The start of a long road (Aspergers syndrome)

(8 Posts)
Celestae Mon 17-Mar-14 14:55:23

Today was the start of a long road, my son (7years old) just went for his specialist appointment at the hospital, although true diagnosis is a long way off, the very nice pediatrician we worked with today does think that he is quite probably on the autistic spectrum luckily at the high end so probably more likely to be aspergers rather than full on autism.

We have all seen this from a very young age, but I decided that there was no need to act unless it became a problem in school, which it did within the last 6 months.

This isn't a sob story by any means, I love my little man, quirks and all, it can be frustrating at times, but patience and understanding goes a long way.

I freely admit that I don't always have the required patience, and my partner struggles sometimes to understand that he doesn't perceive things in the same way as we do. But then this is why we wanted him to be diagnosed, so that we can manage his upbringing properly, and know which things are difficult to for him to understand even though to us it would be completely normal to not even consider this as something that is hard to understand..

I'm not even sure why I Am posting this, I think it's just like a sound board type thing, sometimes it's just good to sound it out, and if anyone can offer advice or any good reading material to help us out that would be good.

We went through this a few years ago. It was a big adjustment to admit that DS2 was different and wasn't just going to grow out of his quirks & difficulties. His diagnosis has helped him to understand his strengths & difficulties, and has helped him access the support he needs to cope at (and even enjoy) school.

bialystockandbloom Mon 17-Mar-14 15:15:23

Hello. Well done for going through with the assessment/diagnosis procedure. It would be worth posting this again in the SN (Children) board, there are lots of us in similar positions and you'll get good advice, reading recommendations etc. Also good for general chatting with others who 'get it' smile

Tony Attwood is good for reading about AS. Also, I haven't read it, but heard good things about All Cats Have Aspergers (Cathy Hoopman).

The other really important thing at this stage, if you're not already, is talk to school about any support they can give.

Celestae Mon 17-Mar-14 15:59:53

School is one of my next port of calls after I have spoken to my sons daddy (we are separated) problem is his daddy is just the same, so he doesn't see a problem... I'm hoping that paediatricians might sway his opinion on this lol.

Thank you for the advice about the SN children topic.. I will look that up. I hadn't found it previously.

It may well help to talk to others with similar problems

Ineedmorepatience Mon 17-Mar-14 16:12:01

Hi Celestae Well done for taking the plunge to get your little boy assessed, it is not an easy decision.

I have a Dd with Asd [she presents like someone with Aspergers] , our children need us to be their voice and to get them the support that they need to function in the mainstream world.

Hope to see you on the SN childrens board smile

mummytime Mon 17-Mar-14 16:13:31

The Psychologist I saw when my Dc was being diagnosed said he often sees Dads who are in denial (and often they show ASD traits too).
I'd recommend the All Cats book.
There are also some Australian story books which are useful.
My DC is older and really likes books like Asperkids Secret Book. So that might be an idea for when he's older.

Ineedmorepatience Mon 17-Mar-14 16:21:57

Another good book is "Inside Aspergers, looking out" It has brilliant pictures , Dd3 really related to it even though her Dx isnt actually aspergers.

Celestae Mon 17-Mar-14 16:32:36

Making a list lol!!

Might be good to find something that my son himself can look at book wise... I found it difficult to explain to him why we were going to the hospital because to him, this is just how it is, and we just treat him as he is too lol bless him

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