PLEASE help me by retweeting my request for my dying Dad

(23 Posts)
Oneandonlylife Sat 10-May-14 20:56:17

As the title suggests. I'm trying to do something amazing for my lovely Dad

He is dying from a hideous and rare disease. Multiple System Atrophy. He has been in hospital for 5 weeks now whilst I have been fighting on his behalf for NHS continuing healthcare funding. His delayed discharge simply down to WHO was paying for his care. Never mind the fact this amazing man is terminally ill and shouldn't be on a busy ward in a threatened environment with violent patients frequently being allowed to 'visit' his bedside.

We honestly don't know how long he has left because sudden death events occur in end stage MSA

He has supported QPR his entire life and I am determined to get as many supporters as possible to chant "THERE's ONLY ONE ALFIE PRESTON"

Please please please help me. Monday evening could very possibly be the last match my amazing lovely 66 year old Dad will ever see. He has no idea about this because I would HATE to disappoint him.

Please please help me achieve this mostly unachievable feat!!

Please please. Twitter is already exploding. But he needs more awareness!!

Smartiepants79 Sat 10-May-14 20:58:06

I'm not on twitter I'm afraid but I'll bump for you.

3littlefrogs Sat 10-May-14 21:00:17

I am not on twitter, but wanted to ask why he is not being referred to a hospice?

JoyceDivision Sat 10-May-14 21:00:25

sorry, don't twitter but rebumping... is there any way you could contact theclub and ask them to get someone do lead the chant via the announcer?

WillGardnersNose Sat 10-May-14 21:01:07

can't help you with the QPR issue but new guidance is that discharge shouldn't ever be delayed because of funding issues between SS and Health. 5 weeks is disgraceful.

Also if your dad is that unwell then you should be asking for his CHC application to be a 'fastrack' which means it isn't even up for discussion with social services - no MDT or anything.

WillGardnersNose Sat 10-May-14 21:01:47

sorry, I'm getting angry on your behalf reading that

Ebayaholic Sat 10-May-14 21:24:59

I think I just re tweeted you. This must be so stressful for you. Thinking of you

Ebayaholic Sat 10-May-14 21:27:08

Ps for more traffic you would be better off transferring this to somewhere like chat

Stuffofawesome Sat 10-May-14 21:27:54

I've known people in hospice get chc funding by ringing them up directly and being very forceful! Fast tracking can be done within days. Good luck

RhondaJean Sat 10-May-14 21:29:13

I've just had a look at teh QPR website and I can't see how to contact them but the club has a twitter page. Can you tweet at them? (don't do twitter so not totally sure how it works)

RhondaJean Sat 10-May-14 21:30:01

Sorry it's

@OfficialQPR

DameOfCrones Sat 10-May-14 21:30:58

So sorry to hear about your dad.

What exactly do you want people to do? I can retweet, what's your @name? What else can people do?

KiaOraAura Sat 10-May-14 21:31:42

On the QPR front, why dont you contact their media team via facebook as a starting point? They are online now (last post was only a few minutes ago). Link here

All the very best to you and your lovely Dad x

mummylin Sat 10-May-14 21:38:23

I also don't do twitter but can bump the thread. Hope you can get this done for your dad

FelixFelix Sat 10-May-14 21:44:53

I have retweeted! Post this in chat as more people will see.

saffronwblue Sun 11-May-14 04:57:40

Bump

retweeted any I could find, sorry to read about your dad and also the problems with the hospital.

mrsfiddymont Sun 11-May-14 09:02:50

Sorry to hear about your dad....hope you get your wish. Tweet, bump and definitely post in chat for more traffic.

mummylin Sun 11-May-14 11:02:47

Bump

sillymillyb Sun 11-May-14 11:25:32

I have retweeted, thinking of you and your dad x

mummylin Sun 11-May-14 18:32:24

Bump

BobPatandIgglePiggle Sun 11-May-14 18:36:53

I don't do twitter

Are you facebooking too??

I'm clueless - are there any famous qpr fans you could tweet to make the re tweet effect bigger?

CHCFundingChampion Sun 11-May-14 20:03:29

If a clinician (usually a doctor) confirms that someone appears to be in the last stages of life, they can use the Fast Track Pathway to secure CHC funding, which allow your dad to be cared for in a care home, with fees paid for by the NHS. It SHOULD be the case that requesting this Fast Track (if appropriate) will mean that things are actioned within 48 hours. This does not always happen. You may have to argue the case with the CCG but do persist ...
More information is here: chcfunding.wordpress.com/national-framework/fast-track-pathway-tool-for-nhs-continuing-healthcare/

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