I have started and deleted this several times in the last few days - this could be a long one - brace yourselves.
My mother has a very extreme Narcissistic Borderline Personality Disorder. In a nutshell, she was very physically and emotionally abusive to me when I was growing up - and was manipulative and clever and nobody ever believed me. (Until the last few years, I was very much the scapegoat and the black sheep of the family. Have had many apologies since then....)
My family moved from Australia to the Netherlands seven years ago. (DH, DD 12, B/G Twins 10 & me) Soon after that, my dad was diagnosed with Motor Neurone Disease and Mum loved it. Mum got lots of support and was allowed to be a martyr for nursing him for three years - lots of attention, etc. when in reality she spent most of her time out on the verandah reading e-books and chain smoking, or roughing him up, verbally abusing him and telling him that she couldn't wait until he died. (We suspect she sped things up at the end, but that's another matter). She's an ex-nurse and loved being told how great her nursing skills were, and how lucky Dad was to have had her, etc....
Soon after this she was diagnosed with Lung Cancer and Emphysema and has had lots of life-threatening medical experiences - mostly because she has a lifelong history of anorexia, so wouldn't eat and is non-compliant with medical advice - so does stupid things with medication, etc...
Up until the last year she had people enthralled with lots of very creative stories about her illnesses (they got so grandiose, and my favourite was "It's a rare form of TB I picked up in Bulgaria at a rabbit farm") I wouldn't be surprised if she said that being sick has been the best time in her life as she loves to be the centre of attention. (My husband and I crack ourselves up with this joke - How many Justilou's Mums does it take to change a lightbulb? Just the one - she stands on a chair and the world revolves around her until it's done - but it's never done properly) As she has not kicked the bucket, people's interest has waned, and their attention has petered out - so of course it's time she got really sick, isn't it?
I have flown back from the Netherlands to Australia to her deathbed five times so far. (Most have actually been genuine medical emergencies, but I am fairly sure that one was a cry for attention... Regardless of the time spent away from my family and the enormous cost involved, she's never been remotely grateful. None of that has been acknowledged.)
The last time I was there was about a month ago - when she was admitted to hospital and was very weak, etc..... She was very clever and was discharged by the locum doctor who believed her when she lied and said that I'd moved back to be with her in her last days - and it was a long weekend, so the discharge coordinator wasn't there to assess her needs. Anyhow, after leaving my husband to manage with the three kids and dog while I was gone, (being Cinderella for Mum - who has not mellowed at all with age or illness) nothing much was changing and she wasn't allowing any support systems to be set up for her, so the community nurse coordinator said I should go home. I arrived on Saturday night and by Monday morning she was back in hospital where she's been for about a month.
While in hospital this time her symptoms deteriorated, and it's been discovered that she has now got a brain tumour. She is weirdly gleeful about it. Most disturbing. It's untreatable and she's dying faster than she was with the lung cancer/emphysema thing.
Now - here's where it gets more complicated.
We are moving back to Australia. As you know, it's a rather large continent. The city we are moving to is two hours flight away from where Mum lives. We are leaving here next Thursday. (SO MUCH TO DO!!!)
She has just managed to get discharged from hospital and told the palliative care team there that my Aunt (who is very kind, and she treats like crap) is more than happy to move in with her until we all arrive. We had agreed to spend Christmas with her, but not move in!!! My aunt has set the community care nurses straight on this situation and my aunt and Mum's cousin (who she also treats like crap) are tag-teaming until we arrive.
My conflict is that I am torn between being a good, loving daughter and a positive example for my kids and not wanting them to be at Mum's place with all this going on. (I can't be there for them AND Mum while she's like this - and they can't do anything at her place.) Mum has made her feelings on going into a nursing home or hospital to die very clear, but has no empathy for the people she's affecting by being at home. I am fantasising about someone calling an ambulance and sending her off to hospital or arriving in Australia to find out that she'd died already. Siiiigh. It would be so much better if she just shuffled off now. *Massive guilt trip.
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AIBU?
AIBU - to not know how to feel about this , let alone discuss it....
45 replies
justilou · 16/11/2016 10:18
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