Skip to main content
Skip to main navigation
Skip to talk navigation

Active discussions

Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Saved Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

Flip

Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters.

Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters.

Antenatal tests

Hospital want to see me today re. High Risk Grouping for Downs - Going Mad with Worry.

24 replies

Mikocat · 03/11/2011 13:16

I am sat at work going a bit mad. A midwife from Leeds General Infirmary rang an hour ago to say that my blood test results show me as being in the high risk group for Downs and that they would like me to come in 'to discuss next steps'.

I'm 38, so I knew this was a possibility, but after our screening on Monday I read on the print out (I thought) that the nuchal measurement was 1.8, which I thought was really good. So I really wasn't expecting this.

What are they going to tell me? Are they going to make me have more tests there and then? I'm so panicky.

OP posts:

Report

MarieFromStMoritz · 03/11/2011 13:19

That is a very low nuchal measurement (which is good). Our DS's was 3.5, I was 40 years old, my blood test results were very indicative of Down's, but... he was fine. It is a screening test and with those nuchal results I would not be overly worried. Would probably still opt for the CVS, though.

Mikocat · 03/11/2011 13:43

I can only guess that they will be wanting to tell me my risk factor and asking me if I want further testing. At 14 +3 I seem to be in the middle of the times for both test from what I've read so I'm guessing that i might have to wait for an amnio?

I don't really see that I have any option but to take whatever tests are offered me, risks and all.

OP posts:

MarieFromStMoritz · 03/11/2011 13:50

You can substantially reduce the risk by going to a reputable doctor. Prof Nikolaides in London is very famous for doing these procedures. You have to pay, but he really is the best.

mummytoh1 · 03/11/2011 13:50

Hi, I was given a 1:15 risk, mostly due to blood test results, although nuchal was 2.6mm. I had a cvs and all was fine.

What happened with me was like you I had a phone call at work telling me I was high risk and asking me to go to the hospital at 9am the following morning. There they explained my results and what made me high risk and I opted to have a cvs done which was done there and then (I was only 12+5 tho).

It sounds like your blood test results combined with your age are giving you a high risk result. The scan was good in your case so that's very positive, bloods can be unreliable. I personally would have a cvs or amnio if it were me but I'm very much a need to know person.

Good luck tomorrow and ask them as many questions as you need. You should be allocated a fetal medicine midwife who will support you.

kentDee · 03/11/2011 13:55

Hello Mikocat.
I was in the same situation as you a few weeks back, although Im expecting triplets. We decided to have the cvs test and Im so glad we did. We got the results back last week and thankfully all is well. On one of our babies the nuchal measurement was much higher than yours- 4.2. Like you say, tests carry risks, but if you don't have them its going to be constant worry throughout your pregnancy. Only you and your oh can make the decision to test or not. Good luck with it all anyway xx

Mikocat · 03/11/2011 17:39

The risk factor was 1:109. They have booked me in for an amnio next Thursday. Fingers crossed.

OP posts:

MarieFromStMoritz · 04/11/2011 02:31

kentDee, I didn't think you could have a CVS when carrying multiples? Can you confirm this as I am very interested. Thanks.

kentDee · 04/11/2011 10:24

Yes I had a cvs and Im pregnant with triplets!

Good luck Mikocat. x

Mikocat · 04/11/2011 10:25

I've been told that after the appointment I need to 'take it easy' but that seems quite open to interpretation. I have decided to take the day off work (it's at 9 a.m.), but should I plan on being off Friday too? My husband is going to work from home on Thursday, so I won't be alone that day. I'm wondering whether keeping busy is a better option than stayong home on my own or if I really won't feel like seeing anyome IYSWIM.

I work in the civil service, so they are obliged to give me all the time I need. (one of it's few perks!)

OP posts:

kentDee · 04/11/2011 12:34

The procedure itself doesn't really hurt, its just uncomfortable. I must admit that I did suffer a bit of pain so I took it easy for 24 hours. You will just have to see how you feel. They gave me pain killers to ease the pain. Good luck.

blacktreaclecat · 04/11/2011 17:08

Dr Ferriman at LGI is lovely and did our CVS. Unfortunately it was t21 but our nuchal was 10mm.
Just to reassure you that they are very good and "reputable" at Leeds fetal medicine.

Mikocat · 04/11/2011 17:54

Thank you blacktreaclecat that's the doctor doing my Amnio, so it's reassuring to hear. I'm very sorry that you didn't get the result you hoped for.

OP posts:

blacktreaclecat · 04/11/2011 18:45

I'm pregnant again (very early) following array cgh ICSI. The embryo had it's chromosomes checked before transfer so we know they are very likely to be normal. Still very nervous though.
Good luck for your amnio.

bishboschone · 07/11/2011 18:20

I had a 1.25 for Edwards at 12 weeks, nuchal 2.4 . I had a cvs. I literally spent a week in bed to rest afterwards as I have a very physical job . I wouldn't bank on going back to work and try and take it as easy as you can. Good luck...my ds is fine by the way ..5 months old :)

LadyBeckenham · 08/11/2011 01:28

I had 48 hrs in bed. It's the only perk....

Mikocat · 08/11/2011 15:44

I am going to wait and see how I feel about going in on Friday. To be honest the idea of being at work when the results come in (if they are bad - or if they ring to tell me it will be another 2 weeks) is dreadful.

OP posts:

bishboschone · 08/11/2011 17:02

I'm sure you can signed off to rest .

Four4me · 08/11/2011 20:45

Hi I have had 3 Cvs's (at the LGI) and each recovery has been slightly different. With one I was able to take ds out for the day to a national trust place the next day!! The next two I chilled out at home the next day whilst my lovely mil looked after the other dc so I could recover.

Hope all goes well. X

Mikocat · 10/11/2011 20:13

The amnio was uncomfortable, but quick, now just waiting waiting waiting...

OP posts:

mumatron · 10/11/2011 20:32

Good luck miko hope you get a good result.

Mikocat · 11/11/2011 09:56

Thank you, the periody-type cramps are worrying the hell out of me today. Terrified every time I go to the loo. :-(

OP posts:

Mikocat · 11/11/2011 14:32

The consultant rang to say that the Down's test is all clear! I am still a bit worried about the miscarriage risk, but am going to try and have a normal weekend now that the waiting for the results is over.

OP posts:

Don’t want to miss threads like this?

Weekly

Sign up to our weekly round up and get all the best threads sent straight to your inbox!

Email address

Log in to update your newsletter preferences.

You've subscribed!

Mum1369 · 11/11/2011 14:34

Lovely news. Put your feet up for the weekend!

Mum1369 · 11/11/2011 14:35

Metaphorically ! It wasn't medical advice !

Flip

Please create an account

To comment on this thread you need to create a Mumsnet account.