Rare antibodies in blood

(10 Posts)
Carwash3 Sat 19-Nov-16 09:43:55


I'm new on here but hoping some other women might have experience of this. I'm 10 weeks 5 days pregnant through IVF. Yesterday I got a call from midwife to tell me I need to have one of the 10 week blood test redone as they have been told a rare antibody has been found and they need to check and establish what it is. They gave me no clue what it could be apart from that it wasn't linked to my negative D blood type. They said they hadn't been told much about what it could be. They also said not to worry too much as often these blood test results are something and nothing but they had to check in case of possible infection of baby and I might need monitoring. Of course I'm really worried esp as they were very vague. From what I can see about antibodies it could be a few things some of which more harmful than others. Anyone had any experience ? Thanks in advance

plimsolls Sat 19-Nov-16 09:53:42

I don't have the same experience but just yesterday I was told something similar about my baby daughter's blood. It came up during some fairly routine monitoring blood tests.

I had a similar problem to you in that the explanation was quite vague, plus blood group and cell type and antibody stuff is I think hard for them to explain simply.

It wa a something like an unusual protein or antibody attached to the surface of her red blood cells.

Overall, the doctor I spoke to said that there were no other indications of an issue so there was nothing to worry about and it was just one of those things.

Am a bit confused about it but perhaps your case is something similar....

flumpybear Sat 19-Nov-16 09:59:16

Hi - have they done a group and save? I had this when I was about to go for my section with my second child. For me they biked over bloods in case I needed a transfusion - I didn't, but only two pack were available in the country as it's rare - I'd say try to get all the info you need but also perhaps change the title to calling haematologists to get some professional advice perhaps wink
Think mine was s antigen or antibodies .... can't recall now

Carwash3 Sat 19-Nov-16 10:26:45

Thanks that's good to know others have similar experiences. Just seen midwife as she came round to take my blood. Now they are saying it most likely is anti bodies because of my d negative status even though it doesn't usually impact a first pregnancy! Anyway she said few times very unlikely to be anything to worry about worst case scenario is baby might have to have blood transfusion but they can manage this condition. All very confusing but I guess I have to trust what they are saying !

INeedNewShoes Sat 19-Nov-16 10:55:19

I've got Anti-S which I think is quite rare. The titre (level) is important. At the moment my titre is very low so it's no concern at all. Later in pregnancy they'll monitor my baby for anaemia as that is the risk associated with my particular antibody.

Try not to worry too much. Although they're rare most of them are not too much of a problem from what I've read.

Carwash3 Sat 19-Nov-16 11:57:19

Hi thanks a lot it really helps to hear from others in the same boat glad yours turned out to be nothing to worry about

flumpybear Sat 19-Nov-16 17:19:57

FWIW There were no problems in the end with me or with my little boy, he's 4 now - they took bloods twice a day when he was jaundice after birth but my two both suffered this with BF anyway so their bilirubin levels dropped as expected - we were out with five days - similar situation with DD three years before

Carwash3 Sat 19-Nov-16 17:54:03

That's good to know. I think they are getting a more sophisticated analysis of my blood before anything else. I think I'm so nervous because it's our first and we struggled to conceive hopefully I will become calmer smile

Desmondo2016 Sat 26-Nov-16 22:56:16

I've had 3 anti k (kel) affected pregnancies out of my 4 pregnancies. Baby 1 not affected, believed i built up the antibodies when my blood mingled with his during delivery. Baby 2 not affected as my antibody levels did not reach dangerous levels . Baby 3 lost at 20 weeks for unrelated issues. Baby #4 was highly medically managed through pregnancy and had 4 intrauterine transfusions between 22 and 33 weeks and was born healthy at 35 requiring a further 2 post birth transfusions. Home on day 5 with no health issues whatsoever. The problems will get worse with each subsequent pregnancy. Basically in layman terms my blood attacked babies blood causing baby to become anaemic. His levels of anaemia were measured by scanning the cord blood flow twice weekly from 16 weeks. The faster the flow the thinner the blood the higher the level of anaemia. When it reached a certain risk level I'd be sent to a specialist hospital 2 hours away and the transfusion would be carried out. The transfusions get more risky as the pregnancy progresses. My first 4 were straight forward. My last one at 34 weeks failed and triggered Labour which they managed to stop. I was too traumatised ti attempt the transfusion again so was induced a few days later and ultimately had an emcs. However all was well that ended well. I'm now 36 weeks pregnant again with baby 4 (pregnancy 5, pregnancy 3 was lost at 20 week not related to antibodies). Different father this time and we had his blood tested before ttc so we knew there would be no antibody issues as we had been told it would probably be too risky to go through another Kel affected pregnancy. I hope this is of some use. I believe the effects are much the same regardless of the type of antibody. Several people will think they have this due to rhesus negative factor but the difference is there is an antidote to that (the anti d injection) and there isn't for the others. Disclaimer... I am not a medical professional so this is my memory and experience (12 years since my last Kel pregnancy!l

Desmondo2016 Sat 26-Nov-16 22:57:35

Feel free to PM me if you want btw.

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