Mumsnetters aren't necessarily qualified to help if your child is unwell. If you have any serious medical concerns, we would urge you to consult your GP.

Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

(331 Posts)
Trazzletoes Mon 27-Jun-16 19:51:10

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

BIWI Mon 27-Jun-16 19:52:58

I'm so, so sorry sad

Not really much else I can say, but I'm sending you all my love.

PausingFlatly Mon 27-Jun-16 19:53:36

Oh Trazzle, I remember your threads well. thanks

Bryterlater Mon 27-Jun-16 19:54:09

I'm so sorry for you and your family. I don't have anything helpful to say, just wishing you the best. flowers

Lolly86 Mon 27-Jun-16 19:54:10

I'm so sorry x

Signoritawhocansway Mon 27-Jun-16 19:54:16

I remember your threads. Sending you my love, and prayers.

Goingtobeawesome Mon 27-Jun-16 19:54:19

I remember and I was thinking of you a couple of weeks ago. I'm sorry to hear your news and send you all the strength and good wishes I can.

PresidentCJCregg Mon 27-Jun-16 19:55:01

Oh Trazzle I remember you and Joseph so well. I'm so so sorry. flowers

Gazelda Mon 27-Jun-16 19:55:29

I'm so sorry, that sounds so frightening, and it must be very difficult for you to hide your tears from Joseph.

Have you been in touch with any charities that might have specialist workers to help with emotional support for you and Joseph?

elfycat Mon 27-Jun-16 19:55:30

I remember your posts and made a point of checking how you were getting on.

I'm so, so sorry that the bastard cancer is back.

sleepyhead Mon 27-Jun-16 19:55:54

I remember Joseph and you all. I am so, so sorry you're in this awful place xxx

RainbowInACloud Mon 27-Jun-16 19:56:35

So so sorry trazzle. I really don't know what to say. I remember the threads so well. You must be in shock- it seems so unfair when he's been cancer free for so long. Will be thinking of you.

SparePantsAndLego Mon 27-Jun-16 19:58:34

Oh, Trazzle, I'm so sorry to hear that you've had this news. I remember your awesome strength when faced with the unimaginable. Since your threads I've though of Joseph and sent some good thoughts to you all when you've crossed my mind.
One foot in from of the others and gingers crossed...iirc.

MegBusset Mon 27-Jun-16 19:59:09

I remember your threads and I'm so sorry that this is happening.

Wishing you all love and strength flowers

Floggingmolly Mon 27-Jun-16 20:00:27

God bless you, I'm so very sorry flowers

Lemonsole Mon 27-Jun-16 20:01:34

I remember your threads. I'm so, so sorry to hear this. You're in my thoughts. We're all here again.

LadyLayLay Mon 27-Jun-16 20:02:44

I'm so sorry flowersflowers

Maladicta Mon 27-Jun-16 20:02:49

So sorry to hear this Trazzle, neuroblastoma is a horrible disease. Wishing you and Joseph strength in the times ahead xxxx

Stinkyfeet Mon 27-Jun-16 20:02:51

Oh fucking bastard cancer. I remember you from the Children with Cancer threads a few years ago. This is such shitty news.

I'm thinking of you and your family, and sending love and strength xx

DevonLulu Mon 27-Jun-16 20:04:33

Look into those big blue eyes and take it one step at a time. Relish the moment and be kind to yourself. All my thoughts are with you. I am so sorry. Wishing you strength and courage

OrangeRhinoInTraining Mon 27-Jun-16 20:04:45

Another one who remembers you Trazzle. I'm so sorry this is happening for your family. Wishing you peace and strength.

Ebb Mon 27-Jun-16 20:05:17

I remember your threads. So sorry to hear the cancer is back. Thinking of you and Joseph. flowers

Backingvocals Mon 27-Jun-16 20:08:08

Shit. I didn't want to open the thread as I remember what you all went through and that was too hard. How can this be right? Life is just so unfair and crap. Thinking of you and Joseph x 1000 and wishing you strength to get through, one step at a time.

Whatslovegottodo Mon 27-Jun-16 20:08:29

Oh god Trazzle I am so so sorry. I used to regularly be on J's other threads with another name.
I still think of you guys when I say fingers gingers crossed.
My heart is going out to you right now, remember your boy has defied the odds before. We will be here as much as you need, one day at a time.

lougle Mon 27-Jun-16 20:08:52

Trazzletoes, I remember. Hi Joseph <wave>. I'm so sorry you have been thrust back into the world of cancer treatment. I hope that you are one of the 5% and that you have more strength than you thought possible as you face tomorrowflowers.

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