his chest infection anyway.

Think I am going to try to get his appointment forward as they moved his 3 monthly appointment back by 6 weeks meaning he isn't due til the end of feb now.

alibobins Thu 10-Jan-13 12:38:21

Sirzy hope ds has turned a corner.
Ds2 is so much better not 100% but getting there.
He had bloods took yesterday but the consultant was happy that nothing sinister was going on and just said it's a run of bad luck.

Sirzy Thu 10-Jan-13 13:16:21

Glad he is on the mend.

Ds is ok today. Still not right but getting better

lollipoppi Sat 12-Jan-13 09:56:10

How is everybody doing? X

Sirzy Sat 12-Jan-13 20:31:48

Not too bad here. How about you?

Sirzy Sun 13-Jan-13 11:48:51

Just took DS for a walk in the woods with his cousins. Gave him 3 puffs before we set off, after 10 minutes he was wheezing so much he needed 5 puffs to calm down sad I hate it when this stops him doing things!

lollipoppi Sun 13-Jan-13 13:12:29

Oh no Sirzy sad that's the one thing that upsets me most about DS having asthma, that he won't be able to join in things his friends are doing, it's not affected him yet but I'm sure as he grows older it will.

Sirzy Sun 13-Jan-13 15:34:07

It is starting to show more now he is getting older but hopefully when things are controlled it will stop being an issue.

alibobins Sun 13-Jan-13 17:02:14

We managed about 5 mins in the snow before ds2 coughed himself sick sad
Ds1 prefers to play on the computer so doesn't run around much but he does manage taekwondo twice a week.

cedmonds Tue 15-Jan-13 10:27:29

How is everyone ? Ds is in hospital having an egg challenge done. His lips swelled slightly but they are carrying on hmm

alibobins Tue 15-Jan-13 11:09:27

Ced I read that on another thread shock I would be a nervous wreck! What's the next stage in the challenge? Ds1 is anaphylactic to egg a challenge has never been considered as his skin prick tests only ever showed a mild allergy yet ds suffers with anaphylaxis.
We are off to gosh today with ds1 just hoping the snow stays away we have got a 2.5 hour journey.
Ds2 is nealy fully recovered from the flu just left with a lingering cough and still gets pains in his legs

cedmonds Tue 15-Jan-13 11:56:47

They give him increasing amount of egg and see what happens. Says are hovering around 95 so finesmile Hope it goes ok at GOSH ds is back on Friday.

alibobins Tue 15-Jan-13 16:57:57

How did the rest of the challenge go?
Appointment went okay ds1 had some scans and a few other bizarre tests but he was really brave we gave got a follow up in a few weeks.

cedmonds Tue 15-Jan-13 18:51:47

ok thanks alli . He didnt react but has now got really bad tummy pains sad
Did youget the train there inthe end. Ds is there on Friday again.

alibobins Tue 15-Jan-13 20:32:24

Dh drove its quite a treck from us took just over 2.5 hours.
Hope the tummy pains stop have you got another day tomorrow?

cedmonds Tue 15-Jan-13 21:00:18

Where did you park? Did you have to pay congestion charge etc. Only wondering if we ever have to drive. He now hasnt got to go back tomorrow but his tummy is solid and really windy. So i wonder if it is more a delayed reaction/intolerance now.

alibobins Tue 15-Jan-13 21:55:23

Waitrose Brunswick Square NCP carpark it was a 5 minute walk if that and cost £6.00 for 2 hours. It was in the congestion zone but Dh said next time he might try and find another carpark.
Have you got a number to ring about his tummy sad has he passed the challenge?

cedmonds Wed 16-Jan-13 20:23:56

Hi
Thanks Alli will remember that if we need it. I was never told about whether he passed or not as they wanted to wait and see if he had any delayed reactions. He is going back beginning of Feb, but is tummy was bad last night and he has had an upset tummy today so prob cant have egg but at least its gone from swelling face etc to that so hopefully another couple of years and he will be fine.
He has been chesty today as well but i suppose that was to be expected if he sill cant tolerate egg.

Sirzy Thu 17-Jan-13 20:16:49

hope everyones coping ok with the cold weather x

dorapeppageorgenoddy Fri 18-Jan-13 06:13:28

Can I join you all...currently lying on some sort of camp bed next to my 17 month old who was admitted last night as his wheeze and breathing was so bad - in December he had two days In with chest infection and struggling breathing but this is the first time the wheeze has nt gone after the nebuliser - can anyone tell me what the next step is? He has has the nebuliser every 2 hrs since 8pm throughout the night - but still wheezy they are doing hourly obs and know he is asleep his sats are not to bad at 95 - anyway rambling after being awake all night and wondering how they can get his breathing to calm, he is having to work so hard -

Sirzy Fri 18-Jan-13 07:12:57

Has he has any steroids?

Sometimes it's just a waiting game for everything to work

dorapeppageorgenoddy Fri 18-Jan-13 12:48:44

They have been giving him steroids as well now on 1hrly nebuliser - so stressful we are staying in tonight they have said -

Sirzy Fri 18-Jan-13 14:02:45

hope he starts improving soon

alibobins Fri 18-Jan-13 18:07:24

Dora hope he gets better soon

dorapeppageorgenoddy Fri 18-Jan-13 19:52:39

Thank you he had a really bad turn today it was very worrying seeing consultants worried and telling me how worried they were - but after a few hours he has stabilised - he has had IV salbutamol and steroids so hopefully he will pick up tomorrow -

dora sad so sorry. We've had some really scary episodes with DD1 (6) who deteriorates rapidly to such an extent that her GP is scared.

Hopefully your DS is being treated by respiratory consultants? DD1 used to get blue lighted to Children's Hospital quite a bit, and found that A & E docs and also ward doctors would treat asthma on an acute basis quite competently, but a few times I have asked for her respiratory consultant to be bleeped. For the most part the acute treatment is fairly standard, but there is nothing as scary as watching your child struggling to breathe...

Hope you get some sleep tonight. Presumably he's on an O2 monitor? The nurses can set it so an alarm goes off at a specific percentage. Think for DD1, it was set at 90%. It made a difference so I could get some sleep knowing she was being monitored. Not that you will be able to, I know, but a few hours will make a difference...

Sirzy Fri 18-Jan-13 20:46:32

Glad he has stabilised, hopefully he carries on recovering. When it comes to time to be discharged i would insist on consultant follow up and if he isn't already on preventative medication ask about that.

DS has been playing in the snow today for the first time and was fine at the time (topped up on ventolin before he went out) but then has struggled a bit this afternoon.

dorapeppageorgenoddy Fri 18-Jan-13 21:31:12

Thank you for your replies he is on full monitor and is beeping at 90 and then they are given oxygen - they are given 1hrly nebuliser as he is not lasting longer at the moment - he is also on antibiotics and IV steroids - he is at last falling to sleep but I think it will be another long night with 1hrly wake ups!

alibobins Sat 19-Jan-13 09:40:27

Hope he had a settled night Dora.
Ds2 has started with a high temp and cough hmm
Ced we've had an appointment come through for next Tuesday from GOSH to discuss ds1s results are they usually this quick or should I be panicking something has been found hmm

Sirzy Sat 19-Jan-13 15:52:56

How is he doing Dora?

DS is the same Ali, and a clingon who won't get off my knee either.

egolito Sat 19-Jan-13 17:06:45

Dear All,

I feel a bit bad to come into this thread so late, but I sympathise with all of you and share your worries and experiences. Will tell you a little bit about my child. He has had 5 severe food allergies since 7 months (eggs, peanuts, tree-nuts, sesame, chickpeas) he is now 2 years old (Birthday yesterday).

We were fine and thought all in control of his food allergies (after two visits to A & E)until last August when we had a terrible night of throwing up, cough, etc. My husband and I did not realise or knew what "wheezing" meant but found out pretty quicliy the following morning. Ended up in Hospital with intravenal Saubutamol and Prednisilone. This was with an overnight stay. After that the rollercoster started, Doctors, Hospitalizations (5 in total) luckily only with oral inhalers but he has had 4 courses of Prednisilone in five months, huge amounts of Ventolin. We did try Singulair twice but he really became like a possesed child, we even came back earlier from our holidays thnking he had psicological problems. It was that bad and his behaviour scary and erratic.

Now his pediatritian has finally decided enough is enough and has put him on Qvar Beclomethasone 200 morning and 200 night until February 17th. He said to try this for four months (we started last October). Even though I am ecstatic that we have been out of Hospital for one and a half month, I cant really understand what a high dose means/ I do believe that his dose is not low and dont know who to ask. Does anyone know? I dont want him to wheeze and I panic every with every single cough yet but I dont want him to be on a horse dose without me even knowing.

Also, for those who are loosing hope I have tried a trusted homeopath and although I am a sceptic person by nature, it has helped a lot! He has told me that part of his attacks are clinical part emotional and was given one dose only of 10 drops of a homeopathic plant at night (will write the name down soon) and since then we have been good. So even though I dont believe in miracles I do know believe in combining homeopathy with traditional medicine.

Thank you and sorry for my long post, keep tight all out there and I hope that all these beutiful babies and children will grow out of it since this is what I have been told.

Sirzy Sat 19-Jan-13 17:27:58

Hi ego. You may find that they have started on a high dose to get him under control and then will try to lower it down? I know when DS was on Beclomethasone the lower doses did nothing for him and it was only when he was up to 400mg a day it made a slight difference.

dorapeppageorgenoddy Sat 19-Jan-13 19:05:32

Quick update; He was moved out of high dependency late last night and overnight although he needed oxygen he managed to stretch to 3hrs between the nebuliser and has continued to go 3hrly today - so hopefully on the mend now -

Sirzy Sat 19-Jan-13 19:10:12

Thats good smile x

yummymummy345 Sat 19-Jan-13 20:18:07

Hi DS1 had been diagnosed with asthma - coughing all night regularly and poor behaviour (lack of sleep) wheezy ,dark rings under eyes, reccurant throat infections. I just wasnt convinced is was asthma anyway it turned out to be dust mite allergy leading to asthmatic symtoms. Bought a dust mite repeller - 9.99 from amzon and he hasnt had cough for a whole year, no throat infections etc . DS2 19m old has had 5 cases at least of bronchiolitis since 6 months old and croup. Again he has a dustmite repeller and he hasnt had case of bronchiolitis since NOv 12 which is a long time for him. DS1 conf with blood test dustmite aleergic DS2 currently being tested.

But wondered if this may help others- something else to try for asthma type symptoms

cedmonds Sat 19-Jan-13 20:18:16

Hi
alli i dont know as ds has only had tests done that have taken a while to be run. Hope you get some answers soon.
Ds has been out in the snow today and been nearly a normal child the antibiotics have made so much difference to him.

egolito Sat 19-Jan-13 21:03:23

Hi Sirzy, thanks for that.How long was your DS on 400 a day of Beclomethasone?
He is now good for a month and a half he still coughs a bit in the morning and night but I have not used other than the brown inhaler, no ventolin.I think I have been traumatised by the last 5 months, every night I keep going to his room and checking for any throat recession.WHen he is awake he even opens his pijama slightly and smiles for me to have a look( and he is only 24 months)The homeopath said that I need to calm down to help him and
it is true that as soon as I get into a state he does get worse.So to all mothers out there, we need to stay calm.I know how difficultit is but it does make a difference and they do feel everything.
He was seen by a resoiratory expert and now we have an appointment with the ENT specialist.It seems that they want to look at his airways with anesthesia.I am worried to put him through this after all the ordeals in the past months.
Has anyone had this procedure done, do you think it is worth it?
I have been told that even if he has floppy airways, there is nothing to be done but wait till they grow!

dorapeppageorgenoddy Sat 19-Jan-13 21:25:33

It is so stressful knowing how to be the best advocate for our children - and so many consultants/doctors seem to have different opinions which does nt help -

I can't scroll down as on my phone to check who suggested I ask for a consultant follow up and today I mentioned that as this is 5th (I think) hospital trip but 1st admission and he has been on inhalers since last winter if we could have a follow up appointment and she said he does nt need one as they won't confirm asthma at this stage - i said this was his 5th time for antibiotics (he is 17months) and they said they worry when he has 1 a month or 10 to 12 a year, so no appointment but at least I asked-

Yummy mummy that is so interesting about the dustmites my son has tested positive for dustmites allergy at the hospital after being screened as is cows milk allergic - would you be able to tell me the make of the dust mite extractor as for £10 I will try anything -

Glad I found this thread - hope everyone has a restful night and gets answers soon - sorry I can't offer much advice...

Sirzy Sat 19-Jan-13 21:41:38

I think DS was on that dose for about 12 months but he also took singliar for most of that time and the last 3 months was also on serevent. He was then moved to seretide which has been the best for him so far although still not perfect.

I am awful for checking on him even now, at the moment he is ill which makes it even worse. Thankfully he is getting very good and knowing when he needs inhaler or whatever which does help.

Dora - even if they won't confirm asthma that doesn't mean that they cant treat his symptoms what they are doing now isn't keeping him out of hospital so they should find something that is. Keep pushing for a second opinion. DS was diagnosed at 12 months,

alibobins Sun 20-Jan-13 12:36:14

Dh ended up sleeping in ds2's bed as he was coughing all night sad he does seem a bit better this morning but no snow play for us today.
Dora hope ds is still getting better I can't believe they won't refer him to a consultant!!!

Sirzy Sun 20-Jan-13 13:19:36

Non for us either Ali, peeling him off my knee is hard enough!

Dora - hope he is on the mend

dora absolute garbage! Yes, the frequency is a factor, but you really should insist on a respiratory consultant out patient appointment due to the severity of the attacks. You also want to ensure that there is no lasting damage on his lungs, therefore he should be monitored.

There are no hard and fast rules about when a consultant is deemed necessary, although there may be local guidelines.

In any case, is the suggestion that your DS was so poorly that he was in high dependency, but no follow up? hmm. That just doesn't make sense. I would speak with a consultant directly and say you are concerned that there is no continuity of care and would like your DS to be followed up in out patients in about a week. Also ask for open access direct to the ward, so god forbid he declines, you can go straight back to the ward.

dorapeppageorgenoddy Sun 20-Jan-13 16:54:02

Thank you for the wisdom - we have come home now as he is managing 4hrs in between needing the inhaler - no follow up appointment given but we do have open access - I'm going to go the gp to discuss it all and ask for a referral -
Thanks again -

Sirzy Sun 20-Jan-13 17:21:21

glad he is home

yummymummy345 Sun 20-Jan-13 18:45:29

Dora here is the dust mite repeller I was referring to............. http://www.amazon.co.uk/GENERATION-ULTRASONIC-REPELLER-REDUCES-MITES/dp/B003RHC4RK/ref=sr_1_1?ie=UTF8&qid=1358706763&sr=8-1

I was like you- would try anything. my DS was on antihistamine every day just to help with his coughing throat infections etc, tried this repeller then stopped the antihistamine.

The doctors were too quick to give inhalers , tablets, medicine (which is thre job of course) but I found the dustmites were the culprit but of course there are other triggers.

Sirzy Sun 20-Jan-13 22:44:10

Just been to OOH with DS.. apparently he has an upper respiritory tract virus.

He was one of those doctors its hard to have any faith in though so I hope that a) he was right and b) it doesn't move down like they normally do with him!

alibobins Mon 21-Jan-13 07:51:22

Think that's what ds2 has got sad last night he was coughing again all night and crying on and off. We are completely snowed in so going to ring my lovely gp to see what he thinks. Usually he will prescribe me antibiotics and steroids over the phone if he thinks we need them.
Sirzy hope ds isn't too poorly.

cedmonds Mon 21-Jan-13 08:40:14

Hope they are better soon
We were ment to be at GOSH today and I cant get up there because of the snow! Had to cancel Fridays appointment tohmm Its a shame as school is shut so he wouldn't of had a day of school.

egolito Mon 21-Jan-13 10:10:53

Hello everyone, my DS has started a cold after a month and a half. I am keeping him on the brown inhaler 400 mg a day and have started the blue one this morning though I dont see wheezing just mild cough and lots of sneezing. After all my comments of stay calm, I can tell you that having had a break of more than a month I thought he might be growing out of all this (he turned 2 two days ago). My only doubt now is wether to give him 2 puffs every four hours or 2 puffs morning and 2 night unless I hear the horrible wheeze. I had to come to work, I am pregnant and I am so stressed I can put it into words. My husbands keeps on telling me not to panic but had to travel tonight and I dont drive so have all the minicab numbers ready. How can soemone try to control their nerves when their son is sick? Hope we can take it one day at a time, I am reading all your comments and I am so glad to have found this means. It is like having a free shrink, makes me feel better to know you are all there with your support. Thanks for Sirzy for starting this new threadsmile still dont know how to put a smily icon.

lollipoppi Mon 21-Jan-13 17:31:26

Hi all, just catching up on this thread, DS has been doing really well ..... Until last night, he was literally coughing all night sad his breathing wasn't too bad but has got a little worse as the days gone on, but he is ok in himself (other than tired) I'm giving him 8puffs 4 hourly and seems to be keeping it under control for now. I have a course of steroids in just incase. I'm past my due date now with dd2 so I'm just hoping baby will stay put for another couple of days while DS gets better!!

alibobins Tue 22-Jan-13 14:46:30

Lolli hope ds is feeling better and good luck smile
Sirzy how is your ds doing now?
Ds1 went sledging with a friend yesterday and now has a terrible chest sad
I'm now on count down to ds2 having his tonsils and adinoids out 3 weeks today!!

Sirzy Tue 22-Jan-13 15:24:35

Still under the weather but on the mend stayed off nursery today so I could keep him away from snow.

DD1 was sent him this afternoon. The upshot of the school not taking her asthma seriously enough is now that when she sneezes, they send her home.... Guess it's better than the alternative. She's much much better after lounging on the couch having popcorn and watching 'The Lion King...' hmm

Actually on quite a bit of Ventolin, and would much rather have her at home when there's any doubt... smile

Arachnophobe Thu 24-Jan-13 04:41:08

Hi All back again ds3 has been awake coughing, wheezing and mucas sick for three hours now. He's been having 2 puffs of ventolin (six breathes per puff) as I am sticking to the two different GPs advice that we should not give him ten ourselves without him being seen first.
Luckily I have a Dr appointment booked for 8.40 it was for me before work but I will take munchkin rather than take him to a&e right now as he seems to have fallen asleep at last.
I had 2 days off sick last week (felt fluey) and also Tuesday this week as Ds1,2 and I spent Monday night puking and the end now poor ds3 ill - I really hate winte

Arachnophobe Thu 24-Jan-13 04:47:26

*mucus. *winter.
I will blame it on the anxiety and sleep deprivation.

egolito Thu 24-Jan-13 11:41:27

Dear Arachnophobe,

Have you every tried ten breaths each puff? I was recommended always by A & E 6 breaths per puff but was then told by numerous Doctors (one of them Dr Ahmed Massoud whom I very much trust) who said ten breaths and my DS seems better with them.
My Ds was admitted to Hospital 5 times since August with sever wheezing, once on IV saubetamol and prednisilone so though I cannot say I am an expert I have been around for a while....Tried Singulair did not work he reacted very badly, as if he had psicological problems poor baby.
Now he is on the brown inhaler high dose 200 morning 200 night and homeopathy (pulsatilla 200) which have kept him out of Hospital since Decebmer 8th. Fingers crossed. Hope this helps....

Arachnophobe Thu 24-Jan-13 12:53:32

Thanks Ego I hope your DS is OK.
We saw a new GP this morning he prescribed anti-biotics, Pred x 2 tabs a day and we are going back for follow-up Monday - I am so pleased he is actually going to keep an eye on him and follow this episode up.
I hope the meds and rest works and keeps it at bay at least until follow-up appointment but will also try ten breathes instead of six - thank you for the tip.
I feel bad as am at work but DS is with DH as it's his day off and he said he is having a nice sleep now which is what he desperately needs.

Arachnophobe Thu 24-Jan-13 13:06:08

Ego Did the Doctors recommend the homeopathy combined with the meds?
I am going to strictly follow GP advice from now on and plead for continuity of care if this continues I just hope we have struck gold with this GP he seemed very caring.
Ali also advised that there are asthma nurses if it turns out not to be 'just' seasonal wheeze (which is more than enough).
Other than following NHS advice and giving DS3 Vitamin drops for the Vit D I feel powerless at this stage.
We had similar with DS1 but he had his last episode just before 4 years and now approaching 10 thankfully.
Take care.

egolito Thu 24-Jan-13 13:34:14

Dear Arach, it seems to me that this GP is going to take care of you and I think that is the most important thing, to have someone looking after you. He seems to be giving you half the dose of prednisilone and perhaps wants to check results. My Ds has had 4 courses (one each month whilst in Hospital) of Presnisilone and normally they are 4 pills a day for 3 days.
In respect to homeopathy, I have always been a big sceptic of yoga, homeopathy, etc. but I am delighted to have found someone. He spent an hour with me, did some tests, saw my DS and gave me after two weeks pulsatilla 200. I promise you I gave him the 10 globuli and (though I dont believe in miracles) something changed for the better in his general breathing. The homeopath also sent me medicine since he said that it was related to the mother as well. No, the "clinical" Dr dont seem prone to homeopathy, though my Dr back home who is like an eminence in my country did send me to one saying there should be no clash in between classic medicine and homeopathy. I know that it all sounds confusing but homeopathy is largely recognised our there is even a big NHS Hosptital in London.
Please ask me anything, I am here. Hope your DS sleeps well. I am a full time working mother as well and know it is not easy.

Sirzy Thu 24-Jan-13 19:39:39

How is he doing now Arach?

Arachnophobe Thu 24-Jan-13 21:27:35

Thanks ego I hope so as he's only 9 months but struggled a lot since November on and off.
Thanks Sirzy he's fallen asleep so I'm going to get my head down. He's got to go to childminder all day I feel like a shit mum but at least she is used to it from

Arachnophobe Thu 24-Jan-13 21:34:20

I meant to say from experience. I will take holiday if he is worse but hoping he will get over this episode quicker than the last. Wishing all wheezy ones (and Mums) a restful night.

egolito Fri 25-Jan-13 13:26:12

Hi Sirzy and Arach how are your Ds doing? Mine had minor cough at night but fingers crossed we can spend this cold home and not hospitalised. My homeopathic medicine arrived Sepia 200 and hopefully and in conjunction with his medicine and steroids we can keep a tight fort.

cedmonds Sat 26-Jan-13 09:46:14

Ds has got another chest infection. sadHe was of school yesterday and is back to Great ormond street on monday. I think the plan is to put him o n low dose antibiotics all the time.
Alli how did gosh go?
How is everyone else.

alibobins Sat 26-Jan-13 18:44:55

Ced his appointment isn't till Tuesday at 9.20am it takes us nearly 3 hours to get there so we are staying over Monday night.
Ds1 was put on azithromycin given on a Monday, Wednesday and Friday and made a huge difference to him.
Hope your ds feels better soon.

cedmonds Sat 26-Jan-13 20:42:24

That's what ds has been on it made so much difference for him them after the two weeks four days of it and we are back to square one. Hope it goes ok alli. We are there on Monday

alibobins Mon 28-Jan-13 19:50:20

Ced how did your appointment go?

alibobins Mon 28-Jan-13 19:51:02

Ced how did your appointment go?

Sirzy Mon 28-Jan-13 20:19:18

DS is plodding at the moment, still needing ventolin morning and night but not needing extra through the day which is a good start.

cedmonds Mon 28-Jan-13 21:18:16

Hi
Really well thanks Alli he had a chest X-ray which was clear. He has been given long term antibiotics and got to go back in Three months. Hope it goes ok tomorrow x

dutchwifey Tue 29-Jan-13 18:39:32

Hi

I was wandering if anyone could help. My ds(2.6) was dx with viral induced wheeze last April after 5 months of constant chest infections, wheezing and a hospital stay for bronchiolitis. He was on montelukast which we stopped in the summer, as well as blue inhaler. Up until Xmas he never had any problems. He got very poorly Xmas day with cough, high temp-was told it was just viral and carry on with salbutamol.he recovered after about a week.
Fast forward to a few days ago and he gets poorly again with high temp and terrible hacking cough and squeaky sounding chest, also breathing rate a lot faster than normal.
Took him to doctors- we are living in holland ATM- and they said his chest sounded wet so prescribed azitrotromycine (4ml once a day) and also given a brown inhaler with two puffs morning and evening. My worry is that if I was in the UK my son would be given amoxicillin and told to continue with the ventolin... I almost feel that the new antibiotic (that I've never even heard of!) and the steroid inhaler is too much? I'm so used to being in the UK and having to plead to the dr how poorly my son is that now new medication is being handed to me on a plate I worry! Any advice would be much appreciated!

Hi, not sure there is a huge variance in treatment. DD1 had several trips to A & E with what they called 'asymptomatic' asthma which meant that she only had asthma when she was unwell, but the treatment was essentially the same. She was on a brown inhaler and Ventolin. After several more admissions and being blue lighted to hospital, and chest infections later, she was referred to the asthma nurse and then the respiratory consultant and now is on Seretide, Singulair (montelukast) and Ventolin.

what you have to balance is the amount of steroids in a brown inhaler as opposed to an acute episode. DD1 is given 30mg a day of Pred usually for 5 days, so if it preventing an attack, then it's worth it.

And Ventolin is taken as and when is needed as is a reliever rather than a preventer.

Somermummy1 Tue 29-Jan-13 22:18:20

Hand holding needed please! 5yo just had I think his first asthma attack. DH taken him to A&E. I'm home with Sleeping DD. he looked so scared. What do I need to know????

Sirzy Tue 29-Jan-13 22:33:03

Try not to worry to much. They will probably give him ventolin either through an inhaler or a nebuliser depending how bad it is. Hopefully that will be enough to calm things down but he may also need a short course of steroids to help him. He will probably need to keep on top of the ventolin for a few days aswell.

alibobins Wed 30-Jan-13 07:46:30

Somer hope ds is okay it's so worrying when it first happens.
Sirzy ds2 seems to be on a constant struggle to cut down on any ventolin sad he's on constant penicillin v for his throat but his chest is the worse it's been for ages sad

The results we got from GOSH were not at all what we expected sad we are all a bit shell shocked and entering an uncertain time until we get more clear results.

cedmonds Wed 30-Jan-13 16:12:29

Hope everything is ok in the end alli.

egolito Wed 30-Jan-13 18:29:46

Hello everyone, I have been reading your posts and it seems so worrying. I do not want to claim victory but to give you hope. My son has had 5 admissions to Chelsea and Westminster Neptune Ward since August this year with Intravenal, severe wheezing, ventolin, abuterol, prednisilone (released each time when he could handle 10 puffs every fours hours). He has been off hospital since December the 8th. After seeing the pediatritian, respiratory Dr they increased his brown inahler to 400 daily and I decided to try homeopathy (he was given pulsatilla 200 and I was given sepia 200 as well!). As I said we cannot say we have crossed the line but after trying Monteculast, Ventolin, 5 courses of Prednisilone the brown inhaler seems to be working (when he was on 200 daily he still finished up in Hospital). To those who doubt the high doses of the brown inahler, I was told that mainly the thing to avoid is too many courses of Prednisilone and hence the inhaler is more advisable since the body absorbs much less.Unfortuantely the Monteculast was a horrible experience for us, we tried it twice her turned into a different child and we thought he started having psycological problems. So, to resume do not loose hope and I am so glad that I can share this with you....

ego glad that your DS is better, but your advice is dangerous so please stop with the homeopathy advice. Really. The parents here are capable of doing research and am sure you would agree that to stop steroids mid course is dangerous.

My DD1 has lung damage and needs steroids and close monitoring.

This thread is a place where we can get support, so back off on the homeopathy advice. Please.

lollipoppi Thu 31-Jan-13 11:52:17

Hello ladies, hope your all ok and little ones are doing well? How is everybody?

our new addition was born last Wednesday, a beautiful little girl, so the last week has been a whirlwind smile

Pleased to say DS had another stonking cough and cold but kept well under control with ventolin and a course of pred x

Sirzy Thu 31-Jan-13 13:04:02

Congratulations Lolli x

alibobins Thu 31-Jan-13 13:04:52

Huge congratulations lolli smile

cedmonds Thu 31-Jan-13 13:20:59

Congratulations Lolli

egolito Fri 01-Feb-13 11:10:44

Hello, and this is a post to Ilovemydog...I am sorry if I am coming accross as patronising with homeopathy and will not then mention it again but I dont understand why you can get upset when all I was trying to do is help.
I never said to cut on steroids, I only explained what the Dr told me in my particular case. My child has been really unwell and I thought that this was a place to share not to be told off.
Congratulations on the new baby girl to Lolli,
Hope all your DS keep well.

ego mentioning that homeopathy has helped your DC is fine. But to continually go on about it is preachy.

My DD1 has been gravely ill with asthma and respiratory illnesses. I come to this thread for a bit of support as I don't know anyone in R/L whose child has asthma.

Guess it's not the place for me anymore.

Bye people!

alibobins Sat 02-Feb-13 08:35:51

Ilove we are always here to support and advise you know my ds1 has brittle asthma and your input to this thread is invaluable.

dorapeppageorgenoddy Sat 02-Feb-13 17:55:30

Hi everyone just saying thanks for support while my ds was in hospital - both boys have got a high temp today so dreading it become something else -

Roll on spring for us all thanks again smile

cedmonds Sat 02-Feb-13 18:41:25

I love you can still get the support here. Ds has been plodding along nicely. He is seeing the gastro dr on Friday about his egg challenge.

egolito Mon 04-Feb-13 13:58:35

Dear ilove, I hope you are not leaving this thread. I think that having a child being sick can make anything more sensitive than normal, and I do apologise if I have been a bit "rough", but can promise you that was not with the intention to offend anyone and will not mentinon anyo the word "h".
So, I just wanted to make amends and do hope that we can continue to all share, help each other via this thread that Sirzy created I believe with that aim in mind....

DuchessofMalfi Tue 05-Feb-13 13:34:44

I've just discovered this thread and hope it's ok to dive in with a question?

DS, who is 3, has just been diagnosed with asthma. Not really a surprise as it's in the family (DH has it too).

But I'm struggling to find a way to explain it to him so that he understands what asthma is. Can anyone recommend a good story book I can get for him? I nearly ordered one this morning called Charlie Has Asthma, from Amazon but it hasn't got any reviews and I don't know whether it's any good.

I shall be getting some books about asthma from the library for myself but they don't have anything for his age group. Can anyone advise/recommend something for him please?

Sirzy Tue 05-Feb-13 14:35:45

Not sure how much I can help because as DS was under 1 when diagnosed he has never known any different.

He knows he has asthma and that his breathing hurts sometimes and he needs to sit down and have his haler. He is really good with it all though thankfully.

There is an episode of get well soon which covers asthma which may help

DuchessofMalfi Tue 05-Feb-13 18:36:53

Thanks Sirzy, I'll have a look on the Cbeebies website and see if I can get that. I thought our library would have something, as it's not exactly a rare condition is it? But nothing suitable in simple story-telling format for small children.

Sirzy Sat 09-Feb-13 12:46:15

How is everyone getting on?

DS went to see his consutalnt on Thursday who was happy how he was doing just said to give ventolin at bedtime as standard for a while.

This morning he woke up sounding awful, morning in A and E and now back on Pred and 10 puffs 4 hourly. How things can change in 48 hours!

alibobins Sat 09-Feb-13 16:47:36

Oh no Sirzy poor little man sad hope he feels better soon.
Ds2 is having his tonsils out Tuesday ds1 is plodding on we saw the consultant again Wednesday and ds1 did a spirometry and we need to go back in 10 weeks if he is still having problems they will change his meds.

Sirzy Sat 09-Feb-13 20:25:19

Hope it all goes well on Tursday Ali x

alibobins Sun 10-Feb-13 18:40:39

How is ds today Sirzy

Sirzy Mon 11-Feb-13 08:50:13

getting better, still coughing a lot though and wheezier than I would have liked. Just had his last dose of pred so will see how he goes now.

Sirzy Tue 12-Feb-13 09:17:45

hope all goes ok today ali x

cedmonds Tue 12-Feb-13 14:32:48

Hope it goes ok today Ali

alibobins Tue 12-Feb-13 14:56:06

Hes all done op went really well ds2 is in some pain but sleeping.

Sirzy Tue 12-Feb-13 14:58:24

Glad it went well

Hi all

I post very occasionally (the thread moves too quickly for me to post regularly!) as my 2 DSs have asthma too. I was thinking of buying a paediatric oxymeter for DS1 and was wondering if anyone uses them/would be able to recommend a brand to me. Also I was wondering what is normal in terms of oxygen range for little ones and what is not and at which point do you start to worry. Thanks in advance.

I hope all the little ones on this thread are keeping well

DizzyHoneyBee Tue 19-Feb-13 08:42:31

Thanks for the link Sirzy, just marking my place. I know I don't post here much, I don't tend to get the time except in school holidays but it's such a useful thread.

lollipoppi Tue 19-Feb-13 09:11:22

Hi all, just checking in to see how everybody is doing, all seems to be quiet on this thread at the moment..... Hopefully that's a good sign that everyone is ok smile

Life I've not bought one of those yet, I fear I will use it waaaayyy too much!! But normal stats should be around 86-100% it all seems to vary depending on which hospital your at but when DS is on oxygen its because his stats are below 92% - DS always drops his stats when his asleep x

Sirzy Tue 19-Feb-13 09:38:48

DS still isn't right, needing lots of ventolin seems to have perked up a bit in the last few days though so hopefully that continues others it will be back to the GP I think.

DizzyHoneyBee Tue 19-Feb-13 10:19:12

Sorry to hear that Sirzy.
Life, I haven't bought one either so no idea they are any good.
DS has gone on seretide, that seems to be working well - he went and swam 1/2 a mile in 25 minutes after being on it for a week. He needed his blue the next time he swam though but he had a cold.

Moanyjoni Thu 28-Feb-13 08:41:18

Hello all. Lurked here and in the other thread and you have such a wealth of experience. I am fast learning how to manage dd's asthma, but as you know, it's a steep old learning curve.

Dd is 3, diagnosed last winter after 3 hospital admissions and we seemed to be doing better this year. Clenil put up to 400mg a day and a course of pred and anti-bs from the gp saw us through Christmas. Then last week we rushed her into a and e and she had back to back Nebs; a course of pred and singulair started. Sent home and slowly weaning ventolin down from 10/ 4 hours. All pretty standard. Fast forward 5 days and she has a major relapse. Ambulance called from gp's - gp gave her 30mg of pred while we waited. Back to back Nebs in hospital and she's stable again. They decided against anymore pred and are discharging us with no changes to med having successfully treated the acute attack.

My concern is another relapse in a few days once the initial dose of pred wears off. Last time she had her last dose of pred thurs and relapsed tues. Obviously I am going to be extra vigilant about how often she needs her ventolin, but as we are an hour away from the nearest a and e it worries me.

Sorry - long post, probably just needed to get it off my chest. Does anyone have any insight into why a relapse like that happens? No one seems to be able to tell me. Thanks for your input. Hope all your LO's are well at the moment. thanks Joni xx

Sirzy Thu 28-Feb-13 11:41:50

Ds has needed 2 course of pred a few times to clear it.

Has she had a chest X-ray to rule out infection?

Moanyjoni Thu 28-Feb-13 21:38:16

Thanks for replying Sirzy.

She had an X-ray and they've sent us home with anti-biotics, even though the Doctor said she couldn't say definitively that she had an infection. Still, if there is anything, that should clear it up.

We're home now. No steroids, but a clear treatment plan. In retrospect, signs that a relapse was imminent were there. I think we just need to be braver about seeking treatment as soon as she starts to need more ventolin. We're too afraid to make a fuss, and that led to being blue lighted through rush hour traffic on Tuesday. More fuss required!!

Do think she has a tendency to react very well to the pred initially but can relapse after a 3 day course. That happened last year and the GP picked up on it and prescribed a 5 day course instead, which did the trick. Consultant was adamant no more pred this time though. I hope he's right!

Fingers crossed we are over the worst this time and she'll continue to be well into spring.

Hope your ds is well, he's 3 too, isn't it? So horrible having little ones so ill.

Thanks thanks Joni x

Moanyjoni Thu 28-Feb-13 21:56:20

"He's 3 too, isn't it?" Sounds bizarrely welsh! I'm not welsh, and I meant "he's 3 too, isn't he?" obviously! Apologies!

Sirzy Thu 28-Feb-13 21:59:48

hope she feels better soon

Its so hard to know when to seek help isn't it. I always try to stick it out at home for as long as possible but am getting better at going in early. I now work on if he needs more than 5 puffs of ventolin in the space of 4 hours he needs checking over which seems to work pretty well for him.

* touch wood * all is pretty calm here at the moment, he had a bad attack 2 weeks ago but today has been playing in the garden happily and only needed 2 extra puffs which is good.

Altinkum Fri 01-Mar-13 20:03:47

Thought I'd beat join this thread as ds2 asthma is progressively getting worse.

Yesterday we took him to our local walk in as, he was showing signs (osphogus and tummy, and sides and chest cavaity) off finding it hard to breathe, at this point we weren't worried as tbh, we thought it was viral, but got to the walk in and seen his SATS, which were 60 oxygen and 175 heart beat, they gave him 2 nebs immediately but that didn't help at all, he was then given a dose of prednisolone, (50mg) and 100 oxygen.

He improve for 10 or so mins and dived again at one point his heart 180 and his often back to the 70's (on oxygen they were 91-97) so he was give his 3rd neb.

Ambulance came and as he had improved greatly 98-97 and a steady heart beat of 145, the paramedics said e didn't need A&E so we would be took to the waiting room, he was seen within 10 mins, after dh kicked off.

The doctor who seen him pressed an emergency button and all we seen was a lifeless ds, being rushed to resuscitation, he was given more steroids and pred, and he improved immensely.

Before his oxygen was below 60 and his heart rate, 170+.

We
Got home at 2am this morning, he's fine within himself but can't do anything physically or do much without getting breathlessness, he's on a 5 day course of pred, and 10 puffs of blue every 4 hours. (More of needed)

Between me having double pneumonia last week (asthma related) asthma fooking sucks!!!!

Altinkum Fri 01-Mar-13 20:10:31

Sorry I should say, dais on serendite, 2x10g and brown 2x400g he is 3 years 8 months old.

Altinkum Fri 01-Mar-13 20:10:53

100g

RavenVonChaos Sun 03-Mar-13 22:00:40

HI all, can I join? Have just spent 2 days in hospital with my 7 year old and its all out of the blue really. She has been a happy wheezer, only ever getting a bad chest with a cold and rarely. She has only needed hospital treatment once over a year ago, no admission tho. She was really bad on friday, and because I had never been told the correct way to manage it, I was giving her too many puffs of ventolin, but not spacing them out with 10 seconds in between. Feel such a dick and a failure to be honest. Anyway after watching her struggle on friday, but thinking that she just needed a good nights sleep and would be okay. But up all night FRiday and then I just took her to A and E at 7am on Saturday. Ended up admitting her and giving pred and then IV magnesium and 10 x ventolin every 2 hours. I was shocked actually at how bad she was. Feel very guilty about it, and why I felt we should just soldier on. Now I have a leaflet that clearly explains when I should take her to the hospital and I will never leave it so long again.

Happy to say that she is absolutely fine now and I have calmed down. I was glad to out all about Asthma properly, and feel more confident in actually understanding that my daughter does suffer from Asthma, but not all the time. We have never seen the GP for this, as she has only ever been to the hospital on a couple of rare occasions.

Thanks for reading if you have got this far. I do feel like I have found the missing piece to the jigsaw after this weekend.

Sirzy Sun 03-Mar-13 22:03:08

Altkin - hope your DS is better now.

raven - don't feel bad, if you hadn't been shown how to use them properly then you can't be blamed for not knowing. Hope she feels better soon.

RavenVonChaos Sun 03-Mar-13 22:24:44

Thanks Sirzy. Sorry for my incoherent post! have just re-read it. I met another mum on the ward who has a child who is, what I would term, "proper asthmatic" and even she said that she missed the symptoms and put it down to tiredness etc etc. She ended up arriving in an ambulance.

She is fine now thanks. Now I just need a good night sleep!

knackeredmother Sun 03-Mar-13 23:03:28

Hi all, I started the thread before this one that filled up. I have followed this thread but haven't posted as I find dealing with a constantly sick ds too much and when he is well I just want to forget about it. I hope that doesn't sound awful.
My ds was admitted for the first time at. 8 weeks old then every 2-4 weeks for 2 years after that. He is now 3 and 3 months and has been on azithromycin 3 times per week, monteleukast and steroid inhaler for almost 2 years. He hasn't had an overnight admission for a year now and this week his respiratory professor has stopped all but the monteleukast.
I hope this may give somebody some hope that things can improve. When ds had 10 courses of pred in 1 year I honestly could not ever see things improving.
He has a cold now so fingers crossed we make it through, I still get the heartsinking fear when a cold starts.
Hope all your little ones are breathing easily tonight.

butterfingerz Mon 04-Mar-13 12:51:25

Raven, don't feel bad, my sister had severe asthma as a child then it disappeared from about 7 onwards. However it flared up a couple of times in her 20s and 30s but her attacks are so rare, when they do come shes already forgotten how to deal with them! And she's an adult.

If youve never had a concrete diagnosis of asthma for your dd and was unsure when faced with an asthma attack, well its a learning curve and at least you have the right information to deal with it now.

Did you have a follow up with the gp, might be worth seeing if they have an asthma clinic so she can have a checkup every now and then.

Sirzy Mon 04-Mar-13 15:41:57

raven - hope you got some sleep

knackered - thats fantastic must be such a relief

RavenVonChaos Mon 04-Mar-13 19:59:39

Butterfingers - yes got appt at GP this week so hope they will actually do a proper assessment

Sirzy - yesnd I did get a good nights sleep thanks.

I just wondered if I should be sending dd to swimming this week? Not sure what to do - she wants to go, but is still chesty....confused

lollipoppi Tue 05-Mar-13 10:33:30

Hi all,
DS had his appt yesterday with his consultant, she said he is doing well and keeping him on the same meds .... Fast forward to 6pm and the coughing starts!! Typical!!!

Sorry to hear of those LO's who are not well at the moment, thinking of you all

I have felt so guilty many times about not taking him to the hosp sooner, we have all been there so do not worry x

Sirzy Tue 05-Mar-13 13:01:13

Lolli Ds did the same. Saw consultant Thursday morning and got the best 'report' ever, ill Thursday night and in A and E by Saturday!

Hope he is better soon!

lollipoppi Tue 05-Mar-13 13:11:58

Oh no sirzy!! Maybe worth a trip to the docs this afternoon to get some pred then!
He has been coughing all day even on 8 puffs hmm

Sirzy Tue 05-Mar-13 13:25:44

Poor thing hope he is better soon.

DS is doing ok at the moment (touch wood) even managed 45 minutes running around without needing any extra ventolin the other day

alibobins Tue 05-Mar-13 13:40:25

Ds2 has been doing really well after his op but the coughing and wheezing started last night sad don't know if its the beginning of his hayfever.
Ds1 is plodding on no change to his medication.

We have been at the doctors at 10 before and blue lighted to hospital in the afternoon asthma can be so complicated and children change so quickly.

lollipoppi Tue 05-Mar-13 15:42:39

Just got back from docs, he took his stats and he was 82 O2 and 156 hb , he checked it twice and just said "I'm not getting an accurate reading" gave us some pred and sent us on our merry way!

I fricking hope it's not an accurate reading!! He is 60-65 breaths per min, working hard, but the doc said he only has a slight wheeze ?? Arggghhh I hate this hmm

Sirzy Tue 05-Mar-13 16:02:47

If your worried take him to a and e. Ds doesn't always wheeze when he is bad xx

lollipoppi Tue 05-Mar-13 16:14:42

And he has just fell asleep on the sofa .... Very unlike him!
I'm going to give him half an hour to rest his breathing if nothing else and see how he is x

Sirzy Tue 05-Mar-13 19:44:50

how is he doing Lolli?

lollipoppi Tue 05-Mar-13 20:07:02

Not too bad, the sleep seems to have done him good, his breathing is still fast but he ate all his tea which is always a good sign, and he has just gone to bed dosed up.
Will be on night duty tonight though smile

Sirzy Tue 05-Mar-13 20:30:52

hope you get a good nights sleep x

RavenVonChaos Wed 06-Mar-13 07:38:36

Anybody up? Had to give dd bento lim during night as coughing badly. Now coughing more than she was after being in hospital and saying she has a pain in her back. Generally bright and happy no wheezing. Is this just the phlegm loosening up or is she getting worse?

RavenVonChaos Wed 06-Mar-13 07:39:08

Ventolin sorry

Sirzy Wed 06-Mar-13 07:42:57

How much ventolin has she had?

Hope she feels better soon x

lollipoppi Wed 06-Mar-13 07:50:17

How's her breathing? Is she working hard? X

Sirzy Wed 06-Mar-13 07:53:59

how was your night Lolli?

lollipoppi Wed 06-Mar-13 08:01:20

Surprisingly ok!! I did inhalers every 4 hours, I think i just managed to nip it in the bud with the pred just in time.

I honestly thought it would be a night in hosp the way he was going yesterday! Not out of the woods just yet, his breathing is still heavy and working hard but his coughing is much better x

Sirzy Wed 06-Mar-13 08:05:06

Thats good, hopefully he keeps getting better x

RavenVonChaos Thu 07-Mar-13 10:11:50

Pain in back gone, bit cough is worse but looser. Just giving ventolin as needed. Got a docs appt today thank goodness. I am all over the place!

RavenVonChaos Thu 07-Mar-13 23:32:41

Very pleased now as GP gave dd clenil preventer and said to see asthma nurse in two weeks.

Sirzy Fri 08-Mar-13 16:05:42

Hope that helps raven

I've only just dipped in and out of this thread a few times as ds (5yo) wasn't officially dx as asthmatic but apparently he now is. Got called to the asthma clinic after his last hospitalisation. When I enquired why he was there as they keep telling me were reluctant to dx asthma, the nurse checked the hospital notes as they have referred him as having it. It could all change but a weight off that I don't feel like a paranoid mother going to the health centre every time he gets a bad cough.

Can I ask does strong air freshener set asthmatics off? Ds has been choking a bit with a cold atm and we got a taxi from shopping (three minute taxi ride). He had been grand all day and the smell of the car air freshener was really strong, even for me. A minute in the taxi he starts coughing and choking something bad to the point I thought he was going to throw up. He was so wheezy after that for about an hour and more after, his eyes streaming and hanging over the sink as he thought he going to be sick from his chest. Is that normal?? Sorry if this is a really stupid question.

Sirzy Fri 08-Mar-13 22:25:42

Glad you got a diagnosis for him. Ds is triggered by some air fresheners.

Ds has just had a croup attack, just avoided needing to take him to A and E now just hoping it doesn't trigger an asthma attack like it normally does.

Thanks Sirzy. I always feel awkward butting into this thread as you all know each other so well. Bless your ds. Is he on steroids for croup?

Sirzy Sat 09-Mar-13 05:25:35

All are welcome on the thread smile

Not on steroids yet but wouldn't be suprised if he ended on them. Seems to be trying to get on his chest but 5 puffs 4 hourly is controlling things just about

lollipoppi Sat 09-Mar-13 09:22:55

Hope he is ok sirzy, and welcome ballroomblitz x

Sirzy Sat 09-Mar-13 10:20:09

He is a bit wheezy this morning but nothing worrying yet thankfully.

How are things with you Lolli?

lollipoppi Sun 10-Mar-13 21:38:35

That's good news! Hope he has had a good day today, DS is ok, still on inhalers and he has almost completely lost his voice

Happy Mother's Day !!! From what we all go through I think a bunch of thanks is well deserved xxx

Sirzy Wed 13-Mar-13 11:59:13

How is everyone doing?

We ended up in a and e last night with a bad croup attack steroids seemed to help but rather wheezy today having a day snuggled up watching octonauts

lollipoppi Wed 13-Mar-13 23:18:44

Oh no sirzy, hope DS is ok! Mummy cuddles are the best cure smile

DS is ok, he recovered from his last episode quite quickly which is good, normally takes a good 2-3 weeks to get him off ventolin, only took a week and half which I'm taking as a good sign x

Sirzy Thu 14-Mar-13 07:22:33

That's good Lolli x

lollipoppi Thu 14-Mar-13 08:21:12

How is DS today sirzy? X

Sirzy Thu 14-Mar-13 17:39:29

he has been ok thanks Lolli still getting wheezy as he gets to his 4 hours but on the mend. Thanks for asking.

DragonMamma Sun 17-Mar-13 20:13:47

Hello all

Do you mind if I join you?

My DD turned 5 in November and has been asthmatic for as long as I can remember (even before they can supposedly dx it).

It is completely out of control and I'm starting to worry about long term complications of being so badly controlled. She had an x ray last year which showed scarring on her lungs and a weekend away this weekend almost ended in my dm calling an ambulance because she literally cannot breathe.

She started on Montelukast end of last year and it did seem to be helping but she started sleepwalking and having horrendous night terrors so we have had to take her off it. She's also on 200mg of Flixotide a day.

She's usually on preds every 6-8 weeks, she needs a minimum of 8 puffs of Ventolin to even touch a wheeze and I'm regularly being called to collect her from school because they aren't happy to keep her there after 10 puffs.

She's under a the local hospital but there's usually a long wait for appts - our next one is end of June.

Any advice or guidance on how to get this looked in properly to would be appreciated, I'm so fearful because it's escalating and now she's older she's panicking more when it happens. I'll go private if needs be, has anybody gone down this route?

Sirzy Sun 17-Mar-13 20:50:25

Hello Dragon.

Have you managed to find out what causes her attacks? DS has had allergy testing and now takes daily antihistamine which helps him alot. I think half the battle is finding the triggers sometime.

Can you phone to bring the appointment forward?

DragonMamma Mon 18-Mar-13 06:30:55

Hi Sirzy

It's usually exercise, the cold/going in to warm places, and if she has a cold. I don't think there's any allergen connections - none that I can think of anyway?

I can probably bring the appt forward - we only ever see a nurse specialist though and even though my aunt is one (in a different specialty) is it worth pushing for somebody more senior?

egolito Wed 20-Mar-13 11:12:02

Hello Dragon,

My son who is now 26 months has had 5 overnight admissions since August for severe wheezing (one with IV Saubetamol and Hydrocortisone) and know how it feels. He has had many courses of prednisilone, we also tried twice Montekulast and the same thing happened (night terrors, erratic mood, etc) very scarry we finally removed him from the medication.

He has been "controlled" since our very nice and helpfull pediatritian Dr Ahmed Massoud (works in the children's consulting offices at the Portland Hospital) has put him on 400 mg daily of Qvar Beclomethasone since December the 8th until mid April when we will be reducing it hopefully. He has gone though two colds without needing hospitalisation.

The private Drs we have seen are: Dr Ahmed Massoud (pediatritian at the Portland Children's Hospital), Dr Ranjan Suri (respiraroty specialist at the Cromwell Hospital), and finally Dr Ben Hatley (ENT specialist at the Portland as well).

Thought all excellent and very experienced they can be very expensive, perhaps worth trying your insurance if you have one. Bupa have covered us for every single appointment, they are usually quite good when it comes to respiratory issues.

Hope it helps...

lollipoppi Thu 21-Mar-13 10:04:37

Hi dragon,
That sounds quite severe! I know you have a specialist nurse but is she not under a consultant?
I would go down that route with the hospital first, my DS consultant on the NHS, would be the same consultant if we were to go private so we have been quite lucky.

It depends what area you are in but I would highly recommend Dr Mekrow if your anywhere near the north west area
X

Sirzy Thu 21-Mar-13 12:26:38

I would push for consultant care at least until she is under control. DS is under consultant care for now then when he is controlled more it will be monitored by the nurse specialist.

How is everyone doing? Ds is quite chesty today, don't think the cold weather is doing him much good really.

lollipoppi Thu 21-Mar-13 20:59:28

DS is clear at the moment, and with all this snow and cold weather on the way this weekend I plan on staying in with the heating on smile ( for the good of DS health of course! ) x

Sirzy Fri 22-Mar-13 10:31:42

DS had chicken pox now so we are trapped inside, although with this weather that seems a pretty good option anyway!

lollipoppi Fri 22-Mar-13 17:50:25

Oh gosh sirzy! Hope he is ok! X

lisathehuggett Fri 29-Mar-13 19:20:35

Hi guys, just need a bit of adivce really, my 18 month old has wheezy epidsodes regulary and i am looking for a really good baby monitor that will pick up him breathing when he is asleep. Can anyone reccommend one?

Sirzy Fri 29-Mar-13 19:23:59

I used an angel care one with DS until he was just over 2.

lisathehuggett Fri 29-Mar-13 19:28:57

does it pick up his breathing, i just dont want to risk leaving him upstairs in case anything should happen as he can get ill quite quickly.

Sirzy Fri 29-Mar-13 19:39:17

yes and the motion sensor alarmed if stopped breathing or was breathing too fast.

that said, unless you have a very big house you will probably find that you hear it no matter what. You quickly become tuned into the little signs of a problem.

lisathehuggett Fri 29-Mar-13 19:51:14

ah that sounds good. i know my partner keeps telling me this aswell! thanks very much. hope the chicken pox has cleared up!

Sirzy Fri 29-Mar-13 19:51:50

It has now thankfully!

IHideVegInRice Mon 01-Apr-13 00:13:40

Hello all, nice to find a thread and hope you don't mind me joining in!
I have twins, DS and DD, who are both asthmatic, probably as a result of being a little premature. DS' at the moment is fairly mild, needing 2-6 puffs ventolin 4/5 times per week for wheezing/coughing after running around or in the night occasionally, and has 2 puffs Beclometasone 100 twice daily. He has had a few attacks needing a nebuliser but normally after a heavy cold. DD on the other hand is proving to be more difficult to control. She is taking 4 puffs B 100 3 times per day and montelukast (1 tablet each evening) but has been struggling and needing ventolin multilple times per day for the past few days. GP booked on Tuesday - she's breathless walking around and audibly wheezy at rest and although not getting any worse, we have noticed that rushing upstairs etc leaves her almost gasping. Also when she is speaking she'll often take big (?) breaths and sigh at the end of sentences sometimes - not sure if is this asthma or an attitude? We give her ventolin morning & night with the other inhaler, and before any active play. She needs ventolin during and/or after running around for a longer period and will often cough and wheeze for the rest of the day making speaking a challenge as she'll be spluttering a lot. Our GP is pretty good but if anyone has suggestions I;d love to hear them!

IHideVegInRice Mon 01-Apr-13 00:25:55

To expand on the speaking post activity comment: DD will be short of breath for hours after despite giving ample ventolin, and when she goes to speak the tail end of her sentence will become a wheezy gasp or cough. She also presses on her chest a lot or rubs it so I assume it feels tight. Also if she is laughing she'll need to catch her breath afterwards which is not the same as DS who doesn't seem to have this issue. For example, we take them to mini tennis (ie running around after a ball, no skill involved) = we give both 2 puffs ventolin at the start, and it is very rare for DS to need any more. DD will within about 5 mins become breathless and from here we can see how her chest tightens up - she'll begin coughing and then slow down as she begins to wheeze more heavily, we'll give ventolin again and she'll start running again only for her chest to carry on getting worse until she needs more ventolin. She's a determined little thing but it worries me when she is so breathless she can't speak so she can never finish a session as we have to sit out and give ventolin towards the end. Her chest doesnt fully calm down for hours either and I'm sure this isn't right!

Sirzy Mon 01-Apr-13 07:32:21

Hi

How old are they?

I would ask for her to be reffered to a consultant. The brown inhaler did very little for DS but when he was given servent and eventually seritide that has made it much more controlled - not perfect but meaning he is generally ok day to day as long as he has ventolin morning and night.

UseHerName Tue 02-Apr-13 22:07:18

Hi all

this is going to be long. can someone please advise me about my dd aged 7.

basically she's used inhalers since she was about 6 months old, and has always suffered a seasonal cough - usually caused by cold weather, an infection (any respiratory/ent thing goes straight to her chest), or at this time of year (allergies?), she has mild excema, in one patch on her arm. when she's not having an asthma flare up, she has no symptoms. she's never had an asthma 'attack', been admitted, had steriods - although i had chronic asthma as a child, a cough, no asthma attacks and was admitted, on steriods, antihistamines, losec, galseud, had my own nebuliser for home (if that's relevant). my mum had me at the docs all the time, medicated for everything and nothing helped - i don't want to do this to dc, put her into the 'sick' role for essentially nothing.

on the 18/19 march she had a throat infection, this passed but since then she has had an intermittent cough which responded well to the use of her blue and brown inhalers. she seemed well on fri/sat so we went swimming on sat. since then her cough has got worse and worse. she never wheezes, has no shortness of breath, has an excellent appetite, is full of energy and is otherwise healthy. today she just coughed alllll day - can i just stress that i've not just neglected her but that until today she was responding to the inhalers!

I have given her her inhalors (3 100mg of blue and brown) at least six times today and she has just coughed, and coughed and coughed.

her doctor's has been closed today, but i'm wondering do i need to take her to the out of hours service? wait and see her gp tomorrow? or make an appointment to see an asthma nurse? her gp's attitude is very much 'yes, she's got asthma - and?' and i find them very disinterested/unhelpful.

UseHerName Tue 02-Apr-13 22:07:36

rather typically she has now fallen sound asleep

UseHerName Tue 02-Apr-13 22:08:48

oh, and thanks in advance!

Sirzy Wed 03-Apr-13 13:29:27

User, hope she is more settled today.

UseHerName Wed 03-Apr-13 14:04:12

thanks sirzy, she settled around 2 this morning, have an appointment to see the asthma nurse on fri smile

Hi just wanted to join in and get advice etc. ds 16 months has had two overnight hospital stays(on nebulisers), and one week hospital stay due to virus and infection. He is on the blue and brown inhalers which do help to an extent. What I would like is any advice on how to help relieve the symptoms without going back to the docs/hospital.

He is wheezy and fast breathing today, but as he will play around and bit and is eating normally, I know the doctor and hospital will say just to carry on with inhaler. I have only managed to get up to six puffs today as he hates the inhaler and he was getting distressed which was making his breathing worse if that makes sense.

I have kept him off nursery today and we will have a relaxed day, but what else can u do. He has a horrible cough which I think hurts him, poor sod, but doc and hosp said would clear up in time.

Seems to be the cold that brings on his symptoms.

Thanks in advance

Sirzy Fri 05-Apr-13 10:26:02

Hope he is better now Lara.

I am just back from A and E with DS after an asthma attack last night, hopefully the pred keeps it under control now

egolito Fri 05-Apr-13 13:28:11

Hi Sirzy, how is he now? I hope he is better....

Laracroft my DS who is now 26 months was hospitalised 5 times from August to December when we finally managed to "control" him with 400 of the brown inhaler. (2 puffs in the morning 2 at night). He has been on this dose since Dec 8th and will stay till mid April when hopefully the weather will improve.

I know it is scary to give your son high doses of steroids but was told that inhalers are absorved in less quantity than Prednisilone (and Drs are reluctant to give many course of Prednisilone). At the time of his hospitalizations it was so bad that I was given Prednisilone to have with me which is almost unheard of. He was on IV Saubetamol, Hydrocortisone, etc.

Have they prescribed yet Monteculast that to my knowledge acts on the cells and prevents the wheezing attacks? My son tried twice the side effects were quite worrying so we stopped but have heard many succesfull stories to keep asthma at bay with this medicine....

I would say it is a learning curve and it depends on how the child reacts. Mine does not really improve with the blue inhaler, only the brown as a preventer is apparently doing the trick.

Maybe you can ask your Dr if worth this option, how much is your DS on the Beclomethasone?

Sirzy Fri 05-Apr-13 15:22:52

He is starting to perk up now thankfully. Hopefully he sleeps better tonight as I am knackered. Apparently normally they would have kept him in for a few hours observation but because I know what I am doing and live locally we could come home and just monitor him here which is easier!

egolito Fri 05-Apr-13 17:40:27

Hi Sirzy, very glad to hear that... I hope he keeps recovering fast.
You are someone with more experience I think than most Doctors so perhaps you can help me understand what is the difference between needing inhaler and nebulisers? My DS was never given a nebuliser and have been reading that they are quite good to treat symptons and I am wondering wether I should buy one. He was always on the inhalers, pred, etc. I use a humidifier home every night but have always had this doublt and thought you might know the answer.
Thank you and keep well both of you.

Sirzy Fri 05-Apr-13 18:02:27

Not sure but our local hospital has stopped using Nebs for most children's now as apparently 10 puffs of ventolin is the same amount of medicine but generally less traumatic and means children don't need to be kept in. Generally they only use Nebs when a child is on oxygen now

Hi

Thanks for your reply. We r now in hosp for the second night on 0.5l oxygen and 4 hourly salbutamol nebs.

Cheat X-ray looks like bronchialiotis/same infection he was in with a couple of weeks ago just not cleared up.

Dr has mentioned they r going to do a sweat test for CF?!!?? Has anyone else had this. Very worried now- not something that had crossed my mind. Said they do it when someone been in 4 times but obviously I have been googling sad

Sirzy Fri 05-Apr-13 19:49:01

Hope she gets home soon Lara.

egolito Sat 06-Apr-13 10:48:45

I am sorry to hear that Lara. How is she now? And how old is she? I have not hear either but will try to find out and let you know.

Sirzy Sat 06-Apr-13 18:22:33

How is he Lara?

DS managed half an hour in the garden before but in now back to being very wheezy

Hello all. He is much much better but will probably be in until Monday to make sure as its not long since he was in last.in. Oxygen is off for now as well smile

He seems to have got better since anti biotics have kicked in. Breathing rate back to almost normal (not 60-70 per min!) and sats look good.

dizzyhoneybee Sun 07-Apr-13 20:28:39

I've been quiet for a while sorry.
DS has been fine for ages since going on to ceretide but for the last two weeks he has been sneezing but not seeming like he has a cold and is back to coughing at night. He's not needed his blue inhaler much (just twice) but it's bothering me because ceretide was supposed to stop this. It did for a while (4 months) and I got some sleep again at night for the first time in 5 years but now I'm back to sleepless nights as I listen to him coughing.

Sirzy Sun 07-Apr-13 20:36:14

Hoepfully he just has a virus and will be fine when it clears up, the fact he has only needed his inhaler twice is a good sign smile

How is he today lara?

DS finished his pred this morning and tonight he keeps coughing even after 10 puffs of ventolin, he has calmed slightly now but if he starts again I think we could end up back at A and E

dizzyhoneybee Mon 08-Apr-13 06:18:27

Thanks Sirzy.
I hope that your DS is better soon. Asthma is such a foul thing for children to have to put up with.

Sirzy Mon 08-Apr-13 14:25:57

Been back in A and E this morning, was monitored for a few hours and been let home with open access to go back if needed. They are going to get his consultant appointment moved forward to so they can jiggle his meds again

dorapeppageorgenoddy Mon 08-Apr-13 22:36:08

Sorry not to have kept up with this post, had lots of comfort in reading it and support when my ds was admitted for the second time and very poorly - I just wondered if any of you had any advice on the new prescription we have been given for him- its the Montelukast sprinkles -

Since his last admission he has been to A and E twice and had two more antibiotics for chest infection and his night cough/mucus causes him to be sick quite frequently so the consultant wants us to try this for 6 weeks, they said if it does nt work they have something else to try? Any thoughts would be good?

I saw when trying to update someone mention the sweat test for cf, my oldest had this as he had three pneumonia diagnosis by 14 months, it was negative and the process was fine - any questions let me know -

Sirzy Mon 08-Apr-13 22:37:59

Ds has been on montesculat for about 18 months and had no problems with them.

dorapeppageorgenoddy Mon 08-Apr-13 22:49:13

Thank you for replying, the doc didn't really explain them as presumed the consultant had - so a quick google saw quite mixed reviews so thought better go for the wisdom of MN - we get them from the pharmacist tomorrow -

Did you notice a change quite quickly?

dizzyhoneybee Tue 09-Apr-13 06:00:31

DS has the montelukast tablets, they seemed to help for a while but now I'm not sure; I mean if they were working well then presumably he'd not have needed to switch from an orange inhaler to the purple one which has two medications in there - it's a mix of the blue inhaler and either the orange/brown one (I forget which, sorry).

DS doesn't have bad asthma but he started with the brown inhaler, then had to switch to the orange one as it wasn't doing the job, then had to add montelukast and now ceretide as well.

Sirzy Tue 09-Apr-13 07:56:13

I can't remember, don't think it took long though.

dizzyhoneybee Tue 09-Apr-13 08:04:11

Our GP said we'd notice a difference within a week. We didn't, in so much as it made no difference to him coughing at night.

dorapeppageorgenoddy Tue 09-Apr-13 09:34:24

Thank you all for replying, much appreciated -

dorapeppageorgenoddy Tue 09-Apr-13 09:35:38

Sirzy, I hope your ds is better today

Sirzy Tue 09-Apr-13 09:36:20

He has just woken up (after a restless night) and seems much better so far thanks x

Hi Dora.. Yes it was my DS who is getting referred for the sweat test due to recurrent cheat infections. He had pneumonia as well as two other viruses recently ... Once you had the test how long did you wait for result. They are also doing bloods to test his immune system.

He got out yesterday morning and is 1million times better. Been told to stop the brown inhaler and just to use blue when needed. Consultant will call us in in three months to reassess. Hopefully he has just had a bit of bad luck recently!

Sirzy- glad he is ok now

egolito Thu 11-Apr-13 21:17:25

Hi everyone, just wondering if anyone has any tips on how to stay calm when a wheezy child coughs. Mine has started and have already called 111, the out of hours GP, you name it. i dont think that after 5 Overnight hospitalizations, intravenal medication and currently on highest doses of Beclomethasone, I manage to distinguish a normal cough from a not normal.
My hormones must be playing with me as well, 33 weeks pregnant.
Any tips would be appreciated, I have started to hate nights now.

Sirzy Mon 15-Apr-13 21:08:43

how is everyone doing?

We are just back home from the 3rd a and e trip in 10 days. Just missed being admitted but got the nurse coming out tomorrow to check him.

they have upped his dose of seretide in the hope it brings everything back under control

Sirzy Tue 16-Apr-13 12:00:28

Community nurse has just been out, Sats 95 so happy for him to stay at home and monitoring again tomorrow

Hey sirzy. Not so good with the a and e visits but good he is at home. We are doing OK I think. Still got a dreadful cough but much more like his normal self .. Fingers crossed the better weather will help. Sweat test date in for middle may and still awaiting bloody test results.

Consultant told us to stop the brown inhaler, only use blue when needed and will review in 3 months Time

Sirzy Tue 16-Apr-13 18:06:38

Hope his cough clears soon Lara. If it doesn't may be worth speaking to the consultant about starting the brown inhaler again

Sirzy Wed 17-Apr-13 11:25:04

sats 97 today, resps up a bit but getting there slowly!

redlaura Thu 18-Apr-13 21:40:16

Hello, posted this in the sleep section but just saw this thread and thought "hallelujah!!!"

My 19mo son has a predisposition to asthma (can't diagnose it this young) and also big adenoids which means he has sleep apnea. He's on the waiting list for having his adenoids out.

he has a great bedtime routine and goes off to sleep on his own in his own bed but from a baby we brought him with us in the night (he had awful colic, lactose intolerance and just terrible sleeping habits. our philosophy was "take the path of least resistance to sleep", which it still is.

he wakes up once a night still and we bring him into bed with us but he no longer goes to sleep. he plays with my hair for ages as he doses off and its tryjng my patience. If it wasn't for this, I'd have no problem bringing him into bed until a little older and we can reason with him, but he just tugs and tugs at my hair! we also give him a little milk as it sends him off that bit quicker. basically we have taught him that if he wakes he gets milk and a cuddle all night so why wouldnt he?

Before Xmas we tried revolving door sleep training where we would keep going back in to lay him down and say good night. Worked to a degree and he stayed the whole night in his bed, but over winter he kept having wheezing episodes, with one admission into hospital and many trips to A&E. obviously all our hard work was undone as we kept him on our bed for a while to monitor his breathing, which always takes a while to settle and we are happier having him with us so we can keep an eye on him.

So we're back to square one. He goes to bed fine, then wakes up and comes in with us. We are having average nights sleep, not bad not great. I just don't see the point in going through any kind of sleep training for him then to have asthma and we bring him in bed with us. Very confusing for him.

Can anyone who has had experience of living with asthmatic kids share their thoughts? Is it a case of accepting this and living with it, which is near where I am anyway, or sleep training after every episode has passed? Recently he has slept through on three random occasions in the last three weeks off his own bat. Shall we let him figure it out for himself and just accept that he has issues and will be in bed with us?

Thanks for your advice

Laura

IHideVegInRice Sat 20-Apr-13 00:16:29

I posted previously and forgot to follow up...to precis, DD given prednisolone for 5 days and is now like a different child. She was having what the dr believed to be a prolonged episode rather than one of her usual acute attacks and fingers crossed we have regained control of it. She is still at times puffy/wheezy but we can deal with that and she has noticeably more energy. Hurrah! Hope everyone else is doing ok too

Sanjifair Sun 21-Apr-13 07:10:32

Another one who has used montelukast successfully. DS (2.5) has been using it for about 6 months now. We use the brown inhaler (50 ug) as well. Got through the whole winter with no chest infections, and only needed blue inhaler for a couple of weeks when he had a heavy cold. I was worried about trying it because of the side effects but for us it worked well with no discernible side effects.

lollipoppi Mon 22-Apr-13 17:48:46

Hi all,

Sirzy, how is DS now? Hopefully much better?

Redlaura, we always have a bit of sleep regression with DS after a hospital admission or a bad episode,

I'm sure your exhausted too, so short term i would tie your hair back and get some sleep smile
It may just take him a week or so to settle back into a routine

DS is coughing lots today, he has been playing out in the garden, I've just pumped him full of ventolin and see how the night goes!

lollipoppi Mon 22-Apr-13 17:52:42

Sorry ego, wasn't ignoring you... Although I have no advise, I go into full scale panic mode as soon as the coughing starts like now

Sirzy Mon 22-Apr-13 18:12:41

We are ok thanks Lolli, were given an emergency course of pred to take away with us this weekend but thankfully he hasn't needed that still on 5 puffs 4 hourly with the odd 10 puff rescue dose needed. Hoping that the increased seretide will help stabilise him.

Can't help on the sleep front as at 3.5 DS still rarely sleeps through, some of his medication helps with this slightly but when he is ill it's a nightmare.

Sirzy Mon 22-Apr-13 18:13:10

Lolli I hope his cough calms down quickly

lollipoppi Mon 22-Apr-13 21:09:10

That's good news sirzy, hope he makes a good recovery!

Can I ask, does your DS go to nursery / pre-school?
Ds goes to nursery 2 days a week, but can't help but worry that when I send him in on inhalers, do they administer them properly!? They say they do but I can't help but worry !

Sirzy Mon 22-Apr-13 21:11:55

He does, he is in nursery at the moment (when he is well enough to get in) and then is going to pre school in September. The staff at the nursery all have pediatric first aid training and have been trained in how to do the inhalers properly but when I took them in I still demonstrated to make sure they knew (paranoid I know)

Thankfully they are really good with it and will phone me if they have any worries.

lollipoppi Tue 23-Apr-13 08:41:44

DS is due in tomorrow, think I may just ask them to demonstrate how they do it, which I'm sure is very patronising of me to ask them to do it in front of me, but it will just put my mind at rest!

Sirzy Tue 23-Apr-13 19:43:57

I don't think it is patronising. The staff at the hospital regularly check that parents are giving inhalers correctly so it makes sense for parents to check others do it correctly.

DS managed his first full day in nursery for a 3 weeks today. Hopefully he can get back to normal now!

Sirzy Fri 26-Apr-13 16:19:55

Well we managed to start reducing DS inhalers yesterday and he did well until 5pm then he ended up with an asthma attack then and 2 more over night.

Even with the 5 puffs every 4 hours he has just had another attack after having a 20 minute play in the garden.

lollipoppi Fri 26-Apr-13 18:08:35

Oh no sirzy hmm
Does he have to take the ventolin daily then? DS just has it as required sometimes he can go weeks without it but then be on it daily for weeks.

How is he doing now? Hope you manage to avoid a trip to a&e

Do you have open access at your hospital so you can go straight to the wards or do you have to go through a&e? X

Sirzy Fri 26-Apr-13 18:42:49

At the moment he is on 5 puffs 4 times a day, sometimes managing to stretch to 6 hours at a push but normally he has 4 puffs morning 4 puffs night just to keep him stable.

Our local A and E is a peads one anyway and connects straight to the ward and the assessment bay so we go in via A and E and then they send us wherever from there!

He seems to have settled off for now thankfully!

Hi sorry not updated for a while. Ds is a lot lot better but still got a nasty cough. Thankfully he is back to his normal self however and it not affecting him too much for now anyway. Got a follow up app on a couple weeks.

Re nursery administering inhalers... I find they do it better than me!! Ds hates having it at home, but at nursery he is as good as gold!!

And also sirzy sorry your boy is bad again.. Fingers crossed the Warmer weather starts improving everyone's health!!

lollipoppi Sat 27-Apr-13 07:57:51

How was your night sirzy?
DS was up a lot coughing.... at the moment my 13wk old baby is sleeping better than DS!

Sirzy Sat 27-Apr-13 09:28:34

Lara, glad he is doing ok

Lolli. hope you get some sleep soon!

DS is ok this morning and didn't sleep too badly

Sirzy Sat 04-May-13 19:03:18

How is everyone doing?

gussiegrips Sat 04-May-13 19:07:23

Found you!

I KNEW there was a thread for wheezy breeks!

Quick summary - middley Grip has "difficult and severe asthma" He's now 7.5years, and his chronic management is excellent. Acute stuff, not good - a few HDU admissions and, since September, has needed between 40-5mg pred. Every time we get him off steroids, he lands up on the ward. 9 admissions in the last year, 18 other A+E attendances, it's really not very good.

No sensitising agents in home environment have been isolated - he's got wooden floors, no curtains, minimal clutter, toys are frozen/washed. He complies with his meds and school do too.

Ah, we do have budgies. But, he's not allergic to feathers and I'm scrupulous about wet-dusting. However, I've ordred an aviary, they can go outside just incase.

Now, the steroids are a problem, start of some gastric probs, skin probs and for investigations for adrenal/bone health coming up.

He started on LANSOPRAZOLE 30mg, "fast tab" yesterday - had nausea yesterday, puking today.

Anyone else had a kid on a proton pump thingie? Are there other options, or should we stick with it and see whether side effects settle?

Sheesh. We could do with a break from the stoopid wheeze, it's been a looooooong winter.

TIA x

lollipoppi Sat 04-May-13 19:08:24

Hey sirzy,
All good at the moment, just got DS off inhalers. He has got an ear infection at the moment but other than that he is ok!)

Were going to centre parcs on Monday so fingers crossed he will be well next week, taking a stack of inhalers just incase!

How's DS ? X

lollipoppi Sat 04-May-13 19:19:21

Sorry gussie cross posts,
Gosh sounds like you've had a rough time!

I don't have any experience of the meds your DS is on, my DS is on seritide, ventolin and montelukast.

Is his asthma more viral induced rather than allergy induced? Whenever DS has an attack he always has some other underlying issue, like a ear/throat infection ect.

I would carry on with the new meds he has been given over the weekend and if he is still showing side effects after Monday maybe give his consultant a call for advise to see if its normal.

What sort of problems is he having from having the pred? It's always a massive worry of mine with the amount of pred DS has had, last year he had 14 courses of it shock his height and weight don't seem to have been affected.

Sirzy Sat 04-May-13 19:30:24

That sounds hard work Gussi, DS asthma is hard to control but thankfully nowhere near that level. I hope the new tablet helps him.

DS is plodding along ok at the moment but still needing 20 puffs of ventolin a day to keep him stable so going to try to get his appointment with the consultant moved forward to see if their is anything else they can do.

gussiegrips Sat 04-May-13 19:33:04

yep, it's been grim.

To be honest, I hadn't realised how bad it was until school started screwing me over with idiot plan reviewing their classroom policy for next year and wanted to move my youngest boy into a P2/P1 composite. Only the shape of the comp would be him, three wee girls and a boy with special needs in with 20 brand new p1s.

Apart from the educational mess challenges that would bring - moving my youngest kid away from his social circle screws me over would be difficult. We don't have local family support - so I rely on the network of friends I've built up to sweep up my other two when wheezy breeks has a crisis.

The thought of not having that, well, I've felt traumatised, frankly. Having to write an appeal and reflect on all this stuff has been hard. I don't want to think about it, I just want to be grateful that I still have 3 kids and move on with the usual chaos of life.

To be honest, looking at this list of admissions and drama has really, really upset me. Hey ho, it'll all work out, but, it's wearing.

So, he's viral induced, got a few allergies, but nothing too dramatic. On seretide 2puffs/day, salbutamol 4 puffs a day, monteleukast and pred now dropped to 5mg for antoher 10 days - then off for 2 weeks and see what bits of him have been knackered.

His growth and weight are fine. He's pale, his skin breaks down, he is high as a kite, he has headaches and now, a lot of gastric symptoms.

I'm going to not give him the lansop tomorrow - he's just been puking again. Poor lamb puts up with so much, he's utterly compliant.

So, in short, the steroids havnt' been too bad. Let's face it, there's been no choice. His wheeze wasn't compatible with life, so the risks were worth it. Not now, though, needs off them before the rest of his systems are stuffed.

Wearing.
I

Sirzy Sat 04-May-13 19:36:29

What strength seretide is he on? Can they not increase that?

gussiegrips Sat 04-May-13 20:07:06

Not really, Sirzy - he's on 125mg, which the (lovely) asthma nurse said was an adult dose.

To be honest, there hasn't been any choice about the pred. He goes from beign slightly under the weather to being blue in 3 hours if he gets a virus. But, it's not every time. He's entirely unpredictable.

I'm happy about the pred, as I said, there wasn't an alternative. He goes onto 40mg for 4 days, then reducing over a month. But, he always gets a virus before reaching the end of the month, prob because his immunity's gubbed because of the pred.

The worry I have is the proton pump inhibitor - he needs it as they think there's a risk of ulcer, he's had a Lot Of Reflux. But, he's puking, proper projectile puking.

Try for another day (this is only day 2)?

lollipoppi Sat 04-May-13 20:42:40

Oh gussie, sounds awful and I really hope the manage to get it more under control for him soon poor little man hmm

Ds is only 2.6 so I don't really understand all the P1/P2 school stuff?

Like you said though, there isn't really another option for the pred, and if he need it, well then he needs it! I really hope the investigations go well for him and its good results. I'm too scared to look at the side affects of pred, and I also think there has been no point as there is no other option

Could you try and speak to his consultant over the weekend? Or if not I'm sure you could phone the childrens ward tonight that he is normally admitted to and ask for a doctors advise, I've done this in the past and they have had a pead call me, might be a good option then they can decide?

gussiegrips Sun 05-May-13 13:35:02

I've never really thought of his asthma as awful - we only live 20 mins from the hospital, so, I've only every thought "wouldn't it be awful if we lived on an island or somewhere you have to pay for healthcare?"

But, yep, actually, it is awful.

I've lived with fear, and didn't even know it. Seeing your kid struggle for breath, whilst being calm and jollying him along - it's hard work.

Anyway, the lovely asthma nurse put m in touch with a patients and families advocacy service. They'll help me write the appeal for the silly composite class so that smallest grip isnt' part of it. And,they have offered me some counselling.

I am ok in myself, but, she said something interesting. That, families with illnesses which are unpredictable in nature can have more trauma than something unspeakably awful like cancer. Because, although cancer's clearly horrific, you know pretty much what is going to happen and when, so, you can sort of make sort of plans. Whereas, our kid can be fine one day, and in HDU the next - so, there's a constant, low grade anxiety. Interesting stuff.

Anyhoo, I took your advice and called the ward. Off med, for review. He's still nauseous, but not puking. Of course, it could be the gastric problem causing the puking and not the new drug. Sigh.

Thanks for your kindness, I've never used this forum, but I'll keep an eye on it from now on!
x

Sirzy Sun 05-May-13 18:13:47

I think when your child has chronic health problems you find yourself always putting on a brave face, even when you are constantly on standby which realistically can't be a healthy way to live.

The first sign of a cold and I start to worry, and its hard as he gets older as you have to hide that from him so he doesn't feel like its something to be scared off

gussiegrips Sun 05-May-13 19:20:32

Yep.

And, also, because asthma is SO common - people don't really understand that their wee one's brown inhaler once a day isn't really the same as your kid's recurrent admissions and refusal to respond to medication at all!

Folk think they understand, so, actually, there's not much support as they underestimate the seriousness.

And, also, what help is it anyway? He's fine day to day. It's the sudden drama which is where I need help, and that's a night-time thing.

As an aside - someone told me that severe asthma is classed as a Special Need, and that you can get carers' allowance if your child is friable and needs lots of care.

Anyone use it?

I'm a bit mixed - folk who need benefits need benefits. We manage, but, if it wasn't for the asthma I'd have a job. With the job I'd get football club, and music lessons - bagpipes is his instrument of choice (ugh) But, it's all positive airways pressure, so, actually, it could be great! And, we live in Edinburgh. any teenage boy in a kilt who can play the bagpipes makes a fortune busking in the Royal Mile during the Fringe...

I do some work for myself - but, it's a start up and not making any money. It's really only to keep my professional registration up. I think it'll work one day - just not yet.

Anyhoo, I can't take on a contract until he's better, so there's no cash for extras. But, we are, by no means, struggling. My kids THINK they are because they are denied skylanders, mind....

Badvoc Wed 08-May-13 21:31:19

Hello all.
Sorry I haven't been on for ages!
Can I ask some advice?
Ds2 (4) has now been dx as asthmatic - this is after constant coughs/chest and breathing problems since last July.
Ds1 and dh are asthmatic too so shouldn't have been too much of a shock but I am struggling with it for some reason. I feel like I didn't do enough to get him dx.
He is only on a preventer twice a day and ventolin as needed but last month we had to take him to a and e with croup and has had oral steroid for that which did help a bit.
He was also swabbed for WC which came back clear, thank god.
Within one day of starting the preventer the coughing stopped. Which is great.
Except that he has now had a cold for 2 weeks and its not getting any better.
He sounds very ruttling and wheezy and is now asleep. Not eating as much as usual.
Do i take him to the gp? Will he just tell me that it's a virus and he will cough for 6-8 weeks (this is what they usually say)
He has had a slight temp today too, nothing major.
And to add to all this ds1 - he hasn't needed to use his inhalers for nearly 18 months - is also now back on his preventer and it isn't helping sad
I just feel like its one step forwards and two back.
Sorry for whingy post, but just dont trust my own instincts anymore sad

Badvoc Wed 08-May-13 21:32:15

Gussie...I know someone with brittle asthma that gets DLA.
Is that what you mean?

Badvoc Wed 08-May-13 21:33:20

...and is it me, or has this winter been horrific?
Never known it so bad.
My dc have been constantly ill since October.

Sirzy Wed 08-May-13 21:34:24

If your worried then take him to the GP

How long has your DS1 been back on the inahlers? If it is the brown one that needs a few weeks to be properly effective

TheSecondComing Wed 08-May-13 21:37:13

Message withdrawn at poster's request.

Badvoc Wed 08-May-13 21:37:32

I think I will, thanks.
Dh is not helpful in this regard.
When he got rushed in last July he wouldn't even phone the ambulance for me because "he was too upset"
hmm
Ds1 has been put on flixotide (sp?) and has been in it for 5 weeks now. Before that he was in beclomethosone (sp?)
I am so tired.
All I seem to do is sleep and stay up with ill children! sad

Badvoc Wed 08-May-13 21:38:23

I guess that's what I am worried about...that its a chest infection now.
Bugger.
He won't be happy about missing pre shcool!

Sirzy Wed 08-May-13 21:42:56

Glad things are calm Secondcoming. I am still waiting to get that with DS although things are much better than they were.

Hope you get them sorted soon Bad.

Badvoc Wed 08-May-13 21:45:52

Thank you.
If we can avoid a and e I will be pleased!
Seem to have spent a lot of time there lately...

Sirzy Wed 08-May-13 21:56:16

I know that feeling Bad, DS is only 3 but knows the name of all the nurses already!

Badvoc Wed 08-May-13 22:03:06

Oh, bless him!
You know it's bad when you go to a and e and then are back the next day with the same staff on shift change!
Dont think I will get much sleep tonight...

TheSecondComing Wed 08-May-13 22:46:31

Message withdrawn at poster's request.

TheSecondComing Wed 08-May-13 22:48:34

Message withdrawn at poster's request.

Sirzy Wed 08-May-13 22:52:21

Ye I agree on knowing the staff, it also stops going in being a worry.

DS has just had his dose of seretide increased which has helped a lot although still far from right. That can't go any higher though so no idea what the next step will be if that doesn't control it enough!

Badvoc Thu 09-May-13 07:10:09

What a lovely name! smile
Ds2 is having a strop about me wanting to take him to gp. I wonder if that means he is ok? He did have 3 x very loose stools yesterday too (sorry for tmi)
Gah.
He was making very odd noises in the night...his chest was squeaky iyswim?
Might get him in this afternoon.
I should be grateful really...ds1 is no longer on a profilactic AB during winter and hasn't needed pred for years.
I do wonder if ds2 would benefit from a course though sad
Ds2s sats went down to 87 last July...and I thought that was a good level! I know nothing!

Sirzy Thu 09-May-13 07:22:47

If your worried then get him checked.

The lowest Sats DS has had was 69 but that was just before he was put onto CPAP as a baby!

Badvoc Thu 09-May-13 07:26:46

I will, thank you for the advice.
My dn had to go in cpap as a baby...very scary sad

Sirzy Thu 09-May-13 17:25:33

how are they doing now Badvoc?

Badvoc Thu 09-May-13 17:27:28

My dn is fine.
Absolutely fine.
He has congenital lung disease but you would never know.
My 2 sons both get more problems with their chest/asthma than he does!

Sirzy Thu 09-May-13 17:33:16

Glad he is ok.

Did you take your DS to the doctors?

Badvoc Thu 09-May-13 17:39:00

I didn't in the end.
no temp, running around with his friend after pre school.
He is pretty tired though.
Will bath him and put him to bed early tonight and see how he is tomorrow.
It's just been bloody relentless this winter. He has had a cold/cough since November!
He has had 2 chest x rays. Both fine.
Nebulisers, oral steriods and inhalers.
Just want the snot to go away sad

Sirzy Thu 09-May-13 17:40:39

Have you tried him with some antihistamine?

Badvoc Thu 09-May-13 17:41:55

Yes we did before Xmas when he was really ill. We also got a humidifier. I do think they helped a bit.
He was coughing til he vomited most nights.
I might try that tonight.
Thank you x

Sirzy Thu 09-May-13 17:45:21

DS takes antihistamine twice a day and that does help dry things up for him.

Badvoc Thu 09-May-13 18:00:56

Right.
Off to med cupboard to get the AH out!
flowers

Sirzy Fri 10-May-13 09:33:54

I hate this changable weather, every time the weather changes DS starts wheezing again. Back to sounding like a train this morning!

Badvoc Fri 10-May-13 10:15:17

I think it's the weather too sirzy.
Tuesday it was 21 degrees here and today it's foggy, drizzly and 8 degrees.
Ugh.
Don't know wether it was the AH but ds2 had a better night.
His chest wasnt making those strangled bagpipe type noises it was making the night before!

lollipoppi Fri 10-May-13 15:46:17

Hi all,
Back from a lovely break at centre parcs ...... But DS is paying the price unfortunately hmm
He has a terrible cough ( which inhalers are relieving slightly)

I feel really guilty, he had an amazing time, I've never seen him having so much fun playing in the woods, bike rides and swimming, but now he is suffering hmmhmm
Just praying that his inhalers keep him well

Sirzy Fri 10-May-13 16:03:02

Poor thing, hope he feels better soon.

DS hasn't been well enough to go swimming for ages. I always feel guilty that we rarely get to go but if he goes when even slightly under the weather then he pays the price for ages. I am dreading him starting pre school in september where they do PE as it is so obvious exercice makes him worse.

lollipoppi Fri 10-May-13 16:36:06

The cough seems to have calmed down this afternoon but its the night time I'm dreading!

Did you say up thread that DS has had his seritide increased? What have they put it upto?

Dreading pre-school DS starts in sept too !

Sirzy Fri 10-May-13 16:37:42

He is on 2 puffs twice a day now, they started him on 1 puff twice a day but that did nothing.

lollipoppi Fri 10-May-13 16:43:34

DS is on the same, not sure how old they can be before it can be increased again. I think the seritide has made a massive improvement though x

Sirzy Fri 10-May-13 16:46:03

As it isn't licenced for under 4s I guess its a while before it should go up!

Sirzy Fri 10-May-13 16:48:51

Just found the information leaflet online and apparently that is the highest dose for under 12s.

lollipoppi Fri 10-May-13 16:51:43

Jeez!!
Poor boys being in such a high dose medicine at their age, makes me sad, but it's necessary

Badvoc Fri 10-May-13 20:34:34

Well, ds2 has come home from pils and been sick sad
Sigh.
Don't think its asthma related as he wasnt coughing prior.

lollipoppi Fri 10-May-13 21:58:28

If they're anything like my pils then its because they have stuffed him with sugary drinks and chocolate biscuits smile

Badvoc Sat 11-May-13 12:56:27

smile
Could be lollipop...could be.
He seems fine this morning, fingers crossed d

Hello all hope we r doing ok.

Ds been doing better but seems to have got worse in the last 3 or so days. Still running around like a loon and eating ok but very wheezy and coughy. In two minds about what to do ... Do I ride it out or go to OOH.
He is sleeping ok ish thankfully

Badvoc Tue 14-May-13 08:06:36

Hi.
Am taking ds2 back to docs this morning - other reason but am going to ask them to listen to his chest too.
Still coughing since his cold

Sirzy Tue 14-May-13 18:14:53

How are they both doing tonight?

DS has just had a big attack and is now sleeping so hoping it was a one off!

Badvoc Tue 14-May-13 18:18:17

Oh no sad
Ds2 is ok apart from a haematoma in his cheek from falling and bashing it 2 weeks ago sad

Sirzy Tue 14-May-13 18:24:27

I saw your other thread last night, do they think it will go on its own?

Badvoc Tue 14-May-13 18:28:51

Well, that's what he said, but he has rang me this afternoon and said he wants to see him again next week.
He has been speaking to the. On Call max fax at our local hospital and apparently sometimes you can get an infection in the haematoma sad
Just feel terrible sad

We r back in hospital. Viral cough/bronchillotus. No oxygen yet and hopefully getting home 2night but don't know x

Sirzy Tue 14-May-13 20:01:49

hope he is home soon Lara

Badvoc Tue 14-May-13 21:00:39

Sorry to hear that.
Hope he is home soon

Hey

We got home around ten with some antib's.
Chest x ray was clear, no wheeze, just a horrible cough?!!

No insight from the doctors at all.

Badvoc Wed 15-May-13 07:56:28

Pounds very familiar Lara sad

Sirzy Wed 15-May-13 08:04:28

Hope he feels better soon.

Have they given him a preventer to use all the time yet? Asthma doesn't always have a wheeze but some medics seem to forget that'

Hi

We did have the brown preventative inhaler then last time he was in hospital with a virus they told us to stop it and would review again in August.

We were in hosp 9 hours yesterday and he wasn't given a reliever inhaler and we were not told to give him when home .. So confusing
Arrggghhh.

They did say Though they felt their could be enough evidence to refer for allergy testing.

Sirzy Wed 15-May-13 09:00:21

Can you bring the appointment in august forward?

Yes I am going to try! He has his CF test appointment tomorrow. Fingers crossed it is not that. They do think it's unlikely as he has no other signs, and they just want to rule out, but I am so worried about it. sad

How is your boy doing?

gussiegrips Wed 15-May-13 13:02:48

Hi guys

Quick update:

council have backtracked - so, no kids will be moved next year. Turns out there's a bit of a loophole in the legislation, so questions to be raised in parliament to establish what the policies actually are so my footstamping was justified

Anyone else got a kid with brittle/severe and difficult asthma?

Wheezy breeks is now off his steroids - since September he's had fluctuating courses of 40mg pred on reducing doses, but, only actually been off for a couple of weeks before having another crisis and going back on them.

His peak flow's usually about 150-170 (he's 7) and I know that once it's 120 we have another crisis within a week.

It's now 100. Been dropping for the last 2 weeks as the steroids are weaned again

He's ok in himself, apart from norovirus, but, i'm worried that another admission would mean moving onto whatever the next stage of treatment is.

Anyone familiar with something that's a jag every month or so? Something which makes the inflammatory markers clump together? Wasn't really processing what they were telling me, and I'm hoping it's not needed, but, really, it probably is.

Hey ho.

Hope you all are getting some rest. It's a bugger, this wheeze business.

Just an update. Antibiotics seem to have worked wonders. Still got an occasional cough and a bit 'breathy'but it's not bothering him at all so far today. Slept 12 hours solid last night as well.

CF test today.

Hope everyone is ok!

Results back- no cystic fibrosis! Yay smile

Badvoc Thu 16-May-13 18:20:24

That's wonderful smile

lollipoppi Thu 16-May-13 21:18:14

Lara that's fantastic news I'm sure your so relieved!!

Badvoc hope the next appointment goes well and he doesn't have an infection!

Sirzy how's your DS after his attack, did he manage to get a good nights sleep?

DS is ok asthma wise at the moment, just weaned him off his blue again. And seems ok tonight. He has had another allergic reaction to something and come out in a terrible itchy rash, but it seems to be clearing up now after piriton and lots of cream!

Sirzy Thu 16-May-13 21:26:45

Gussie - DS has severe asthma but not as bad as your sons thankfully hope you manage to find a solution which helps him though.

Lara - glad the test went well

DS is ok, I have realised that weaning him off his ventolin is what is causing his trouble so I leaving it at 5 puffs 3 times a day for now and will try again in a week or so to see if he is ready for it to be reduced.

Thank you- yes very relieved. Although it does mean back to the drawing board a bit. Allergy testing next!

If its any consolation to anyone and maybe give a bit of light at the end of the tunnel: when I was younger I had severe asthma, and was on all sorts of meds and in and out doctors/a&e. I grew out of it by around age 12 and I am a very healthy adult with no breathing problems/meds. I only get a little bit tight Chested if I am out running and it's freezing

Fingers crossed eh!

lollipoppi Thu 16-May-13 22:03:40

Sirzy I often wonder if if should just keep him on puffs daily, there is no harm in the ventolin so maybe that's the way forward? May give it a go!

DP also had severe asthma as a child and he has also grown out of it now, only gets a bad chest every now and again so there is hope smile

Hello. Just wanted to see how everyone's weekend has been

lollipoppi Sun 19-May-13 22:24:26

Hi Lara
All good over here smile not often I get to say that!!
How's your DS?

That is good news lolli!

Yes he is doing fine, antibiotics really worked thankfully, not had to use inhaler all week.

Now all we all need is a long hot dry summer!!

lollipoppi Mon 20-May-13 09:59:48

That's great Lara!

Mnnn wishful thinking maybe, but I will keep my fingers crossed!! smile

mum1812 Mon 20-May-13 18:59:08

Hi I'm new to this site. My dd2 (6) has asthma and has just been prescribed montelukast sodium paediatric the nurse warned me of side affects, has any of ur dc had this ? Was there side effects? Did it help asthma ? Going back in 2 weeks as finding it difficult to control her asthma . Thanks in advance x

Sirzy Mon 20-May-13 19:15:28

Glad all is going well Lolli and Lara hope they keep it up.

Mum 1982 - DS has been on montelukast for about 18 months and has had no problems with it. What other medication is he on?

DS is struggling again. If we don't end up in A and E tonight then I am going to phone his consultant in the morning to get his appointment moved forward.

mum1812 Mon 20-May-13 19:20:14

Hi sirzy she is on clenil modulite 200 x 4 times a day and ventolin. She is not sleeping very well as always up coughing sad Hope your DS does not end up in hospital tonight x

Sirzy Mon 20-May-13 19:34:36

Hopefully the montelukast helps her then. If not ask the nurse about serevent or seretide

Sirzy hope he is ok. X

lollipoppi Tue 21-May-13 07:43:50

Sirzy how was your night? Did you manage to avoid a&e ?

Mum1892 DS has been on montelukast for about a year now, no side affects at all x

Sirzy Tue 21-May-13 18:37:20

He is plodding along, not well but nothing we can't cope with at home at the moment.

Hi sirzy

How is your DS doing?

lollipoppi Wed 29-May-13 08:16:50

All seems quiet on this thread I hope that's a good sign wink

DS is still doing ok at the moment!

Hi lolli! All good and quiet at my end. Glad all is well with you! Fingers crossed it lasts

Sirzy Sat 01-Jun-13 20:53:34

All has been calm here for the last week (touch wood)

hope everyone else is ok

lollipoppi Wed 12-Jun-13 23:22:07

Back in hospital :-(
We got blue lighted here yesterday afternoon, had a terrible night last night, oxygen levels were sitting at 87 even with the mask on his face all night, until about 4am when they picked up to 91/92
Much better day today, stats are ok and off the nebs, hoping to be discharged tomorrow x

Sirzy Sat 15-Jun-13 21:04:25

hope he is better now Lolli.

The increased seretide seems to be working well for DS, down to just 9 puffs of ventolin most days now.

lollipoppi Sun 16-Jun-13 21:08:15

Thanks sirzy, he is much better now, managing well on his inhalers

The asthma nurse mentioned about increasing his seretide upto the 125 dose, I'm not sure I'm going to agree to it just yet as this is his first hospital admission in 6 months and its quite a strong drug forva 2yo isn't it!?

Glad your DS is improving that's great news!

Sirzy Sun 16-Jun-13 21:46:07

Glad he is on the mend.

That does sound quite a lot. I know seretide isn't licenced for under 4s, DS is on 2 puffs twice a day of the seretide 50 and according to the consultant thats the highest they can go with a young child.

I spoke to soon about DS he had a croup attack last night and is wheezy again today so back up to the 5 puffs every 4 hours!

lollipoppi Mon 17-Jun-13 09:44:50

Yes that's what I thought too, his consultants appt has been brought forward so il speak with her about it.

Aw no! Hope he recovers quickly, the ever changing weather doesn't help does it!

Hi Lolli and sirzy. Sorry to hear the little ones haven't been too good. Any Improvement today?

We have been ok.. A couple of wheezy attacks... Not used the inhalers but have tried anti histamine which has helped. Seems to be a link with strawberries?!? Not been able to get follow up appointment moved forward.

Fingers crossed for a good night for everyone today

Spoke a bit too soon...really bad coughing tonight. hmm

We have just literally got back from holiday today, so perhaps a bit of aeroplane air/weather change ?!?

Sirzy Tue 18-Jun-13 21:21:44

Probably linked to that ye, hope he feels better soon and you had a nice holiday.

DS is quite settled so far tonight

Sirzy Wed 26-Jun-13 16:37:13

Quick bump. I hope everyone is well at the moment

Rachelbloy Wed 26-Jun-13 21:41:45

Thank you for this link, my DD has been getting progressively worse over the last clue of weeks, she constantly wheezes, the moment I lay her down at night she coughs, last nights she vomited clear phlegm (sorry, gross I know) I took her to the docs this morning and was made to feel like a time waster and I admitted she coughs that much that I can no longer tell the difference between poorly and asthmatic cough, feel very frustrated and helpless

Sirzy Wed 26-Jun-13 21:44:25

What medication is she currently on?

Rachelbloy Wed 26-Jun-13 23:04:25

She has ventolin and clenil (50mg clenil) she's had quite a few doses of steroids over the last year when she's had chest infections, I give her 2 puffs of ventolin morning noon and night and 2 puffs clenil morning and night as recommended by doc and if I feel she needs her ventolin in between

Sirzy Thu 27-Jun-13 09:58:58

Hopefully when you see the consultant they can help. They may add montelukast or up the clenil. Hope its under control soon

lollipoppi Sun 21-Jul-13 20:05:06

How's everyone doing??

DS is in the verge again, started Friday and got him a last min appt with GP for some pred, he has has his last dose today but not showing much improvement.
Coping ok on inhalers but needing a good 6/8 puffs 4 hourly
Will be on night watch tonight hmm

Sirzy Sun 21-Jul-13 20:54:40

Hope he improves soon Lolli.

DS is struggling a bit with the heat, back at his consultant this week so hoping we manage to get an answer to bring him under control.

lollipoppi Mon 22-Jul-13 10:27:30

He is a little better this morning, his breathing seems to be calmer.

Good luck at the consultants, I'm still waiting for his appt to come through as it was brought forward since his last admission

Hi all

Sorry not updated for a while. Got DS consultant appointment on 1st August.

Not used the inhalers in a good fee months... Seem to have made a huge ddifference cutting out strawberries and honey... Allergies? Who knows. Anti histamine seems to help, but of course could be coincidence

Not read through all thread yet, but hope the hot humid weather isn't causing too many problems .

Sirzy Thu 25-Jul-13 10:27:07

That's good Lara!

DS has had his antihistamine dose doubled so now he is on the maximum doses he can have of everything. Got to go back in 3 months

lollipoppi Mon 29-Jul-13 14:30:42

Hi all

Just got back from the consultants, all went well and she has agreed to drop him off the montelukast and review again in 3 months, if all goes well we can maybe reduce the dose of seretide too!

How is everybody?

Sirzy Mon 29-Jul-13 14:36:49

That's fantastic Lolli! Nice to see some positive news fingers crossed you can carry on reducing things!

lollipoppi Tue 30-Jul-13 15:47:32

Need advise!
Just Bumped into a lady I know on the park, her daughter has asthma and goes to ds1s nursery.
I was telling her about DS appt yday and mentioned that hopefully in another 3 months we can drop the seretide down from 50mg to 25mg
She was shocked and said the her DD is on 250mg, she even double checked it when she got home and text me to confirm
To my knowledge this is WAY beyond the maximum dose for her age (she is almost 2 shock)
I even found this statement on a website : The maximum licensed dose of fluticasone propionate delivered by Seretide inhaler in children is 100 microgram twice daily.

Should I text her back and let her know? I really don't want to worry her but I know her next appt it not until the end of October! Her current consultant is not a specialist in the field he is more gastro and her next appt is with an asthma consultant (same one as DS) WWYD?

Sirzy Tue 30-Jul-13 16:14:11

Is it defiently seretide she is on and not the brown inhaler?

Sirzy Tue 30-Jul-13 16:15:13

DS was sent home from nursery today having as asthma attack. They seem to have caught it quickly but he is still very lethargic and struggling a bit. Hoping he perks up quickly!

lollipoppi Tue 30-Jul-13 16:33:07

No 100% seretide purple inhaler!

Aw no poor chap, hope he picks up soon!

Sirzy Tue 30-Jul-13 16:40:25

I would say something to her then, that size dose can't be good for her. DS is on 100mg a day and they have said that can't go any higher, they aren't happy having him on that much but there is no choice.

lollipoppi Tue 30-Jul-13 17:12:50

I've got in touch, she has left a msg for the GP and resp nurse to call her back

Sirzy Tue 30-Jul-13 17:13:43

Good, hopefully they can sort it!

lollipoppi Wed 31-Jul-13 08:06:47

How was DS through the night Sirzy?

Sirzy Wed 31-Jul-13 08:10:45

Coughing quite a bit but not too bad thanks

lollipoppi Wed 31-Jul-13 09:21:21

Fingers crossed he is in the mend

Sirzy Mon 05-Aug-13 14:54:39

How is everyone doing?

lollipoppi Mon 05-Aug-13 19:03:14

All good here! DS is coming down with a cold but coping well so far. How is your DS now after last week?

Hey. Doing ok here. After my last post DS had a bit of a bad night and we had to use blue inhaler for first time in ages but has since been fine

Consultant appointment went well, they want to review him closer to 2 and possibly test for allergies (though he didn't seem convinced!). Said he still had a bit of crackling in his right lung, possibly had been In touch with a virus recently, but he was fine.
Advised not to use brown inhalers at all, and blue only if needed.

Seems like he had some really nasty viruses (pneumonia was one, and some other one that's apparently viscous) and its just taken a while for his lungs to repair. They want to see how he gets on in the winter (virus season)
Cystic fibrosis test came back clear! Phew.

So really I am not any clearer at all to be honest!!

Sirzy Tue 06-Aug-13 21:52:16

Glad all is ok.

DS has sort of recovered from last week, coped with just increased ventolin which is good.

Thats good Lara, some children grow out of asthma when they are young so hopefully your DS is over the worst of it, or it will just be seasonal with him getting relief over summer. Fingers crossed for a healthy winter.

lollipoppi Tue 20-Aug-13 07:49:25

How's everyone doing?

DS is ok! He has been off the montelukast for a few weeks now and sleeping much better! happy dance

Sirzy Tue 20-Aug-13 07:55:37

thats fantastic Lolli smile

The antihistamine is helping DS sleep although we have had to lower the dose slightly as it was causing him to wet himself over night as he was in such a deep sleep.

He is struggling a bit at the moment again, thought he was going to end up in A and E yesterday but touch wood we avoided that. Means he is going to miss his last 2 days at his nursery (should have been today and tomorrow) before starting pre-school in a few weeks though.

lollipoppi Tue 20-Aug-13 09:13:43

Glad you managed to avoid a&e! Shame he will miss his last few days at nursery hmm

Sirzy Tue 20-Aug-13 09:15:02

He missed his first few days there for the same reason so he has gone full Cycle!

Fingers crossed at pre-school he can avoid too much time off!

Sirzy Thu 22-Aug-13 21:50:20

Well he seems to have bounced back again smile Still needing way to much ventolin but over the worst of it!

lollipoppi Fri 23-Aug-13 07:43:09

Great news!
I don't know about you, but it seems the older they're getting the better they are coping with it!