In asking you to spit (especially if you are Jewish)?

(60 Posts)
Zipitydooda Sat 19-Jan-13 19:21:08

.. And if you're not.

A friend's mum is urgently seeking a bone marrow donor in the next 5 weeks: If you are under 50 and not yet on the bone marrow register, please make it your priority! There are various ways to do so, and you could save a life. If not my friend's mum then someone else.

If you've registered, but you're not absolutely certain that your details are correct, please call the organisation in your area and make sure. More info and easy links below:

If you are 16-30: and not on the Anthony Nolan stem cell register, please consider requesting a spit kit in order to send a sample of saliva in the post - it only takes a few minutes to do. More details can be found from the links here, including eligibility criteria: http://is.gd/Spit4Mum

If you are under 50: and able to give blood, please consider going to a blood donor centre or a local donor session and asking to have your stem cells screened at the same time, more details here: http://is.gd/Donate4Mum

If you are already on the register: please make sure your details are up to date, if you can't be found, you can't be a lifesaver, more details here: http://is.gd/Update4Mum

If you are on Twitter: please use the hashtag #Spit4Mum to spread the word.

Copying and pasting on my phone so I hope this comes out right.

NothingIsAsBadAsItSeems Sat 19-Jan-13 19:27:44

I always feel useless when people post things like this as I'm needle phobic sad I can help to spread the word though smile

Binkybix Sat 19-Jan-13 19:27:47

Thanks. I've often thought on joining this register. Do you know if the donation process is quite arduous? I have always been under the impression that it is.

MardyBraWouldDoEddieRedmayne Sat 19-Jan-13 19:29:38

Why Jewish?

Lilithmoon Sat 19-Jan-13 19:30:23

Bump smile

weegiemum Sat 19-Jan-13 19:30:40

I can't as I receive blood products as a regular treatment so can't donate (blood, marrow or organs). But happy to bump!

magimedi88 Sat 19-Jan-13 19:31:29

I'm over 50 so can't - but bumping.

Cant either as im underweight but will bump for you smile

MamaBear17 Sat 19-Jan-13 19:33:01

Already on the register. Both polishing my halo with this posting and giving it a bump x

Binkybix Sat 19-Jan-13 19:33:28

Guessing its more likely there will be a match because of higher possibility of sharing (in ancestral sense) DNA from common area of origin. I have DNA stretches for immune function that were fair typical of middle eastern origin (although am not Jewish)

EuroShagmore Sat 19-Jan-13 19:35:24

This was on the Beeb earlier (if it is the same one). Jewish donor is the most likely match.

Sarahplane Sat 19-Jan-13 19:38:35

I'm trying to find the details but the links don't work.

Zipitydooda Sat 19-Jan-13 19:41:23

Thanks everyone, yes a Jewish donor is much more likely to be a match. I think there are more specifics of her ancestry on the links too.

That's not to say only Jewish people should register. We all should it's just the time to find a donor for my friend's mum is very short.

Being on the register doesn't require using needles hence the spit4mum hash tag link. If you were to donate then yes you would encounter a needle probably.

WelshMaenad Sat 19-Jan-13 19:43:43

I can't give blood as a diabetic, will they still be able to use my bone marrow?

Zipitydooda Sat 19-Jan-13 19:44:03

Sorry the links don't work. I don't know how to do links from my phone.

If you google spit4mum you should get taken in the right direction!

Zipitydooda Sat 19-Jan-13 19:49:46

Welsh

Unfortunately you can't donate if you're diabetic unless it's controlled by diet alone. You can help to spread the word though, thanks.

NothingIsAsBadAsItSeems Sat 19-Jan-13 19:54:07

Oh, I always assumed that you only registered if you were able to donate and that if you were ever needed as a donor a fairly large needle was required? If there's no needle then I'll send a sample smile

fridayfreedom Sat 19-Jan-13 20:01:22

I'm already on the list as is DH. We both got asked to donate further samples but didn't get chosen to donate as they had better matches.
The way of donating marrow has changed since we first registered, can't remember the exact details but it is now easier.
My thought is that I would want someone to donate if it was me or my child so I should be prepared to do it myself

Zipitydooda Sat 19-Jan-13 20:01:52

Maybe if you were ever a match they could hypnotise you into not minding needles? wink
I've been on the register for over 20yrs and not been a match for anyone.

NothingIsAsBadAsItSeems Sat 19-Jan-13 20:12:10

Zip - If they could I'd be there in a heart beat smile I'll have look into hypnotherapy

Iteotwawki Sat 19-Jan-13 20:20:01

From rusty memory, a GA can be required to harvest bone marrow. And it's perfectly possible to have one of those without needles (you breathe in the anaesthetic and they put needles in when you're asleep). Lots of my patients are needlephobic!

FortyFacedFuckers Sat 19-Jan-13 20:33:05

I'm already registered a close family member was lucky to get a match last year.

Zipitydooda Sat 19-Jan-13 20:33:14

Shamelessly bumping .... Never done that before.

meditrina Sat 19-Jan-13 20:36:06

I just saw the "sign and spit" on the news.

Really glad to see a thread about it here. I'm too old, but really hope lots of people see this and consider signing up.

StuntGirl Sat 19-Jan-13 20:36:24

Oh what I shame, I just tried to apply but I'm just over the weight limit sad When I've lost a few more lbs I'll definitely sign up, for now all I can do is pass the info on I guess.

I really hope your friend's mum finds a donor soon thanks

I'm pregnant at the minute so I'm guessing I can't do it same as giving blood?
Does anyone know how long after you have to wait?

Zipitydooda Sat 19-Jan-13 20:48:44

Jazz
If you are pregnant you may join the register but will not be made active until your baby is one year old.

You can also consider donating your baby's cord blood which is full of stem cells. It depends where you give birth whether they do it. I have signed up to do that when pregnant but the timing of my labours has always been such that no one was around to collect the cord blood.

Thanks everyone!

Zipitydooda Sat 19-Jan-13 20:49:55
BigStickBIWI Sat 19-Jan-13 20:50:53

Why under 50?

meditrina Sat 19-Jan-13 20:51:29

Here's another useful link - to the Blood Transfusion Service about how they register people when they donate blood.

NippyDrips Sat 19-Jan-13 20:52:49

I am interested in this, I am breastfeeding can I still give blood/marrow?

SirBoobAlot Sat 19-Jan-13 21:02:03

I can't donate due to my medical conditions sad I emailed them to check as my conditions aren't listed, and my blood tests are always clear, but I'm not allowed. Will spread the word though.

Binkybix Sat 19-Jan-13 21:47:50

I'm pregnant so would be no good for this case, but will sign up for the future.

How do you go about donating the cord??

kittyandthegoldenfontanelles Sun 20-Jan-13 00:05:12

Already on the register. smile

Good luck finding match

topsyturner Sun 20-Jan-13 00:06:14

I wish I could , but barred as have cancer .
Will bump for you though x

kittyandthegoldenfontanelles Sun 20-Jan-13 00:07:31

After 6 months breastfeeding you can donate blood again. Not sure about marrow though.

Bumping smile I can't donate blood or bone marrow thanks to anaemia and possible latex allergy, but I bug my family and friends about it on a regular basis smile

Bump bump bump!

LadyIsabellaWrotham Sun 20-Jan-13 00:12:14

On the list already, though not Jewish so unlikely to help your friend. Wishing her the best of luck.

I am registered as a bone marrow donor, but am in Ireland, so am of no help to your friend's Mum. I do, however, have lots of family and friends in the UK, so will pass this on to them and urge them to join the Anthony Nolan register. I really hope your friend's Mum finds a donor soon.

scripsi Sun 20-Jan-13 01:02:14

Was hoping to sign up for this as I have some Jewish heritage, but see that medical exclusions include sciatica! Bumping this up in any case

courgetteDOTcom Sun 20-Jan-13 02:34:15

I always feel bad that I have to say no sad I'm autoimmune and a thrombophiliac so I can't do anything like this.

Hope your friend finds a match soon.

Naoko Sun 20-Jan-13 02:52:54

Shadows - I believe most of these registers are now worldwide and exchange information so that if there is someone abroad who could help, the match can be made, so who knows, maybe you could be smile

Sadly I too am excluded on medical grounds (I even emailed AN Trust in the past to check and a reply came back that effectively said 'absolutely not, harvesting the bone marrow would be far too dangerous for you' - joint/spinal problems sad ) but posting to bump!

Mimishimi Sun 20-Jan-13 07:51:07

Unfortunately I don't live in the UK but on the anthonynolan website, it says that you should be aged under 30, not 50. Surely that would exclude so many potential donors (donating randomly is not something that would have occurred to me in my twenties)? Unfortunately we have had a sad case here in HK where the husband of a music teacher at my DD's school has been unable to find a donor. I will look into joining the Australian register. My mum had a kidney transplant due to polycystic kidneys and only the tragic death of a seventeen year old in a car accident saved her life. sad

charlieandthechocolatecake Sun 20-Jan-13 10:59:42

I just registered. However I'm not Jewish and I have a 6 month old. I will encourage others to do the same.

scripsi Sun 20-Jan-13 12:09:32

I was just chatting to family (trying to press gang them into using our Jewish heritage) and one asked whether they could extend the appeal to Israel? But if it is a worldwide register perhaps that is already happening.

babybarrister Sun 20-Jan-13 13:34:12

I looked into this in detail a while ago to discover i am Too old for Antony Nolan which came as a shock to me so I am not quite sure what the point is of the blood register as according to the Anthony Nolan website the transplants would not work v well with an older person anyway ...

Halogen stand corrected tho as I did want to participate

Zipitydooda Sun 20-Jan-13 21:02:15

Thanks everyone for your support.

namechangecity Sun 20-Jan-13 22:27:09

ok why is it only under 30s that can do stem cells but under 50s can do the bone marrow? I am confused.

And where are the weight restrictions section (want to check if I am too fat). I am over 30 so think my only option is to go to blood service - but please can someone confirm?

Tincletoes Sun 20-Jan-13 22:31:04

Bumping - one of my friends too, and as I am too old this is all I can do.

jjuice Sun 20-Jan-13 22:35:51

I can't as I had a blood transfusion. I hate that I can't give back but I can bump for you.

Spink Sun 20-Jan-13 22:43:04

I think the AN age cut off is lower than the British Bone Marrow registry, may be for cost reasons (because you can only donate up to a certain age, they need people to be eligible for as long as poss, perhaps?)

Anyway, dh is too old for AN but is registering with BBM, & all the registers are pooled when searching for matches afaik, so makes no difference who you register with.

I joined AN a couple of months ago & I've just been asked to give further samples as I may be a match for someone. Here's hoping.

Spink Sun 20-Jan-13 22:45:18

http://www.nhsbt.nhs.uk/bonemarrow/qa/index.asp%23howcan
The link for the BBM registry

Utterlylostandneedtogo Sun 20-Jan-13 22:53:37

I can't donate due to severe sciatica sad will spread the word tho

TheFallenNinja Sun 20-Jan-13 23:05:56

I visited the Anthony Nolan labs. It's utterly mind blowing the things they do.

breadandbutterfly Sun 20-Jan-13 23:09:53

Can't donate for multiple reasons at the moment - if put on lots of weight will look into it later.

Was hoping to help as am Jewish but not able to. hope someone can be found.

Zipitydooda Mon 21-Jan-13 09:40:55

Lots of people have asked questions about the criteria especially age. I'm not an expert and have no professional links to Anthony Nolan organisation but from talking to someone who worked for them, it seems it has a lot to do with costings.

It costs money to test people and put them on the register so AN restrict entrants to those most likely to match someone and be able to provide stem cells. The downside of this is that when someone from a minority group needs a match there is much less chance of them finding one.

sarahbanshee Mon 21-Jan-13 09:44:35

My husband and I have both been on the register since university (mumble mumble years ago) and he has donated once. Straightforward, all but painless, out-patient procedure and he only needed three days off work including the day of the donation itself. He would gladly do it again and having seen it I would be very happy to donate if matched.

thegreylady Mon 21-Jan-13 10:36:33

I can't because of my age and my cancer treatment sad

Pigsmummy Mon 21-Jan-13 11:05:26

I am a blood donor and on the bone marrow list but having recently had a babu I can't donate either currently sorry.

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