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Precocious Puberty?

(91 Posts)
Aji Fri 12-Oct-12 21:11:16

Dd is 5, nearly 6. This summer I noticed that she was starting to sweat with "adult" body odour from her armpits.

Tonight she asked me about a hair in her bottom, and showed me what looks like a pubic hair.

I had a look on the internet (the term I found was "precocious puberty", which talks about signs of puberty in girls before 6-8 - www.nhs.uk/conditions/puberty/pages/complications.aspx) and am going to make a doctor's appointment for her next week. She is quite tall for her age.

I wanted to ask if anyone had also experienced this with their children, and how they dealt with it? Am worried sad.

MammyKaz Wed 19-Dec-12 15:32:37

I know I do panic when it comes to DD, I can't don't want to help it!

SELady I do try to be firm but I think I get a bit overwhelmed sometimes. Im going armed with a list of questions to our follow up. Good for you though! I wondered whether the consultant had said they would scan adrenals & if that was before the test results. If adrenals aren't showing any abnormal activity then I guess there's no need.....? One to keep in the bag for later?

Aji that is great news for you, it is a weight off to start getting information. Hope next lot of results are equally positive.

AMum you're right to give Dr Google a wide berth. He's a right scare mongerer (sp?!) So glad you'll have more answers tomorrow. I'm one to talk but do try not to worry too much, i know the mention of tumours is terrifying. You could try pushing tomorrow for an ultrasound same day (if you've a morning apt), that should show any growths. My consultant did say if she was extremely concerned (!!) she could call through & send us right down. But you will start getting some answers now. Will be thinking of you x

AMumGoingMad Thu 20-Dec-12 20:53:01

We saw an endocrine consultant today. She was lovely and explained everything to us. After examining dd and looking at the results of the tests done at the local hospital she felt that dd is going through true puberty but that she needs to do more tests to confirm it and give us a diagnosis. She is doing an ultrasound scan and a mri scan to rule out anything scary plus to help diagnose. She's doing more blood tests which require dd to be in the hospital for half a day for bloods to be taken at intervals. She also wants a 24hour urine sample. She said that once she's got all the results back she'll call us and talk it all through. She also discussed treatment options with us if the tests confirm precocious puberty which seems to be hormone injections until dd is 11. She is concerned that we need to preserve dd's height which apparently is at risk. She also felt that given dd's behaviour even in the appointment (very teenager withdrawn type behaviour, grunting and huffing and puffing at questions / requests, reading her book and not interacting) that dd needs treatment to get her emotions back in check. I would support that! So no real answers yet but in the pipeline for all the final diagnostic tests which I'm happy with for now.

MammyKaz Thu 20-Dec-12 21:35:59

AMum it's great that you're getting closer to your answers but I really feel for you & your DD. Hopefully you can start to properly deal with things & get any more support that you need. The next tests sound like they'll be tough on DD sad.
I'm sure you don't need to hear it but well done for all your persistence, you're doing right by your DD. I'm sure with all the love & support you're giving her she'll deal with it all.
Dont forget to take care of yourself too x

AMumGoingMad Fri 11-Jan-13 15:04:36

Bumping up for NoMoreMarbles.

How is everyone? We're still dealing with the major attitude which is doing my head in. I tell you I'm not cut out for this parenting a mini-teenager lark, the attitude stinks and my fuse is being burned shorter and shorter each day.

My dd had her ultrasound scan today. She totally freaked out at the beginning, I have no idea why. We had to get her to calm down and stop crying before the lady could do the scan. Anyway the lady didn't give any ideas at all on what she could see. She spent ages on the left adrenal gland, I actually wondered if she couldn't find it but hey, I'm surprised they have any idea of what they're looking at on those scans LOL! More specialist bloods in 10 days and a MRI scan at the end of the month and then all results back mid Feb.

MammyKaz Fri 11-Jan-13 17:05:18

Hi AMum & everyone
AMum - I bet the moods are tough going. Poor thing is probably totally confused too. I've no suggestions to cope I'm afraid, lots of breathing!?! Apparently the adrenals are quite hard to identify due to size & location so that could explain the extra time on the left. Hope she copes with the rest of the tests, I guess the MRI will be a bit scary for her. Luckily DD loves playing doctor so it's a bit of a game for her ........for now....

We've had another consultant apt. So ultrasound & urine are completely normal, endo is presuming premature pubarche at this point but we're having the hormone stimulation test next week. Feeling hugely relieved (damn you Dr Google for inducing panic!) but still not happy that she's having these symptoms sad.

SELady have you progressed any? Was just wondering (if its not prying too much) why/how your consultant agreed to MRI?

MammyKaz Fri 11-Jan-13 17:12:14

Meant to add that endo indicated if it is premature pubarche DD is susceptible to develop PCOS later. I'm borderline PCOS & because I'm not overweight have stayed on the right side, but I was always a chubby child. DD isn't really chubby now, in proportion but solid, but she was a very chubby baby.

mooliebear Wed 16-Jan-13 22:27:44

Hi everyone,
I fell a bit cheeky coming back on after not posting for nearly 2 months blush
We saw the paediatrician last week,during the examination she said that she did not think there was significant breast development but has concerns as she has definite pubic hair and inflammation of the vulva. Combined with body odour, aching bones, growth spurt and emotional, she is sending her for some tests, she had a bone age xray today and next week, she is having an LHRH test and baseline bloods, then an ultrasound of her kidneys and pelvis.
Her height and weight are in the 91st centile, which to honest, I don't really get.
She discussed it could be Adrenarche or Precocious puberty but will wait to discuss it any further, until all the results come back, so about a 6 week wait now. She did say that as she is only six and if it was true precocious puberty, intervention to prevent progression would be immediate.
DD has been a nightmare the last few weeks, so so emotional, crying one minute, screaming the next, its a nightmare as she is the eldest, I have nothing to compare it with.

AMumGoingMad Sun 20-Jan-13 18:43:58

mooliebear Glad that you are getting somewhere now as well. The emotional side is what we're stuggling with most as well. My dd is my eldest as well so like you I have nothing to compare to other than her twin brother who has emotional delay so at 6 currently going through terrible 2's! Its a barrel of laughs in this house sometimes lol!
This weekend we recieved the letter from the endocrine consultant outlining the clinic appointment we had just before Christmas. She says that on examination dd appears to be going through puberty and has breast development at Tanner stage 2 and hair development at tanner stage 3. She says in the letter that assuming the ultrasound confirms uterus and ovary development then she would recommend immediate intervention with some hormone (name I can't remember) because dd is only 6. She also says that biochemically she may not see puberty occuring but that it is not uncommon to get a false negative for the blood tests. I don't fully understand that tbh but I trust this consultant with what she is doing and I'll get her to explain to me if need be in Feb when we next see her. DD has all her blood tests tomorrow and needs to be in for half a day. I hope that she's ok with them, she freaked out with the ones done at the local hospital.

Aji Sun 20-Jan-13 22:50:06

Oh AMum and mooliebear, big hug for you and your dds.

Good news so far Mammykaz - hope that the rest of the tests come back as normal. I know what you mean though, it's hard not to worry even when the results are good.

Dd had her consultant appointment last week, and the blood and urine tests have come back as normal. He thinks it's increased sensitivity to the hormones, but not true precocious puberty (yay!). He says he'll see her in 4 months' time, then maybe twice a year until she's 8. After that, any signs of puberty would be classed on the young end of the normal spectrum.

It's a big relief, although I'm still inclined to worry. Dd has been a star throughout the process. I hope she doesn't get picked on for her body odour (only noticeable in summer), the consultant recommended just using a normal deodorant if it becomes obvious.

Harumff Fri 01-Feb-13 09:29:58

Hi all, sorry if this has already been mentioned as I haven't read every post but have any of your DC been sent for a MRI of their brain?
My neice who just turned 8, went to see a consultant last week as she has definite breasts and some pubic hair. She also has some behavioural issues which is potentially ASD though people seem to keep changing their mind about that.
Anyway, she had an X-ray of her hand last week and the consultant has called today to say he's sending an apt for an MRI to rule out a pituitary tumour - is this normal procedure? Really pleased they're taking it seriously and know that tumours are rare so hoping they're just being on the safe side...

AMumGoingMad Fri 01-Feb-13 15:43:17

Harumff Yes, my dd went for an MRI scan on Wednesday. The consultant said it was protocol for that hospital for all girls under 8 with suspected precocious puberty. She also said she has rarely seen a pituitary tumour but because its a possibility the MRI scan must be done to rule it out.

Harumff Fri 01-Feb-13 15:51:01

That's reassuring to hear, thank you.

MammyKaz Thu 07-Feb-13 14:09:04

aMum that's sad news but at least they can now start to deal with things & hopefully your DD will respond quickly to treatment. Worrying nonetheless sad. But a scientist friend was very reassuring about the effectiveness of the treatment, not her area of expertise but she knows a couple of women that have had early puberty treatment & another growth hormone treatment.

Aji that's great news. We've just had the same news from our consultant: premature Adrenarche. As DD is so young they'll monitor every 2-3 months for now, there's still the concern it can develop into early puberty. I don't feel any real relief at the news but thankful theres not something very scary going on.

AMumGoingMad Mon 18-Feb-13 20:55:46

We got the official diagnosis today, central precocious puberty. I knew it was coming but feeling a little weepy tonight. Due to her age, height and emotional well being the consultant recommended she start on hormone therapy asap. We have decided to go with her recommendation. So until dd is 12 she will have slow release implants under local anesthetic every 10 weeks and 3 monthly monitoring of symptoms, height and weight. I've worked it out and with her other issues she's going to average 1 hospital appointment every 3 weeks although the consultant thinks some of her other problems will self correct with the hormone treatment which would be brilliant.
I'm feeling very sad for ds over all this tonight. She's been very withdrawn this afternoon over it. Hopefully time will help her.

tangledupinpoo Mon 18-Feb-13 23:36:30

Amum hope you are ok tonight after your news today. I can imagine you must feel very shocked and the 'official' news will take a while to get used to. Thinking of you.

I hope you don't mind me chipping in to your thread. I clicked on the title because precocious puberty is a condition associated with one of my children's syndrome, but it turned out it wasn't to do with his condition.

But, my DS1 has a growth syndrome and I've had lots of help and support over the years from the Child Growth Foundation. They include Precocious Puberty along with a condition called Premature Sexual Maturation (PSM) as one of the ones they help with.

The URL is www.childgrowthfoundation.org (hope I've done that link right!). On their home page is a 'contact us' button with the helpline number. I'm sure they would be able to help with things like best practice for treatment etc.

Their message boards used to be really busy (and honestly, a lifesaver. My son's condition is quite rare and just to get a few parents together, the experienced ones with the newbies, on the same page and helping each other was amazing.) I think they now have support groups on Facebook as well and I'm not on that, but I think they are quite busy.

Anyway, will stop butting in now but I hope maybe the CGF might be able to help you, if you feel you need it!

alwaysworriedtoo Tue 19-Feb-13 20:17:46

Amumgoingmad. Big hugs. At least now you know that something can be done to help and you have done the right thing by following everything up. I hope that everything goes ok with the hormone therapy.

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