My daughter is coeliac and has been gluten free for a year. She has always had difficulties with constipation. We have increased the amount she drinks to 1200ml, she is having double amount of fruit and veg. She is always on the verge of getting blocked and it takes very little to get stuck and not poo for days.
She is on 1 or 2 sachets of movicol which we increase as needed to higher levels. Just got prescription for senna to get her bowel moving.
Have reduced then cut out lactose for two months to no effect.
Waited 5 months to see school nurse., not much use.
Paediatrician has cancelled appointment twice to end July.
Under gatroenterologist who doesn't seem interested.
Under dietician not getting anywhere.
Waited two months for constipation clinic and now very disgruntled. Told to drink more, to lean elbows on knees and relax! Is that the extent of medical input? Got senna as I asked for a bowel stimulant (was offered lactulose and I declined as another poo softener). Blood test done to check electrolyte levels. Told they don't X-ray.
Dominates whole family life. Spending up to an hour in evening in shorter sessions getting her to blow,rock, make poo faces.
How do we know why it's happening? Is it another food she needs to stop eating.
Is any more damage being done? Investigation is feeling her tummy and she always giggles even if really bunged up.
Is movicol and possibly senna the best management. She has a rash on back of knee that appeared similar time to upping regularity of movicol and describes feeling sick, bottom very red when on higher doses.
Referral to dermatologist in process.
All seems very unscientific guess work, loosing faith in medicine. Despite despairing letter constipation nurse did not ask either me or daughter how we were managing.
Need mums with experience to guide.
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Children's health
Wanted experts on chronic constipation, advice on management and when to start seeking help
21 replies
alannacityofzorn · 03/06/2015 20:12
OP posts:
MoreSnowPlease ·
13/12/2015 19:54
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