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Support needed wheezy baby

(31 Posts)
charitymum Thu 03-Jan-13 00:27:20

Waiting for doc. Had week of DS with viral wheeze. He's on steroids and inhaler. He is five months and had slight chesty issues since birth.

Breathing now faster-50 and very flemmy and cough. Tug under chin. Sleeping from drive but been nightmare for let few hours constantly agitating and coughing and wheezing.

Very scared for my DS. Need some tlc and any thoughts from people who have more experience than me.

gussiegrips Sat 05-Jan-13 18:55:42

Three kids, two of them asthmatic.

Middley got RSV and bronchiolitis at about 10 weeks old, was very poorly indeed for about a week. He's got brittle asthma - the kind where you get very poorly very quickly.

The chronic management is excellent, he's as active as any of his peers and totally symptom free.

The acute management is guff - if he gets a virus his lungs just seize up. And, 7 year old boys get a lot of viruses. Happily, we live 20 mins away from the Sick Kids - and the treatment is very effective. We're usually in for two or three nights, then home on a protocol because us sensible calm mum's can cope!

It is the most terrifying thing, particularly when they are so small. It's way more scary than blood and guts - but, you get used to it and it becomes predictable after a while.

Most kids grow out of it, mine's certainly now never as poorly as he was when he was tiny.

Having said all that - 4 kids a day die of asthma in the UK. These are the kids who aren't spotted as struggling, it can be quite subtle and easy to miss if you don't know what you are looking for. The treatments are absolutely brilliant, but if they get help late, well, outcomes aren't so good.

So, I am absolutely compliant with his meds, and he's very au fait with what he should be doing. School have been great, make sure he's doing his inhalers but without making him feel like there's Something Wrong With Him.

We're in it for the long haul too - but, on the upside, the treatment works, the treatments are practically side effect free, once the drug balance is right they are symptom free, everyone knows about asthma, and we are lucky enough to live somewhere where help is available and free.

If I'm feeling despondent on a noisy ward, having yet another sleepless night, that makes me count my blessings.

Look after yourself and get some rest. Another two or three days and you'll be right as rain - but, if you are worried, go straight back to A+E.

x

charitymum Sat 05-Jan-13 13:42:13

Thanks gussiegrips. It is scary. Mum of 4 - dealt with loads but watching such a little one struggling for breath horrid. What is situation with your little one?

They have just let us go home again as he held sats at 95 without 02 for couple of hours and apparently "I'm a sensible calm mum". Ha ha ha.

He's noisily asleep but relatively peaceful. I think I just have to steal myself for the longhaul as this been a weakness since birth.

gussiegrips Sat 05-Jan-13 01:38:40

Sorry to have missed your post, really, really sorry.

First of all - relax.

The littlies who have real problems are the ones without an oximeter reading what their sats are at.

What might, possibly, perhaps, happen is that you need a second line of defence - more steroids, more antibiotics, a bit of magnesium, a bit of supplementary feeding...all of which WILL happen in hospital, should you need it.

Seriously. Try and relax.

Don't ask just MN for advice. You are sitting on a ward. Tell your named nurse that you feel a bit wobbly with this situation - that would be a normal reaction to a very stressful situation. You are not an inexperienced mum with a PFB, you've dealt with poorly babies - but not like this. It is the ward's JOB to look after you too, keep you informed and up to date.

What I am saying is, ask MN for stuff. But, don't let the ward staff assume you now waht's goinjg on - I'm an old hand at this (worse luck~) and the truth is, ask and you get.

speaking of which, hv e you eaten?

You gotta look after yourself - no other bugger will.

--apart from us, but keep it quiet-

<hug>

Sirzy Fri 04-Jan-13 08:21:40

That's quite normal for things to get worse before they get better. Try not to worry the oxygen will give his body the extra support it needs to recover

TheTiger Fri 04-Jan-13 08:21:12

Sounds like bronchiolitis, it tends to get worse between days 4-7 and then improve, but the coughing and runny nose etc can last a couple of weeks!

Is his cot tilted upright? Is he having saline nebulisers? He should be feeding little and often, not taking big feeds to fill his tummy as it puts extra pressure on the lungs.

It's a horrible illness, but he will get better! Get someone to bring you some supplies to make your stay a little conifer, hope he gets better soon.

charitymum Fri 04-Jan-13 08:12:37

They let us take him home yesterday but I took him back middle of night as he was having to work too hard.sats of 95 on admission but dropped to 80 at 4. Now low 90s with 02. Help

That's great news, charity

Our follow up care has been fantastic. Most kids grow out of it, certainly, mine's now 7 and copes really well.

For all the buzz and bustle, hospitals are really lonely places in my experience. Hope you get home soon and the resp specialist is to your liking.

But, between times, if you are not happy, take him up again. It'll be a breeze next time.
x

Sirzy Thu 03-Jan-13 14:32:02

Glad they are doing the follow up so quickly. Hope he is better soon

charitymum Thu 03-Jan-13 13:27:10

Thanks so much. My children's paediatrician happened to be consultant on rounds and I was so relieved to see him I almost hugged him.

Keeping us in til his sats rise but not giving him O2 at moment. On antibiotics just in case bacterial. He's lost his voice poor thing-keeps babbling but nothing comes out and he looks slightly confused,

Feeding though so that a comfort.

Then when allowed out referred to
Bromptom for follow up with respiratory specialist.

Thought I'd seen lots of a and e dept with oldest three-this DS bearing them all!

Thanks so much.

To be honest, charity, I wouldn't worry now.

The dangerous time for wheezy kids is before they get treatment. Once steroids have started and they are on the neb/inhaler protocol they WILL improve. And, you'll know they are improving because the oxygen readings will change.

Sats sound ok, and if feeding - well, that's brilliant.

I found it a struggle to get information about what was going on the first few times middley was admitted. They are reluctant to label kids with asthma - you get "viral induced wheeze" until there's enough of a pattern to say whether this is going to be an ongoing drama. Once diagnosed, you'll get access to an asthma nurse, with whom you'll fall slightly in love.

Why don't you tell the named nurse that you don't understand what the numbers are, what the prognosis is and you are concerned incase there's a pneumonia?

To be honest, seeing kids like yours is the bread and butter work of a medical ward. They have truckloads of them coming in and out every three days - and, when it's a new situation for a parent it's easy for the staff to forget that they don't know what's going on.

I feel for you, the first time my middley did this was the singlemost terrifying experience of my life.

Sounds like things are improving. Glad you are on the ward. Go and ask a nurse what's going on, and then get off the ward. There's probably somewhere you can have a shower, a cup of tea and have a right good cry.

<hug>

lisad123everybodydancenow Thu 03-Jan-13 10:04:01

Message withdrawn at poster's request.

TheSecondComing Thu 03-Jan-13 10:00:11

Message withdrawn at poster's request.

Sirzy Thu 03-Jan-13 09:59:37

Ideal is over 98, under about 91 is normally when they start oxygen.

hellhasnofurylikeahungrywoman Thu 03-Jan-13 09:57:31

Is he on oxygen?

charitymum Thu 03-Jan-13 09:56:46

Still at hospital. Will ask for x ray as he sounds so flemmy.

Sats go to 93 after neb. 95 during. Not sure what 'good' is

lisad123everybodydancenow Thu 03-Jan-13 09:47:00

Message withdrawn at poster's request.

Sirzy Thu 03-Jan-13 09:46:21

Sounds like bronchiolitis? Try not to worry to much, as scary as it all is he will be fine.

Are he sats coming back up after the neb? If not they may need to give some oxygen just to help him.

Hope he feels better soon

charitymum Thu 03-Jan-13 09:41:05

Been in hospital overnight. Sats 96
on entry; 89 this am; nebuliser given; breathing fast but colour good and generally happy when awake and feeding-less than normal but able to. Slight fever.

Help-how worried should I be? Been coughing for week and today 5th day of steroids. 4th child and none of others has anything like this.

Sirzy Thu 03-Jan-13 07:18:39

Hope he is ok now but please don't hesitate to go straight to a and e if it happen again

littlemiss06 Thu 03-Jan-13 01:34:24

It sounds like bronchiolitis to me hun I would take him straight to hospital, hope all is ok and hes soon better x

lisad123everybodydancenow Thu 03-Jan-13 00:50:42

Message withdrawn at poster's request.

That's good, the doc will have everything on hand to give him, and it's good that his breathing's settling a bit.

There's not mistaking the ghastly grey tone, so if his colour is good that's great.

Are you worried that he's going to become seriously unwell before the medic sees him?

You are in the right place, he'll get assessed and you'll know what you are dealing with. Their wee chests do perk up as quickly as they go downhill.

hang on in there.

hellhasnofurylikeahungrywoman Thu 03-Jan-13 00:42:25

If you're worried call an ambulance, they won't mind coming out to a wheezy baby.

charitymum Thu 03-Jan-13 00:41:46

Slight fever but only v slight

charitymum Thu 03-Jan-13 00:41:15

At ooh now waiting for doc. He is sleeping without being restless and colour good so these things good. But breathing fast, flemmy and looks like tug but I'm reluctant to move him.

If really bad colour would be worse and he wouldn't stay asleep yes? Also while breathing between 40-50 not racing at 60 like it has been.

He's had a crackle for last week which we have been managing. This though is flemmy we outwardly noisy.

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