Excuse any overly sleep deprived emotional ramble.
My 4 week old daughter was admitted to hospital on Friday after I took her to OOH due to frequent and increasing projectile vomiting and distress. I (and docs) assumed bad acid reflux but they kept her in for obs. The projectile vomiting continued although she seemed a little happier on the meds for acid.
They did an ultrasound just in case and detected a thickened lower stomach valve which indicates pyloric stenosis. Initially they said this would mean an op. But now they're saying it's only just within thickened limits and it's unusual to be present in girls so want to do further investigation tomorrow.
In the meantime, my tiny baby is on nil by mouth and has spent hours and hours screaming. She has spent her whole life comforted by my breast and now she can't have it.
I'm terrified of her having an operation, I'm dreading them saying not to operate yet (as what do I do about the vomit & distress?) and I can't bear the hours of her screaming on nil by mouth whilst everyone decides what to do.
I just can't stop crying.
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Children's health
4 week old daughter and pyloric stenosis: handhold please!
plimsolls · 19/09/2016 03:37
I am so sorry. 
I really hope you get a quick diagnosis / decision soon.
Would you be allowed to play music or something like Ewan the dream sheep to try to soothe her? Sorry of that's impractical.
I don't really have any useful advice but just wanted to send you a lot of and sympathy. Must be incredibly hard.
That sounds dreadful, what a worrying time. I do hope they can come to a decision in the morning and hopefully by this time tomorrow you and your baby will have been able to put this horrible time behind you and things will be looking brighter.
In the mean time, having a very distressed baby that you can't comfort is terribly upsetting for both of you. I expect your baby is on a drip to provide fluids so she needs comfort more than milk. Will she suckle on your finger? Is there anybody else who could hold her for a bit (as she might associate you with milk/smell milk, and be frustrated that she can't have any)? I expect the last thing you want to do is hand your sobbing baby to anyone else - but it might possibly help, and you could have a break from the screaming. I do hope this can be resolved soon.
Do not underestimate the trauma this will have on you. I want you to take really good care of yourself during this time.
When people you know ask you how you are doing, do not say 'Fine'. Ask for help. Ask for a hug. AsK if someone can stop by the hospital for a quick coffee. Ask someone to bring you a piece of fruit or a cooked teacake.
Don't try and.bundle yourself through. You need support so that you have more to give your baby
Had a meeting with brilliant surgical lead who confirmed she does have pyloric stenosis. She's booked in for surgery later today (unless greater priority/emergency arises). I feel a little calmer now we have a plan, and she's settled a little, not so distressed and desperate to feed.
Thank you all for the messages. They really helped take the edge of the despair and fear 
Hi there OP, I hope you manage to get surgery this afternoon. DS1 had PS at 3 weeks so I know what you're going through. It is hard to hand them over to the Drs for the op, but it is a routine short op and so your DD will be back with you before you know it.
Just a warning that she may still be sick after the op - apparently it is all their bodies are used to and so can take a feed or two before their stomach realises it doesn't need to any more. DS was sick twice after the op I think and I panicked that it hadn't worked, but he was fine.
Have you managed to express while she has been nil by mouth? The hospital we really good at supporting me to do this and DS was able to carry on feeding when he was better (until I'd had enough at 8 months!)
You will get through this and be home before the end of the week - just focus on that. DS is now a strapping 4 year old with no sign of the horrible first 4 weeks he had apart from a little scar that he is fascinated with.
and hugs for the next day or so.
I hope she gets into surgery this afternoon, you are being incredibly strong
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