Our fantastic DD3 has lost her battle.

(232 Posts)
3girlies Sat 28-Jul-12 12:01:30

Our beautiful and brave DD3 lost her battle against a brain tumour on 2nd July.She was 6 years old. The end came very quickly, just 2 wks after we were told it had spread, though she had been ill for a few weeks, we were hoping it was just the chemo hitting her hard. So devastated, I am weeping all the time it seems, how can you help the other children cope when you can't do it yourself?
I am glad she died at home in our bed with me, my worst nightmare would have been a long slow decline in Birmingham Children's hospital, I am trying to comfort myself with this one thing. The grief seems unbearable otherwise.

SirBoobAlot Sat 28-Jul-12 12:08:16

I'm so so sorry for your loss. xx

AThingInYourLife Sat 28-Jul-12 12:08:27

I'm so sorry for your loss sad

whatinthewhatnow Sat 28-Jul-12 12:09:24

3 I am so so sorry to hear this. Sending lots of love to you all.

coffeeandcake Sat 28-Jul-12 12:09:53

I am so so sorry to hear that. sending big hugs to you xx

maytheoddsbeeverinyourfavour Sat 28-Jul-12 12:11:00

I am so terribly sorry for your loss xxx

RandomMess Sat 28-Jul-12 12:11:04

So sorry to read this x

Sorry to hear about this x

MyinnergoddessisatLidl Sat 28-Jul-12 12:11:50

Sorry to hear about your loss. X

OlympyWindowMash Sat 28-Jul-12 12:12:03

I am so sorry. I can't begin to imagine how you must be feeling.

PavlovtheCat Sat 28-Jul-12 12:12:56

I am so sorry for your loss. My thoughts are with you and your family at this sad time x

ErmaGerdOlermpercs Sat 28-Jul-12 12:13:14

I'm so, so sorry.

I am so sorry to hear this sad

Rest in peace lovely girl.

love and thoughts to you and your family.

mumblechum1 Sat 28-Jul-12 12:17:07

I'm very very sorry. What was her name, and what did she love to do?

BellaVita Sat 28-Jul-12 12:19:03

Am so very sorry x

MissAnnersley Sat 28-Jul-12 12:20:33

I am so sorry to read this. Thinking of you and your family.

3girlies Sat 28-Jul-12 12:21:07

She was another lovely redhead, her name was Flora and loved dancing music bikes sandcastles parks, computer games everything really! She had ASD, so was was also quirky and funny, such fab interesting company, she was the centre of my world and I am lost without her. Can barely see the keyboard through the tears.

3girlies Sat 28-Jul-12 12:22:05

Thanks for your messages, I used to be on here quite a bit but not much in the last couple of years, just had to post this.

5madthings Sat 28-Jul-12 12:24:31

i am so sorry sad

RIP Flora xxx

mishymashy Sat 28-Jul-12 12:25:09

I am so very sorry XX

I am so so sorry. My thoughts and prayers are with you and your family.

Rest in Peace Flora.

OhDoAdmitMrsDeVere Sat 28-Jul-12 12:26:53

I am so sorry. Your Flora sounds astounding smile
I am so glad she was at home with you too x

HairyPotter Sat 28-Jul-12 12:27:03

I am so sorry for your loss. Flora sounds like an adorable wee girl. You and your family are in my thoughts. xx

HesterBurnitall Sat 28-Jul-12 12:27:27

Flora is such a beautiful name and your daughter sounds wonderful.

I'm so very sorry for your loss.

DizzyCow63 Sat 28-Jul-12 12:29:27

I'm so so sorry. Flora sounds like a fantastic girl, fly high beautiful xxx

chipmonkey Sat 28-Jul-12 12:29:47

I am so very sorry for your loss 3girlies. She sounds like a wonderful little girl. xx

grumpykat Sat 28-Jul-12 12:32:07

I'm so sorry for the loss of your beautiful Flora. x

TanteRogge Sat 28-Jul-12 12:37:26

I am so sorry x

Cockpark Sat 28-Jul-12 12:37:26

You poor poor family, what an awful situation, I am so very sorry for your loss. Please hug your 2 DDs from me.

landofsoapandglory Sat 28-Jul-12 12:38:01

I am so very sorry for the loss of your beautiful daughter.xxx

Rest in peace, Floraxxxx

ISpyJumpHigh Sat 28-Jul-12 12:46:48

So sorry for your loss xx

sassytheFIRST Sat 28-Jul-12 12:48:20

I am so sorry that your lovely Flora has gone. X

I'm so sorry for your loss x

BonzoDooDah Sat 28-Jul-12 12:51:06

What a wonderful girl to have had in your life and enrich you all. And how terribly sad she has gone. So, so sorry for you and all your family. xxxx

LemonEmmaPippedAtThePost Sat 28-Jul-12 12:55:13

So very sorry to hear this. Flora sounds like a lovely girl.xx

Conflugenglugen Sat 28-Jul-12 13:00:06

(((((((3girlies)))))))

I am sorry. A big hug for you all.

toomuch2young Sat 28-Jul-12 13:00:06

I am so truly sorry. How awful for you and your family. She sounds a very special little girl xx

pixiestix Sat 28-Jul-12 13:01:14

I'm so sorry for your loss. Flora sounds beautiful.

Showmethemhappyfeet Sat 28-Jul-12 13:22:00

Im so sorry for the loss of your beautiful Flora. sad

MedusaWildwood Sat 28-Jul-12 13:25:57

Oh how dreadful, I am truly sorry for you and your family.

Flora sounds like a little treasure.

storytopper Sat 28-Jul-12 13:28:08

So sorry to hear this - she sounds magical and beautiful. My thoughts are with you and your family.

My sincere condolences, 3girlies, so sorry for you loss.

I hope your Flora has found peace and that you might in time.
Thinking of you and your family xx

So sorry! sad big hugs! x

MedusaWildwood Sat 28-Jul-12 13:32:17

It is frightening how many children and families are affected by paediatric brain tumours and how little funding research has.

3girlies , there is a new charity set up called The Katy Holmes trust by a family who lost their precious girl in January after a 3 month battle, not suggesting anyone can help but sometime to someone who's been there makes you feel not so alone. On fb too as Please Help Katy Holmes.

Much love and hugs xxxxxxx

FriskyMarkCavendish Sat 28-Jul-12 13:34:42

Thinking of you. xxx

OpheliaBumps Sat 28-Jul-12 13:37:38

I'm so sorry, I lost my (adult) sister to a brain tumour, it's so so cruel. Thinking of you x

BlueGuinefort Sat 28-Jul-12 13:37:59

Oh, 3girlies , I am so very sorry to hear about your gorgeous girl sad

I hope you don't mind me saying so, but the thought of her being in your arms as she passed is beautiful.

One day at a time is all you can do. Wishing you and your family strength.

sunshineandshowers Sat 28-Jul-12 13:38:19

From one Mummy to another, my arm is round your shoulder giving you strength and love. We are all with you x

3girlies Sat 28-Jul-12 14:31:39

Thanks so much to you all. Flora had a very aggressive tumour, a glioblastoma, quite rare in children apparently. She died one year to the day that we went into BCH. We knew the prognosis was not good but thought we would have a bit more time than we had. So sad that she went so quickly.

Noqontrol Sat 28-Jul-12 14:35:16

Im so so sorry.

hellhasnofurylikeahungrywoman Sat 28-Jul-12 14:37:33

What a beautiful name, Flora sounds like she was a wonderful girl. I am so sorry for your loss.

robino Sat 28-Jul-12 14:39:06

I am so sorry, Flora sounds wonderful. X

overthehurdles Sat 28-Jul-12 14:40:07

Im sorry you lost your beloved Flora, sending love and hugs x

mumofjust1 Sat 28-Jul-12 14:40:08

I'm so sorry sad

Sleep tight Flora xx

MumOfAPickle Sat 28-Jul-12 14:40:47

I am so sorry for your loss.

The only thing I can say to my DS when he gets sad about his grandad dying is that he lives on in our hearts and our memories. Perhaps talk to your dc's about all Flora's wonderful qualities and ask them (depending how old they are) if they can take some of these and use them in their lives so that part of her will always be here.
Again, so sorry x

picnicbasketcase Sat 28-Jul-12 14:41:29

I'm so sorry. Rest in peace Flora. Peace and strength wishes to you and all of your family.

Mintyy Sat 28-Jul-12 14:43:28

Flora sounds wonderful! You must miss her so very badly. Wish I could do anything to comfort you but am sure I can't. Sending very much love to you and your family xxxx.

BreastmilkDoesAFabLatte Sat 28-Jul-12 14:45:12

I'm so sorry. Sending all my love...

Thinking of you and your precious and adored daughter. She will always be your beautiful little girl and it breaks my heart to think how desperately you must miss her. She must have felt so safe and loved as she died and I think you are right to consol yourself with this x

HappyHippyChick Sat 28-Jul-12 14:47:55

I'm so sorry for your loss... x

I'm so sorry for your loss. What an amazing little girl Flora sounds. Sending you and your family lots of love xxxx

kaytola Sat 28-Jul-12 14:58:42

Oh she sounds like she was such a character. Sending you my love at this very sad time. Fly free Flora xx

usualsuspect Sat 28-Jul-12 15:26:40

Much love to you xx so sorry for the loss of Flora.

emmieging Sat 28-Jul-12 18:23:59

I'm so sorry that your family has had to face the worst thing possible.

You mentioned that you used to be on MN quite a bit in the past. I hope you feel happy to come back and post more if it's helpful to you. There are sadly other threads here from parents in your situation, and I know many people draw comfort from being able to post.

Portofino Sat 28-Jul-12 18:27:21

Oh - so sorry to hear this news. sad

queenofthepirates Sat 28-Jul-12 18:29:23

You poor, poor darlings, let it all out and look after yourselves xxx

I am so sorry for your loss sad

Phacelia Sat 28-Jul-12 18:32:29

I'm so sorry for your terrible loss. Flora sounds like she was completely wonderful and so very loved.

I will be thinking of you.

ChippingInNeedsCoffee Sat 28-Jul-12 18:34:54

I'm so very sorry x There really are no words that are 'right'. Hearing your very sad news touches all of our hearts, I'm pleased you felt you could come here & tell us and hopefully feel some support from us all. It's lovely that if Flora had to go, she did so in the comfort of your bed with you - feeling loved and comforted.

I don't know 'how' you learn to live again - you just do. Gradually, one minute at a time. Finally learning to live the new normal. You never get over it, you just learn to live alongside it. It's very early days my love, just hang in there, lean on anyone offering help and take it one day at a time xx

bran Sat 28-Jul-12 18:35:11

I'm sorry for your family's loss, Flora sounds like she was a little sweetheart.

LemonTurd Sat 28-Jul-12 18:39:22

So sorry for your loss. Flora sounds like a wonderful girl x

Flora sounds like a fun little girl to know. I'm so sorry she went too soon. Wishing you a mountain of strength as you start this lonely journey x

RobinSparkles Sat 28-Jul-12 18:46:55

I'm so sorry for the loss of your beautiful Flora.

Sleep peacefully lovely girl xx

I'm so very sorry for you and your darling baby. x

Jollyb Sat 28-Jul-12 18:50:34

Such sad news. I can't imagine what you are going through. May she rest in peace xx

expatinscotland Sat 28-Jul-12 18:51:26

3girlies, I'm so so sorry for your loss. From one onco mum to another. We lost our beautiful, 9-year-old girl 3 weeks ago today to secondary infection following treatment for acute myeloid leukaemia.

My heart is breaking for you and your family and for Flora.

(((())))

EmpressOfTheSevenFlames Sat 28-Jul-12 18:54:17

Flora's a lovely name. I'm so sorry for you and your family x

SerenaJoy Sat 28-Jul-12 18:54:33

My heartfelt condolences. Flora sounds like a great wee character, who will be sorely missed by many. I can't begin to imagine the pain you're feeling, but my thoughts are with you.

Rest in peace, Flora xx

3girlies Sat 28-Jul-12 18:55:42

Yes, I read your thread and am very sorry for you. Thanks to you and everyone who has messaged me and posted. x.

Lilyloo Sat 28-Jul-12 19:00:51

I am so sorry for the loss of your little girl Flora, my mum died from a brain tumour, glioblastoma too,when she was 45 it was too very aggressive and quick. We now take great comfort from the fact her death wasn't prolonged but the shock was horrendous and I can only begin to imagine how you must be feeling.

PiedWagtail Sat 28-Jul-12 19:14:02

I am so so sorry, 3girlies. My thoughts and prayers are with you.

worryingwillow Sat 28-Jul-12 19:15:23

Oh 3girlies I'm so sorry sad Flora sounds like a lovely wee thing. Beautiful name too, it was my choice for dd.

Thinking of you all xxxx

FaceCrack Sat 28-Jul-12 19:17:25

I'm so
Sorry to hear of your loss. She sounds like a wonderful lassie.

Praying for you and your family.

TeamGBIWI Sat 28-Jul-12 19:19:46

I'm so sorry - how sad to lose her so young and so quickly sad

TheLightPassenger Sat 28-Jul-12 19:21:41

I'm so very sorry 3 girlies. Thoughts with you and your family.

TeamEdward Sat 28-Jul-12 19:22:46

It's obvious that Flora bought such joy and light to your lives. I am so very sorry for your loss. sad

iloveACK Sat 28-Jul-12 19:22:59

I am so sorry, there are no words.

hopenglory Sat 28-Jul-12 19:25:44

So very sorry for your loss.

janx Sat 28-Jul-12 19:28:33

So sorry to hear your sad news - that she couldn't stay any longer must be unbearable. I'm glad she came home and was with you - look after yourself

HokeyCokeyPigInAPokey Sat 28-Jul-12 19:28:49

I am so sorry for the loss of your precious girl.

Sending you all love and strength. x

Bullincathkidston Sat 28-Jul-12 19:30:41

I'm so sorry for your loss, wish I could give you some comfort. X

Ulliunghi Sat 28-Jul-12 19:36:05

I'm so sorry to read this. My thoughts are with you and your family xx.

JemimaPuddle Sat 28-Jul-12 19:52:46

So sorry for your loss x

EmilieFloge Sat 28-Jul-12 20:02:18

Oh I am so sorry. She sounds like such a dear little girl. xxx

annalovesmrbates Sat 28-Jul-12 20:03:08

So so sorry for your loss. Rest in peace Flora x

annalovesmrbates Sat 28-Jul-12 20:03:09

So so sorry for your loss. Rest in peace Flora x

So very sorry for you and your family. She sounds beautiful and a lot of fun. x

NervousAt20 Sat 28-Jul-12 20:06:07

I'm so so sorry for your loss sad xx

nancerama Sat 28-Jul-12 20:09:07

I'm so sorry for your loss. No parent should have to go through the pain you are feeling. You will always be Flora's mum and your DCs will never forget their sister.

If you've not done so, please get in contact with CRUSE. They will be able to help you and your family. Take things one day at a time and take good care of yourself and family.

I'm so sorry for your loss. sad

So very sorry for your sad loss. xx

Mamamaiasaura Sat 28-Jul-12 20:29:11

So sorry to read this. Flora sounds like such a lovely little girl (my ds is ASD and those quirks make them even more special). I do not have any words that could make any of this bearable sad
Xxx

Zhx3 Sat 28-Jul-12 20:30:46

I am so sorry for the loss of your wonderful Flora, 3girlies. No parent should have to go through what you have. My love and thoughts to you and your family x.

CharlieUniformNovemberTango Sat 28-Jul-12 20:45:16

So sorry for your loss.

Maybe it's a bit raw just now but when you feel able maybe you could sit with your DDs and let them make scrapbooks of beautiful Flora? If you give them lots of copies of photos and really let them be individual about what they want to show and say it will help them focus on the good times you've had. And it will also be something they can look at when ever they feel they need to be close to her.

Also on a similar theme is letting them decorate a frame and pick out one special photo to keep somewhere close like their bedside cabinet.

Planting a tree or flowering plant may also give them a focus.

There is no right or wrong way of grieving. Just do what you need to do to get by these dark days whilst it is still so raw.

Take care. Huge hugs to you all.

Rosa Sat 28-Jul-12 20:46:23

So very sorry for you and your family.

civilfawlty Sat 28-Jul-12 20:46:42

I'm so very sorry for your loss. X

muddyjumpers Sat 28-Jul-12 20:49:37

So sorry for your loss.
RIP Flora
(((Hugs))) to you and your family xx

Sidge Sat 28-Jul-12 20:51:56

I'm so very sorry your Flora has gone.

I have 3 girls and my dad died from glioblastoma.

Sending you love, peace and strength and wishing you many special memories of your beautiful daughter xxx

colette Sat 28-Jul-12 20:52:04

So sorry , wishing you all the love and support you and your family need right now x

Sabriel Sat 28-Jul-12 20:54:37

I would second contacting CRUSE, especially if your other girls have difficulties dealing with their grief in the months to come.

What a horrible thing to happen to your family and how sad to lose your lovely girl sad

buzzgirly Sat 28-Jul-12 20:57:05

I'm so sorry for the loss of Flora. Sending love and support for you and your family x

SO sorry that your daughter has left the world so quickly. DO get all the help you can .

So sorry

Piemistress Sat 28-Jul-12 21:00:28

So sorry to hear about your loss,,RIP beautiful Flora xx

So sorry about the loss of your darling little Flora.

bear hugs to you and your family xx

StabbyMacStabby Sat 28-Jul-12 21:07:01

I'm so sorry, it seems so wrong that these things should happen to children sad

PavlovtheCat Sat 28-Jul-12 21:43:39

what a beautiful name x

BoiledEggandToastSoldiers Sat 28-Jul-12 21:53:06

Really sorry for the loss of Flora.

BardOfBarking Sat 28-Jul-12 21:57:26

Holding you and Flora and her sisters in my thoughts tonight x

seb1 Sat 28-Jul-12 22:00:58

So very sorry. x

sparrowfart Sat 28-Jul-12 22:06:07

I am sorry to hear about your beautiful girl... what love and comfort she must have felt there in your arms. x.

RatherBeOnThePiste Sat 28-Jul-12 22:24:16

so so sorry sad

chickydoo Sat 28-Jul-12 22:26:34

So so sad for your loss
Thinking of you

OB1Kenobi Sat 28-Jul-12 22:36:22

I am so sorry for your loss.
You will all be in my prayers tonight
Xxx

moajab Sat 28-Jul-12 23:20:49

I am so sorry. There are no words other than to say that you and your lovely family are in my thoughts. x

hmc Sat 28-Jul-12 23:29:18

3girlies, so very sorry you lost your lovely Flora. It's awful that you have to suffer this loss. Dying in bed with you, feeling your love and warmth, glad that you and she had that

seasalt Sat 28-Jul-12 23:31:13

So sorry to hear of the loss of your little girl.

QOD Sat 28-Jul-12 23:31:47

I'm so sorry for your loss sad

So horribly unfair and sad

3girlies Sat 28-Jul-12 23:37:56

Thanks to you all. Our hearts are broken. x.

expatinscotland Sat 28-Jul-12 23:42:53

You are not alone, 3girlies. That's all I can say for now. ((()))

chocolatespiders Sat 28-Jul-12 23:43:30

Tears stream at the thought of the pain you must be feeling. I cried lots yesterday at a funeral of a lady who had died from Motor Neurone Disease and felt such sadness for her parents having to go through their daughters funeral..

I hope it is comforting to you that you were able to spend those last moments with Flora your gorgeous baby girl.

I wish you lots of strength over the coming weeks, cherish those memories

sb6699 Sat 28-Jul-12 23:48:17

I am so sorry for your loss - she sounds like a wonderful girl.

My nana was a red-headed flora, must be something special about them as she was wonderful too.

Sending you lots of love and strength x

hmc Sat 28-Jul-12 23:49:54

I hope you are getting support from family and friends. You are doing well just getting out of bed in the morning sad - it must be so very hard.

Devora Sat 28-Jul-12 23:50:33

I am so very, very sorry. My heart and prayers go out to you and Flora.

So so sorry to hear this, my heart goes out to you.

Sleep tight Flora xxx

Willabywallaby Sun 29-Jul-12 07:58:21

My thoughts are with you and your family x

MattDamonIsMyLover Sun 29-Jul-12 08:00:37

I am so sorry for your loss.

Flossiechops Sun 29-Jul-12 16:55:41

I wanted to just say how utterly sorry I am that Flora is no longer with you. Life can be so unbearably cruel, it makes no sense. Thinking of you. B x

NoHunIntended Mon 30-Jul-12 00:14:38

I am so sorry for your loss. sad Much love and strength to you and your family. x

StarBallBunny Mon 30-Jul-12 00:43:47

So sorry, rest in peace little Flora. All red headed DDs are special, but quirky funny ones especially so.

Umnitsa Mon 30-Jul-12 01:11:07

This is so tragic and enormous. I am very very sorry for your loss.

Amongst this pain and numbness it is really precious that your beautiful Flora, you tender golden flower, spent her last hours with you.

Wishing you and your family a lot of strength. Thinking of you.

TheDoctrineOfEnnis Mon 30-Jul-12 01:14:17

So sorry x

I'm so very sorry, how unfair this life is.

I wish I had some words to bring you comfort, but I have none.

I cannot imagine how you are functioning after the loss of your wonderful Flora.

Wishing you strength and peace.x

NormaSteepleChaser Mon 30-Jul-12 06:09:49

So sorry x

PaddingtonBare Mon 30-Jul-12 06:13:06

so very sorry for you - what sad news. much love xxx

Oh darling, so sorry for your loss sad

RIP Flora - a beautiful name for a beautiful angel xx

wine0 Mon 30-Jul-12 12:34:09

I'm so sorry for your loss of your beautiful brave daughter.

My DS2 was still born 4 years ago in August and the physical pain I felt afterwards was at times unbearable. For months I felt numb and it was only DS1 that got me up each morning and got me through the first 5 months.

4 years on and I'm smiling again after a longtime of never thinking I would...everyday I think of my beautiful boy and what he would have been doing and there will always be a gaping hole in your heart that will never be filled but the tears will internalise in the coming months and you'll weap for her everyday but without the tears.

Gain strength from your girls, your friends and find your inner strength because you'll need all of those things to keep getting you through each day.

Much love to you
Fly high beautiful angel xxx

eosmum Mon 30-Jul-12 14:49:09

I'm so sorry for your terrible loss. She sounds so absolutely wonderful and beautiful. Dearly wish there were some words I could say that would be of some comfort to you, but all I can do is tell you I am thinking about you and yours and will light a candle and say a little prayer for strenght for you all. T

WheresMyCow Mon 30-Jul-12 14:57:29

So sorry for your loss 3girlies sad

May Flora rest in peace xx

(((((hugs)))))

Geranium3 Mon 30-Jul-12 15:43:50

so sad that you have lost your darling flora, love and hugs to you allxxxx

expatinscotland Mon 30-Jul-12 23:48:54

3girlies, still thinking of you. Feel so robbed and cheated by cancer.

We only buried Aillidh on 14 July, so can't erect a stone yet on her burial site. Have just ordered a wee plaque for now. But when we do put a stone I want an orange ribbon etched, for the leukaemia that claimed her life.

All I can do for you is tell you that I understand, because I do.

So sorry for your loss.xxx

worryingwillow Tue 31-Jul-12 05:16:07

3girlies - I'm still thinking of you and your gorgeous girl.

And you and your family expat.

This is all just so wrong and unfair but your girls have had such an impact on those around them and created so many happy memories to cherish when you're able to. Wishing you peace of some kind.

Elephantscantdothetriathlon Tue 31-Jul-12 07:12:42

So sorry for your loss. Sleep tight flora. Yet another angel who now has wings.

echt Tue 31-Jul-12 09:02:19

Sorry for your loss, 3girlies, and yes, it must be a tremendous consolation and source of comfort to you to have had your lovely Flora at home with you when she died.

HelloShitty Tue 31-Jul-12 09:10:43

I'm so very sorry for your loss.

bumpybecky Tue 31-Jul-12 09:11:42

I'm so very sorry for your loss. Will be thinking of you sad

ipswichwitch Tue 31-Jul-12 09:16:24

I am so sorry 3 for the loss of your beautiful girl Flora. I hope you can draw some measure of comfort from the fact she was at home with her family at the end. I think scrapbooks or memory boxes are a lovely idea (we are putting them together for our son who was stillborn last year). You will all be helping each other through this, more so than you realise.

You are also in my thoughts too expat

RatherBeOnThePiste Tue 31-Jul-12 17:43:07

Holding you in my thoughts 3girlies X

3girlies Tue 31-Jul-12 19:37:40

Thanks so much to you all, these posts and messages have been a great comfort to us. Especially thanks to Expat and others who have also lost a little one for taking the time and trouble, your own grief must be as unbearable as mine, yet too the time to share. x.

ThePathanKhansWitch Tue 31-Jul-12 19:38:48

So sorry for your loss.x

HokeyCokeyPigInAPokey Tue 31-Jul-12 19:52:50

Still thinking of you all and sending strength for another day x

Love and strength to you, 3girlies

dear 3girlies, I am so sorry to hear this. So sad, and so sorry for you, for Flora, and your whole family. Your world has been turned upside down. I am glad you have a modicum of comfort about Flora being at home, but such a small thing in comparison to the life of your beautiful daughter. Yet that is what we do, isn't it? I lost my 13-month-old Mia totally unexpectedly last October, and I am slowly getting to the point where I can rejoice that she was in our lives, although the grief often overwhelms me still.

Slainte Wed 01-Aug-12 08:27:23

RIP Flora, I'm so sorry for your loss xx

3girlies Wed 01-Aug-12 11:08:42

MiaAlexandrasmummy, your story has broken my heart, I was talking to our palliative care nurse yesterday about you and expats girl, at least we had some warning that Flora was going to leave us, can't imagine how you feel. We are 30 days on today and it is my Dad's birthday, we are all still overwhelmed with grief. Thanks for taking the time to post. x.

expatinscotland Wed 01-Aug-12 11:12:20

Our daughter went downhill fast, 3girlies. Her chest was in trouble for about 3 weeks before she died, but she just failed to respond to any of the drugs or engraft until she'd sustained far, far too much damage to her lungs from all that chemo in such a short space of time.

Once she went to ITU, she declined rapidly. She went in on Monday and by Thursday was on a vent. She battled on, but the damage was terrible.

RnB Wed 01-Aug-12 11:14:44

Oh my goodness, I'm so terribly sorry for your tragic loss sad

BenedictsCumberbitch Wed 01-Aug-12 11:15:33

So sad. I can't imagine what you and your family are going through.

3girlies Wed 01-Aug-12 11:51:23

Expat. We were told on the 14th June that more treatment was not viable, we decided to take her home and try to make her comfortable, not sure we achieved that fully, but she was glad to be home. She faded a bit every day, lost her walking and some speech by 30th, spoke for the last time on the 1st about 1.30pm, then lost conciousness, not responsive after this, she died at 4.28am Monday morning 2nd July. We believe it is likely that she had a bleed into the brainstem, this tumour bleeds, it is how we found it in the first place, so accelerated her decline.
This was quicker than we all expected, thought we would have a few weeks, though I knew she was very ill and had been deteriorating since early May, just so sad to lose her that fast. Still finding it hard to believe.

expatinscotland Wed 01-Aug-12 12:02:55

Yep, I was talking to a friend, who lost her son to a brain stem glioma on Mothering Sunday, and she reflected our sentiments. 'You always think you'll have more time with them.' He died at home as well. He just stopped breathing - his tumour had also spread and was inoperable.

Aillidh was sick for 7months and 25 days from her diagnosis till her death.

Even when she went onto oscillated ventilation and dialysis, I didn't think she'd actually die.

3girlies Wed 01-Aug-12 12:21:34

Expat - I do agree, you never think they are going to go until they are gone. Also, when we were waiting to hear the scan results, I was expecting the news to be bad, but not the we can't treat this any more type bad, I thought they would still be able to help her somehow. Just knowing that she was going to go and we were only going to watch her decline was horrific.
Nothing happens the way you expect though. She went quickly instead. DH is convinced in time we will accept that it happened this way and it was better than her lingering on and suffering more, I am starting to feel this a little, but just missing her so much.
Just hope you are getting by, do you any other children? Our other 2 girls are so precious to us.

expatinscotland Wed 01-Aug-12 12:22:33

We have a 6-year-old daughter and a 3-year-old son. Aillidh was our eldest.

Elephantscantdothetriathlon Wed 01-Aug-12 22:00:16

My heart goes out too you 3girlies and too you exoat.

Gorran Wed 01-Aug-12 22:01:53

I'm so sorry. Flora sounds utterly wonderful x

mercibucket Wed 01-Aug-12 22:09:16

I'm so so sorry for your loss, op, and the losses of others on this thread. (( Hugs and Prayers))

GRW Thu 02-Aug-12 08:49:49

I am so sorry for your loss, and hope that you will get some comfort from the thoughts and prayers of everyone on here. Come back and talk to us about Flora if it helps. Thinking of all the other bereaved mums on here too x

tiredemma Thu 02-Aug-12 08:56:07

Heartbroken for all of you on here who have lost the most precious part of you.

I cannot even begin to imagine how you must be feeling.

These beautiful girls who have been taken away from you by the most cruellest of diseases, sound like they were so full of spirit and character.

I truly believe that we all 'meet again' somewhere, someday and I hope that you can hold this belief in your own hearts.

Most upmost admiration to you strong Mothers.

Much love.

3girlies how could I not post once I learnt of your sad situation? It's funny, I had always feared death, but now I don't. It will finally be my chance to see my beautiful Mia again. Yet, and this may sound silly, she does send me signs, to let me know she is still with us - and I hope that Flora will do the same for you. It happens to a lot of us - in very different ways, and it is something about which I would have been very sceptical, but not since I have had too many special experiences myself.

HokeyCokeyPigInAPokey Fri 03-Aug-12 14:31:16

Sending love and strength 3girlies to you, dh and your 2 girls.

My heart is breaking at the thought of your loss.

dobby2001 Fri 03-Aug-12 14:34:52

So sorry for your loss 3girlies.

Itsgottabebags Fri 03-Aug-12 14:34:56

I am so sorry for your loss. Thinking of you and your loved ones.

BerryLellow Fri 03-Aug-12 14:43:06

So sorry to read of this, wishing you all strength and peace x

thegreylady Fri 03-Aug-12 14:47:14

So very sorry to read of your loss. Death is always tragic but the death of a child knocks splinters off every mother's heart.

drjohnsonscat Fri 03-Aug-12 14:52:00

How terrible. I'm so sorry for the loss of your beautiful girl.

Lost for words at the awfulness you are having to live through. Wishing you all the strength and courage in the world.

WoollyWoolfe Fri 03-Aug-12 14:54:39

I am so so sorry for your loss. I cannot begin to imagine what you and your family are going through but please know that my thoughts and love are with you and your family x

MadamGazelleIsMyMum Fri 03-Aug-12 14:58:12

So sorry for your loss.

Thumbwitch Fri 03-Aug-12 15:05:47

Only just seen this - so very sorry to hear about your loss of Flora. sad
Cancer is a bastard illness, robs us of people before their time so so often.
Much love to you all xx

So so sorry for your loss sad

So, so sorry to hear of your terrible loss xx

FormerlyTitledUntidy Fri 03-Aug-12 15:56:46

I'm so sorry 3girlies
My thoughts are with you and your family, and of your little flora. This is just too cruel to understand
xxx

Jules146 Fri 03-Aug-12 16:03:54

Sending my love to you and your family xx

expatinscotland Fri 03-Aug-12 16:47:29

Thinking of you always, 3girlies, and of Flora and all your family. xx

3girlies Fri 03-Aug-12 16:56:19

Thinking of you too expat and miasmummy.
Just collected Flora's ashes. Keeping them here for now. Going back to the funeral home has made me a bit shakey. Funeral was 4 wks ago today, just feels like years since she talked to me.

RatherBeOnThePiste Fri 03-Aug-12 16:58:50

A huge hug for you my lovely Xx

Alibabaandthe40nappies Fri 03-Aug-12 17:00:28

I'm so very sorry for the loss of your lovely girl sad

xx

BlueGuinefort Fri 03-Aug-12 17:01:35

Oh, girlies. My heart goes out to you. Sending you lots of love and strength x

expatinscotland Fri 03-Aug-12 17:04:05

I totally understand. Aillidh made all these videos of herself on the iPad, I have to keep watching them to remember her little voice.

She was buried, we couldn't bring ourselves to cremate her, and we went to her burial lair yesterday. When I paid up I thought of the irony, the only piece of land I'll ever buy here is a burial lair for my daughter, with room for ourselves.

4 weeks since she died tomorrow.

It seems so unreal, doesn't it?

I think of Flora every day, and you all.

There's no right or wrong in anything you do with regards to this, 3girlies, just know that people are here for you.xx

worryingwillow Fri 03-Aug-12 17:15:06

Still thinking of you all xxxx

DystopianReality Fri 03-Aug-12 17:33:27

One day you will laugh again.

It doesn't feel like you will ever now.

I will think of you tonight and send you strength. But bereavement isn't about strength, it is simply the price of loving. And you need to embrace her loveliness, feel it's ok to hurt and feel so angry, as other people have/take for granted/moan about their own children.
And, at some piont, you will feel strength for other people going throuugh this, because you have. No-one else will be able to understand as you will.

In the meantime,

even as an atheist, I will send you a prayer. Don't 'be stong' for your other children, they need to see you weep and grieve. It will help them express their grief too.. She was a lovely, that is what you are all missing.

So sorry to hear of your loss 3girlies. Your Flora sounds like a wonderful little girl, a real delight.

I hope this doesn't sound wrong but how lovely that she was in bed with you when she died, she must have felt so safe and warm and loved.

NUFC69 Fri 03-Aug-12 17:48:45

So sorry to hear about Flora, 3girlies, my thoughts and prayers are with you.

wifeofdoom Fri 03-Aug-12 18:27:00

So sorry to hear your sad news. Thinking of you.

KinkyDorito Fri 03-Aug-12 19:20:57

I'm so very sorry for your loss xx

MrsHuxtable Fri 03-Aug-12 20:11:22

3girlie I'm so sorry you have to go through this. I cannot imagine the pain you and all those other mums who have lost their children must be feeling. It just seems so cruel and so wrong.

I've only been a mum myself for 6 months today and while I'm sitting here, holding DD so so tight, I actually can't hold back the tears. I think, it's something you cannot understand until you have your own child....the fear a mother feels of losing the most precious thing in her life and then, if the unthinkable does happen, the pain and sheer desperation.

I hope that you manage to find peace and will eventually manage to happily think of your beautiful Flora and the life she had, even if it was cut way too short.

Thinking of you and your family! X

Sossiges Fri 03-Aug-12 20:18:07

I'm so sorry to hear about your darling Flora
((((()))))

JuliaScurr Fri 03-Aug-12 20:27:59

I'm sure Joyful is right, your love for Flora was all there for her when she died and she knew it
Thinking of you

piratecat Fri 03-Aug-12 20:31:07

i am so so sorry 3girlies. x

RabidAnchovy Fri 03-Aug-12 20:43:43

So So very sorry for the loss of your beautiful child xx

Ample Fri 03-Aug-12 20:49:55

I am so very sorry x
sad

bbface Fri 03-Aug-12 20:52:11

So deeply sorry. So sorry. Wish I could be more articulate at times like this. The strength of my feeling and sympathy for you and your family is intense.

My love
xxxx

flubba Sat 04-Aug-12 10:13:06

So very sorry 3girlies
x

goygoy Sat 04-Aug-12 19:58:05

I'm so sorry. Thinking of you and your family xx

graciew Sat 04-Aug-12 20:09:32

RIP Flora. xxx

JuliaScurr Sun 05-Aug-12 12:25:23

Hope it's a little bit more bearable today

3girlies Sun 05-Aug-12 15:12:42

Have just uploaded a pic of Flora to my profile, hope it works.
Thanks for all your messages and thoughts. x.

Thumbwitch Sun 05-Aug-12 15:18:17

What a gorgeous little girl, 3girlies. Just beautiful.
(((hugs))) xx

RatherBeOnThePiste Sun 05-Aug-12 15:36:34

Bless you for sharing that with us 3g, Flora is beautiful, sparkly and bright, all three of your daughters are......just lovely.

Thank you X

Keeping you all in my thoughts and sending you much love and a great big hug.

Pistey

Xx

What a gorgeous family. Flora was beautiful. You must be very proud of all your girlies.

Still thinking of you all and sending you strength.x

WoollyWoolfe Mon 06-Aug-12 14:18:14

You are in my thoughts so much. Flora was such a gorgeous girl x

All 3 of your girls are beautiful, I'm so sorry that Flora passed away and your other girls have lost their little sister. It looks like she loved her family very much!

pixiestix Mon 06-Aug-12 15:03:27

She is lovely 3girlies.

WheresMyCow Mon 06-Aug-12 15:40:07

Your girls are beautiful 3girlies thanks for sharing their pictures with us.

Thinking of you and sending hugs x

BlueGuinefort Mon 06-Aug-12 21:15:50

You have beautiful children, girlies smile

BlueGuinefort Mon 06-Aug-12 21:16:49

(sorry, hope that smiley wasn't misjudged)

expatinscotland Mon 06-Aug-12 23:41:20

Flora is gorgeous, girlies!

goingmadinthecountry Tue 07-Aug-12 01:49:15

What a beautiful littlle girl. I lost one of my twins at 24h many years ago but it really is absolutely nothing compared with losing a child you have that shared time with. 3girlies and expat I admire your strength so so much. It really is the most unfair horrible thing in the whole world. Like everyone else here I'm sure my 4 children (even though eldest is 18) are the centre of my life. You people are truly fantastic.

MollyMurphy Tue 07-Aug-12 03:29:26

Thinking of you and wishing you well. Im so sorry

JuliaScurr Tue 07-Aug-12 10:28:58

sending best wishes

ConnieBelle Tue 07-Aug-12 17:49:28

Oh 3girlies so so sad.

boohoohooshouldhavewongold Tue 07-Aug-12 18:02:56

What beautiful girls, they really are x

buzzgirly Wed 08-Aug-12 16:39:23

Thank you for sharing pictures of your lovely family. Flora is gorgeous!

Life is so unfair, it is so awful that she has been taken from you.

Thinking of you all, big huggs xx

ChippingInNeedsCoffee Wed 08-Aug-12 22:22:14

3girlies Lovely photos, thank you for sharing them with us x

It's so unfair and so frightening how such a healthy looking child can go downhill so quickly sad I think your husband is right and in time you will feel some relief that she didn't suffer for longer - but right now it's too raw for that and all you can think about is the time lost with her. It's just so so so bloody unfair. I wish we could all shoulder some of the pain for you or better still, if I'm wishing, bring her back to you.

Collecting the ashes is so difficult isn't it - partly you are relieved at having them & yet on the other hand it's so final... it's all wrong, so wrong having to do it at all. There's nothing to stop you keeping them, you could always have them buried/scattered with you...

Lots of love & strength
x

FarloRigel Wed 08-Aug-12 22:48:39

What a gorgeous wee girl. I am so sorry for the loss of your darling Flora. Our friends lost their beautiful daughter just weeks ago to childhood cancer also, it is a terrible, cruel illness and I am so sorry your little girl had to go through any of it . My DD has a big heart shaped locket with wings on with a photo of her friend in to wear when she feels very sad, perhaps your girls would like to do that too. She also decorated a sky lantern all over with her felt tips in her friends favourite colour and released it. You can also get lovely memory boxes from Winston's Wish they can collect little things that remind them of her in. Thinking of you and your family.

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