to ask you to send good wishes to goodnessknows for her operation tomorrow

(86 Posts)
livelablove Mon 27-Jan-14 17:14:58

goodnessknows has a scary operation tomorrow, to remove a tumour on her spine. She is feeling a bit panicky, so I thought she might like your supportive messages to encourage her. Here is a link to her thread goodnessknows

livelablove Mon 27-Jan-14 17:21:03

I should start by sending thanks good luck Goodness, will be thinking of you and your family.

livelablove Mon 27-Jan-14 17:54:05

Posting directly on her thread would probably be best. But if she gets messages here I will post a link on her thread back to AIBU.

AllMimsyWereTheBorogroves Mon 27-Jan-14 18:20:48

Bump. I've left a message on the main thread.

thinkofablinkingnamewoman Mon 27-Jan-14 18:27:13

Added a message on the main thread. What a nice thing to do livelablove

bodygoingsouth Mon 27-Jan-14 18:28:24

best if luck, thinking of you xxxx

Rosa Mon 27-Jan-14 18:31:00

I will add my wishes and hopes on this thread as well x

4PlusMum Mon 27-Jan-14 19:22:56

Oy vey! Just followed the link to your other thread so now I know what you are in for.

Holding hands with you. You can look forward to my visit on Friday.

livelablove Mon 27-Jan-14 19:29:14

Are you visiting her 4plusmum? That's great.

iloveny001 Mon 27-Jan-14 19:47:29

Best of luck, it will be fine x

iloveny001 Mon 27-Jan-14 19:47:49

Best of luck, it will be fine x

iloveny001 Mon 27-Jan-14 19:47:50

Best of luck, it will be fine x

GoodnessKnows Mon 27-Jan-14 19:52:56

Oh my goodness! You DO realise that I can't see the keys as I'm actually crying! You've really touched me. Thank you so much! So lovely not to be in a lonely, dark place. The power of the virtual support and empathy I've had from you lovely fellow MNetters has been incredible.

CaptainCorellisVentolin Mon 27-Jan-14 19:54:29

Best of luck for tomorrow! thanks

lougle Mon 27-Jan-14 20:07:28

Sleep well tonight GoodnessKnows, you're going to be just fine so get all the sleep you can before the op thanks

OneInEight Mon 27-Jan-14 20:09:48

Goodluck for tomorrow - hope it all goes well!

DrankSangriaInThePark Mon 27-Jan-14 20:14:18

Good luck vibes winging their way from Italy. flowers

GoodnessKnows Mon 27-Jan-14 20:34:46

Thank you!
Xxx

bishbashboosh Mon 27-Jan-14 20:39:29

I read your original thread, you're so strong and you have us all behind you . All the best for tomorrow xxxxx

GoodnessKnows Mon 27-Jan-14 22:01:25

Xxxx

PedlarsSpanner Mon 27-Jan-14 22:02:35

good luck my dear

we'll be rooting for you x

IwishIwasmoreorganised Mon 27-Jan-14 22:04:19

Love and best wishes for tomorrow.

I'll be keeping my eyes open for an update.

Xxxx

Best of luck for tomorrow. Hope it all goes well. Will be thinking of you.

thanks

GoodnessKnows Mon 27-Jan-14 22:12:21

I'll be in intensive care fir a couple of days and the hospital is renowned for having rubbish internet connection. But I'll update as soon as I can ;)

Christelle2207 Mon 27-Jan-14 22:30:37

We will be thinking of you and looking forward to positive updates.

LovelyWeatherForDucks Mon 27-Jan-14 22:37:53

I really, really hope it all goes well tomorrow for you.

magimedi Mon 27-Jan-14 22:37:57

Good luck!

Looking forward to a great update.

I remember seeing your original thread, hope it went ok and all the very best.

WelshMaenad Tue 28-Jan-14 23:42:30

Good luck sweetheart, I hope it goes well.

Gossipmonster Tue 28-Jan-14 23:48:59

Good luck.

If it's any help I had a tumour removed for the base of my spine 22 yrs ago aged 16.

I took up running last year grin.

Gossipmonster Tue 28-Jan-14 23:49:14

From obviously!!

ApplesinmyPocket Tue 28-Jan-14 23:51:55

Best of luck, lovely, hope it has all gone as well as possible and you are having a good sleep now.

GoodnessKnows Wed 29-Jan-14 03:52:31

Gossip, that's fantastic. So encouraging to hear although if I the up running, I'll know that they must've operated on my brain. Lol
I'd love to dry slope ski though.
I'm in a high dependency unit.
I'm ok
I'm on plenty of drugs and morphine
Countless tubes etc
But I can still text.
Lol
Hope you're ok?
I so appreciate your messages. Xxx

ChineseFireball Wed 29-Jan-14 04:22:41

Don't forget to make sure you pull your gown closed so you're not flashing yer bum wink
Seriously though, wishing you a straightforward recovery thanks

Thatisall Wed 29-Jan-14 05:21:22

All the very best wishes GoodnessKnows

Just read your other thread - good luck!

Good luck goodnessknows thanks

benetint Wed 29-Jan-14 07:11:03

Thinking of you and I hope it all goes well, lots of love x x

ishouldcocoa Wed 29-Jan-14 07:53:42

I've only just found your original thread, Goodness.
I wish we could award you with a MN medal. You deserve it!
Thinking of you and hoping you come out of all this tumour free and pain free. Xx

IwishIwasmoreorganised Wed 29-Jan-14 08:28:59

There you are! Good morning and it's lovely to hear from you.

The tubes will get less, and the pain will ease. Soon you'll be able to be up and about gently. Listen to the physio's - they're your friends.

Xxxx

livelablove Wed 29-Jan-14 09:01:28

Glad to see you goodness and sounds like you are feeling ok so far. Sending you love and thanks

GoodnessKnows Thu 30-Jan-14 06:55:50

Oh what a lovely morning
My lines have been flushed again
Oh what a lovely morning
Tram and morphine for the pain

DrankSangriaInThePark Thu 30-Jan-14 07:06:19

Good morning, Goodness.

Glad your op went well. smile

SpottyDottie Thu 30-Jan-14 07:31:38

Glad everything went well flowers

WheresMrMonkey Thu 30-Jan-14 07:43:44

xx

RudolphtheRedknowsraindear Thu 30-Jan-14 09:46:40

Glad to hear you're back with the world Goodnessknows, I hope the operation was a success. Here's to a bright future!

GoodnessKnows Fri 31-Jan-14 22:56:07

Thank you everyone ;)
Now waiting for the results. Nurse came and gave me sone quite worrying forecasts. Basically, they think it's probably a very (VERY) rare tumour that is benign... but acts like cancer. So, high like,uh kid of it growing back and perhaps aggressively so if this happens (they seem to get angry of taken away, apparently!!!). Only way to treat them then is as you would aggressive cancer - chemo, drugs, radiotherapy. Shit!
Will know what it is , hopefully, at beginning of next week.
sad

RudolphtheRedknowsraindear Fri 31-Jan-14 23:12:27

I hope all goes well for you & your results thanks

PedlarsSpanner Sat 01-Feb-14 00:10:12

Fingers crossed for you, such a worry x

GoodnessKnows Sat 01-Feb-14 07:02:22

Geelong down. hmm

Leverette Sat 01-Feb-14 09:44:35

Hope you're doing ok this morning Goodness.

IwishIwasmoreorganised Sat 01-Feb-14 10:24:33

Hope you get the results soon. The not knowing must be tough.

Xxx

GoodnessKnows Sat 01-Feb-14 14:45:22

Guess what I just did!
I walked the length of the corridor and walked to the loo! Washed and dressed myself, too! Pretty much unaided. I'm v proud n pleased.

freakydeaky Sat 01-Feb-14 14:51:48

Yay! Well done, Goodness, that's great! Onwards and upwards smile xx

livelablove Sat 01-Feb-14 15:45:51

Wonderful Goodness!

IwishIwasmoreorganised Sat 01-Feb-14 17:07:16

That's great! So soon.

Take it easy, don't go mad. Xxx

GoodnessKnows Sat 01-Feb-14 21:49:16

Tried again later n collapsed into commode wheelchair (nearest thing they could grab) and was wheeled back to bed just in time as was about to faint. hmm
Was thanking stars didn't collapse on floor, catheter and all. This was WITH zimmerframe.
hmm
So unexpected after my 'long walk' this afternoon.

QOD Sat 01-Feb-14 21:54:55

Too much too soon!
Rest up chuck x

livelablove Sat 01-Feb-14 21:57:03

You are doing fine, i was surprised you walked so far at first. I wonder if the second time your painkillers were wearing off? But the fact you can walk is great as this shows you can do it and just need to build strength and for wounds to heal.

On other thread i read nurses were not being that nice. I am sad to read that. Don't let it get to you. Sending you wine and cake

GoodnessKnows Sat 01-Feb-14 22:26:06

Nope they're scary an reluctant cows tonight. Have awful one from last night - but last night was a good one with her. Tonight she has gd knows what kind of nurse with her. Seriously. Scary shit.
Gotta laugh.. and pray they'll not b here again tomorrow.

livelablove Sat 01-Feb-14 23:41:42

I remember nurses were like this when I was in hospital having baby. The midwives were lovely to me. I know nurses are busy, but they shouldn't make you feel like you are an inconvenience to them, especially on a high dependency ward. Nevermind you can use them in your book when you write your memoirs. Have some more cake

livelablove Sat 01-Feb-14 23:44:07

just thought we should have a symbol for [prescriptiondrugs]

GoodnessKnows Sun 02-Feb-14 00:22:01

Live, made me laugh.
Must are ok but forget thjngs (like to turn the leg pumps ON), bug the stroppy ones... My gd!

GoodnessKnows Sun 02-Feb-14 23:30:50

Still on hospital. Walked today - up n down corridor. Get meeeee! smile

I'm expecting results any day this week - from tomorrow. Absolutely terrified. Highly anxious. Might help my low blood pressure though. Lol
Either low grade sarcoma (cancer) unlikely of further treatment or care but would be monitored for regrowth.
Or
Bastard aggressive type of benign tumour calked fibromastitis that re grows commonly as doesn't like to be disturbed and only resounds to high doses of chemo, radiotherapy and cancer-fighting drugs.
Please stand with me and hold my hands. If it's not good news, I dint think I'll be able to handle it. It'll throw everything into the air. Future. My DCs' lives. DH wig recently lost both of his DPs within 3 years. Everything.

BelleOfTheBorstal Sun 02-Feb-14 23:52:02

Glad to hear the op went well. Boo hiss for scary nurses. I know you want to try and get back to normal as quickly as possible but if you push yourself too hard, your recovery could take even longer! So rest and take it slowly!

BelleOfTheBorstal Sun 02-Feb-14 23:53:58

And fingers tightly crossed that you get nothing but good news tomorrow xx

ajandjjmum Sun 02-Feb-14 23:58:41

Thinking of you GoodnessKnows - hope the results are as good as they can be.

GoodnessKnows Mon 03-Feb-14 05:37:02

Just woken up mid-nightmare of being given bad news by smiley 'minimising don't scare patient' surgeon.

Trance Mon 03-Feb-14 05:57:42

It's only a bad dream, sometimes dreams mean the opposite of real life. Hoping its positive news for you
X

GoodnessKnows Mon 03-Feb-14 08:04:45

That's so true and I'm usually wrong about things (where I've parked my car, the answer to most quiz questions, what'll happen in the future) so I hope you're right.

GoodnessKnows Wed 05-Feb-14 22:35:56

I am home grin

IwishIwasmoreorganised Wed 05-Feb-14 22:57:06

Hooray grin

Don't be tempted to do too much now that you're out of hospital.

Xxx

GoodnessKnows Thu 06-Feb-14 08:12:53

After one helluvastressfuk 'homecoming', I slept until 6.30am. Thank gd the drugs work. Just need to make sure the wrongly written letter to doc is adjusted and that the right quantities are prescribed now!

GoodnessKnows Fri 07-Feb-14 18:58:14

Just got The Call
Low Grade Sarcoma

Telling you (all) first.

Crying now with relief.

This is good
Never ever did I think that I'd be grateful to be told I have cancer.

Because I don't.
It's low grade
Margins are clear (they got the whole thing out)

I need to be monitored. Not the end but could've been worse.

(Still crying)

But it's not the bastard benign type that needs chemo, radiotherapy, cancer drugs by the truck load as it's so aggressive and pretty much always comes back.

It also means I'll have support. Macmillan for a start.
I'm with the centre of excellence for these rarer cancers. My doctor was thrilled to have his first 'case'.
Lol

I'm here to please ;)

ProjectGainsborough Fri 07-Feb-14 19:22:14

Sending good vibes and virtual cake

NationMcKinley Fri 07-Feb-14 19:30:16

That is bloody fantastic news! I'm so pleased for you, Goodness flowers and of course wine!

IwishIwasmoreorganised Fri 07-Feb-14 20:17:02

Fantastic news!

What happens next Goodness (apart from you being able to breathe a huge sigh a relief)?

Trance Fri 07-Feb-14 22:44:11

Wonderful news!
See, your dream was the opposite after all!
So pleased for you
X

GoodnessKnows Fri 07-Feb-14 23:56:18

A low grade sarcoma is cancer. But it's a slow growing, non-aggressive sort. It can grow back but slowly and with monitoring can and would, please gd, be spotted. It's been removed, they think, in its entirety. There's a journey ahead and more slow recovery to be done. Hurting a bit today. Think I took the physio's instructions of 10 of each a bit too literally. They probably meant for me to work up to doing 10 reps. of each. Haha
I've consultants to visit and tests to go through. Support is available, too.

A diagnosis of fibromastitis from histology would've been really rather different: very high likelihood of aggressive tumours growing back which, though benign, would need to be treated by the most aggressive forms of cancer-fighting treatments - chemo., radiotherapy and awful drugs.

Thank gd I'm on the road I'm on, I think.

So I've learned many things:

The 7 Wonders of My World
1. There are 'friendlier' cancers.
2. There are parts of my spine I don't need.
3. I have many friends who really are there for me. They're not all the ones I thought they'd be. Many are those that I didn't know were friends.
4. Mumsnet is an oasis and incredible haven of support and advice from those who've 'been there'.
5. Secret Facebook groups are, too.
6. I'm not immune to spectacularly rare things happening to little old me - maybe I'll meet the Queen one day, too !
7. Life is more precious than ever.

My consultant/ surgeon will contact me by letter following next Thursday 's meeting re. my 'care plan'. Then he'll see me at 6 weeks post-op.

QOD Sat 08-Feb-14 22:48:28

Oddly pleased for you!!

Sounds like its good news as it goes x

GoodnessKnows Sun 09-Feb-14 07:00:16

Think so, QED
Can't quite get my own head around it either smile

IwishIwasmoreorganised Sun 09-Feb-14 21:52:55

Crikey!

How are you getting on at home now?

GoodnessKnows Sun 09-Feb-14 22:56:45

First outing today. Walked around shops for one hour

Fell into bed feeling like ten tonne weight when home but was so much more motivating than walking to the end of the hospital corridor with nothing but nosing into poor patients' rooms for want of distraction. Today: shops. And boy did I have fun:
Massive pink princess dressing up dress for DD (3)
Maths game DS (6) will never agree to play
Prune juice - necessary
Gosh, that was frugal

Did not buy but am still obsessing about:
Joules dress I love
Ebay cardi I don't want to miss but hope doesn't reach my maximum bid. What a fool I am!

goldie81 Sun 09-Feb-14 23:22:09

Sounds like a fab time! With still enough energy for a gossip

IwishIwasmoreorganised Mon 10-Feb-14 10:58:08

That's great - so soon too!

Just get on and put your maximum bid in for the cardie - surely you deserve a treat too?!

GoodnessKnows Mon 10-Feb-14 23:56:47

Thank you, Goldie grin
Luv ya!

Iwish, I won the cardi. Regretting it now 1 as is always the way. Lol
Should've bought a new coral coloured one smile
But looking forward to being proven wrong.

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