Mumsnet Discussions - Triple test 1:7, CVS tomorrow

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Triple test 1:7, CVS tomorrow

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By Wed 26-Aug-09 09:59:49 Add message | Report | Contact poster

Hi
Had my 12 week scan yesterday and the NF was 7mm - which is huge. We were given a risk factor of 1:3 and got bloods today which put it down to 1:7 for the two other trisomy's and 1:2 for Down's. They were very bleak - the mw said there was little chance of survival in utero anyway with a fold that thick.

I'm 41 and the worst of it is we had a failed IVF in April where we were told I would be unable to conceive with my own eggs as they were so old and knackered and had started the donor process when I had a freak natural pregnancy. So this is really our last chance; we can't just go away and start trying again.

I'm angry this has happened as it's a whole heap of misery for no reason - we were due to be off to have donor ivf next month and god knows when we'll be up to it now.

Worried about the risk of miscarriage being so high with CVS but can't face going beyond 14weeks with the likelihood of having to terminate as it would have to be a full labour then.

Don';t know what I'm asking really, just if anyone out there has been in a smiliar position - good stories and bad please.

Add message | Report | Contact poster By Wed 28-Oct-09 09:19:54

oh peanuthead, I am so very sorry sad

Add message | Report | Contact poster By Tue 27-Oct-09 20:08:34

I'm so sorry peanuthead, just read this from start to finish and so hoped that it would have a happier ending. Strength to you and your family.

Add message | Report | Contact poster By Tue 27-Oct-09 20:02:06

Hi Angry, yes we had the terminaton 4 weeks ago - turned out the heart defect would have been inoperable, not only a single ventricle defect but also a leaky tricuspid valve. Was a boy, still trying to deal with it.

Add message | Report | Contact poster By Tue 27-Oct-09 07:48:11

have you got any more news peanuthead?

Add message | Report | Contact poster By Sun 13-Sep-09 15:35:14

Oh that's good news peanuthead. Even if it doesn't feel like it yet. Do be aware that medics can be very doom and gloom when it comes to discussing heart problems. I know a number of people who have been given very negative prognosises only for it to be not nearly so bad at birth (a number of stories on mnet). Other parents such as peanut who have been through it might be better at giving the low down.
Fingers crossed that all the news continues to be good.

Add message | Report | Contact poster By Sun 13-Sep-09 12:06:56

Oh so pleased for you peatnuthead, what a big relief that must be. Take care you and the little un J x

Add message | Report | Contact poster By Fri 11-Sep-09 21:19:04

I have just read all of this thread, oh my gosh tears are streaming down my face reading about all the horrors you ladies have been throuhg, and PeanutHead, the stress and pain you and your family are going through too - My thoughts are with you -x-x-x-

Recently my nephew was born with Aperts, and it was a huge shock to my sister, I now look at my DD and feel consumed with love - I really hope you all get a happy ending and closure x

Add message | Report | Contact poster By Fri 11-Sep-09 21:04:03

peace and love, peanuthead, very glad to hear your latest news, roll on the next four weeks.

Add message | Report | Contact poster By Fri 11-Sep-09 20:50:44

great news. keep us informed about the heart scan. when are you booked in? another encouraging story from ziggy. we refuse to let you give up hope smile

Add message | Report | Contact poster By Fri 11-Sep-09 19:27:48

Peanuthead, what a relief your results came through today and that they were clear. I understand your still in a difficult place right now and I hope you get some answers soon about your LO's heart. I found the pregnancy thread on heartline so supportive when DS was diagnosed with an AVSD defect right through to when he had surgery. There are are a lot of knowledgable and caring parents on there.
Wishing you all the luck in the world and lots of strength to cope with the path ahead.

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Triple test 1:7, CVS tomorrow