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mottled purple legs?

(8 Posts)
LeonieDelt Wed 24-Apr-13 16:22:10

DD1, 9. HFA/ASD. VERY PALE SKIN - seethough, almost. No other health issues whatsoever, healthy, witty, funny child.

Recently tested in early April for thyroid and iron by her paed, all is "normal" (i have yet to see the results myself).

Her legs are almost always mottled purple, for about 6 months now? I thought it was winter, coldness. But today it is 16C and whilst there is a wind up, she wore a skirt and kneesocks, and its still there on the walk home.

She has never complained of pains on her legs, nor has she ever complained of anything else really - she is staggeringly healthy.

WTF is this purple mottling? Do i need to see someone about it? She is particularly prone to anxiety so i dont want to wind her up if there is no reason to.

moosemama Wed 24-Apr-13 17:04:51

Hi Leonie

My niece has this. In her case, she is particularly sensitive to the cold and has raynauds which affects both her hands and feet.

It's called 'cutis marmorata' and is something all/most babies get when they get too cold. Most children grow out of it, but some retain the reaction to cold as they grow up. It can be associated with hypothyroidism, raynauds and EDS.

It's caused by vascular restriction in response to the cold and is also what I get with my CRPS when the temperature in my affected leg drops too low.

It's fairly common, being more obvious in chidren who have particularly pale skin.

LeonieDelt Wed 24-Apr-13 17:42:46

I have it on my upper arms, but they remain purple all the time unless heated up in the shower, or sunburnt (like yesterday omg).

They just tested her thyroid and it came back "normal" - i need the numbers. Am waiting on them in the post.

DD1's hands are always cold. Always. I dont know that i have ever felt them warm. Her feet are similar.

DD1 is also spectacularly bendy - her elbows go too far, her feet are flat..

I also have Reynaud's, exacerbated by my propranolol and my underactive thyroid...

I also am spectacularly bendy, for someone of 37, and my thumbs go too far, knees go too far...

lots of connections here. Thank you Moose.

LeonieDelt Wed 24-Apr-13 17:44:21

interestingly, they also sent off chromosome testing and fragile X testing - though i have no idea how long it will take to find out results.

I have to say, i dont remember her legs looking like this before this cold winter.

Her pulses in her feet are nice and strong, and the purplish-ness almost fades away when she gets her heart pumping. It becomes very purple when she sits at a desk for a while.

coff33pot Thu 25-Apr-13 11:47:50

Eldest DD has Acrocyanosis. Her legs and arms and feet are mottled. She was told it was a circulatory issue.

If she stands too long you can see the mottled appearance appear before your eyes.

coff33pot Thu 25-Apr-13 11:58:58

oh and propranolol made it a lot worse for her too! along with pins and needles in her arms and legs but not pain.

Dd has this in her feet - she has Postural Tachycardia Syndrome linked with Ehlers Danlos, and this is part of it. Blood pools in her feet as her veins are too stretchy (v. simplistic explanation). She needs to pump her feet up and down to get her circulation going before she stands up to try to avoid fainting.

LeonieDelt Thu 25-Apr-13 18:35:20

very interesting!

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