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Children's health

Chronic diarrhoea

8 replies

fanjoforthemammaries7850 · 17/08/2016 09:02

Just wondered if anyone has any ideas?

Dd is nearly 10. She has many allergies and ASD.

She has had chronic diarrhoea for past 6 months. Samples tested clear although showed a little inflammation. She doesn't have coeliac. Food diaries have revealed nothing.

She is well throughout and even more hungry than usual but has episodes of severe diarrhoea for weeks like a bug.

She is well and wants to go to school but obviously can't when it's bad. School understand if it's mild but obviously it's an issue for them.

She was on injections for precocious puberty which just stopped, which do have that listed as side effect but endocrinologist had never come across it before as a side effect in anyone.

Eliminating lactose and dairy didn't help.

Hopefully we will at last get a gastroenterology referral but wondered if anyone had any ideas or experience of this?

Apart from main cincern that she cant live with this, she loves school and we also love the respite as she has high needs and we work. Need to get this resolved .

I have wondered colitis but paed said it would be more severe. Surely you could have it mildly though?

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fanjoforthemammaries7850 · 17/08/2016 09:07

She hasn't grown or gained weight in last 6 months but she was on injections to suppress puberty.

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fanjoforthemammaries7850 · 17/08/2016 13:10

Anyone?

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fanjoforthemammaries7850 · 17/08/2016 20:07

Last bump

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mumeemoo · 22/08/2016 08:58

I would go to gp/paed and insist on tests for colitis. DSs had similar symptoms- looking back we realised it had been going on for longer than we realised. When his gp was dismissing it as some thing he would grow out of we worked with his mum to move gp and then get him referred. After 6 months it was confirmed that he has ulcerative colitis. Been a really difficult couple of years, through gcses - poor kid. But he just carries on and gets on with it. You wonder how his body (and emotions) can cope but he does. Quite inspirational really. Good luck op. I hope your dd and you get some answers soon.

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MYA2016 · 22/08/2016 14:57

It's no help but sometimes I really think it can just be "one of those things". I had always been absolutely fine bowel wise, then I hit 17 and something changed. Started getting diarrhoea and it didn't go away. I had to quit my job 1 hour away as I was having panic attacks over whether I could make it to work.
I had colonoscopies, an endoscopy, a ct scan, numerous internals, was put on exclusion diets by dieticians and they could never find anything wrong.
The only thing that helped was taking immodium (2 a day on prescription for years) and also having reiki every fortnight which helped massively with the anxiety side
As quickly as it started, around 5 years later it stopped and so far it has never come back.
I know that won't help you right now, but I just wanted you to know what happened in my instance.
I would never have wished that period of time on my worst enemy. It made leaving the house a nightmare and I did get another job closer to home but was often off work because I couldn't get off the toilet!
I really hope that your daughter gets better soon.

Ps. I found reducing dairy and fatty foods also helped. If i had too much of either I would be a lot worse the following day

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fanjoforthemammaries7850 · 24/08/2016 01:25

Thanks..just saw these answers. Really appreciate them.

Am also concerned re colitis and will push for referral.

Also what you say resonates with me too MYA, I wonder if it's anxiety related too. Imodium is helping for now too.

Will update if we get answers. Thanks.

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OrSoItSeemsThatWay · 24/08/2016 01:45

I have colitis and I think the paed dismissed that too easily. It's quite severe enough if it lasts for weeks (which would fit with a colitis flare up) and prevents her going to school. I would push hard for a gastro referral - mine was diagnosed straight away by a gastroenterologist once I saw one. Anxiety can prompt a flare up so that could also fit with your DD's symptoms. Hope you get somewhere.

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fanjoforthemammaries7850 · 24/08/2016 06:56

Thanks. Going to send another sample in when it flares.

The faecal calprotectin level was high but not high enough to diagnose last time, but that was when her tummy had started to settle.