I'm not sure if I'm posting in the right section but didn't no where else to post! Sorry! I'll try to keep this short.
I'm 34+3 weeks pregnant with my second. At 28 weeks I went for a routine growth scan due to having gestational diabetes. They found at the scan that babies head was very small and I was sent for lots of scans, blood tests and MRI.
At 32 weeks I was told that the tests showed that the baby had a stroke which had perminantly damaged his brain. We were told that he would have moderate to severe learning difficulties as well as problems with movement. We were told that he is also likely to develop epilepsy and cerebral palsy.
Just as we were getting our heads round this we have had a devestating morning at the hospital! They did more scans with specialists this morning and discovered more things. They have now discovered that his heart is very enlarged and struggling. Also his growth has slowed right down. They have told us that they believe all this things are due to a rare metabolic disorder, that can not be treated. They have told us that he is unlikely to live for long and may never come home.
I don't know how to think or feel! I'm sad and shocked by this all, sorry again for the long post and if it's in the wrong place. I just really need to talk/share. X
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Children's health
Feel like my world is falling apart!
23 replies
Louisajane27 · 19/02/2014 14:30
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