I have to go dairy free :(

(61 Posts)
ElBombero Wed 23-Oct-13 15:28:14

I'm in the grieving process, after eliminating infection it's looking like my DS green mucousy stools are due to a CMPI.

No more chocolate, tea or coffee whilst feeding my boy. How can I get through Xmas? Throughout xfactor without chocolate? I know this sounds incredibly selfish but I am already egg, gluten and nut free sad

Gileswithachainsaw Wed 23-Oct-13 15:34:41

It's not selfish I think anyone would struggle on such a severely deprived diet.

Would a hypoallergenic formula not be an option. I only suggest this because on top of everything else, without a dietitian you could make yourself ill.

Gileswithachainsaw Wed 23-Oct-13 15:35:51

Can you not get yourself referred just to ensure that you are getting everything you need? X

ElBombero Wed 23-Oct-13 18:17:40

HV come around today who insisted I carry on with BF following a suggestion that I stop and he go on a lactose free formula. She stated that with my history of allergies breast feeding would be a great benefit to him. He's only 7 weeks old.

Just a bugger that his intolerance seems to be the only food group I'm ok with hmm

She is going to speak to a colleague and get me referred to a dietician.

I'm eating chocolate tonight then that's me (still on the upside might help me shift the weight)

bronya Wed 23-Oct-13 18:26:53

You can get dairy free chocolate. smile

Ooddoyouthinkyouare Wed 23-Oct-13 18:29:13

Booja booja chocolate ice cream saved me. But cheese I really miss.

Dietician just told me to take a calcium supplement so get one ASAP.

But ouch at the full diet restrictions.

ElBombero Wed 23-Oct-13 18:43:42

Thanks oodd, who sells that?

Awww noooooo hadnt even a thought to cheese sad

Oodisgonnagetya Wed 23-Oct-13 18:48:01

We got it at local health food shop.

Oodisgonnagetya Wed 23-Oct-13 18:48:46
Gileswithachainsaw Wed 23-Oct-13 18:48:59

Do not be afraid to push for formula op

Dairy on its own is easy to avoid. I've done it in cooking daily for two and a half years for dd2.

But that puts you up to four now and you do need to focus on yourself aswell. You have done so well!!!

KatherinaMinola Wed 23-Oct-13 18:52:15

Soya milk. Quite a few of the Lindt and Green and Blacks bars are dairy-free (and the best quality chocolate IMO). Alpro soya yoghurt is very nice indeed - blueberry and red cherry flavours especially. Swedish Glace ice cream (available in all supermarkets) is dairy free.

Cheese - hmm, bit of a problem. You can get soya cheese, but it's 'orrible. Still, it's only for a few months, eh?

kidinasweetshop Wed 23-Oct-13 18:58:07

Lindt 70% choc is both dairy and soya free. More than 50% of babies with CMPI have the same issue with soya so you may want to eliminate that too (check labels of things like bread, oat milk is good and Pure margarine). It's a pain but well worth it if you get a more settled baby - bear in mind it can take a couple of weeks aftee stopping dairy to see any changes as it takes a while to get out your system.

kidinasweetshop Wed 23-Oct-13 19:00:13

Gosh just re read about what you are already giving up. Def see a dietitian or find out about the prescription only hypoallergenic formulas

IndigoTea Wed 23-Oct-13 19:06:00

I'm very sorry for you - it is extremely extremely difficult! I was on a dairy free diet for a couple of weeks and it really was horrendous but after a couple of weeks it did get easier.

Have you seen the list of things you can eat? I know jammie dodgers was a life saver for me as a treat, and cheap biscuits. I think you should also get advice from a dietician too.

Soya was just as bad as dairy for us so I would be wary of using soya alternatives.

It's fucking hard! But temporary - that's how I coped.

IJustWoreMyTrenchcoat Wed 23-Oct-13 19:26:12

Your Health Visitor cannot 'insist' you carry on breastfeeding, he is your baby, you decide what is best for both of you (disclaimer- I am not saying to stop breastfeeding by any means, but you get to decide).

It would be really tough to cut so much from your diet so I would definitely get help from a dietician. My HV was going to refer me when we thought I might have to give up dairy because I am already veggie.

shelley72 Wed 23-Oct-13 19:38:14

I was dairy free whilst I fed my dd (about 2.5 years). I managed it, but then I didn't have your other restrictions sad. You can have dark chocolate (green and blacks for example). The ice cream mentioned above is sold by ocado if you use them - actually if you do, you can sort by dietary restrictions which is quite handy.

We were under the dietician and paediatrician at the hospital until she was 3, just to check that she was growing properly and that our diet wasn't lacking. I took calcium supplements at a high dose, as dd did when she went through a phase of not taking goats milk (she can't tolerate soya either).

But (and I say this as someone very pro BF) it is not up to your HV to tell you how to feed your baby. Only you can decide that. It is hard. But it can be done.

mamij Wed 23-Oct-13 19:46:19

It sounds awful going dairy free, but in reality it's not too bad. Yes, so minor adjustments to diet, but you hardly notice after a while.

I went dairy free with DD1 (13 months) and DD2 (16 months), and like others have said, most dark chocolates are ok (Booja Booja are lovely!), Rich Tea biscuits are dairy free, I switched to herbal teas as I didn't like coconut or soya milks in tea, started baking (Stork 250g is dairy free) if I wanted a treat.

there is no point in a lactose free formula if he is CMPI as it would still contain cows milk protein (lactose is the sugar in the milk). It would have to be a non-dairy formula rather than lactose free. Was your ds losing weight/not gaining as green poo doesnt always mean there is a problem?

ElBombero Wed 23-Oct-13 22:36:54

Thanks Ilocepower that's interesting.

My DS was having "normal" yellow creamy seedy poo's until 11 days ago when his stools became like an army green colour, mucousy at times, watery other times but very frequent at every feed. Not had a "normal nappy since", the green poo has caused a sore bum but getting better with metanium.

He's not losing weight but only put on 2oz last week, they said they expect about an oz a day weight gain. He is now on 25th centile (born on 50th)

His skin shows no sign of allergy, no eczema, he is generally settled (as long as he is ring held with lots of boob, but I wasn't concerned about this giving his age)

What do you all think?

ElBombero Wed 23-Oct-13 22:39:32

Mamij baking is out with my other allergies but very interesting about dark choc!!

IJustWoreMyTrenchcoat Wed 23-Oct-13 22:43:56

Oh, and my DN is lactose intolerant. I used to buy him loads of different 'free from' chocs. He declared a brand called Moo Free the best. Available on line and my local health food store sold it too. Unfortunately the free from brands are expensive though.

Likeaninjanow Thu 24-Oct-13 09:02:20

I know it seems really daunting, but it's doable if you want to carry on BF. My ds2 was allergic to everything you've listed & we BF for 2 years. Yes, I had to put a lot of thought into what I was eating, but I didn't lose lots of weight, and I stayed healthy. Lots of oily fish, green leaves, gluten free pasta, meat, veg & potato type meals.

Of course, if you don't want to, then you absolutely should push for formula.

ElBombero Thu 24-Oct-13 09:52:41

I want to feed him, I adore feeding him smile

LAF77 Thu 24-Oct-13 10:05:44

It isn't so bad going dairy free. I thought I would never be able to live without my favourite yoghurt and then I cut it out and didn't miss it! You may find your LO will start to tolerate some CMP in your body after a time.

Hypoallergenic formula is really rank smelling or so I've been told.

DS has atopic tendencies and with moderate reactions to dairy and egg white, but over time, he has been able to tolerate things with butter cooked in them.

Rummiwerewolfkub Thu 24-Oct-13 10:12:23

Oat milk is nice in tea. I had to go dairy and soy free for awhile. Supermarkets are much better at catering for specialist diets. Vegan cheese is quite tasty too. See what alternatives there are, then if it doesn't suit you maybe rethink breast feeding. (I am pro breast feeding, I sacrificed my well being for breast feeding, I don't think I would repeat that, happy mum means happy child IMHO, in hindsight)

Likeaninjanow Thu 24-Oct-13 10:45:32

Moo free chocolates are made with rice milk & are nice. Morrisons do gorgeous dairy free chocolate caramels too. It can be done, with some planning. Good luck smile

Likeaninjanow Thu 24-Oct-13 10:49:48

I think they're called Choices dairy free caramels. Whole family lives them!

48th Thu 24-Oct-13 11:06:45

Op get better information before you decide what to do.

Your hv is confusing cmpi with lactose intolerance and if your baby has had an infection then 11 days isn't long enough for gut health to be restored.

After a GI bug babies often get a temporary form of lactose intolerance which gives green poo, this can take 2-3 weeks to resolve (some mums find coleif helps)

Weight gain for a bf baby averages at 4-7oz per week but is rarely consistent week by week and a bug like cmpi can impact on gain.

There are milk, chocolate, ice cream, butter replacement products which make dairy free easier than it once was but in view of your circumstances and understandable lack of enthusiasm for this option it makes sense to speak to people with a better understanding of allergies and bf. an ibclc might help, paediatrics etc

BinarySolo Thu 24-Oct-13 11:14:15

Dairy free's not too bad. Try the post punk kitchen for recipes. It's a vegan website. The chocolate pumpkin loaf if amazing. Mmmm, might have to make some myself actually.

Watch out for milk in flavourings - crisps, noodles etc and in cereals. Many dark chocolates are dairy free. Alpro dark chocolate yoghurt things are yummy.

hettienne Thu 24-Oct-13 12:14:37

I wouldn't cut out a whole food group based on 11 days of funny nappies and a one centile drop - sounds like your HV has jumped the gun a bit?

48th has some good advice. You cutting out dairy or putting your baby on a synthetic formula sounds a bit premature to me.

bigwellyfucker Thu 24-Oct-13 12:15:29

I think you could trial a dairy restricted diet but green poo is very normal in a newborn - mucousy too, iften from wind ingested when feeding. I'd recommend getting your latch checked too.

I have two DD, both BF, both had yuk napoies. Only the oldest is dairy and soya intolerant.

Sunnysummer Thu 24-Oct-13 12:23:30

We tried dairy and soy free and also the hypoallergenic formula, and were glad that we kept good records as neither helped. Our paediatrician said that while CMPI is absolutely a real thing, the latest research suggests that it is currently over diagnosed - as it takes 3 weeks to be totally milk protein free, but also that long for most feeding or other problems to resolve themselves.

Green poos is usually sugar issues due to a foremilk imbalance or lactose intolerance (which is totally unrelated to CMPI, as the lactose is an intrinsic part of breast milk no matter what the diet).

If going off dairy and soy does help then do make sure you do another check, in case it was just that time fixed the problem - and given all the other dietary restrictions it definitely sounds like you need a referral to a dietitian if you want to go ahead with it all in the long term! Good luck

BeansAndCheese Thu 24-Oct-13 12:29:18

I agree to be cautious before cutting out dairy. My lo had green poos and copious amounts of it. No ever suggested dairy intolerance. I carried on as normak . her weight gain was dire but picked up after I started weaning (when I introduced butter milk cheese etc). She improved a lot and went from off the charts to the 25% in 3months. Is it possible you have an oversupply. It can help if you make them stay on one breast longer to make sure they get enough hind milk. I mention it because my HV didn't know anything about it. Have you spoken to a lactation consultant?

nosleeptillbedtime Thu 24-Oct-13 12:29:39

My paed reckons the hypo allergic formula is better than bf for kids with intolerances. Maybe you could ask for a referral to a paed? I have suffered with a limited diet whilst bf and it is awful. Your Son is an ideal age to get on formula. It I'll be much harder/ imposs as he gets older. Ver very difficult to do past three months. What I love says is not true. The cowsmilk is o broken down in this formula that it doesn't trigger a reaction.

nosleeptillbedtime Thu 24-Oct-13 12:33:50

Read your further post and oesn't sound like cmpi to me. My ds was screaming in pain at feeding! I would speak to a different hcp if I were you, such as a gp.

what do you mean what I said is not true? Lactose is in all milks including breastmilk (as it is the sugar in the milk) so if the problem is with cows milk protein then the lactose free formula will still contain the cows milk protein so will not help at all. A dairy free/hypoallergenic formula would be needed rather than lactose free

fanjobiscuits Thu 24-Oct-13 13:21:59

Booja booja chocolates are DELICIOUS

although it may not be CMPI at all if he has no other symptoms other than green poo - the links I gave above give other reasons for green poo and it is not always food intolerance

May09Bump Thu 24-Oct-13 13:23:55

go onto ocado - they have a great range of free from products. you can filter to specific allergens.

JohFlow Thu 24-Oct-13 14:12:33

Sounds like products marked 'vegan' would be the best way to go for your for now. These will eliminate most of your intolerances straight away. I am sure that you already read every label before buying.

I have been dairy free for 10 years (intolerant) and serve a dairy free diet to my DS (who has had full milk allergy since birth). Many people live without dairy and thankfully substitutes are very well developed. It is good that you have been referred to a dietician. They should be able to give you lists of substitute products, cookery ideas and many can prescribe dairy replacers and vitamin supplements for yourself and baby. They are also very good at discussing any anxieties you have about you/your baby being on a restricted diet. Cooking with diary free does sometimes require some trial and error e.g. if it gets too hot it can curdle.

Should you choose to go onto bottle feeding; they can prescribe Nutramigen/another formula for baby so that you can get it for free. Like LAF suggests the dairy free formulas tend to smell and taste different (Nutramigen is almost savoury in flavour) but it was a god send to me after 18 months of pukey baby and sleeplessness.

I think soy products are the closest match to cow's milk but oat milks are also available. Many soy products have some vitamin/calcium enrichment. The milks are all good in tea and coffee - so you can still get your caffeine fix!

These are worth a try...

Alpro soy milks, yoghurts, creams, milkshakes, custards etc (widely available and creamy)
Provamel soy (very yummy and have some interesting flavours)
Viva Soy
Holland and Barrett's own soya milk (often on manager's special)
Mark's and Spencer Soya Drink (top creaminess - lovely)
Benecol Dairy Free probiotic drinks
Vitalite Dairy Free Spread
Pure Diary Free Spread
Swedish Glace Ice cream
Freedom Ice Cream
Any Dairy Free Chocolate with Carob in (bitter and strong - great if you like you chocolate dark, but can also be mixed with milk substitutes).
Asda Dairy Free Buttons (closest to milk chocolate I have found)

Like another poster; I have not found a decent replacement for cheese though. I have tried a few brands but some can either taste very rubbery or chalky.

You can make decent food/ have nice snacks on dairy free - so please don't panic too much. If you need anything else just shout out.

BinarySolo Thu 24-Oct-13 16:12:19

Have you tried Bude Island cheese, JohFlow? The blue cheese is particularly good.

JohFlow Thu 24-Oct-13 16:24:54

No I haven't yet. Where can I get it from?

Katiebeau Thu 24-Oct-13 16:41:47

That cheese is the Tesco free from cheese range. It's not bad.

OP my DD had the same symptoms and it wasn't CMPA it was lactose intolerance.

Awful from BF perspective but easier diet wise now. Especially as she's gluten intolerant too.

Good luck OP.

Oh and Kinnertons do Dairy Free advent calendars but I'm not sure it's soya free.

BinarySolo Thu 24-Oct-13 16:51:34

I used to buy it from my local health food shop in Leicester. It's stocked by tesco but I've never seen it there

www.buteisland.com/a_suppliers.htm

crikeybadger Thu 24-Oct-13 20:37:27

I personally would seek a second opinion, as others have said green nappies are not always a problem if not accompanied by any other symptoms.

That said, do try the booja booja truffles, they are to die for, dairy free or notgrin

JohFlow Fri 25-Oct-13 09:46:38

Thanks for the cheese recommendation. Will be giving that a try. Would be nice to be able to offer my DS cheese on toast or proper pizza.

SeriouslySleepDeprived Fri 25-Oct-13 12:26:45

DS is dairy & soy allergy and had loads of symptoms other than the forest green nappies. He was super windy/farty, had patches of eczema, very mucusy sounding, reflux and a terrible sleeper.

I'm a coeliac so dairy, soy and gluten free and I have found that tough enough. I would really get a second opinion before eliminating any more out your diet.

HabitualLurker Fri 25-Oct-13 13:04:48

How's your LO getting on now?

I'm another voice saying you may be jumping the gun a little. It could just be an infection that's taking a little while to get over. My now 13mo had several incidences of the green frothies, each taking a few weeks to get over.

He's not CMPI and it had nothing to do with foremilk/hindmilk imbalance nonsense either, though well-meaning friends did suggest that was the root of the problem.

ElBombero Fri 25-Oct-13 16:18:55

Hi guys, thanks so much for all the responses.

I've decided to hold off going dairy free, I assure you it's not me jumping the gun, going dairy free is the last thing I want! It's all on advise of the HP. So following advice from here and RL I went to see a 2nd GP who's told me to send another sample so awaiting results of that.

DS is still having very bad nappies and wind at every feed but he is settled and happy. His poo is army green, watery, frothy at times, looks like seaweed in his nappy x

Oodisgonnagetya Fri 25-Oct-13 18:42:02

Try block feeding as well. That helped ds with my over supply.

Viviennemary Fri 25-Oct-13 18:48:40

That sounds really tough. But there are a lot of ideas on this thread. Good luck!

arlandria666 Fri 25-Oct-13 20:12:29

my little one is 5 months and I have been dairy free since he was 10 days old I had to do a 4 week exclusion and then reintroduce but it made him poorly so I am still dairy free and taking prescribed calcium + vit d supplements.
Despite being dairy free at around 8 weeks DS went for 8 days having green nappies it was awful but I block fed and it soon cleared up. Hope you get to the bottom of it...ps I agree Asda dairy free chocolate buttons are yum and koko chocolate coconut milk makes a yummy chocolate rice pudding smile

48th Fri 25-Oct-13 21:18:19

Op if you block feed it will reduce your baby's weight gain.

Oodisgonnagetya Fri 25-Oct-13 21:24:23

Is that right 48th ? It was a bf counsellor that suggested it to me to combat the over active supply/lactose overload. Feeling bad now sad

48th Fri 25-Oct-13 21:30:29

Yeah it is right, it may have been a good choice for you though. If you do have over supply then your baby would ordinarily gain heavily, over 7oz a week (this can be normal anyway) and the would be other signs often too like engorgement or a hair trigger let down reflex ( though you can have this without over supply).

48th Fri 25-Oct-13 21:31:44

Tbh honest oodis... If your baby let you block feed they were probably doing just fine on itsmile

looseleaf Fri 25-Oct-13 21:33:30

I have been gluten and dairy free for 2.3 years breastfeeding DS and now I've just stopped and safe to eat dairy again I can't stand it! (Apart from yoghurt) So I really hope you'll adjust as well as I have.
I feel healthier than ever in fact and have focused quite a lot on proper eating eg all home-cooked and on a thorough vitamin& mineral supplement in case.

I can totally understand your dismay and you have egg and nuts to avoid so more than me but i did find dairy easier than gluten by far - M&S dairy free spread for example is our favourite, and DS loves Oatly milk in a blue carton (from fridge in some big supermarkets) which is enriched with calcium etc (the long life one isn't)

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