Thanks to *mawbroon*

(8 Posts)
BuffyFairy Sat 06-Oct-12 15:53:02

Hi,

Wanted to say thanks for the link about upper lip tie you put on another thread (that I can't find now).

It makes sense now why dd tends to bite and I get lovely indentation marks from her 4 top teeth. I took a look and there was the tie.

GP has confirmed it and we're getting referred to a specialist.

I'd never heard of it so thanks for the post and [flowers]

whenwill Sun 07-Oct-12 16:43:53

Please update us on how this goes as I don't know of anywhere NHS that will do anything about it. And wonder how effective it is at improving feeding, as don't know anyone who has ahd it done. Thanks!

mawbroon Mon 08-Oct-12 10:29:14

Aw, thanks. Glad it helped you.

Did I write on the other thread that there is usually also posterior tongue tie alongside a lip tie?

How old is your baby? Who is the specialist? Beware that there are people dealing with tongue ties who are not experts.

Don't let anyone do a GA on your baby. It's not neccessary.

Google Dr Kotlow and have a read of his stuff. There is a dentist in Huddersfield doing lip and tongue ties with laser who was trained by Dr Kotlow, who is a leading expert on lip and tongue tie.

BuffyFairy Tue 09-Oct-12 13:04:41

Dd is 1. We're in sw London and my GP has referred us onto a department at St George's in Tooting. I don't know who we will see but it's a starting point.

Thanks for the info re Dr Kotlow. I will read up on his articles and take some print outs with me. From the photos it looks as if it could be a class III tie. I'm glad you told me about the laser treatment, from other sites it was looking as though the choice was leaving it or an op under GA.

I haven't checked her for posterior tongue tie. She was checked at the hospital by midwives but unfortunately I'm not sure that means she's definitely ok.

We did battle with Breastfeeding for the first 4 months. Constant feeding (and I mean constant!) with lots of pulling off and crying, reflux, inability to sleep luring flat, colic type symptoms. I just kept going as after the first 2 weeks my nipples weren't shredded and weight gain has never been a problem. And I hadn't been on this forum so I didn't know better grin

Still feeding now but after every feed I have imprints from her top four teeth.

I'm worried the tie will cause her problems later and I don't want to wait for years to see if there's a safer way of treating it now. I'm happy to go private for this.

Whenwill - I'll definitely report back.

mawbroon Tue 09-Oct-12 14:22:47

Dr Kotlow shows how to examine for posterior tongue tie There is no sound on the video.

Come and join the Facebook Tongue Tie Babies Support group. You will get knowledgable information on there.

DS1 is 6yo and has had endless problems from his undiagnosed ties. We are just about to start orthodontics to correct his orofacial development as it has been badly affected by tongue and lip tie. This is as well as reflux, sleep apnoea, food allergies/intolerance, endless stomach bugs to name but a few of the problems.

Learn as much as you can about it and you will find that it's a much bigger issue than most people realise.

BuffyFairy Mon 15-Oct-12 14:43:03

Sorry I didn't reply before now. Dd isn't well. She's now not feeding at all sad

I've just requested to join the Facebook group.

No date to see anyone yet. I need to check for tongue tie.

Sorry to hear your ds is having so many problems from it, that's awful. Have the ties been treated? Will the problems resolve in time?

It's great you're warning others and providing so much info and help. I really appreciate it.

mawbroon Mon 15-Oct-12 22:40:31

Yes, he's had his ties lasered now and is about to get a brace to expand his palate and headgear to guide his orofacial growth in the right direction. Hopefully this will avoid him having to have teeth pulled when he is a teen.

Hope your dd is feeling better and back to feeding.

BuffyFairy Tue 16-Oct-12 00:20:23

Oh goodness that sounds like a lot for him to deal with. Fx it works and no teeth have to be pulled.

Thanks. Dd still isn't feeding. Suspected hand, foot and mouth, we're seeing the GP again tomorrow. I hope her nursing strike ends soon.

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