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6 wk old in hospital with Bronchiolitis- support/shared stories pls!(51 Posts)
My 6 week old baby has been admitted to hospital with bronchiolitis. He's on oxygen and a drip and is nil by mouth at the moment. I'm so scared and worried. He started getting Ill in Monday and we went to a&e Thurs night as he was grunting whilst breathing. They monitored and discharged him (not thinking it was bronchiolitis) then Friday I thought he wasn't himself- laboured breathing and sleepy and took him to the doc who said he should go to hosp. Doc at hosp diagnosed him and here we are. Doc has told me they have to get over the worst Of it then will start getting better. But what if he doesn't? I can't bring myself to ask the doc this and haven't told my DH about my fears. He's so tiny and I feel so helpless. I can't even feed him (have been bf and am expressing ATM) any similar stories to give me hope or advice?
He's in the best place. My DS was hospitalised with bronchialitis (sp?) albeit when he was 12 mths and got through it fine. He's 3 now and absolutely fine. There was quite a few babies in with it at the same time, hospital was very used to caring for them.
It's an awful thing when they're ill at that age, I remember the helpless feeling. Just knowing you're close by will comfort him - can you put sth that smells of you or home in the cot with him? Sorry if he's too young to have a teddy or snuggly thing but if not the smell of that close to him might give him some comfort. x
My DS had bronchiolitis at 4 weeks. He was never hospitalised, but I was a worrying time none the less. It's the most terrifying feeling in the world, but he's in the best place and he'll be in the mend soon enough. The doctor told me that it was very common in winter babies.
Bronchiolitis is very very common in winter in young babies. The typical 'peak' of illness is usually around day 5-7 - so if he started to become unwell on Monday then hopefully today or tomorrow will be the worst of it. His little lungs will be full of secretions and so he won't be able to absorb as much oxygen as he usually can. He will be NBM so as to decrease his energy requirements so he can use all his energy fir breathing rather than absorbing feed, well done for managing to express. If he doesn't show signs of more comfortable breathing some children do need extra support through a ventilator for a few days until the worst has passed. This isn't overly common in the general population but each winter intensive care units do see a lot of bronch babies. The vast (vast vast!) majority of these make a complete recovery very quickly once the virus is out of the body.
I hope that helps.
My now 3 year old had bronchiolitis at 5 weeks old and spent a week in hospital. Honestly, it was the worst time of my life. It was a roller coaster of emotions and worry.
I had my family around to support me which helped - do you have friends and family to help?
BUT, she recovered completely in a week and has been healthy ever since. Lots of winter babies get bronchiolitis in the early days. The hospital was full of them. And I'm sure, nearly all of them get better!! Your baby is in the best place possible and you will get through this. Good luck. Make sure you eat and drink and sleep when you can.
My DD had bronchiolitis at 6 weeks too. It is very frightening and worrying, but he is in the best place. We were in hospital for 4 nights, but she made a swift recovery after that. She is absolutely fine now, with no long term effects (she is 5!). Hang on in there. I know how terrifying it is, but the medical staff see this a lot and are very capable of dealing with it.
Have an unmumsnet hug and
My DD also had bronchiolitis at that age, and we were blue lighted to hospital after a scary hour at home. She was sat in a chair with a tent around her as she wouldn't tolerate the O2 line. It was very distressing but 2 days alter she started to recover. We were in for a week, but only needed O2 for the first 4. Hope your DC recovers soon
My DD had bronchiolitis at 4mths old. After taking her to a+e she was transferred to intensive care at a different hospital. She was sedated and ventilated for a week, she had a collapsed lung and was very very poorly.
But she bounced back, and the care she received in intensive care was exceptional. After a week she was transferred back to our local hospital for a few days r&r. Then she was home, like nothing had happened.
It was the hardest week of my life, living in the hospital with DD, and having to leave my DS at home with DP, who couldn't even visit. I still have flashbacks even though two years have passed.
I was told that 'bronchi babies' have a higher risk of suffering from asthma later, though I haven't seen any evidence of this in my DD so far.
Wishing your DS a speedy recovery x
Another one who's been there and done that. And, yep to it being a rough few days and then, suddenly, they perk up.
The important thing, the USEFUL thing is to listen to the advice saying "look after you".
Baby will be fine, the care is outstanding and it works, you just have to go with it.
But, you need to look after him when he gets back. Therefore, you need to do the following in the short term:
1. sleep. Get earplugs to dull the pinging machines, grab 10 mins where you can. Go home and get someone else to sit with him so you can sleep for an hour.
2. eat. Find the nearest wee shop or supermarket and buy fruit and water to nibble on. Get someone to bring you good, hot food - hospital canteen stuff will not help you. Unless you are a fan of brown stodge (no offense to anyone who prepares hospital food, I know you only have beige stodge to start off with)
Drop not-awfully-subtle hints to family and friends about them making meals for you once you are home. Meals and shopping and housework should be gratefully received. Accept all offers of help.
3. milk - pump, pump and pump some more. Breastfeeding mothers will be fed and watered by the ward, and should have a bed by the baby. Cuddle him as you pump, or, sit by him and stroke his cheek if you can't do that. Your milk flow will go down a bit, but, you'll get it back if you want to.
My 6 weeker was NG fed for a week and getting feeding going again was hard. I landed up doing mixed feeding with him, which actually worked really well.
The hospital will have a breastfeeding guru, ask to see them.
I landed up glugging that revolting brewer's yeast stuff to recover milk supply - it was disgusting, but, it really worked. I went from shrivelled prune boobs to udders overnight. Weird.
4. being clean and sane - ask if there is a parent's shower. Some places have a "chill out" space for families. find it and use it.
5. have a hug <hug>
I can also recommend finding a toilet, locking yourself in there and having a bloody good cry about how sorry you feel for yourself and how crap it all is. Most cathartic.
Oh, and my scrawny, poorly, tiny boy is 8 now. He's the fastest kid in the class.
There is a correlation between bronchiolitis, RSV and asthma.
It doesn't always follow that baby will have a wheeze, but, if it runs in your family then it's worth keeping it in the back of your mind and seeing GP if there's a cough or any faster breathing when he's got a virus.
Our kidlet was left with pretty dramatic asthma. But, to reassure you, when he's well, he's absolutely fine and very athletic and symptom free. When he's poorly, we're back on the ward (which is why I know how to keep sane). But, he has no lung damage at all - the medication for asthma now is amazing, so, once he's an adult, it'll all be fine.
My youngest was hospitalised with RSV as an 8 month old and made a good recovery. Afterwards he struggled with 'viral wheeze' requiring steroid treatment each time he got a cough/cold virus but he is now 4 and hasn't had a problem for about 6 months despite being bombarded by plenty of chesty bugs.
I hope your little one makes a very swift recovery x
There is a correlation between bronchiolitis, RSV and asthma
My understanding is that the link - if any between RSV and asthma isn't know, but the main correlation is only between those having severe (hospitalised level) RSV and a slightly increased risk of asthma later.
DS had bronchi a number of times in the first 12 months and it did hit him hard, but even the time he was in for 10 days and ended up in HDU he bounced back quickly.
Hope your little one is better soon, please don't be afriad to ask the staff questions they are there to help you
Thanks so much for all the replies- I know I could count on you mumsnet ladies to keep me sane and (at least a little bit) calmer.
So reassuring to hear of your little ones recoveries
pookbob that's awful having a collapsed lung- I feel terrified enough now without going through something like that.
sigh thanks so much for all the advice- I'm worried about my supply - ironically out of 3 kids this is the only one I've managed to successfully bf so if it were to stop because of this I'd be so upset. I've been pumping but know my supply will go down- was waiting 4 hours last night did a breast pump that never showed up (DH brought mine in in the end) and was uncomfortably engorged. But I guess the main thing is he gets better whether I can continue bf or not. I'm ok with the idea of mixed feeding if need be. I'll remember that brewers yeast for future ref.
My dd2 was hospitalised with Bronchiolitis at 9 weeks. She was in for a couple of nights. it's so horrible to feel like there's nothing you can do. I hope your baby is on the mend very soon.
(Just to add dd2 is now a sprightly 7 year old with the gift of the gab and and seemingly endless energy. She's also never had any more respiratory problems since the Bronchiolitis).
dd2 had bronchiolitis at 4 weeks. She had a narrow airway (floppy larynx) so it was extra rough, and she spent a week in HDU which felt like forever.
She is now a bouncing 7 year old who has never had a chest infection in her life, doesn't cough, gets over colds in days, and rarely misses school
I remember (it was Xmas) HDU and the main ward being packed with babies with bronch, the only ones who didn't have it were in isolation to protect them - rather than the other way around. Its very, very common and it is absolutely horrible when they are that tiny and you can't do anything other than express milk/be there with them.
Around day 5-7 you will see: your ds's immune system will get on top of the virus and he'll get better in leaps and bounds. Till then, it is like watching paint dry only infinitely more upsetting! Take care of yourself, keep posting, talk to other parents in the ward and please accept a huge ((((hug)))))
DD2 had this at 6wks, much like other stories she was in for a week, just a drip and pressurized ventilator at worst.
She is a bouncing 4mo now! She went back to breastfeeding no problem, and the hospital pumps were fine for keeping supply up.
The drs are brilliant, babies with bronchiolitis are very common in winter.
So good to hear of positive stories from those of you with babies of the same age- tewi what stage was she brought in? I'm trying to work out if LO is at his worst is if we have worse to come- his illness started on Monday so in theory it should be peaking now- doc said that blood gas results looked good this morning (heel prick- blood collected in tube?) and if they were worse then next course of action would be ventilator so I'm praying he's getting very slowly better rather than anything worse to come. It's such an awful waiting game, feel so down and helpless.
Get some trashy mags to read or hopefully you have a WiFi signal so you can read off a tablet , it will help pass the long hours while your Ds is getting better
My Ds now 5 has had Bronchitis & Bronchul Pneumonia 14 times since he was 2 weeks old & is now severely asthmatic - Despite this he is the size of a seven year old because of all the steroids he has had and his Asthma is none existent thanks to all the Doctors & Nurses .
It is scary as hell but the treatments these days are nothing short of a miracle , hope you manage to get some rest
You poor thing DD is 4 months now and she was in hospital with it just before Christmas (8 weeks old). It's a very scary time xx
Been there at five weeks and it's horrid but something babies recover from quite quickly. Great that you are bfing as the bm helps recovery, my FIL spent his life studying the RSV which causes most cases of bronchiolitis and is a bit grumpy that they never found anything to make a difference other than bm, only makes a little difference-babies recover well from this virus.
Keep expressing, your supply will be well established by now so will cope better than if this was earlier. Actually if your baby has the nose tube for oxygen it is worth asking if you can ray direct feeds. You can end up doing a feed an hour as all are little with your baby mainly feeding off your let down but you can watch their sats during a feed and it doesn't usually cause a dip. Different staff will gave different opinions on feeding. I was told unequivocally that my girl couldn't bf and would need a tube, I knew she could and we just did direct bfs though were in for 8 days. Every morning we had the same conversation about how babies this ill couldn't feed so it was like Groundhog Day.
Hope you are at the worst point already, it's horrid but you will soon be home and back to normal.
although not for broncholitis ds was admitted at 4 weeks for what initially looked like menengitis/ septacemia, very scary as you say because they are so tiny. my 'best' advice would be to keep expressing frequently, freeze milk if necessary, as once ds started to get better he was super hungry and my milk production had slowed down so we had some sleepless nights feeding all night..
i also found that once discharged ds was super cuddlyand just wanted to be held all day, i found this lovely but wished i hadn't stuck with prior engagement of friends coming round, even though they brought lunch.
sure he'll be better before you know it!
She was a bit coldy, then had a fever on the Sunday, Tuesday evening/Wednesday were her worst days. So days 3/4/5. We were out of hospital by Saturday.
So hopefully you can avoid the ventilator, but if he does need it, it's a brilliant bit of kit. DD2s oxygen kept dipping when she went into a deep sleep Or fed, lots of alarms going off, so it was obvious she needed that break and the ventilator to help her through.
Well they've taken the drip out (mainly because the Canula wasn't working) doc thought it was too Early and they'd hacd to put it back in but it looks like he's tolerating small hourly feeds (EBM by tube). cakesnbeer I admire your confidence in saying you wanted to bf your baby- I'm afraid I'm a bit less sure so going with what the doc recommends which is tube feeding- hopefully we'll get back to bf soon. The sleep deprivation is torture but at least I know I can go home tomorrow- well today, and have a sleep whilst DH watches him. Felt awful doing it yesterday as I didn't want to leave him but got a much needed couple of hours sleep and a shower. And took someone's advice and bought a magazine and DH bought the laptop in tho I haven't been relaxed enough to watch a film on it yet...
I hope your little one starts to improve today, it's good that he's tolerating feeds.
Make sure you get some rest, and wishing you all the best.
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