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Joseph's last thread? Here's hoping...

(807 Posts)
Trazzletoes Tue 17-Sep-13 20:47:13

My now 4 year old DS, Joseph, was diagnosed with stage 4 high risk neuroblastoma last October. It's a particularly aggressive cancer with an 80% relapse rate. Long-term survival statistics are not great.

Joe has had 8 cycles of chemotherapy, an operation to remove the main tumour, stem cell harvest, high dose chemotherapy and stem cell transplant as his bone marrow was destroyed, 3 weeks of radiotherapy and now 5 1/2 months of differentiation therapy and imunotherapy.

In April we learned he had relapsed and so had a 5% chance of ultimately surviving. Then, the relapse spontaneously un-relapsed but we don't know for certain what this means for his future. Whether its good or bad news.

He remains bright and cheery and gorgeous throughout.

BlackbirdOnTheWire Thu 14-Aug-14 21:51:53

Another name changer here - so so so pleased for you x

Just checking in for latest news -- all wonderful! So happy for you.

thegreylady Sun 03-Aug-14 11:07:19

Wonderful news, much love to all the trazzles, especially Joseph. I am hoping the good news keeps coming !

nothruroad Sat 02-Aug-14 14:43:53

What lovely news, I'm so happy for you all. I bet Joseph will love school. Take care.

CafeAuLaitMerci Sat 02-Aug-14 14:30:59

Trazzle - I've been away from MN for a while (sneaking back quietly under a wee name change as I'm trying not to let myself get dragged back to spending farrrrrrrrrrr to much time MN'ing!) - but I've been with you from the beginning and it's lovely to read your latest update smile

I hope Joseph really enjoys school, even though it will be very tiring I hope he keeps going from strength to strength and it's not too much longer before he's able to run around with his little sister and his friends as he should be smile However, as you say, he's here - he's alive and that's a whole lot to be very thankful for isn't it smile

I hope that DD is well too and over all of those little bugs she kept getting! That you and DH are finding some time to spend together and that life is 'on the up' for you all.

I think of you all often. Enjoy life smile x

Rainicorn Thu 24-Jul-14 22:26:35

Lovely to read Joe is doing so much better.

Reception, eek! Such a big step. Really lovely that school have got everything ready for him as well.

Mouldypineapple Thu 24-Jul-14 22:19:21

Great news. I think of you often too, it's lovely to see such a positive update.

CorporateRockWhore Thu 24-Jul-14 22:09:21

Ah, I love that about getting up the slide! Go Joe grin

apermanentheadache Thu 24-Jul-14 22:04:17

That's effing brilliant. Am so pleased. I think about you often.

Tholeonagain Wed 23-Jul-14 20:50:11

What a wonderful, brave little boy. Thank you so much for the update xx

barefootcook Tue 22-Jul-14 22:05:23

Wonderful news Trazzle. Sounds like everything is progressing well for Joe. It will be exciting for him to start school. Please let us know how he gets on. Good to hear that the school has some extra funding too. Enjoy the summer.

RainbowInACloud Tue 22-Jul-14 17:19:40

Lovely update, so glad to hear he's doing well. What an achievement for him- determined little chap.

Trazzletoes Tue 22-Jul-14 10:03:49

Hi, sorry I've only just seen some of these replies.

Yes, Joseph is due to start Reception at our most local Primary in September. It's a one form entry so nice and small. The school has additional funding to care for him all sorted now. They are really seeming to be great with him.

He's been coming on leaps and bounds recently. He's using the toilet more consistently and there's an end in sight for nappies. He's eating better. He still has his tube in his nose but again, there's an end in sight. He is walking well though still tired easily. But he's alive. He's well. His 6 month scans came back clear. He is doing so well and getting stronger every day. He's amazing. I love him.

A few weeks ago we went to an event in the city centre and there was a giant inflatable slide. There were loads of kids on it and J was adamant he wanted a go. His time was almost up and he hadn't been able to climb any of the netting to get to the top of the slide. He was in tears because he couldn't do it. I have him a bit of a shove and helped him up as far as I could reach ( not very far) and he hauled himself up the rest of the way. He cried the whole way up, partly because it was really hard on him physically and partly because he was scared. But he made it. I was cheering him on, as we're complete strangers who were willing him up as well! His face as he came down the slide - he was so proud of what he's achieved. And so he should have been. Most 4 year olds could have done that easily, but it's another reminder of how far he has come.

Shifty sorry we missed you sad

Lovely update. School, swimming and softplay. Super Joe gringringrin

So pleased for all the Trazzles Trazzle.

I hope that you've managed to find a little bit of your own groove too.

CoteDAzur Fri 20-Jun-14 18:25:03

Great news! Very happy for all of you, Trazzles smile

apermanentheadache Fri 20-Jun-14 18:17:59

me too. Hopefully now he has his line out you can do lovely summery things like swimming in sea etc.

ShiftyFades Fri 20-Jun-14 16:06:05

Hi Trazzle, I haven't posted for ages and haven't updated myself on Joe's progress since December. I am so glad he's doing so well, as you are.
I've just realised that I was in DisneyWorld at the same time as you - gutted I didn't get a chance to give you a hug.

I hope Joe continues as he has been, onwards and upwards smile

barefootcook Thu 29-May-14 08:45:41

Hey Trazzle. Hope you have a relaxing summer. Have you found a school for Joe yet?

I love reading these updates smile

Fivemoreminutesmummy Tue 27-May-14 19:45:25

I can't believe it's been a year! Very happy for you all and thanks for updating.

DianaTrent Sun 25-May-14 00:24:52

So pleased to hear of Joseph's progress, it's fantastic. Really happy for you! grin

saffronwblue Sun 25-May-14 00:10:33

Such happy news!

LatinForTelly Sun 25-May-14 00:06:18

Fantastic news, Trazzle! I hope his eating picks up soon, and that you all have a wonderful summer.

ClockWatchingLady Fri 23-May-14 12:23:47

Lovely news! smile
Thanks for updating us, Trazzles.

lougle Thu 22-May-14 23:33:29

How wonderful!

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