Mumsnetters aren't necessarily qualified to help if your child is unwell. If you have any serious medical concerns, we would urge you to consult your GP.

Anyone's DC on montelukast?

(37 Posts)
HotheadPaisan Sun 15-Jul-12 15:50:04

DS2 (nearly 3) has asthma and allergies and this has been suggested. Just seeing what others think whilst we look into it.

Sirzy Sun 15-Jul-12 16:11:34

Ds is 2.8 and has been on it since February, it made a massive difference to him for about 3 months then he got pneumonia and since then his asthma has been less controlled but still better than it was when on just the clenil

HotheadPaisan Sun 15-Jul-12 16:19:24

Thanks, we're mulling.

Sirzy Sun 15-Jul-12 16:29:51

What does he currently take?

HotheadPaisan Sun 15-Jul-12 16:40:01

He's had three attacks, the last one ended in him in hospital. At the moment we are just giving Ventolin at the first sign of a cold or other triggers. He also has several allergies (egg especially) so I think they thought they'd skip beclametasone but the GP and I aren't so sure.

mumtoaandj Sun 15-Jul-12 21:24:56

My son had this but became quite naughty- different from his normal behaviour. It also seemed to make no difference to his asthma he still had an attack so i stopped it. Am seeing specialist this week so i imagine i'll be told off!

Tiggles Mon 16-Jul-12 15:04:38

Both my 2 younger sons have taken montelukast. For both of them it was brilliant. We did have issues with DS3 on it as it gave him diarhoea, but as it stopped him being admitted to hospital every 4 weeks with breathing difficulties we could manage that! They have both taken it in combination with a brown inhaler, but the brown inhaler wasn't enough of a preventer on its own.
DS3 has since grown out of his viral wheeze, but DS2 is still taking it (along with a concoction of other things). I can't rate it high enough!!

HotheadPaisan Tue 01-Jan-13 17:00:44

Here I am googling this again and here's my thread! After 3 asthma attacks in the last six weeks, despite giving DS2 his beclametasone twice a day every day for months, we are considering montelukast again.

Would be grateful for any more experiences, the potential side effects do sound bad but there is no way of knowing if he would be affected without trying it. The specialist told me it doesn't work for 25% of patients but again, no way of knowing if it would or not for DS2 without trying it.

Alternatively, I'm wondering if an inhaler other than beclametasone would help. I developed adult-onset asthma and the purple inhaler worked best for me.

hellhasnofurylikeahungrywoman Tue 01-Jan-13 17:09:07

My kids are adults now but they were early test patients for montelukast in children. For dd it works well, she first took it as a young child and is on it now at the age of 22. She did develop headaches which were flagged up as being a side effect but they did resolve eventually.

For DS it was useless, he might as well have been taking placebos.

The difference between my two was although they were both really chronic asthmatics DD has allergies and DS didn't. DD's asthma is also quite difficult to manage, she doesn't respond to ventolin so takes Fostair as her preventer and reliever.

MrsShrek3 Tue 01-Jan-13 17:25:47

DD is on it and the dose has recently been increased since her birthday - age related thing. as others have said, the reason she is on it and ds2 is not, with asthma roughly equal, is that dd has allergies, some diagnosed and some that despite testing, we can't pin down. it really works for her and keeps the symptoms under control. Consultant wanted to test her out without it so we tried a three month period off it last year...her symptoms were generally not controllable with inhalers, although not hideously severe to start with iyswim. Her asthma wasn't under control though and a chest infection that she couldnt shake off for a month made the consultant put her back on montelukast - symptoms drastically improved within days. it looks like she will continue to take it for at least another year.
make sure you get regular reviews. it is very clear when it works, the difference is enormous.

Sirzy Tue 01-Jan-13 17:59:33

Alternatively, I'm wondering if an inhaler other than beclametasone would help. I developed adult-onset asthma and the purple inhaler worked best for me.

Seretide isn't licenced in under 4s so they are reluctant to give that so young unless everything else has been tried.

What dose of the brown inhaler does she have? Ds was on 400mg a day before he was moved to the seretide as it still wasn't working (he was just under 3 when he started it)

My son has been admitted to hospital twice for nebulising, then he was put on Montelukast and for the last 2 years he's been much better. I've noticed a huge difference in his breathing/asthma.

Skiffen Tue 01-Jan-13 18:18:19

Dd2 is on it, not for asthma but other respiratory problems. We found it made a big difference to her day to day symptoms, no nasty side effects.

hazeyjane Tue 01-Jan-13 18:21:15

Dd1 was put on it, when she was 3 1/2 but she had bad side effects, in the form of dreadful nightmares. She has always been a bad sleeper, but the nightmares and night terrors she had were awful.

knackeredmother Tue 01-Jan-13 18:26:01

Dramatically reduced the amount of admissions for ds, no side effects at all. There is currently a trial (WAIT) trial looking at whether it is effective when given just with a cold rather than continuously.
I definitely reccomend it from personal experience.

weblette Tue 01-Jan-13 19:17:43

Ds2 is on it but as his asthma's been deteriorating I'm really wondering what the benefit is. No side effects here, just not convinced it's an appropriate/effective med for him.

HotheadPaisan Tue 01-Jan-13 19:27:43

Thank you all, this is very helpful.

He has 2 x 100 beclametasone twice a day, it seemed to be helping initially but far too many attacks lately, we're managing them with lots of ventolin rather than nebulisers but still. He will not take prednisolone either, he is always sick when he has it or refuses it however we disguise it. I can pin him down and syringe it if I have to.

I have been giving him serevent 2/3 times a day through this last attack, he was given that when we were in hospital last and it seems to have helped.

I will see the GP asthma specialist and see what he thinks, we were offered montelukast before but I wanted to try beclametasone first.

DS2 also has a mild egg allergy but I'm sure his asthma attacks are triggered by colds not allergies. I wonder if there is any other inhaler he could try if the purple is no good. Would we carry on with the beclametasone with the montelukast? Could he only have the montelukast at certain times or is it a daily thing?

Lonecatwithkitten Tue 01-Jan-13 19:32:52

DN has been on for 6 years prior to that she had had 8 admissions to hospital with life threatening low oxygen levels that could not be controlled with nebulisation. She had not been hospitalised since then though has had to stop beconase recently as it is affecting her voice and she is a singer.

harryhausen Tue 01-Jan-13 19:33:02

My ds has been on Monteluskast chewable tablets since he was 3.5yrs. He's now 5. We were regularly going to a&e around once a month, and hospitalised twice for longer stays with Asthma. As soon as we got to see a asthma consultant specialist, she put him onto the tabs and we saw a vast improvement in him almost overnight.

Our hospital visits became much less frequent. A while later she hugely increased his preventative steroid inhalers and we saw more improvement. However, I feel it's the Monteluskast tabs that make that extra difference. I only have positive things to say about it.

harryhausen Tue 01-Jan-13 19:38:08

To to add I find the combination of the steroid inhalers and Monteluskast a good one. We still have the odd attack and are still under the consultant. The last time she saw us, she gave us dissolvable steroids to have in the drawer as a 'belt and braces' to us feeling a big attack is coming. She said it may help to stave it off.

The experience we have with it, the more we know what the situation is. I've nothing but fantastic care from the nhs on this one.

tiffinbaker Tue 01-Jan-13 22:12:28

We had 3 hospitalisations in the space of 7 weeks for wheezing, at while point we were given montelukast for DS and told to just give it to him for 7 days following the onset of a cold, and he hasn't had an attack at all since. Given the season he's been on it for more than half the time. He does tell us he had sad dreams when he wakes up in the morning after a pill, but it's never been bad enough to cause night-terrors or waking so we're assuming this is not too bad compared to regular hospitalisations, and the effect doesn't continue on days when he doesn't have a pill so it is short-acting. OP I know the side effects sound scarey and I was scared of them too - if DS had had severe nightmares or other side effects I might not have continued, but consider giving it a short try, you may be lucky and find that the side effects are mild in your DS too.

weblette Wed 02-Jan-13 10:06:21

Montelukast works in a completely different way to traditional inhaled steroids so it's definately worth trying and is often used in tandem with them. It's usually prescribed on a daily basis - taken an hour after food, just before bedtime.

HotheadPaisan Wed 02-Jan-13 11:30:23

Thanks all, have made an appointment with the doctor to discuss again.

ggirl Wed 02-Jan-13 11:34:09

ds has been on it for yrs , we had a break from it cos we thought he didn't need it but he had 3 bad allergic reactions when not taking it so we're back on it now...it had changed his life for the better

TheSecondComing Wed 02-Jan-13 11:37:16

Message withdrawn at poster's request.

Lozario Thu 03-Jan-13 00:09:04

We're pleased with it; DS (3.6) suffers with recurring viral wheezing and so we're told to give it to him whenever he starts a wheezy cough (usually towards the end of a cold) as previously it always became traumatic croup. I'm glad as he was taking prednisolone for the croup all the time which was worrying me. No side effects to report so far - he has had Montelukast a couple of times over the winter.

tiffinbaker Thu 03-Jan-13 09:50:43

weblette I notice you said "an hour after food" and just wondered - our packet says one hour before or two hours after food, which we find a right pain sometimes because on nursery days DS doesn't usually finish supper till after six so we either have to hurry him up and make him eat quickly (or take away the food before he is finished) or keep him up later than normal - encouraging meltdown - or give him the pill before 2 hours is up - making us feel guilty for not obeying instructions. If it can actually be given only 1 hour after food then that would save us many nightmares! I wonder if yours is a different brand/dosage to ours to make the instructions different?

weblette Thu 03-Jan-13 10:33:10

Ds's consultant told us to do it like that.

cedmonds Thu 03-Jan-13 12:03:09

Ds has been on it since a baby. When he changed from the granules to the tablets he got really bad nightmares. We were told by great Ormond street that it can be given in the morning. Which has helped ds.
It has made a big difference to him. We have a period of not being on it and his asthma and allergies were awfull

tiffinbaker Thu 03-Jan-13 16:34:14

thanks - I will talk to our GP and see if it will be OK for us to do the timing differently.

cedmonds Thu 03-Jan-13 18:18:29

tiffinbaker Great ormond street also said that it was better if even on an empty tummy but on occasions it is ok to be given on a full tummy..

Skiffen Thu 03-Jan-13 18:58:02

The only way we get it into dd2 is as part of her evening meal, drs know this and never been told it's a problem blush

cedmonds Thu 03-Jan-13 19:00:55

Does she have the tablet or the granules. The granules can be given at any time.

Skiffen Thu 03-Jan-13 19:05:26

Phew, it's the granules! Thank you for clarifying that.

brainonastick Fri 04-Jan-13 19:59:19

I just came on here to ask about montelukast! Dd2 has just been prescribed it for recurring viral wheeze, which I was a little confused about as we haven't even tried the beclamethasone yet (which has worked well for dd1). Very helpful thread, thank you.

I was also wondering about the timing of the meds, as dd2 is normally asleep by about 1hour after tea max. I would be interested to know when everyone else fis it in? The only time that is -1hr and +2 hrs from food is when she wakes up in the morning, but the packet also says take it in the evening confused.

Lozario Fri 04-Jan-13 21:03:18

I'm not sure why it says evening. We give it at around 10am - 2hrs after breakfast and a couple of hours before lunch. Reading about the nightmares issues on here maybe it's better that way!

I got the impression from GP it's a relatively new drug?

brainonastick Sat 05-Jan-13 13:25:43

Ok, we started it first thing this morning, so fingers crossed!

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now