DD, 12, has had two cancers (two different types of leukemias) and had a bone marrow transplant three years ago. The doctors noticed in Sept last year that she hasn't been growing as well as she should be, and she underwent a stress test which showed that she is not deficient in growth hormones. So we still don't know why she is not growing. She is scheduled to undergo two more tests next month, the insulin test and the glucagon test to doubly make sure that she really isn't GH deficient.
Don't know what I am looking for here, as her complicated medical history probably means I might not find anyone with similar experience, but I was wondering if anyone else's DC had had growth issues and it WAS NOT due to GH deficiency?
Or if it was not, did they try GH injections anyway, and did they work? As we have been to two different hospitals and one suggested we could try GH anyway if we were really keen, although it might work and it might not, and they are very expensive.
Although DD is not keen at all, having spent much of her life being prodded and poked and having blood samples taken almost everyday, yet at the same time, she is deeply envious of all the tall (and popular) girls in her year....
Also, it is linked to her pubertal development, as she has yet to start her periods, and the doctors say she may have issues with her ovaries due to the chemo and may need to start taking estrogen, but in small doses first, as estrogen will start to fuse her bones and then she won't grow anymore.
She also may have ostopenia (brittle bones) due to the chemo and is prone to fractures, and is currently on high-dose calcium and vit D3. All this is linked, and they have taken an x-ray of her hand last year, to check her bone age and it is in line with her actual age. Just took another one on Tuesday, but the doctor has not informed me of the result yet.
Anyway, I don't know what I am looking for here, just some words of encouragement maybe from anyone who has gone through similar issues before....and it is all still a bit confusing for me, so maybe someone who has been through this path can help to shed some light...
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Children's health
DD not growing but test showed normal Growth Hormone level...
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fernzmal · 22/09/2016 18:14
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