Hi everyone, I'm new to the site and just wanted to tell my story and hopefully gain some much needed advise.
We already have a DS who is a happy and healthy 3 yr old and last year I fell pregnant again with a due date of May 2010. The pregnancy seemed to be going along fine, no abnormalities were shown on the scans or triple test. The only thing I noticed was that I was substanstially smaller in size than I was with my DS. At 34 wks I was booked in for a growth scan due to my concerns about my size, and the sonographer confirmed the baby was v small and the doppler readings were not good. The hospital decided to give me an EMCS and deliver the baby, who was ventilated approx 3 hrs after birth and trfd to another hospital. It took the hospital a week to diagnose my DD but the results come back that she had trisomy 18 Edward's and the illness was 'incompatible with life'. Our DD fought a good fight but sadly passed away on the 3 May 2010, aged 18 days.
I have since discovered that I am pregnancy again and although overjoyed at this pregnancy, absolutely terrified that something will happen again.
Has anyone here conceived a child with Edward's and gone on to have a healthy pregnancy and birth??
We have booked a private combined NT scan for 3 Sept but to be honest the waiting is unbearable..
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Trisomy 18 Edward's Syndrome
7 replies
thomassmummy · 20/08/2010 17:53
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