To think if you have a migraine...(71 Posts)
...you will be recuperating in a darkened room, not tweeting/facebooking about it. Surely if you can bear to look at a glaring computer/phone/tablet screen, chances are it's maybe just a headache?? So sick of seeing tweets or Facebook statuses saying "OMG I have such a migraine FML" etc.
That said, I have never had a migraine myself. Am I being unreasonable?
Lol or so right and not being unreasonable
I had 1 once when I was pg with ds and it completely debilitated me. I mean seriously. Head pain, vision went, the lot.
My mum suffered from them and yes she had to be lying down in a completely darkened room, no noise, nothing.
Social Network Exaggeration is an up and coming syndrome.
People who post shite like that have never had a migraine!
Yep, some people just like to make mountains out of molehills!
I used to get regular migraines as a child, would sleep all day, wake up to be sick then go back to sleep - couldn't even read a book let alone stare at a bright screen
Depends...I get what are commonly known as ice pick migraines...sharp, painful but spasmodic. The spasms can last seconds and can reoccur over a period of time. However I think that the other type is more common so yanbu!
Snap with computer screen. Surely oh I feel migraine coming on turn the screen off!!! Its common sense.
I have medically diagnosed migraines. They are atypical so I might be able to do some things that people say they can't - drink coffee, MN, FB. I might also throw up so that's a bonus.
I get migraines and can still look at a computer for short periods.
Everyone is different.
Actually I had a weird migraine the other day, or the beginnings of one. Got the disturbed, watery vision in one eye and nausea, just started with the headache and 30 minutes later it all buggered off. I was preparing myself for half a day of feeling utterly crap.
With a migraine, there is no way you'd be posting or texting.
I get what my doctor calls 'full body migraines' and the effect is I can't move much and my insides feel like someone has run them over with a cheese grater but I can see and the computer is the only thing that keeps me sane while I feel rubbish. I do not, however, complain all over everywhere about it, the worst I do is appeal to my friends for fun links to make me laugh without telling them why I need them.
The moaning that goes on on the internet is seriously depressing sometimes!!
Bluer I get those sharp stabby pains all the time. I didn't know they were a form of migraine
I had no idea there were different types of migraines, good to know. I will give everyone moaning about migraines in my timeline the benefit of the doubt from now on, will certainly help my blood pressure.
You're not the only one. DH calls them "migraines" with the little finger quotes. Bastard.
Yabu. I get migraines, constant pain on right hand side of head for 48 hours. Nothing shifts them, apart from triptans which are prescribed by doctor (and they don't always work). But despite feeling like I want to smash half my head off sometimes while suffering, I can still actually get up out of bed and function to a certain extent. I know everyone suffers differently, and I wouldn't be happily taping away on my laptop, but I could probably do it if I was so inclined. I know what you mean op but yabu to generalise like that, especially when you haven't suffered from them yourself.
bluer and Cocacola I have ice-pick migraines too - which are also called Cluster headaches, I think. Which makes sense as I seem to go through times where I'm getting 15 ice-picks a day, and then none for months.
When mine get really bad, it kind of paralyses me (especially face) because of the pain, and then gone again as quick as it came.
I do get 'normal' migraines too, so know how different they can be.
I get migraines several times per month. I have no choice but continue through them because I have young children. I can post on MN. I can't play World of Warcraft that day, or for days after.
I have injections that I use and if I can inject and go to sleep, I can be 'migraine headache' free within a couple of hours. The after effects last a day or two though
Unfortunately, hormonal shifts (ie. menstruation, ovulation) and tiredness are massive triggers for me. DD1 has been unwell this week and up in the night, just as I was due on. Cue 3 days of migraines.
I get all sorts of migraine symptoms - not always the same. Disturbed vision, a feeling of weight across my eye socket, pains down my face and into my jaw, pain down my neck and into my fingers, a rod through the eyebrow, a metallic taste and nausea (I am fortunate that my body doesn't like vomiting).
The neurologist I saw said I was definitely having migraine +/- aura.
I think it's like anything else -if you have one or two episodes a year, they'll poleaxe you. If you have one or two episodes per week, you kinda have to work through it.
My longest ever migraine episode was 15 days - that was before I had the injections. I eventually went to A&E, they stabbed me and the pain went. I went to the GP for a prescription the next day!
I used to suffer what the Dr. Called stress induced migraines, which were, I think more like a type of panic attack.
Violent headache and feeling, but not being sick. Generally feeling like my head was going to explode and I was going to die. But no visual stuff.
This invariably happened in the middle of the night and I've watched endless dire TV, talked incoherent drivel to DH and drank many a cup of tea. Absolutely anything to distract me from thinking I'm about to have a stroke.
You guys would have been wonderful, fortunately I haven't had one since the iPhone was invented.
When I have a migraine my face drops on the left and I get weakness on my left side and a feeling of tension in the base of my head
I have been diagnosed by a neurologist as my gp thought I was having mini strokes
But I can still use a computer & light doesn't bother me
When I have a migraine I cannot do anything apart from lie in a pitch black room. If the light is on on the landing and I need the door open for dd2 I have to wear dark glasses because of the light.
I think there are various types of migraine though.
Depends on the migraine, though most of mine involve me turning into some kind of vampire who starts fizzing even with electric light... that seems to be the norm.
BUT I have worked with a migraine, so long as I keep my head still and the light consistent I'm alright ish (as in, still uncomfortable and in pain but not unbearably so.. still not pleasant) it's only been when I turn my head or adjust focus that the seering pain kicks in.
I had one the other day where light or dark, move or not I thought I was a gonner, I've never felt pain like it, not only couldn't think, couldn't speak either... that was a bit scary.
I don't actually suffer migraines consistently, mine at present are mostly drug induced (and not the nice kind the needed kind) I've in the (much more longwinded process than I thought) of finding the right med for me, so maybe I'm wrong?
I wouldn't judge or assume. Chances are it's 'drama' but like Grannies often say, if you can't say anything nice... it's a good policy to live by (unless you need to vent)
The one I had when pg scared the shit out of me. I was walking along in broad daylight around 35wks gone (so massive!), completely on my own but there were lots of people around and I just suddenly could only see blank whiteness and got a crushing stabby pain. I threw up right there and then and then managed to stumble a few steps, I found a wall and just sat down for a good while until it passed. Sadly not one person asked if I was ok. I was MORTIFIED about upchucking in public.
YABU. Every migraine sufferer is different. I have had four migraines the past year and each one has been different.
I could still use my phone/laptop/watch tv for short periods in between sleeping and throwing up.
I take daily medication to prevent migraines. As well as reducing the frequency of them, when I do get them now they are (usually) a lot less severe so I can just take a couple of paracetamol and struggle on through the day - I would still describe it as 'having a bit of a migraine' though because that is what it is, even though it's nowhere near as bad as a full-blown migraine.
coca yeah sounds like it...very intense and can make you yelp but really over before you can take pills etc. go months without but sometimes can get quite a few in succession. I had a scan etc to confirm there wasn't anything else and saw a neurologist.
What do you take, beals? I've tried a few different ones, but they made me feel so knocked off that I figured it was better to be knocked off for 15 days in each month than 30 days
Propanolol/amitryptyline combo actually made me pass out several times - they thought I had a subarrachnoid haemorrhage at one point, then epilepsy because I repeatedly collapsed. I had my licence taken away, until the neurologist realised that different doctors adjusting my dosages had effectively short-circuited my brain!
I've heard good things about Topirimate, just need to pluck up the courage to ask to try it. I'm getting more and more reluctant to stab myself with needles and I can't use the injections unless I can go to bed straight after, because it gives me terrible neck pain and drowsiness.
OP Do think YABU but in an ill-informed way (mean that in a nice way!)
Truly, if you haven't ever had a migraine (or one of the variants of migraine), then it really is IMPOSSIBLE to comment on anyone else's suffering of them, or what they can/can't do through them.
Anyone who HAS migraines - if (like poster above) get a 15 dayer, then only real option is steroids to 'break it'. If you get them almost daily (i.e. a chronic migraneur) then get your ass to your Nuero and request Botox protocol as has JUST been approved by the (generally inaptly named IMHO) NICE committee.
And if you HAVEN'T ever had a migraine, count your frickin blessings - full blown migraine is ranked 20th iirc in terms of disability, and an 'active' full blown migraine is ranked equal to quadriplegia in terms of it's 'in that time it lasts' level of disability (NOT - obv - before some
pointy making kind poster posts about the HUGE differences between the 2 overall; but whilst at it's most & utterly wholly disabling).
Lougle - I take pizotifen and it's made a big difference for me. I used to get a bad migraine once a month - Now I only get a full-blown migraine less than once a year.
YABU - I get the odd migraine (mainly due to dehydration). The headache bit is not always dreadful, but I know they are migraines as I get classic migraine with aura.
I worked with a woman who had dreadful debilitating ones that lasted a week and ruined her life. Much worse than mine - but mine was still a migraine, much like a severe headache is not necessarily a migraine either.
YABU My husband has constant migraines (he actually suffers from 3 different headache conditions one of which makes him agitated so he couldn't lay down and sleep even if he wanted to!) if he lay in bed every time he suffered he'd never be up - let alone ever use his phone/computer! Unfortunately with chronic illnesses your perception has to change so you do have to keep on, go to work and generally live your life (or as much as you can!) - I suppose the only concession I'd make is he'd never tell anyone he was suffering, let alone whinge online. It's too much effort so he just relies on those of us close to him to know and make allowances.
Incidentally he's just been prescribed the botox injections, having had several years of the GON injections that do work for a week or so and ongoing medication that minimises but doesn't eliminate any pain. His first session is May (earliest they could do) so hopefully that'll give a bit of respite.
I can't use a proper computer with a migraine but I can use my phone. And they're boring and you feel shit so a wee bit of sympathy seeking statusing is ok in my book. As long as it is a proper migraine, and not just a sore head, of course!
YABU but you sound like you are genuinely asking the question!
My migraines are like chickensaladagain describes. I was isolated for months recovering from a bad series of them combined with shit treatment, nasty SIL decided to proclaim 'forgetmenots can't be that ill if she is online'.
but she is generally a hateful cow anyway
I was. Social networking especially Facebook (which I've now in better health stepped away from) was a lifeline when I needed it.
I get nasty migraines, anywhere from 6 to 12 a month. I go on the computer once I've taken my meds (prescribed by the neurologist) Once the head pain subsides I'm left with muscle aches from head to toe, so not much else to do but veg at the computer, walking/moving hurts.
Lougle I have been on topirimate since Nov & it has made a big difference for me. I was getting migraines every week and they lasted for hours, even days sometimes. Now I still have a headache every day, but nowhere near as bad, most of the time I don't need to take pain killers, & unless I get stressed or a couple of nights bad sleep I very seldom get a full blown migraine.
The side effects are still hanging around, I find that after 5-10mins of walking I my face and head gets pins and needles & tingly. My lips kind of recedes, and I do feel I tire easily but all these are much preferable to suffering migraines weekly.
I agree with those who say social network exaggeration is a bit of a pain, but I also agree with those who say they can use computers for some of the time with migraines. I vary between feeling out of it, headachey & tearful (and wasting time on the internet because my brain's not up to doing anything else), and being nauseated and having to lie down in a darkened room feeling like I'm having a stroke, over about 1.5 days when I have migraines. So it depends on the individual whether one should think "it's a headache, grow up" or "cut them some slack for a few days".
I get quite irritated by people who patronisingly say "oh, sorry to hear you had a headache/ a cold" when I've been off work with a migraine or the flu. I can tell the difference even if the patronizing gits can't, and I don't take days off if it's a cold or a headache.
I can tolerate a bit of time of my phone when I have a migraine, the most important thing for me is not to move around as that makes it far worse! I find that taking a liberal dose of chocolate followed immediately by cocodamol and ibrufen and my anti nausea tablets works wonders and if caught early enough do not have to send me to bed in a darkened room.
Thanks I'll look in to the meds.
I think the hardest thing for me to get my head around (excuse the pun) was that sometimes a normal headache can be a worse pain than a migraine.
A migraine is so much more than a headache. For me, with young children, it is the heightened noise sensitivity, the heightened sense of smell, the slight loss of balance, the dulling of the mind, the inability to multitask, the complete slowing of my mental functioning that hits me worst.
Also, my stomach goes into stasis and any pills I take don't get absorbed once I'm in full migraine. If I can take 2 paracetamol and 900mg aspirin or 400mg ibuprofen or motifene (dual release diclofenac) when I get the first signs of a migraine and then get to bed with a scarf tied around my eyes to ensure complete darkness and sleep within those first few minutes -I can stave it off sometimes.
If I miss that window, the only choices are to ride it out, where it can last for days, or inject myself with sumatriptan, go to bed and wait for the neck pain it brings to subside and fall asleep.
Have any of you with extreme migraines looked into Botox, which the NHS has approved recently, as it's suppose to stop all headaches not just migraines?
There's stuff on Google about it.
Yabu, I get anything from weakness on one side and mild nausea, to a headache that feels like an alien is trying to escape through my skull using its teeth. If its the former type (focal) it's fairly unpleasant and unnerving when your arm suddenly turns to jelly, but I can certainly fiction almost normally, if it's the latter I lie in bed with the blinds closed whimpering and the sick bucket for company.
For me it depends what stage I am in the migraine. I can feel them coming and they ramp up quite slowly.
In the beginning stages I feel nauseous, and my left eye & cheek feels like someone has belted me one, I have a throbbing head but I can function and even finish up what I'm doing on the computer/work etc. This can last an hour or so
Then it ramps up to need to lie down in a dark room. Can't see out of left eye, blinding White lights, even more nauseous, extreme and sudden tiredness, head feels like it's going to explode on left side only
Final stage - is extreme vomiting and passing out, whole body hurts.
Although now I can predict I can usually avoid the last stage by medicating in time.
Every migraine sufferer is different, yes, but YANBU about the need for some people to tell (what they imagine is an interested audience, deluded fools that they are) the world wide web that they have one.
Since I've been on sumatryptan I have only got to the vommy for 48 hrs stage once (in 5 years) Before that it was about 3x a year.
If you're on Facebook, you haven't got a migraine!
YABU as you have never suffered how can you possibly pass comment. I have suffered for years with migraine and depending on what stage the migraine is at my tolerance for screens on computer/tablet/phone will vary. It also depends on how quick I get my medication in.
Off to Google botox, thanks Tee
Message withdrawn at poster's request.
I can be online with a migraine. Dark doesn't always help. Or even if it does, there are still times when I can be up and functioning. Sometimes the distraction is ok, as otherwise I might be sick. It's movement that usually gets me, so as long as I'm very still I can sometimes do things on the computer. I can't always see well - jagged lines across it etc, but sometimes I can. Often words in my head will get twisted and I can't always talk, but might be able to type or read. Sometimes it's worth letting people know what's happening, too, so that they don't expect you somewhere or know that there might be doubt about whether or not you are likely to be able to do something later than day or the next. Sometimes just the sympathy is comforting!
No way I could look at any type of screen when I have a migraine
Actually you could get a migraine and no pain in the head at all....
Some people get very sensitive to light, others don't.
Some people can sort of carry on with their work and other don't.
in the same way, some people get 'tension headaches' that are so strong that they have to lie down for the day when most other people just take a bit of paracetamol and get on with their day.
Having said that, most people use the word migraine as a replacement for headache. Just as a lot of people talk about having the flu when they have a bad cold....
OP I woke up with a migraine at 6.00 this morning. At first I couldn't even drag myself downstairs to get some painkillers and water. I did then lie in a darkened room feeling sorry for myself, feeling like I was going to throw up. But it's taken me 3 hours to be able to move.
It's 11.30 now and the pain is starting to recede, so rather than being all consuming in my head it's just a really dull ache all over, I do still feel very disconnected and my muscles are slow. But I've got to work today (on the computer) I'm a single mum of two so I've got see to the DCs, the poor dog is still waiting to be taken for a walk. Even though I feel rubbish I do still have to function, and I came here on MN because I couldn't face starting to work and concentrate, even though I know it's got to be done.
However, if I could get away with lying in a darkened room all day I would because then I know I'll be fine tomorrow, however because I'm having to continue as normal I know I'll still be feeling unwell tomorrow. Migraines are horrible, I'm so glad I only get them a few times a year (always on a weekend too, I could never figure that one out).
YANBU. I rarely get migraines but when I do I have to lie down in a dark, quiet room. Anything else and I feel like puking, and no way would I be online. People who call their headaches "migraines" are just trying to build their part up IMO or are just ignorant of what the difference is. A bit like those that say they have the flu when it's just a cold. My ex BF said he used to think he had the flu until he actually had it one day and realised a cold is not the flu!
Sorry, wish I could edit my post, I didn't realise that migraines are so varied. Sorry peeps.
I get them maybe two or three times a ear. The last one I had in September was so bad i could not move my head, my vision was not right either and I felt so sick. I slept for 27hrs straight, in a darkened room.
I have long lasting migraines with aura.I am prescribed triptans for them and they can go on for several days.
At times I am genuinely scared I am seriously ill as the pain makes me crawl up the walls.Most of the time I can do my normal things including computer and tv,to a varying degree
CloudsAway I also can have problems with verbal communication when I have a migraine.
Like the words are mangling in your head but you can't work out what they mean.
YANBU, i had bad migraines when pregnant, i felt like i wanted to be sick all the time.
Last night, i had such a migraine, i couldnt even keep my eyes open.
My actual migraines mean I can't type or speak and am confused and need to be in bed.
BUT.. they last about 4hrs and then after that I get what I call a 'migraine hangover' for up to 24hrs.
I might mention that on social media if I was moaning about missing a social event I said I'd be at - but I would tend to say 'recovering from a migraine' rather than 'having one'.
Badguider What you call 'migraine hangover' (well put BTW) is what is actually called (tho spelling may be a tad off!) 'prodrome' - ditto the bit before the migraine but where you feel it's effects and it coming on is 'predrome'
I'm not sure, when I have a migraine I usually can't even open my eyes, let alone look at a screen. But there have been times (usually during a 3 day migraine) where I've got so fed up of lying in a dark room being bored and in pain that I've stuck sunglasses on and gone online. And yes, I have posted about it on FB, mostly as I know some of my friends also suffer with debilitating migraines and will be sympathetic. Self indulgent as it is, by the time I've decided to just go online I'm usually feeling pretty sorry for myself and want sympathy.
Oh and my vision goes black and I go dizzy for a couple of seconds before the pain starts, so I know I've got a migraine, it's just the full force hasn't hit me at that point. So also feel utterly able to bitch and moan about it online while I can still stand the light.
Oh btw, for the migraine sufferers. do you find certain things set it off? SO far we've found that artificial sweeteners are my main culprit, closely followed by change in glasses prescription (even if only by 0.25). Hasn't stopped them entirely but it has hugely cut them down. I was getting them 2-3 days a week.
I get migraines and I can still function at work. It's not pleasant but I sometimes have no choice.
I had one yesterday. Usually as soon as the signs start I take tablets and that usually makes it bearable, yesterday I was at work when it started and I had run out of tablets, it starts with a kind of flickering around my eyes, worse on the left, a tightening around the top of eyes and sinuses then a very painful headache to the bottom left of my head. If I take tablets within 30 mins of the first sign I would be ok but I had to go out for tablets yesterday. So, I was at work, in a very bright room dealing with the public and using a computer. It slowed me down a bit but I had to get on with it.
I am rarely sick when I get them but that's because I catch them in time most of the time, and I can usually predict roughly when as it's always 2 or 3 days before my period.
I would be pissed off if it was dismissed as just a headache. If I just have a headache I say headache. I only ever say I have a migraine when I actually have one.
Is this the same as people who have one day off work with tonsillitis :-/
I prefer to lie down with a migraine, but if I am looking after children, social media helps to distract me a bit and stop me from falling asleep. I am able to function through most of a migraine now, and if I take medicine in the early stages then the headache isn't bad at all and it's mostly debilitating sleepiness, queasiness but no vomiting, a fairly mild headache, blurry vision on one side, and too sensitive senses of smell and touch. I am more sensitive to light, especially on the affected side, and it takes me longer to turn thoughts into words. So I can use facebook, but I make so many typos that I might not make sense.
I've had one or two migraines with aura and no you couldn't post on fb about then when they are happening.
I also get migraines that last 60 hours which is pain on the left side of my head. Feel wretched with them and the pain is worse lying down but yes I can and have worked when suffering and stared at a computer all day. I have prescription naratriptian (sp) which fortunately shifts it. Lying down in a dark room or taking anything else wouldn't touch them.
"So I can use facebook, but I make so many typos that I might not make sense. "
Oh yes! I play World of Warcraft. I'm quite good now at avoiding when I have migraine or am experiencing the predrome/prodrome. Sometimes I'm really stubborn though, and even though I know it's terrible for me, I force myself to log on and chat to my friends.
They all know I'm getting a migraine because I type leki tshi and my words make no sense whatsoever. I've learned now to stop being quite so stubborn
aliciaflorrick weekend migraines happen a lot here too. There is a theory that relaxation is a trigger - if you're a working single mum of two with a dog, I'm not sure that weekends necessarily bring any relaxation, but could it be that you're getting a better night's sleep on a Friday night? I have always got migraines either on Saturdays or the day after some specific event (job interview, giving a talk, stressful time at work, sporting things).
Yabu, some people NEED to express it in some way. I've been in tears with my head in a pillow in a dark room with a migraine in agony but able to reach for my phone and google things like 'why won't this migrain stop' and while I'm there I have in the past done statuses about it
Also sometimes no matter what, you NEED to carry on with the day and can't be lying down in a dark room
I am not light sensitive with migraines, lots of people are but I am not, I have lots of neurological symptoms though which are quite severe and so going online is not my first priority, sleeping to get away from the feelings is, although I can work through a mild one or after the first day and have had to as I have enough time off as it is.
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