Has your child ever been referred for bowel issues?

[DanceInTheDark]

And if so, how long did it take?

DS2 been referred for investigation for soiling issues that are not behavioural. They want him to be seen by a surgeon :(

[meltedmarsbars]

Yes, not long, but she has a Paed for other issues already.

Btw she got passed from pillar to post to try and get enemas done!

Have you tired all the usual movicol, etc?

[DanceInTheDark]

Been back and to to the Drs since he was born - he is 5.5 now. He was referred by a Paed we were seeing for behaviour concerns. That was a couple of months ago now.

He has had lactulose as well as movicol - not together lol! and it's not a behaviour thing. He is currently being assessed for ASD.

[meltedmarsbars]

We do both Lactulose and movicol together! They work on the system in different ways. Then when that doesn't work, dulcolax, then micolax, then phosphate enemas.....

It all depends on what the reason is - in our case its lack of muscle movement and control.

Have you also tried posting this in SN board - I think you'd get lots more help there. It seems bowel problems are quite common in children with asd-type ishoos.

[arentfanny]

Yes, we have been seeing a paed since April, she has been on medication for over a year, things are not improving but they won't explore whether it is behvaioural or physical, just seem to not be bothered

[meltedmarsbars]

Can you feel a lump or blockage when you manipulate his tummy? We had to investigate rectally - actually, we could see it there but she couldn't get it out when it was really bad.

[DanceInTheDark]

He is too tickly loL!

The paed has felt a blockage each time he had a feel. It's not that he needs help softening it, it's as if he doesn't get the sensation to go and that he can't go when he needs to and he doesn't notice when he has. Does that make sense?

TMI alert: It's MASSIVE when it comes out, DH took him to his last appt and they looked at the poo pictures (bristol stool scale) and his is of the not normal kind - i could have told them that

[DanceInTheDark]

I'm not abandoning the thread - i have a massive headache and need my bed.

[meltedmarsbars]

Sounds like its too hard and big so the soiling could be bypass.

Nite-nite, hope head is better tomorrow.

[EColi]

My dd is under a paed gastroenterologist and a paed colo-rectal surgeon. She is 7 and has had problems with soiling for ever.. She's had x rays, motility testing, blood (allergy and inflammation markers) tests and today she had an MRI to rule out structural abnormality. For a long time they were working on the principle that there was an underlying constipation causing her megacolon so she was on a large dose of movicol and sodim picasulphate but after I handed her doctors a graph of her poos and accidents over the previous 3 months (most of the time when not medicated she has a huge type 5 each day but also soils 2 or 3 times ) they think it is either a neuropathy (can't feel when to poo) or an underlying connective tissue disorder). On the reassuring side they will not investigate her lack of sensation until she is at least 10 years old and they were not talking about operating on her. I was quite freaked when I was first told they wanted to refer her to a surgeon but he doesn't seem desperate to take a scapel to her yet.
Our referral got lost so can't comment on how long it takes, was 3 months after referral found that we had first clinic appointment..