to ask for positive rsv hospitalization stories.

(43 Posts)
honeytea Thu 24-Jan-13 01:13:30

I know this is not the right place but I thought it was the place with the best chance of some answers at 2 in the morning.

My ds (5 weeks old) has been taken into hospital and diagnosed with ds virus sad

I am so unbelievably worried they rushed us from one childrens hospital to the bog one in an ambulance, he is doing ok, but all I have heard about rsv are negative things.

I am so worried he is going to die.

Does anyone know any positive rsv outcomes after a baby has been taken into hospital?

honeytea Thu 24-Jan-13 01:14:06

Rs virus not ds virus!

StuntGirl Thu 24-Jan-13 01:20:54

I don't have any advice or help, I just didn't want to read and run. Thinking of you and your little one, I hope everything will be ok. x

PignutSalamander Thu 24-Jan-13 01:23:51

Oh honey tea!
I know nothing about it I'm afraid but I feel for you. They look so fragile at that age but actually they are often surprisingly hardly.
The hospital staff will be doing everything they can.
Is he your first?
Think positive thoughts, I know that is easier said than done but you need to be as together as you positive as you possibly can.
What colour hair does he have?

PignutSalamander Thu 24-Jan-13 01:29:28

Is he considered to be high risk preemie, or other lung issues ?

LesbianMum Thu 24-Jan-13 01:33:44

Hi.
My little girl had RSV although she was 2yrs old at the time. She was taken into hospital for a couple of nights then released. She's absolutely fine.
I'm so sorry you and your little one are going through this. What are the doctors saying?

PignutSalamander Thu 24-Jan-13 01:35:50

Ok I've done a quick bit of research and in one study of
5000 cases, 99.42% ended happily.

He is going to be ok!
It is still really tough for you though, I'll be thinking of you.

honeytea Thu 24-Jan-13 01:42:01

Thank you for the very kind replies smile

Ds isn't a premie, quite the opposite he was 10 days late and 4.5 kg. The drs seem to think he will be ok, the nurse was very impressed that he has gained 100g since this morning. Ds thinks that eating is more important than breathing.

He has dark hair pignut but the roots are growing through blonde, I didn't realise how soft newborn hair was before I had him.

We are in a contagious illnesses room so my dp has been allowed to stay, he's asleep snoring away, I usually am so annoyed with his snoring keeping me awake but I'm so glad for it now.

They want me to put ds down in the fishbowl cot and go to sleep but I cant put him down it feels so wrong.

honeytea Thu 24-Jan-13 01:43:12

Lesbianmum I'm so pleased it went well for your little girl smile

honeytea Thu 24-Jan-13 01:46:14

The nurse said she had worked in this childrens hospital (the main children's hospital in stocky) and she had never known a baby to die from rsv. I think she was lieing, either that or being economical with the truth because the babies had died of pneumonia caused by rsv but not DirecTV rsv.

honeytea Thu 24-Jan-13 01:46:38

Stockholm not stocky

Bogeyface Thu 24-Jan-13 01:51:42

DS had RSV at 5 weeks, his breathing was so laboured that I called an ambulance and they blue lighted him. He was in an oxygen tent for 24 hours and was then fine. But seeing his lungs go down as his belly went up was the worst moment in my life, he was literally fighting to breathe, I can still see it now sad I totally understand how you feel, I didnt sleep for ....I dont know how long! Atleast 50+ hours as he couldnt be discharged until he had normal stats for 24 hours after the oxygen was removed. I didnt take my eyes off him unless I legged it to the loo and only then if my (then) H or my mum was there with him.

If he is on oxygen then he will be better in the cot but if not then hold him if you are both happy with that. I was terrified to put him down but knew enough (he was my 5th child) to keep an eye on him. When the consultant came round with the students he said to me "how is he doing?" and I said gave him Ds's stats, his oxygen uptake, everything and the consultant said "Oh, I'm, sorry I didnt realise you were a doctor" grin

Bogeyface Thu 24-Jan-13 01:55:01

Sweetheart, Pneumonia is not an automatic thing, its still rare. Anyone can get it, anytime after any illness, please please try to stay calm.

I know its hard, God knows I understand, but you wont help him or yourself by getting so upset and worked up. He is in the best place, you are with him, his daddy is snoring with him (how can they sleep through this btw? My ex did and I still dont get how he could!) and you have the nurses and doctors in yelling distance. He will be ok, he really will.

Take care xxx

Bogeyface Thu 24-Jan-13 01:58:51

If it helps, there is a picture of my little boy in my profile. My little ginga ninja a year ago smile

He was a chunky monkey when he was born too and now (aged 7) plays rugby on our towns childrens team!

LesbianMum Thu 24-Jan-13 02:03:32

Hang in there. Your baby will be okay. The doctors are positive and you're in the right place. It is horrible to have your child ill in hospital. When you see the doctor tomorrow tell him/her how worried and scared you are so they can reassure you.

madwomanintheattic Thu 24-Jan-13 02:07:43

Ds1 had rsv at 11 weeks. He's 11yo now.

He had to be nebulous end about five times a day which he fought like a tiger, and it was exhausting.

He was 16lbs at the time, and the paed was v happy that he was a 'fatso' as even if he lost a bit during the course of the virus, he had plenty of reserves...

(He had double pneumonia as a result of the rsv - we were warned that he may have some residual lung scarring and possibly asthma as a result, but nothing. He plays ice hockey, rock climbs, and is as strong as an ox.)

madwomanintheattic Thu 24-Jan-13 02:09:24

Nebulised, ffs. Fecking iPad.

madwomanintheattic Thu 24-Jan-13 02:10:08

He's going to be just fine. Honestly. This is very common.

MrRected Thu 24-Jan-13 02:10:59

My dd had RSV - she was 5 weeks early and was hospitalized on her due date. She was very poorly - she had a four day stint in ICU where she needed help breathing - as she went into full blown respiratory failyre. This was followed by another month in HDU.

When she was released - the paediatrician had on 2 x asthma pumps and singulair to protect her lungs - she has grown up without asthma (the risk is higherin children with severe/repeat RSV infections). We also kept her reasonably isolated until she was six months old on his recommendation.

If I can help - please feel free to PM me.

honeytea Thu 24-Jan-13 02:13:38

Bogey he's such a cutie! I'm going to mentally picture ds as a healthy smiling boy just like your ds smile

They are making me weigh ds before and after every breastfeed it isn't going so well because he just wakes up and screams when I weigh him and the only way he will settle is by feeding and then I have to weigh him again and he wakes up and we continue like that. They come on every 2 hours to check on him and give him oxygen if he needs it, I'd prefere if he was given oxygen all the time I'd know his lever were ok then now I'm looking for signs he is going into breathing distress again

Bogeyface Thu 24-Jan-13 02:28:31

Would he be weighed if you put you little finger in his mouth with some breast milk on? That settled DS when I had to weigh him, it was his "dummy" for several months.

He is a cutie isnt he? But I am biased! Thank you and I bet your little man is the king of gorgeousness smile

plummyjam Thu 24-Jan-13 03:24:59

I'm a doctor. A few years back I spent 6 months of my training doing paediatrics in hospital. Much of that time was over the winter so pretty much all we admitted to the ward were kids with RSV bronchiolitis. The rest had D+V. I remember the vast vast majority of RSV babies did great with a bit of oxygen. A few needed help with feeding via a tube - feeding is especially difficult for babies who are struggling to breathe. Most only stayed in hospital for a couple of days. Perhaps 1 or 2 needed extra breathing support via a breathing tube but they recovered and like your nurse I never saw any deaths from it. In fact, many babies I saw with the condition didn't even need to stay in hospital if their symptoms were mild. I know how worried you must be about your baby, it can be a serious illness but most kids will do really well once they get hospital treatment (which is really just oxygen, feeding and having an eye kept on them). He's in the right place getting the right treatment. Keeping my fingers crossed for you!

honeytea Thu 24-Jan-13 03:26:30

So many positive stories thank you so much for sharing, its hard to find the "my dc had rsv stayed a few days in hospital and then went home and all is fine" stories on the internet.

I really hope last night was the peak of the virus and ds continues to be stable.

He has a dummy so I will weigh him with that in, font know why I didn't think about that I'm loosing my mind, I dashed to the loo when we were in casualty and got to the loo and realised my vest was pulled right down under my breast displaying my grey nursing bra, luckily it was a children's casualty so hopefully all the parents who saw me probably understood.

honeytea Thu 24-Jan-13 12:42:03

Just a little update, ds is doing well feeding and shouting lots. They havr given him oxygen and his levels are good I just hope they stay that way.

The stories really helped in a very dark time x

PignutSalamander Thu 24-Jan-13 12:43:52

Hi honey tea,
How are you all this morn?
Hopefully that's the worst over, it really is hard watching them struggle for breath. I'm sure it fine to hold him close as long as he isn't supposed to be in an oxygen tent.
What a stressful time and with your first, so young as well. Pleased that they let you all stay.
Thinking of you

gasman Thu 24-Jan-13 12:52:24

RSV is really really common. I've looked after hundreds of children in my (relatively) short career with it. The vast majority do very well.

The immediate hospitalisation, machines that go ping, hormonal morass phase is awful. I've got friends who have done it with similarly aged children and it really isn't much fun. The do also tend to get worse before they get better and from your posting's today it sounds like you are in the 'getting better' phase.

The good news is my friends who have been where you are now have happy, bright thriving children and a 'wasn't it bloody awful' story to add to their parenting armoury.

A few children (and I mean a few) don't do well, do end up on PICU and need lots of invasive treatment. Some of that group do succumbbut they are VERY VERY VERY unusual and often have underlying health issues anyway.

Have an un-mumsnetty, un-mediccy hug.

Sirzy Thu 24-Jan-13 12:54:51

He will be fine, thankfully it sounds like his case although a bad one isn't seriously bad (if that makes sense)

My DS had a severe case of RSV at 8 weeks, he ended up in HDU on CPAP and completly nil by mouth for 5 days. However he is now a healthy happy 3 year old, he does have asthma which may or may not be linked but that's the only left over issue from it even when he was so poorly.

Hope your home soon x

EldritchCleavage Thu 24-Jan-13 13:02:45

5 days of oxygen, neb, tube feeding with DD at 4 months. She got better very quickly though. Still prone to chest infections, but nothing wrong with her lung function or capacity given how loudly she can bellow when she's cross with me.

Glad he's getting better Op. What a great job you've done feeding him and getting him the help when he needed it. Take a minute to know you're a great mum and your ds is a very lucky young man.

MichaelaS Thu 24-Jan-13 13:29:04

Sorry to hear about your son, glad he seems to be getting better now.

My DS1 was 16 weeks premature and had RSV several times. He was on oxygen anyway and usually just needed a bit more oxygen until he got better. The main problem with little babies is feeding - if they stop drinking milk they will get dehydrated and that is why the doctors like to keep them in hospital, and why they are asking you to weigh him before and after feeds. Breathing is usually okay (even if it looks really bad), they can desaturate down a long way before it is a problem (We don't even go to hospital until DS1 is below 92%). It always looks worse than it is.

I hope he recovers fast and you get home soon in the meantime try not to worry and take care.

Pleased to hear he's on the mend. How are you doing though? Have you been able to get any family support?

PignutSalamander Thu 24-Jan-13 14:43:50

X post. That's great honey tea.
Really pleased for you all
smile

thetigerwhocametoteax Thu 24-Jan-13 15:22:28

hello there ds2 was rushed into hospital 2 months ago, he was 14 weeks old, with rsv. the trip in the ambulance and the first day in hdu were utterly terrifying. he spent 2 days in hdu then 2 on a ward before being discharged. i found as soon as he got back on the boob feeding he turned a corner and got loads better. the whole ward was full of rsv babies and they all did fine. he's asleep on mylap now looking all chubby and rosy cheeked. please make sure you take care of yourself and get as much rest, fluids and food as poss as its very tiring - sleep went awful for weeks after. good luck!

bigbluebus Thu 24-Jan-13 15:59:15

My DD was diagnosed as being rsv positive when she had just turned 2. She has multiple disabilities from birth, is extremely prone to chest infections and immuno compromised and she survived rsv without hospitalisation (much to the GPs disgust, as he sent her in and they sent her home again! - but that's another story!)
I have spent more nights than I would care to count on childrens wards with DD over the years and at a certain time of the winter there is always a bay dedicated to babies with rsv. As others have said, most just need a bit of oxygen and sometimes help with feeding whilsts they get over it.
I'm sure your DS will be fine OP

honeytea Thu 24-Jan-13 20:52:19

So many lovely outcomes, I'm so pleased to hear how well your children are smile

Ds is still on his oxygen, they have turned it down bit by bit and he has been really stable with levels of 98/99 he is still on oxygen I'm not sure how much longer he will need it. He gets occasional episodes where he gets a blockage and he sounds wheezy and like he can't breath and his little chest and tummy work so hard for him to breath.

We were supposed to see a Dr about exercisers we can do to help get the slime up but they didn't have time to come and see us so if anyone remembers any tips I'd love to hear them, he's only 5 weeks but he has complete head control so upright positions might work, at the moment we are just making it up.

The ward is jam packed, the drs don't come to see us and the nurses don't come very often, one nurse said to me it's a good sign, if we don't get lots of attention it means they are not worried about us.

Sirzy Thu 24-Jan-13 20:58:24

They are right, but at the same time if you have any worries or questions don't hesitate to ask them.

stripyguys Thu 24-Jan-13 21:10:04

My little girl had it a few years ago, she was in overnight and discharged the next day. It is horrible to watch but your ds will be fine.xx

TruthSweet Thu 24-Jan-13 21:18:59

Honeytea - glad to hear your DS is doing better. It's so horrible watching them struggle to feed & breathe but they do get better and often it is incredibly quickly once they are on the mend.

The exercises you are talking about are probably these - a form of physio called percussion BUT I would wait for the Drs to show you how/when to do it. Nothing wrong with familiarising yourself with what you might be doing before you have to do it IYSWIM.

honeytea Thu 24-Jan-13 21:19:15

I think I am the patient the nurses giggle about, it is so hard to know when I need their help, my instincts say ds is in trouble when he's wheezing and his tummy and chest are working hard but I don't think there is anything they can do apart from give him oxygen till he gets better himself.

timetosmile Thu 24-Jan-13 21:32:21

Hi OP,

Hope your little one is doing OK.

As you have realised by now, the entire ward is probably full of babies and toddlers with RSV tonight! And the GPs surgeries are full of them too - it's the same every year!

Most babies just stay in a night or two to get over the worst of it and are then sent home, vastly improved, with shell-shocked and sleepless parents.

I worked on a paeds ward for a year and can't remember an otherwise healthy baby who didn't get totally better from it.

And DS also had it when he was 11 months and its much more scary as a parent than a member of staff but has been fine for the 12 years that have followed. x

BubaMarra Thu 24-Jan-13 21:43:44

Your baby will be fine smile Oxygen levels will vary depending on the level of mucus, so when they manage to cough out a big chunk of mucus, oxygen level will rise immediately. And perfectly healthy adults will have 98-99 oxygen levels, 100 is almost never seen! Small babies with rsv are kept in hospital just to keep an eye on them because they are so small and things can move quickly with them and more importantly to prevent dehydratation because they struggle to feed properly. RSV bronchiolitis is mainly a mechanical problem with their tiny little airways being blocked by mucus. There's really nothing to worry about. I know it's hard not to worry, but many winter babies cactch it early on, and around 90% of children by the age of 2.

honeytea Fri 25-Jan-13 03:44:50

We were allowed to skip weighing ds at night, he feeds constantly so she said he is clearly getting enough and we didn't have to weigh him.

The nurses recommended I co sleep with ds, they have sides on the adult beds so yiu can "safely" co sleep, there were gaps the size of ds's head and his oxygen tube was a stranglation risk. I blocked the gaps wealth a coatl and placed ds's tube out of the way, co sleeping is so cosy I don't co sleep I'm too afraid ti do it at home but Decided Tyler wasn't a high suffocation risk because mlhis oxygen goes directlbinto his,

tholeon Fri 25-Jan-13 06:03:48

If feeding well he is doing brilliantly, mine was on a ventilator for eight days - underlying health condition - he is a hale and hearty three year old now. Your baby will be fine x

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