to fund raise for something I need

(72 Posts)
tolittletoolate Sun 17-Nov-13 13:21:49

I'm disabled and use a wheelchair all the time. We live in an area with loads of cycle paths and my dh and dd both have bikes and go out cycling together. I would love to join them but hand cycles for disabled people are hideously expensive.
The other day I thought that if my dh did something to raise money to buy one for me (he is an ultra runner) then people could donate towards it and maybe then I could get one. It would make a huge difference to my life and also enable me to exercise.
Is it a good idea or a bit cheeky?

notablob Sun 17-Nov-13 13:22:56

I think that sounds perfectly reasonable.

WorraLiberty Sun 17-Nov-13 13:24:09

I think it's a brilliant idea

I wonder if he could contact your local paper too?

SantanaLopez Sun 17-Nov-13 13:25:50

Least cheeky idea I've heard in a good while smile

Best of luck!

caramelwaffle Sun 17-Nov-13 13:27:37

Sounds reasonable.
As long as you are honest with people about what you are raising the for, it would be ok.

Perhaps consider donating any excess to a disability charity to help others in the same position as yourself.

Have a quick peek on the Charities Commission website.

There is also a MN Charities board here.

Good luck.

ItsAllGoingToBeFine Sun 17-Nov-13 13:34:19

As long as you are completely honest about that is for you - no problem.
There are also cheaper options: has built a handcycle attachment for a wheelchair before, and it was a lot cheaper (and better made!) than the commercial equivalent. It's not on the website, but I'm sure if you contacted them they could give you more information.

There is also this I don't know if you have already seen it. If not worth a look. Things built by cycle manufactures tend to be cheaper and better quality than those built by mobility manufacturers.

ItsAllGoingToBeFine Sun 17-Nov-13 13:36:02

Or if you trust your DP there is the Pino, a tandem where the front person sits in recumbent position and can be fitted with handcycle. This could be a good option as handcycling can be pretty knackering, and that way your DP could take the strain.

DropYourSword Sun 17-Nov-13 13:36:16

I think you'd have to be very transparent about why you are trying to raise money and that it will directly be going towards paying for something for yourself.

I don't want this to sound at all unsympathetic, and I have no idea how much a hand cycle costs, but I think that there are plenty of people for whom owning a car would make a huge difference to their life and they don't generally try to get sponsorship to raise funds for one.

HappyMummyOfOne Sun 17-Nov-13 13:40:28

Given you are not a charity you are on shaky ground "fundraising". You need to know the legal aspect of asking people for money before proceeding.

tolittletoolate Sun 17-Nov-13 13:40:40

yes I know what you mean Drop this is why I was a bit reluctant to ask people.
A hand bike costs around £4000 depending on what make etc.
Even the ones that attach to a wheelchair are 2 grand for what basically is 1 wheel, some cogs, a chain and some hand pedals!

tolittletoolate Sun 17-Nov-13 13:42:39

Although I missed out on one that was on EBay for £200 sad

DropYourSword Sun 17-Nov-13 13:44:36

Holy shit, that is a lot!!

I'm so glad you saw where I was coming from with my post. I really didn't want to sound rude but I wanted to highlight that you would just need to be careful so people couldn't claim they felt misled.

Canthisonebeused Sun 17-Nov-13 13:53:29

I think it's a brilliant idea and I think to continue with the kindness you could do a charity cycle for another good cause once you have your cycle.

tolittletoolate Sun 17-Nov-13 14:04:41

That's a good idea smile

lougle Sun 17-Nov-13 14:06:18

What about applying to a charity? Barchester Healthcare Foundation offers grants:

"We favour applications that encourage a person’s mobility, independence and improved quality of life. Our grants range from £100 up to £5,000."

You can see a list of other grant awarding organisations here

PolterGoose Sun 17-Nov-13 14:08:29

Have a look here for starters Bikes not Barriers

There are various organisations that will hire out specialist bikes either try before you buy or long term hire.

RichManPoorManBeggarmanThief Sun 17-Nov-13 14:08:50

Just be upfront that you are not a charity. It is totally legal to fundraise for a cause which is not a charity. However, it is fraud to either explicitly or implicitly state that you are a charity. So just be clear, and you're fine.

It is actually worth your DH saying on his fundraising blurb "Please note, that for the avoidance of doubt, this is not a registered charity"

elskovs Sun 17-Nov-13 14:16:25

No reason why not, although I would see it as begging/asking for money rather than fundraising.

I wouldn't like to be asked TBH. But then I never like being asked for money.

Shonajoy Sun 17-Nov-13 14:21:49

I'd get in touch with a local independent bike shop first and see what they say. It might be something they'd be interested in helping make, and can get bits cheaper.

Also, is it worth asking anyone you see medically? I know a friend with MS managed to get help with some exercise equipment.

paxtecum Sun 17-Nov-13 14:21:59

I hate being asked to sponsor some entitled young person go up Kilimanjaro or similiar, especially if they are paying the minimum themselves towards the trip.
No, they are not fundraising for a charity, they are going on an adventure holiday and don't want to pay for it.

OP: Go for it.
Try to get a grant first from the links that are on here.
Best wishes to you.

tolittletoolate Sun 17-Nov-13 14:22:53

thanks for all the links, much appreciated.
I started a thread on the parents with disabilities board re grants but nobody replied.

KepekCrumbs Sun 17-Nov-13 14:24:31

To balance elskovs offeeing, I wouldn't mind in the slightest being asked to help by sponsoring.

Mogz Sun 17-Nov-13 14:30:34

I think it's a great idea. If you set up a PayPal address to accept donations I bet you'd get a few quid from publicising on social media sites. Best of luck, I really hope tha some day soon you can afford your bike and join your family on some great outings.

elskovs Sun 17-Nov-13 14:41:01

Is it sponsoring though? Isnt it really just straight up asking for cash?

What difference does it make if her DH does some cycling or not?

Would you mind being asked to contribute to a sponsored silence when the money was being used towards a holiday for example?

Isnt the end result the same?

I just think a lot of people are going to be pretty horrified behind your back and will see it as simply asking for a hand-out. Which is what it is really

tolittletoolate Sun 17-Nov-13 14:45:46

Yes I see your point which is why I wasn't sure if it was a good idea or not.
My dh would have to do something pretty extreme and ask for sponsorship that way to raise the money.
Then as someone else has suggested I could use the handbike to then fund raise for another charity.
I had Guillian Barre Syndrome so I could raise money for them for example.

Canthisonebeused Sun 17-Nov-13 16:04:49

I don't think a one off holiday and the means to improve long term quality of life and reducing the barriers to long term quality time with ones family can really be compared as the as the same end result elskov.

ImperialBlether Sun 17-Nov-13 16:14:36

Elskov, you really are coming across as bloody miserable.

OP, let us all know if he goes ahead. You might find not everyone feels the same way as Elskov.

Are you talking about a sponsored cycle or something else? Lots of other ways to raise money other than sponsorship. Arrange a party with a raffle, for example. Or a shopping evening with stalls. If it is a sponsored event, hand on heart I'd prefer to sponsor someone who was specific about where the money was going than a large National charity where most of the money doesn't get where I would want it to.

elskovs Sun 17-Nov-13 17:02:31

Sorry if you think I was being unkind OP. I am sick of being asked to sponsor people to do something they enjoy, so yes I probably do sound quite down on it.

It looks like plenty of people would be willing to help out though so it will likely be a success.

Good luck

tolittletoolate Sun 17-Nov-13 17:25:05

wow, thanks everyone I'm quite overwhelmed at the support from all of you.
elskovs I do kind of know where you're coming from and I agree with you about being asked to sponsor people to do stuff they enjoy. I don't think you are being mean. It was one of the reasons I decided to ask on here and in AIBU to get a clear picture of what people thought of the idea.

lougle Sun 17-Nov-13 17:45:51

Serious question:

Why is it ok for Charities to give to children in need, many of whom have disabilities, and this is seen as a GOOD THING, yet once the child turns 18 that same act is seen as 'begging' 'scrounging' or 'asking for cash'?

Parents raise money for equipment the NHS can't provide for their children. Why can't an adult do the same?

A former colleague's daughter is a quadruple amputee thanks to meningitis and I've given money towards her fund for new prostheses, adapted bikes and so on. I don't see how this is any different, so YANBU.

Mumpiring Sun 17-Nov-13 18:51:22

NYANBU, that's something I'd give a euro to and I don't know you. It's just something different that would make somebody happy. It's money obviously but it's not a material possession.

I am not married and I thought (cheekily, in a light hearted way) that when I got to forty I should send out a list saying 'right, that's it folks, you've given up on my ever getting married, but don't be shy, give me a toaster anyway'

Mumpiring Sun 17-Nov-13 18:54:04

You should set up a page. Would mumsnet allow it.

superbagpuss Sun 17-Nov-13 19:09:30

we have a friend who's DC needed equipment to help her and we donated

we also know of people who's son lost his legs to meningitis so I did a sponsored event to help get new legs as he grows out of them

if you were honest why you needed the money and I had some spare I would donate

Lou, I think people forget that kids with SN will one day be adults. sad

OP, go for it!

elskovs Sun 17-Nov-13 19:16:49

Good point Lougle. I don't know why, but its true.

azzbiscuit Sun 17-Nov-13 19:22:01

As long as you are upfront and don't in any way misrepresent what the money is for, nor allow anyway to draw the wrong conclusions then fine. Some people may not agree but they can't complain if you've been clear with the facts esp. that the money is for you.

(Personally I can't say I would sponsor somebody who does running for a hobby to go running, but that's probably just me).

azzbiscuit Sun 17-Nov-13 19:22:41

allow anyone*

LEMisafucker Sun 17-Nov-13 19:25:05

elskovs - it is nothing like asking for a holiday :/ Loads of people raise money for their children or a specific person - I would actually quite like to donate to something like this as at least i know my money would be going and making a real difference to one person rather than a drop in the ocean to many. If that makes sense.

Maybe once you have your bike thangamajig you could do some sort of sponsored cycle to raise money for a charity close to your heart.

If you do do something, im up for donating - im skint, but every little helps and i'd happily part with a fiver. Do post your "just giving" page or whatever it is when you donate online, loads of mnetters would happily donate im sure.

LEMisafucker Sun 17-Nov-13 19:27:40

I don't mean to pick on you elskvos but just felt i wanted to pick up on your second post - most people are sponsored to do things they enjoy doing, generally they are raising money for other charities, so i would rather someone raise money doing something they love than doing something they hate - unless of course you would like me to sponsor you for ironing - i don't really have much money so couldnt help financially but quite happy to provide you with a pile of clothes smile

I think it is reasonable to ask. It's shocking that there is so little funding for disabled people to buy equipment that they desperately need.

My mother is paraplegic. She needs an electric wheelchair because the level at which her spine is damaged makes her arms too weak to push a manual wheelchair. Suitable electric wheelchairs can cost £20,000. Occupational health will fund her one new basic manual chair every ten years. She currently has some savings that will cover her needs for the next few years, but they are being depleted by the cost of carers and equipment. Once that money runs out, I can see myself and my siblings having to fundraise for the money to cover her basic needs.

azzbiscuit Sun 17-Nov-13 19:52:56

so i would rather someone raise money doing something they love than doing something they hate

The problem I have with this is that when people say they are 'raising' money, what is really happening is that other people go to work, earn money through labour and give it to the charity, directly or indirectly. If the person doing the sponsored event isn't putting themselves out or doing something useful (or you could say 'charitable), and isn't contributing any money, what exactly are they doing apart from taking the credit and the glory? On this basis I refuse to sponsor anybody who isn't doing something in some way useful, I'll just continue to contribute to what I personally believe in.

Anyway I know this stuff doesn't bother most people, so I'm not trying to put the OP off.

A car isn't something you Need, though. A lot of people without disabilities/sn can work.

A lot of equipment for people with disabilities is ridiculously expensive and if you are unable to work, then what?

A basic grade 1 braille book is £16. You can buy a book for a sighted child at Shelter for £1,50. A cane can be anywhere from £29 to £53 at RNIB, a talking scanner is £1,700.... Basic talking software for laptop is £900 (staff at action for the blind told me.)

If you are able bodied you can work in a restaurant, cleaning, etc. It is hard to find work if you have a disability and no qualifications (believe me, I know) I volunteered for Shelter after only being in the UK for 1 week, so I give what I can to society.

Having tools to make life easier, get an education, job is one thing. Going on holiday is another. Biking through Asia for charity is yet another.

Sorry should be cannot work

tolittletoolate Mon 18-Nov-13 10:41:24

Who said anything about working and needing a car?
I have a motability car and my husband works. I worked full time until my illness 3 years ago and up until we moved I had a part time job in Asda on the checkouts.

I was merely asking for people's opinion about buying a piece of equipment that is very expensive. Something that I could never afford to buy myself.

Claire Lomas who walked the London Marathon last year in a Rewalk robotic suit raised £40,000 to buy one of her own. That is no different from what I'm suggesting.

Lou, I am considering starting a charity in the UK (still a maybe) but something for adults with SN.

I grew up in the US, attended a school for deaf/blind/SN and am appalled to see how much my classmates struggle. Schools (and parents, please don't get offended) overprotect us and because many childen are at different stages compared to theipeers, adulthood is pushed to the back of some teachers', social workers minds.

Disability/SN doesn't stop at 18.

Toolittle, I understand you completely.

Someone mentioned saving for a car and I was trying to explain that people with disabilities need certain things to have a better quality of life.

In your case a motability car and your cycle. In mine, my cane, reading glasses and my reading machine

Little, I just PM'd you. smile

Do you have a blog? You could start one (and even raise awareness at the same time) youtube videos, facebook

Faverolles Mon 18-Nov-13 11:15:40

Fundraising for yourself is fine.
I'm involved with fundraising for a little girl in my village. Everyone assumes that the government/NHS hands out everything you need, when the amount they give often doesn't even cover the basics.
As soon as the word disabled is mentioned, prices of things shoot up, which means that things that able bodied people take for granted are quite often out of reach of someone disabled - adult or child, and the only way to get these things is to fundraise.
Go for it. Good luck thanks

Give Forward

Just found this. smile

Lilacroses Mon 18-Nov-13 11:27:54

Op, I have 2 friends who had Guillan Barre too so understand a little bit. I think your idea is great and I for one would be very happy to contribute to something like this, in fact I would love to. If you do it please post a link to your fundraising page if that is allowed.

Faverolles, I don't get any benefits due to my residency status. I don't get a mobility pass on the underground and it surprises the staff that I have to swipe an oyster card....

I do a lot of charity work and take a lot of videos/pictures. I lived in Asia for 7 years and people thought I was traveling because I "was staying in a hotel." A backpackers room is not the Shard! There are no apartments for rent in the area, only houses and prices are high because landlords need permits to rent to foreigners.

Not to mention that many expats get rats/snakes/floods/burglers in their house. Not for me.

I have to buy everything. My glasses are $$$ and have to be ordered in the US, last time I needed a new pair, I had to pay $120 in import tax. People like to look at and touch my cane, glasses etc and things break....

People don't realise what my life is like. I have to make videos grin

CocacolaMum Mon 18-Nov-13 11:58:52

Its not for a holiday though is it? Its so that OP can take part in a family activity which would be accessible for any able bodied parent no question. Not the same at all in my opinion.

Find out whether there is a charity which would act as an umbrella to help bump the amounts you raise.

SilverApples Mon 18-Nov-13 12:08:01

I agree with lougle, if people know what they are donating or sponsoring for, then there isn't a problem.
I taught an adorable 6 year old boy with a wicked sense of mischief who was born without lower limbs. We fundraised for an adapted bike he could use. He's now 27, and probably a lot less cute and giggly. I hope he has a bike that fits him,

SilverApples Mon 18-Nov-13 12:10:27

I don't contribute to fundraising if I don't agree with the logic of it, so I don't see how the OP's idea is a problem. People that disagree won't support her.
People that think it's a great idea will.

Why not aim to fundraise for say three bikes and make it clear one will be for you so you can continue to cycle and raise funds for more?
You then donate the other two to a charity or someone who needs them.
Ok £12k is a lot to raise but like others said if you approached somewhere like halfords and got lots of press/sponsorship/twitter support it could be done.
Good luck!

tolittletoolate Mon 18-Nov-13 15:00:46

Lilacroses out of interest did your friends recover from GBS?

It's in the news a lot because people get it and then recover and go and do something amazing like climb Kilimanjaro! Good for them but a lot of people like me don't actually recover and are left paralysed.

KeatsiePie Mon 18-Nov-13 15:28:37

I think it is a great idea. Of course you would say it is for you, and I imagine people who know you will want to contribute. I would. I hope it works really well!

tolittletoolate Mon 18-Nov-13 15:51:27

Thanks again everyone, I don't have a clue where to start! Anyone ever done something like this before?

Just had a thought but my dh is entered into a 100 mile race next year, is that extreme enough to ask people for sponsorship?

KeatsiePie Mon 18-Nov-13 15:55:59

I would think so! 100 miles sounds impressive to me (though I don't know a thing about it). Maybe a Kickstarter campaign?

SomethingOnce Mon 18-Nov-13 20:46:48

Could you get together with somebody who could use a similar piece of kit for a timeshare-type arrangement, and halve the cost?

cantsleep Mon 18-Nov-13 21:18:38

We are currently fundraising for medical equipment for dd2. It is hard work but will be worth it. We have been in touch with local paper,charities etc.

YANBU at all, I hope you reach your target thanks

UniS Mon 18-Nov-13 21:26:57

I would chip in a modest amount for someone to get a hand cycle. if enough people chip in a little you can achieve it. It may come easier if its someone else doing the asking on your behalf.

so your mate Angela mentions it at her aerobics class and has a whip round, your mate belinda talks to her belly dance group about it and they have a whip round and your hubbys mate clarice talks about it to her breeze cycling ladies and they chip in a bit. no one person is putting in more than a pound or so but 50 quid rolls in.

Out of curiosity, do any of the bike hire centres near you ( assuming your network of cycle paths is in a touristy place) have hand cycle in their stock? Nearish to me this lot do.

NotMeNotYouNotAnyone Mon 18-Nov-13 21:29:33

It's not like raising money for a holiday or something. Your disability means a suitable bike is far more expensive than if you weren't.

As long as you're upfront about it then I wouldn't see a problem. If people are a but funny with you maybe consider splitting the money with a relevant charity

justmyview Mon 18-Nov-13 21:32:12

This is an interesting thread. My initial reaction is that I'm a little uncomfortable with someone fundraising on their own behalf. Then I wonder why that is? To give OP £20 and know it'll be used directly for the purpose I wanted to support is in every way preferable to donating to a charity and hoping that some of it finds its way to the people in need, after hefty London rents and salaries have been paid.

IAlwaysThought Mon 18-Nov-13 21:44:43

I would prefer to give money to a charitable organization than to an individual. I am not a fan of sponsoring people to do things. Especially, when the activities are recreational ones.

I like to give to charities and I make a point of giving to charities which elicit less public sympathy than others IYSWIM smile

I also like to give to charities that take advantage of gift aid.
I wouldn't mind being asked as long as it was polite and non pushy (which I am sure it wouldn't be) but it's not usually the type of thing I would donate to.

Another thing that would make a difference is whether I thought your DH was spending a lot on his ultra running. For example, if he was flying somewhere to do the run and spending money on hotels and entry fees then I would be thinking that he could save money by not going. confused

Anyway, good luck and I hope you get your bike.

tolittletoolate Tue 19-Nov-13 13:45:02

UniS Thanks for the link, that is a brilliant idea. I will have a look and see if there is similar around here. I live in Milton Keynes so there are all the redways but it's not touristy as such. smile

UniS Tue 19-Nov-13 20:55:21 are near you, do they do deno days with the stricker handcycle? tho it may be frustrating to fall in love with an expensive machine.

tolittletoolate Tue 19-Nov-13 22:07:50

wow they look awesome and in MK too! I'm very impressed that you found them I've been googling all afternoon and not found anything grin

UniS Tue 19-Nov-13 22:25:35

I think my google search pattern is optimised for cycling these days!

tolittletoolate Sat 14-Dec-13 17:22:10

Just a little update, I had a go of a handcycle last week and it was awesome although very hard work!
My dh has said that next year we will sort something out and try and buy one, I've found a really good one that's £900 new or they sometimes crop up on ebay for around £250 ish.
I'm so pleased and can't wait to go out on lovely long cycle rides with my family in the summer smile

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