6 month old started rolling eyes back

[Celinelatrine]

Hello I'm new here but am desperately searching the net for any similar experiences.

My 6 month old baby boy suddenly started rolling his eyes back in a kind of slow blink with fluttering eyelids. It seems to happen more when he is eating, tired or frustrated.

I went to A&E at the hospital when it first happened as I thought it might be some kind of seizure but they medics say it doesn't fit any seizure pattern as he's aware through the episodes and they are too fleeting. He is otherwise fine and healthy in every way.

Anyone out there experienced anything like this?

Celine

[FossilSister]

Hi - this happened to my friend's baby and our GP sent her for a check with specialist. All OK, but they were concerned like you about seizures. It may be worth seeing your GP rather than A and E.

[Celinelatrine]

Thanks for the advice. We have a appointment with our GP tomorrow hoping for a referral.

[giraffescantdancethetango]

When I looked after a wee boy and he had a reflex anoxic seizure his rolled to the back of his head. Doesnt sound exactly the same but might be worth looking at the symptoms just incase you spot any of the others? link Because the paramedics had no idea what had happened and it was only a Dr that told me what had happened - and that was only she asked her more senior Dr for advice. (his parents were away when it happened, so was me that was there)

I have looked after a lot of children though whose eyes roll back when they are tired/falling asleep.

[Mum1369]

Our friends little boy had this too. He went for all kinds of tests - MRI etc - but all came back absolutely fine & he just grew out of it. At the time someone suggested it might be linked to reflux.

[Celinelatrine]

Thanks it is reassuring to hear of others that were fine.

[grammac]

My healthy, happy 8 month-old Grandson started doing this last week.

In doing some research, I came across Paroxysmal Atonic Upgaze, which is a good description of this.

You can find this by typing it into a Google search.

[jill3538]

Hi Celine,

I was wondering what was the outcome from your visit with the GP? My 6 month old grandson just started doing this.

[Sophiemacymalone]

@Celinelatrine & @jill3538 did either of you get any conclusion from this?

my little boy is 9 months and doing exactly as you described when either tiered, eating or smiling at people.

I am very worried because he had a difficult birth and had to have an MRI scan on his brain (which came back okay). Any info please let me know.

[Purplescrubs]

Hi @Sophiemacymalone @jill3538 @Celinelatrine does anyone have an update? My 6 month old little girl has started doing this and I’m really worried. Thank you

[Sophiemacymalone]

@Purplescrubs i don’t have a lot of info for you. My sons now 1.5 years and sees a specialist more as a cautionary thing once every 6 months due to his birth (nothing wrong so far, very normal development). I told his specialist doctor about this eye movement and she said it shouldn’t be something to worry about, but to keep an eye on it. To be honest she didn’t really seam to understand what I meant. He still does it by much less as time goes on- it still seams to be around teething time and when he smiles or gets shy?

im trying to get it on video for next time we see the doctor, but it’s tough it’s over very quickly and it’s unpredictable when he does it.

[TheAmberFox]

Hi there,

Any updates on this? My daughter is doing the same thing and we are very concerned! We are desperately looking for answers…