Baby with tongue tie - any experiences?

(172 Posts)
Sparkeleigh Wed 06-Nov-13 12:00:00

My baby has been diagnosed with a tongue tie. He wouldn't bf at all on hospital unless the midwives squished my boob and shoved him into it and they were concerned about him not feeding so eventually I gave him formula to get home.

Since then my milk has come in and I've been expressing. I saw a Lll leader yesterday who diagnosed tongue tie, and said clipping it could improve how he feeds.

Does anyone have experience with a baby with tongue tie and did you get it clipped?

My DH feels that if it's just to make our lives easier and get more sleep it's a bit selfish to put him through it. He's been feeding and changing DS at night while I express but I'm worried at how practical this will be when his paternity leave is over.

I don't know what to do, it seems easier to do it now when he's only a week old than later and I'd really like to breastfeed him, even if that is a bit selfish. I've tried nipple shields and he seems to be able to feed through those but they're so fiddly and need constantly sterilised they're not practical for all feeds.

Thanks to anyone who read that essay!

flatmum Wed 06-Nov-13 14:33:06

It literally takes seconds by the way - you are in and out in a minute.

wimblehorse Wed 06-Nov-13 14:35:53

ds2 had tonguetie. Midwife diagnosed at 13 days after lots of pain and difficulty establishing bf & ds dropping weight. Found a private midwife to snip it - lcgb.org - she came to our house & did it there which we felt would be a lot less stressful (for us and ds) than taking him to hospital as well as quicker - there would have been a 6 week wait. Cost around £250 (north london).
BF improved dramatically & he started gaining weight. It had to be redone about a week later - she hadn't fully divided it first time, but no further complications.

mawbroon Wed 06-Nov-13 14:44:05

Sorry, haven't read whole thread, dashing out to school....

Yes, get it done now. DS1's went undiagnosed until he was 6yo. He suffered a long list of problems relating to his ties (tongue and upper lip) and the high palate which was caused by the tongue tie.

If I had his baby days over again, I would have making an appointment swiftly with a dentist who could laser the tongue and lip ties.

Back in DS1's day, there were no dentists in the UK doing this, now there are two John Roberts at Cote Royd Dental practice in Huddersfield and Malcolm Levinkind in East Finchley.

I cannot stress the importance of having this dealt with properly at this stage. There is much, much more to this than speech and feeding. It can affect the whole body, for the whole of the person's life.

Ask to join the Tongue Tie Babies Support Group on Facebook. There is so much knowledge and experience on there

MrsMarigold Wed 06-Nov-13 14:53:28

I found the Breastfeeding Support Network woman amazing, she referred me and DD had hers cut at around 4 weeks, it made a huge difference and I went on to EBF, the only thing is I can't stop BF now but that is another story.

My DD didn't even cry and no longer has a heart shaped tongue.

MrsMarigold Wed 06-Nov-13 14:54:43

We're in London and they did it at the Royal Free.

poshme Wed 06-Nov-13 14:58:20

Both my DDs had TT. DD1 not noticed till 12 days old, snipped 10 days later- she cried briefly and then fed- much better.
DD2 was diagnosed straight away- I asked specifically. Snipped at 1 day old- she was asleep and stayed asleep through the snip.

alyant79 Wed 06-Nov-13 15:40:10

my DD had tongue tie, but due to various reasons - mostly that TT wasn't recognised in my area she didn't actually get properly diagnosed and dealt with until around 10 weeks.
First time the registered practitioner didn't cut it all, so she had to come back a week later and re-do it. After that all the problems with slow weight gain, dropping centiles, constant feeding and excruciatingly sore nipples vanished, just like magic.

I wish i'd chased it up when it was first mentioned at the breastfeeding clinic (i was there because of the pain) when she was 2 weeks old, before the weight loss started.

By the way, we had to take her to a paediatrician due to her slow gain in weight - he said not to bother with b'feeding and just put her straight onto formula, and that tongue tie is a myth!! It was only due to my persistence that we got the TT issue sorted in the end.
She weaned herself off the boob when she was just over one.
She's 2 now and speaking clear as anything

Byebyebucket Wed 06-Nov-13 15:50:21

My son had it done at six weeks .... It was a split second job and feeding was great after that and no more mastitis for me !!! smilesmilesmile Definitely do it .... There is nothing controversial about it ... Used to be routinely done with midwife after birth and now en vogue again ... Leaving it could result in speech problems and an eventual procedure but under general ! Good luck ....

milkybarsrus Wed 06-Nov-13 16:29:30

My last baby had a tongue tie, I didn't notice it and would have presumed a midwife or paediatrician would have spotted it whilst I was in hospital??? Well, he just couldn't latch on, screamed the place down as he was hungry, I was told it was me being to tense, then a home visit from a lovely hv immediately asked me to try and feed him, straight away she said he's got a tt! She made a referral, six months waiting list at the time (7 years ago), fat lot of good that is. So went private and paid £500 at kings hospital, never spent so much money so quickly in all my life. Job done in seconds, latched on immediately after. Never looked back. Do it!

milkybarsrus Wed 06-Nov-13 16:32:04

I was told by the dr who done the 'procedure' at kings that midwives years ago did it as routine with their thumbnail straight after birth, that's how thin the membrane is! But I'm not for one second suggesting that anyone DIY! Just trying to point out how easy it is.

goodbyeyellowbrickroad Wed 06-Nov-13 16:39:29

After us noticing his TT at birth our DS had it revised at 8 weeks old at Kings in London. It was done and he was feeding in the space of 5 minutes. It was absolutely the right thing for us to do and I'm still breastfeeding DS at 16 months which I don't think I'd be doing if we hadn't gone ahead with the procedure.

mawbroon Wed 06-Nov-13 16:39:38

It's a bit misleading to say it is that simple. A submucousal posterior tie could not be revised with a fingernail, but yes, a thin anterior tie could.

millie19 Wed 06-Nov-13 16:50:21

My DD had a severe tongue tie and was bf. we really struggled with bf-ing for the first 6 weeks (feeds would take up to 1.5hours and she wasn't putting on much weight). Eventually after a brilliant HV and Dr referral we went to the tongue tie clinic at King's Hospital (we live in Herts so it wasn't too far to go. I believe there are also clinics in Southampton and I think Edinburgh - this was back in 2007 and I know it's much more commonly diagnosed now). We went down on a Weds afternoon and had to not feed her so she was hungry after the tt was snipped. The consultant running the clinic (it was an NHS one led by a private consultant) had one assistant. The babies were put into a queue (by age I seem to recall) with youngest first. It took less than 30 seconds to do from the minute I laid her on the bed to the snip. She cried for max 30 seconds and then fed straight away and fed really well. There was a small amount of blood. She was checked after her feed again and then we were sent home. It changed things for ALL of us - DD fed really well for the first time in 6 weeks, she put weight on and I continued to bf until she was a year quite happily. And I stopped worrying and it all took less than a minute. I would definitely do it again (my DS didn't have one), my cousins eldest had one and she had his sorted quickly and my sister's youngest did too. Genetics for you!!! Good luck & don't worry about it, it will make things better for all of you.

rockybalboa Wed 06-Nov-13 17:41:47

No cons here either. My nipples were mega sore due to dS3's posterior TT and even nipple shields didn't help. Definitely worth doing.

LlamaAndOwl Wed 06-Nov-13 17:45:17

My daughter had a posterior tongue tie, diagnosed by the health visitor at 2 weeks and snipped at NHS clinic at 4 weeks. Took seconds, she didn't cry and fed straight afterwards. Feeds have been much quicker since and she is far less windy too - think the tongue tie meant she was taking in a lot of air when feeding.

Mondaybaby Wed 06-Nov-13 17:51:41

My dd had a TT. I had the most terrible time feeding her and she didn't regain her birth weight until she was 3 weeks old. She didn't gain much after that until she had her TT snipped at 7 weeks old. The TT was diagnosed by a Midwife Lactation Consultant/Infant Feeding Co-ordinator although an NCT volunteer bf suggested it as a possibility based on my description of the problems I was having. My dd was refered to Mr Patel's TT clinic at Kings College Hospital. This clinic is amazing and Mr Patel (a consultant paediatric surgeon) spent time talking to everyone explaining about TT and how they affect feeding/speaking etc. More information is in this article
http://www.telegraph.co.uk/health/women_shealth/3353116/Breastfeeding-The-kindest-cut-of-all.html
I was very nervous because I was full of pregnancy hormones and exhausted and on my own. But the actual procedure was over in a minute and my dd was feeding immediately afterwards and gave me a lovely smile as if to tell me I had done the right thing. I honestly don't believe she was distressed at all. Probably the very bright lights in the room and being tightly swaddled bothered her more than the actual snip.
I think my dd's TT was quite bad as her tongue was a very odd shape before she had the snip. It looked much more normal immediately afterwards.
I would recommend you do do it as it can only help with bf and it is easier done when they are tiny than later.
If you are in London, try to get a referral to Kings. They have weekly (Tuesday pm, I believe) TT clinics. Your GP or a specialist midwife or HV can make the referral.

I work in a maternity hospital and recommend you get it done, we see babies tongue ties snipped every day, we won't do it if its mild and not affecting feeding but yours sounds like it defo needs snipping, it takes seconds, we swaddle baby then snip the TT, baby may cry breifly, there's hardly ever blood, then back to mum for cuddle and all done,
It's not selfish, it will be good for you both, hope this puts your mind at ease

Rubena Wed 06-Nov-13 18:18:33

dd had tongue tie. I suspected due to awful feeding, HV dismissed, finally went to hospital myself, consultant right away said yes and snipped it - would have been fine but feeding already on the way out at 4 weeks. Crap HV. Don't wait for referral if it's bad feeding, go straight to get it snipped pronto.

vanillamum Wed 06-Nov-13 18:28:21

My ds3 had a small tongue tie and fed well however by age two and a half- three it had started to affect his speech-he was reluctant to speak because he knew he couldn't get the words out right. He had to have an operation when he was three so we had the tongue tie snipped then and it was amazing-when he came home from hospital it was like someone had turned the volume switch up!All these words came tumbling out and it was like he had been holding back speaking. I regret not insisting it was done when he was a baby and I was told it was only minor. Have it done now you are not being selfish.

mawbroon Wed 06-Nov-13 18:38:06

Phrases like "small" or "mild" tie are often bandied about regarding tongue tie. In most cases, the HCP will be talking about the appearance of the tie.

The appearance of the tie is irrelevant it is the function that is important.

readysteady Wed 06-Nov-13 18:51:06

Good point maw broom

I agree with you! No doctor noticed my children in hospital even though I did. The lactation nurse said if their was one it was mild! I could see and feel it! These "experts" missed it the consultant I saw said it was a severe tie! Mild my arse!

working9while5 Wed 06-Nov-13 18:51:18

Both of mine had it.

Ds2 had dropped from 91st centile at birth to 0.4 at 20 weeks. I'd been saying it was t/t to HV since 12 weeks. Division done at 20 weeks after 8 weeks of no weight gain. Like, literally, none.

Gained 18oz in one week after cut.

Valid point Mawbroon but we have picked up tongue ties when doing the baby medical and parents haven't noticed and say feeding is going fine so they don't want it snipped, so we always listen to mums as they know best about how feeding is going, IME it's harder to breast feed with a tongue tie than it is to bottle feed because of the different ways the tongue is used

perfectstorm Wed 06-Nov-13 19:33:47

Some people with tongue tie can't lick lollies or ice creams, have speech problems... and sexual limitations. Various sexual acts involve tongues, not least kissing. It can also cause orthodontal problems as the jaw doesn't develop properly due to muscle underuse. It also causes colic and reflux in lots of babies as they inhale air with the milk, as they can't latch.

DS was snipped, and my first question at my booking appointment was, "What is the policy in this Trust for identifying and treating tonge-tie"? My old one had a leave-nature-alone policy which was very outdated - NICE no longer support it. Thankfully here they check and then they snip. DS was cut at 4 months by Mervyn Griffiths (who wrote the UNICEF guidelines) as nobody local could do it and the godawful lactation consultant messed up at 4 days - long, miserable and infuriating (she never acknowledged her error, just took the money and told me to keep trying to bf an impossible-to-feed baby). Best parenting decision ever IMO, to get him properly snipped. He was so much comfier when gulping less air down.

Standingonlego Wed 06-Nov-13 19:40:11

DS1 had TT snipped at 7 weeks. I had managed with nipple shields etc at start but it got harder. A big DO IT from me....it is quick, and it made a HUGE difference to both him and me for BF. We carried on up to 10 months. Do not hesitate, resounding yes from mumsnet folk smile

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