My dd is 16 and has long standing pain in her joints, particularly hips, ankles, hands and feet, and her back. She also has difficulty in walking.
She has been thoroughly assessed and her mobility difficulties have been diagnosed as due to conversion disorder (where psychological problems show themselves in physical symptoms). It seems that the psychological basis is struggling with undiagnosed ASD. Her mobility has improved since the ASD was recognised and we have started to put some strategies in place.
However the pain is the same as ever. She says it is there constantly but is sometimes much worse. She was really struggling this morning but has gone to school as she hates missing classes (and she is about to do her GCSEs).
When she first developed symptoms, she was referred to a paediatrician specialising in orthopaedics and rheumatology. He was sure she wasn't hypermobile and she certainly doesn't appear to have any indications of that. He also checked for juvenile arthritis and Lyme disease. Her father has a genetic condition which can cause joint problems among other things, so he also check that genetic link and she hasn't inherited it.
Her mobility and hand function got so bad that the focus shifted to that and the pain has largely been forgotten by the medics. I am reluctant to put her through referrals and examinations again only to be told that it is just part of the conversion disorder. It is possible that it is, but I do wonder if something is being missed as it is possible to have conversion disorder and a physical condition.
Dd's situation is complex and I don't expect anyone to have direct experience but I wonder if anyone has any ideas about what the cause of the joint pain could be?
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Children's health
dd and joint pain
10 replies
NoHaudinMaWheest · 13/04/2016 13:02
OP posts:
zzzzz ·
13/04/2016 22:48
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