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Psoriasis - help

(33 Posts)
GooseyLoosey Wed 23-Jan-13 08:37:02

Dd is 8 and has been diagnosed as having psoriasis. She is becomming increasingly upset about it as she feels it looks unsightly and there are 2 little patches on her face now. She cries every night about it.

What can I do. I took her to a consultant who prescribed vitamin E creams. They make no difference. Hydrocortisone creams do help but everyone says she should not use them for more than a day or so. I have used every emolient known to man. She takes oral vitamin E.

The consultant says she is too young for a light box and because her skin is very fair, says that should be a last resort any way.

Nothing is helping and I feel I am letting her down. The psoriasis is spreading and there seems to be nothing at all I can do. Does anyone have any suggestions at all?

ThedementedPenguin Wed 23-Jan-13 08:41:20

I have two patches of this on my elbows. Honestly I've tried loads of creams and nothings worked for me.

Although I do find that sunshine clears it up pretty well.

I find they only use the light box as a very last resort. I'm from N.I and here they are so strict about it. My mum got referred and was told that if she sat outside in the sun or got burnt then this would be cancelled and she would not be referred again.

FergusSingsTheBlues Wed 23-Jan-13 08:57:32

Hi, after suffering terribly for two years, i cleared my psoriasis using a juice fast. My body was 90% covered and i was virtually unable to walk, bend down etc. Ok, i lost three stone and looked dreadful, but the weight went back on. I juive fasted for six weeks and about a month after i finished, it cleared up. Im not advocating such a drastic idea for kids, but you should consider diet.

Avoid
Nightshades (aubergine, tomato, potatoe, red peppers
Processes foods, feed your daughter a clean a diet as possible. Replace sweets and crisps with dried fruit and nuts
Eat plenty strawberries and advocadoes
Sleep. Stress is a big link. I think mine was triggered by a traumatic birth.
Fresh carrot juice, also v cleansing.
Vitamin d drops. You can get this from amazon.
Apple cider vinegar can do an awful lot of good, make sure you get e organic stuff with the "mother".
Plenty waterand lemon, also v cleansing.
Topically, i ordered shea butter fron amazon. You can get a kilo of it (dont bother with the pretty wee boxes, you need the big plastic tub). Melt and rub in daily to the lesions, its amazingly healing.

Re conventional treatments, your choices are limited. I refused light treatment as we have a family history of skin cancer and im as white as can be. Steroids, coal tar and methoxotrate are all hard on the body, and methoxotrate is actually chemotherapy which really put me off. In my case, steriods just dampened down the symptoms for a couple of weeks, id keep a tube for big events if you need to look ok for a wedding, for example, but its a very short term solution.

I am pregnant now and can see bits of it coming back again, but my diet has been truly appalling; im not freaking about it though because I now exactly what to do to fix it and will get on with it as soon as i stop breastfeeding.

Good luck.

GooseyLoosey Wed 23-Jan-13 09:45:10

Should have said vitamin D creams not E, sorry.

Will try some of the dietary things - thanks. Problem is that she loves tomatoes and red peppers. She eats tomatoes like sweets and I'm not sure that she would give them up.

GP suggested coal tar, but know it is a known carcinogen so quite reluctant to use it.

Maybe sleep is an issue. She is in bed for 10 1/2 hours but I think she lies awake for much of the time. When the alarms go off in the morning, she is always already up, dressed and bed made so she is clearly not sleeping. Don't know how to get her to sleep more though.

FergusSingsTheBlues Wed 23-Jan-13 10:54:23

Seriously, my favourite foods are tomatoes, grapefruits and red peppers...i probably used to eat them every day, but that adds weight to the diet theory IMO. I lived on gazpacho for a couple of months to lose baby weight and the psoriasis really hit me hard, I bet it would be worth

FergusSingsTheBlues Wed 23-Jan-13 10:58:33

..Cutting them out for a couple of months. I used to tell myself that all the food in the world would still be there to enjoy when the P had gone, that really helped.

Having it reach your face is dreadful. I was inconsolable. God knows how it must feel for an eight year old. Shea buttee will help.

Re sleep, yoga or some other physical activity before bed oerhaps?

FergusSingsTheBlues Wed 23-Jan-13 11:01:09

pS. Theres a really good book by a man called Pagano. "healing Psoriasis".

mine weirdly cleared up when i started using dead sea magic bath salt, got some for xmas and was really not expecting that, i just like bath salt. And my cracked heels healed up! Maybe worth a try?

GooseyLoosey Wed 23-Jan-13 11:42:03

Thanks Stairs - at this point I would try almost anything and can't see that it could do any harm. Will see if I can get something.

GooseyLoosey Wed 23-Jan-13 12:23:09

Bump for the lunch time crowd. Any suggestions?

its 5.99 on amazon with free postage so not huge investment. Hope you Get a result like i did :-) x

SureFineWhatever Wed 23-Jan-13 22:42:02

I'm sorry for your DD, I got psoriasis from about 10yo, quite severely. It is very difficult at such a young age. Every morning as I woke up I made a wish that it had magically disappeared overnight; sadly that never happened.

I'm 30 now and have had periods when it has almost entirely cleared, and other times when it has flared severely. Obviously winters are the worst, and even with a relatively small amount of sun exposure in spring and summer improves it dramatically.

In recent months, I've overhauled my eating and diet (switched to very low carbohydrate, moderate protein and high fat) and, funnily enough, my psoriasis is the absolute best it has ever been!

Obviously I am not advocating a lowcarb diet for your daughter, but I would strongly recommend you ensure she has adequate fats every day. I have been on a diet for as long as I can remember, and have avoided dietary fat of all sorts for years. Adding a decent amount of fats back in to my diet has improved my overall health, and has all but cleared up my skin. Oils (preferably olive and coconut), and most importantly good sources of animal fat (fattier, more gelatinous cuts of meat, and butter) are great.

Another thing to try is supplementing with gelatin. A teaspoon of gelatin (the stuff you get in the baking section is fine) in a hot or warm drink is amazing for skin. Also the obvious supplements like Vit D and a zinc or Hair Skin Nails complex are good too; you might like to ask your daughters doctor about supplements she can take at her age.

There is a lot of reading out there about fat versus carbohydrate based diets; a quick Google of the primal diet would be a good start. Mark's Daily Apple is fantastic.

GooseyLoosey Thu 24-Jan-13 10:29:20

Thanks Sure. At the moment, she can't imagine it ever clearning up and it is the first time I have not been able to make things better for her. I feel so frustrasted.

berryfreeze Thu 24-Jan-13 11:10:19

Hi your poor daughter I have had it for the past 30 yrs and it is awful, though mainly on face it has been ok, I think because I always moisturize, a few ideas Elizabeth Arden 8hr cream is supposed to be quite good, Dr Hauskua rose day cream(they did do little samples) ,I was using Epaderm Ointment last year( emollient bath additive and skin cleanser) and found that really helped, the thing is when the weather gets better it will clear up, but also be careful of any throat infections or tonsilitis that can always make it worse.

GooseyLoosey Thu 24-Jan-13 13:17:19

Thanks Berry - it is good know know at least itwill probably improve in spring.

Saw GP today and he suggests trying Cold Tar creams on the worst bit for a while.

berryfreeze Thu 24-Jan-13 16:12:19

Goosey just be a bit careful with coal tar cream on face, some of them are very strong and van be an irritant on eyes and throat, if it is overcounter check with pharmacist first, and make sure it is a very mild one, I had a very strong one mixed with a steroid cream which was great for body and but could not use on face, even.thr times I have used the polytar shampoo it has been quite strong, I hope it clears up for her very soon, I have managed to live with it now, but for a young girl it must be hard.

berryfreeze Thu 24-Jan-13 16:14:52

Also be careful going out in the sun with coal tar as it is light sensitive

GooseyLoosey Fri 25-Jan-13 10:15:45

Thanks again - had no idea coal tar was affected by the light. Think its very mild as GP spent a long time lookin at what might be appropiate fot a young child. He waned toavoid anything with steroids in. Thanks for taking the time to talk to me.

Sunworshipper Tue 29-Jan-13 09:30:50

Goosey I'm sorry to hear your dd is struggling. I can't recommend anything for the physical symptoms but as someone who has personal experience of living with an unusual appearance I can recommend contacting Changing Faces to build up her self-confidence. Their children and families service is brilliant and can support you and your daughter through this experience and how she feels about it. They have lots of practical advice too from what to say if someone asks a question or how to deal with staring.

SilverBaubles33 Tue 29-Jan-13 09:46:16

You sound like a really lovely mum. Poor girl, it's horrible for her.

Totally agree with fergus re diet. Try googling 'green smoothies' they changed everything for my skin. One for breakfast, you can whack in all sorts of good stuff, avocado, coconut oil, etc and she won't taste them.

Topically, I'm finding Neals Yard Rose wild rose beauty balm really soothing and reduces redness and itching. Also smells gorgeous, not cheap but she won't smell like a melting road and it can be a social treat rather than something shameful and unpleasant.

Please don't feel alarmed as you sound very on top of things, do watch out for signs of depression. Maybe role playing some responses to ignorant or hurtful reactions will make her feel less powerless.

Avoiding gluten has also worked miracles for me.

Feel free to PM if you want to offload; it's distressing for all concerned and you have my sympathy and very best wishes.

SilverBaubles33 Tue 29-Jan-13 09:47:16

*special treat, not 'social'!

nightcat Tue 29-Jan-13 10:12:06

Goosey, have you considered gluten sensitivity? There are publications that link gluten to psoriasis, eg:
here

GooseyLoosey Tue 29-Jan-13 11:31:49

I hadn't considered gluten sensitivities at all - I thought it was genetic rather than dietary, however I shall certainly do so now.

She has big cracked patches on her eye lids and the creams I can use there are so limited.

Will go and look in Neal's Yard. At the moment, I think I would spend my last penny on this. Know it's trivial as things go, but not to dd.

Thanks all. Any more suggestions gratefully received.

nightcat Tue 29-Jan-13 13:21:29

well, susceptibility to gluten problems can be genetic, but symptoms can be many, varied and complex

SilverBaubles33 Tue 29-Jan-13 17:23:17

No it's really not trivial, it made my life utter hell, but you sound so proactive and engaged I really think she will be ok. The NY stuff smells divine; I found the tar creams really pungent.

I think there's a big link with diet, but not enough research done sadly. The green smoothies really cleared up my skin, can't remember exactly what I put in them but let me know if you want to pursue ut an I'll look it up. Google 'green smoothies psoraisis' there are also some online forums sharing experiences.

Gentle washing powder, natural materials all that stuff in sure you're already on top of it.

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